Ambulatory 5FU infusion pumps: Patient perceptions and quality of life.

2019 ◽  
Vol 37 (4_suppl) ◽  
pp. 663-663
Author(s):  
Munaf Al-Kadhimi ◽  
Marisa E. Hill ◽  
Elita Fine ◽  
Matthew Eric Adess ◽  
Ari Polish ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Interactions ◽  
Patient Perceptions ◽  
Medical Team ◽  
Gastrointestinal Cancers ◽  
Infusion Pumps ◽  
Oncology Nurse ◽  
Infusion Device ◽  
Paper Questionnaire

663 Background: Infusional-5-fluorouracil (inf-5FU), administered over 48 hours every 2 weeks, is frequently prescribed for the treatment of gastrointestinal cancers. A portable infusion device (ID) may be used for this purpose to enable treatment at home. At our institution, patients are educated by an oncology nurse as to what to expect, and how to function once they leave the infusion center. However, there is no formal process in place to report their experience and to record and analyze the results. The intended goal of this study was to accomplish this, such that the data could improve the education and experience of future patients. Methods: After verbal consent, a sequential cohort of patients, who had received 2 or more treatments with inf-5FU for gastrointestinal cancer, was invited to complete a de-identified paper questionnaire concerning their experience. Eleven specific questions suggested by the GI group were included, with an opportunity to add comments. The surveys were then collated and reviewed. Results: See table. Conclusions: While most patients felt well prepared by their medical team as to what to expect from the ID (93.1%), ≥ 25% had issues with bathing (73.6%), sleep (37.5%), exercising (30.6%), intimacy (26.4%), social interactions (25%) and anxiety (25%). These insights will be used to improve the education of future patients and a second assessment will follow. 72/72 patients approached over 6 months completed the survey with results below: [Table: see text]

scholarly journals Three Strategies for Describing Social Interactions of Adolescents in a Multicultural Environment—Indicators for the Quality of Life Research

2021 ◽  
Vol 18 (15) ◽  
pp. 8166
Author(s):  
Alicja Szerląg ◽  
Arkadiusz Urbanek ◽  
Kamila Gandecka
Keyword(s):  
Quality Of Life ◽  
Social Interactions ◽  
Social Relationships ◽  
Social Relations ◽  
Living Environment ◽  
Life Assessment ◽  
Multicultural Environment ◽  
Multicultural Community ◽  
The Social

Background: The analysis has involved social interactions in a multicultural environment. The social context has been defined by the Vilnius region (Lithuania), where national, religious, and cultural differences exist across generations (multicultural community). The space of “social relationships”, as one of the modules of the WHO quality of life assessment, has been studied. An innovation of the research has been related to the analysis of the phenomenon of community of nationalities and cultures as a predictor of quality of life (QoL). The social motive of the research has been the historical continuity (for centuries) of the construction of the Vilnius cultural borderland. Here, the local community evolves from a group of many cultures to an intercultural community. Interpreting the data, therefore, requires a long perspective (a few generations) to understand the quality of relationships. We see social interactions and strategies for building them as a potential for social QoL in multicultural environments. Methods: The research has been conducted on a sample of 374 respondents, including Poles (172), Lithuanians (133), and Russians (69). A diagnostic poll has been used. The respondents were adolescents (15–16 years). The research answers the question: What variables form the interaction strategies of adolescents in a multicultural environment? The findings relate to interpreting the social interactions of adolescents within the boundaries of their living environment. The description of the social relations of adolescents provides an opportunity to implement the findings for further research on QoL. Results: An innovative outcome of the research is the analysis of 3 interaction strategies (attachment to national identification, intercultural dialogue, and multicultural community building) as a background for interpreting QoL in a multicultural environment. Their understanding is a useful knowledge for QoL researchers. The data analysis has taken into account cultural and generational (historical) sensitivities. Therefore, the team studying the data has consisted of researchers and residents of the Vilnius region. We used the interaction strategies of adolescents to describe the category of “social relationships” in nationally and culturally diverse settings.

scholarly journals Remote Monitoring of Patients with COVID-19 after Hospital Discharge with Connected Health Platform: Outcomes and Quality of Life

2020 ◽  
pp. 1-5
Author(s):  
César Morcillo Serra ◽  
César Morcillo Serra ◽  
Domingo Marzal Martín ◽  
Jorge Velázquez Moro ◽  
José Francisco Tomás Martínez
Keyword(s):  
Quality Of Life ◽  
Oxygen Saturation ◽  
Hospital Discharge ◽  
Remote Monitoring ◽  
Vital Signs ◽  
Medical Team ◽  
Mobile Phone Application ◽  
Connected Health ◽  
Video Consultation

Background: Telemonitoring with applications and connected devices facilitates a more accessible and efficient attention. Its implementation has been accelerated thanks to the pandemic by COVID-19, where they have allowed the continuity of care. Objective: To evaluate the efficacy of a remote monitoring platform for the outpatient follow-up after hospital discharge by COVID-19. Methods: Prospective observational study of patients discharged from the hospital with COVID-19 infection between March 23 and May 25, 2020, who were followed for one month with the Connected Health telemonitoring platform. The mobile phone application connected to a pulse oximeter, allowed to measure vital signs and answer health questionnaires (EQ5D3L and CAT) daily, and alert the medical team that could be contacted by video consultation. Results: 95 patients (64% male) with a mean age of 54 (SD 26-81) years were included. The application allowed the detection of alerts for pain (80% of patients) and a decrease in oxygen saturation (12%). No patient required hospital readmission or presented complications. The application allowed strict monitoring of symptoms and quality of life. The main symptom was severe pain (59% of patients) followed by anxiety or depression (25%). The average state of health was 65 (SD 20-100). COVID-19 caused a low impact on the quality of life of 62% of the patients, although 8% reported a significant limitation, due to shortness of breath and leaving the house. Conclusion: telemonitoring allows a safe remote monitoring of patients after hospital discharge by COVID-19. The Connected Health application has allowed the measurement of oxygen saturation, symptoms and quality of life, and the detection and management of alerts by the medical team through video consultation.

Who Is My Neighbor?

2016 ◽  
Author(s):  
Nancy L. Rosenblum
Keyword(s):  
Quality Of Life ◽  
Social Interactions ◽  
Moral Norms ◽  
Physical Proximity ◽  
The World ◽  
At Home

This chapter poses the foundational question, “who is my neighbor?” Proximity to home is essential, but one can count neighbors as those who affect the quality of life at home, with whom people have repeated encounters. Neighbors should not be confused with strangers or with intimates and friends. Commonplace references to globalization, the valorization of cosmopolitanism, universal moral norms that often seem to float high off the surface of everyday relations, media that bring images and voices from across the world, tempt people to understate the significance of place. However, a pair of facts—physical proximity and proximity to home—has a bearing on all the interactions and makes encounters among neighbors a different animal than social interactions in other settings, and certainly different than relations among friends or citizens.

Anesthesia in the Radiation Oncology Suite

2011 ◽  
pp. 143-150
Author(s):  
Eric A. Harris ◽  
Keith Candiotti
Keyword(s):  
Quality Of Life ◽  
Primary Care ◽  
Radiation Oncology ◽  
Care Physician ◽  
Medical Team ◽  
Multimodal Approach ◽  
Radiation Oncologist ◽  
Vital Component ◽  
Developed World

Cancer continues to be a leading cause of death in the developed world, with physicians and scientists constantly devising new weapons to combat it. Chemotherapy, surgery, nutrition, and holistic medicine all have a place in the multimodal approach that can prolong longevity and ameliorate quality of life. As part of this armamentarium, radiation therapy (XRT) has proven to be a safe and effective technique for the management of various malignant (and occasionally nonmalignant) lesions. XRT can be used for both curative and palliative purposes; in the latter case, patients benefit from decreased pain, preserved organ function, and the maintenance of lumen patency in hollow organs.1 The medical team, led by a radiation oncologist, often includes a physicist, a dosimetrist, several radiation therapists (technologists), and the patient’s primary care physician.2 Anesthesiologists are increasingly being asked to join this team, as our services are recognized as a vital component for patient safety and comfort.

scholarly journals Quality of life of patients with gastrointestinal cancers undergoing chemotherapy

2018 ◽  
Vol 27 (7) ◽  
pp. 1865-1876 ◽  
Author(s):  
Ilufredo Y. Tantoy ◽  
Bruce A. Cooper ◽  
Anand Dhruva ◽  
Janine Cataldo ◽  
Steven M. Paul ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Gastrointestinal Cancers

Individual attributions of living longer with HER2+ metastatic breast cancer: Findings from a community web-based survey.

2014 ◽  
Vol 32 (30_suppl) ◽  
pp. 197-197 ◽  
Author(s):  
Musa Mayer ◽  
Matthew Sussman ◽  
Anthony Masaquel ◽  
Tripthi Kamath ◽  
Catherine Lai ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Metastatic Breast Cancer ◽  
Metastatic Breast ◽  
Medical Team ◽  
Inclusion Criteria ◽  
Web Based ◽  
The Right ◽  
Positive Outlook

197 Background: Advances in targeted therapy have led to an increase in the median overall survival in patients with HER2+ metastatic breast cancer (MBC). However, patient attributions related to living longer have not been studied. Methods: A one-time, web-based survey was administered through multiple US-based breast cancer organizations. The inclusion criteria were being female, age 18+, having HER2+ MBC, and living in the US. The surveys included health related quality of life (HRQL), symptom burden, activities of daily living, satisfaction with medical care, work productivity, and attributes of living longer. To assess beliefs about length of survival with HER2+ MBC, participants were asked to rate the importance of 16 items. Descriptive results were stratified by time since metastatic diagnosis and HRQL. Results: Of 560 attempted surveys, 365 (65%) participants met inclusion criteria. Mean (SD) age was 53.6 (10.5) years, 93% were white, and 27% reported having participated in a clinical trial. 59% of respondents reported living ≥4 years since HER2+ MBC diagnosis. Common reasons patients gave for living longer included: choosing the right doctor/medical team (91%), having a positive outlook on life (79%), and learning about the disease or treatments (79%). Women with <4 years since HER2+ MBC diagnosis were more likely to report having a positive outlook on life (85% vs 76%), using complementary and alternative medicine (45% vs 36%) and exercising regularly (74% vs 66%) compared with those having ≥4 years since diagnosis. Women reporting a better compared with a poorer HRQL reported more frequent regular exercise (73% vs 49%) and more often had a positive outlook on life (86% vs 64%). Conclusions: To our knowledge, this is the first study of women with HER2+ MBC and their attributions about length of survival. Having the right medical team, remaining positive, and being educated about the disease and its treatments were most important to participants. Women reporting better quality of life were more likely to report multiple attributions of living longer. HRQL and patient perceptions about their survival are important factors that should be considered in providing patient-centered care.

scholarly journals The Nursing Dimension of Providing Palliative Care to Children and Adolescents with Cancer

2012 ◽  
Vol 6 ◽  
pp. CMPed.S8208 ◽  
Author(s):  
Sharron L. Docherty ◽  
Cheryl Thaxton ◽  
Courtney Allison ◽  
Raymond C. Barfield ◽  
Robert F. Tamburro
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Children And Adolescents ◽  
Pediatric Oncology ◽  
Clear Understanding ◽  
Curative Therapy ◽  
Oncology Nurse ◽  
Integral Role ◽  
Relief Of Suffering

Palliative care for children and adolescents with cancer includes interventions that focus on the relief of suffering, optimization of function, and improvement of quality of life at any and all stages of disease. This care is most effectively provided by a multidisciplinary team. Nurses perform an integral role on that team by identifying symptoms, providing care coordination, and assuring clear communication. Several basic tenets appear essential to the provision of optimal palliative care. First, palliative care should be administered concurrently with curative therapy beginning at diagnosis and assuming a more significant role at end of life. This treatment approach, recommended by many medical societies, has been associated with numerous benefits including longer survival. Second, realistic, objective goals of care must be developed. A clear understanding of the prognosis by the patient, family, and all members of the medical team is essential to the development of these goals. The pediatric oncology nurse is pivotal in developing these goals and assuring that they are adhered to across all specialties. Third, effective therapies to prevent and relieve the symptoms of suffering must be provided. This can only be accomplished with accurate and repeated assessments. The pediatric oncology nurse is vital in providing these assessments and must possess a working knowledge of the most common symptoms associated with suffering. With a basic understanding of these palliative care principles and competency in the core skills required for this care, the pediatric oncology nurse will optimize quality of life for children and adolescents with cancer.

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