scholarly journals Preditores da qualidade de vida numa amostra de mulheres com cancro da mama

2015 ◽  
Vol 33 (1) ◽  
pp. 39-53 ◽  
Author(s):  
Helena Sousa ◽  
Leonor Lencastre ◽  
Marina Guerra

ResumoObjetivos: Caracterizar as variáveis alexitimia, espiritualidade (dimensão crenças espirituais/religiosas e dimensão esperança/otimismo), assertividade e qualidade de vida de mulheres com cancro de mama.Método: A amostra é composta por 85 mulheres com cancro de mama de um Hospital do Grande Porto, com uma média de 47 anos e maioritariamente casadas. As doentes foram avaliadas através de 6 instrumentos de autopreenchimento: Questionário Sociodemográfico e Clínico; Hospital Anxiety and Depression Scale (HADS); Escala de Alexitimia de Toronto (TAS-20); Escala de Avaliação da Espiritualidade; Escala de Assertividade de Rathus e The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQC-30, v.3.0). Resultados: Os resultados indicam que a alexitimia se correlaciona de forma negativa com a dimensão esperança/otimismo e com a assertividade e que estas três variáveis têm influência na qualidade de vida. Mostram ainda a existência de uma correlação positiva entre a idade e a qualidade de vida global, bem como uma correlação negativa do número de anos de escolaridade com a alexitimia e com a dimensão crenças. O modelo preditor da qualidade de vida obtido exclui a influência da assertividade e mostra o impacto negativo da alexitimia e a influência positiva da dimensão esperança/otimismo na qualidade de vida de mulheres com cancro de mama, mesmo depois de controladas as variáveis ansiedade e depressão.

2021 ◽  
Vol 39 (1) ◽  
pp. 77-91
Author(s):  
Cátia Andreia Clara ◽  
Sara Otília Marques Monteiro ◽  
Ana Cláudia Pereira Bártolo

Lung cancer (LC) is one of the most common types of cancer disease worldwide. Studies in the field show that the appearance of a pathology of this form causes changes not only in the patient’s life, namely psychological problems, functional limitations and poorer health due to the clinical consequences of treatments, but also in their family, where caregivers often face the challenge of providing long-term daily care that induces a physical, psychosocial and financial burden (Borges et al., 2017; Hewitt et al., 2003; Tan et al., 2018). The main objective of the present study is to compare and relate the two groups (patients and caregivers) considering the quality of life (QoL) and symptoms of psychological distress (anxiety and depression). The total sample consisted of 30 patient/caregiver dyads. The instruments used were: Hospital Anxiety and Depression Scale; European Organization for Research and Treatment of Quality of Life Questionnaire (EORTC QLQ C-30) and its specific module for lung cancer (LC13); Caregiver Oncology Quality of Life Questionnaire (CarGOQoL) and Zarit Burden Interview Scale (ZBI). The results suggest the influence of depressive symptomatology on patients’ QoL [F(1)=6.390; p<0.05] and depressive and anxious symptomatology and burden on caregivers’ QoL [F(3)=7.815; p<0.001]. A positive association was found between depressive symptomatology of patients and caregivers (r=0.458; p=0.011) and differences in anxious symptomatology were also observed, with a higher result in the patient’s group.


2019 ◽  
Vol 11 (2) ◽  
Author(s):  
Carlos Queiroz do Nascimento ◽  
Edilma Fernandes Fireman ◽  
Sônia Oliveira Lima ◽  
João Araújo Barros-Neto

OBJETIVO: Comparar a percepção da qualidade de vida (QV) e a presença de sintomas ansiosos e depressivos de pacientes em tratamento quimioterápico, usuários de um hospital público e de um privado na cidade de Maceió/AL.MÉTODOS: Estudo do tipo transversal observacional, realizado com pacientes em tratamento oncológico com quimioterápicos em um hospital público e outro privado de Maceió no período de novembro de 2015 a julho de 2016. A QV foi avaliada por meio do protocolo European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire (EORTC) e a presença de sintomas ansiosos e depressivos foram observados pela Escala Hospital Anxiety and Depression (HAD). Os dados coletados foram organizados em banco de dados eletrônicos e analisados quantitativamente por meio do software estatístico Statistical Package for Social Sciences (SPSS), respeitando a natureza de distribuição das variáveis estudadas.RESULTADOS: A amostra constituiu-se de 65 pacientes, 33 (50,9%) foram atendidos em hospital conveniado ao Sistema Único de Saúde (SUS) e 32 (49,1%) no hospital particular. A média da idade foi de 54,2 anos (±11,8 DP), não havendo diferença entre os grupos (p=0,184). A maioria da amostra foi do sexo feminino (67,7%). Avaliando a frequência de indivíduos com sinais de ansiedade, observou-se que o grupo de indivíduos atendidos através do convênio particular sofre com maior possibilidade de apresentar sinais de ansiedade em comparação com o grupo atendido pelo convênio SUS (n=26, 81,2% versus n=7, 21,2%; respectivamente) (p<0,001). A frequência de indivíduos com sintomas depressivos foi maior no grupo atendido pelo convênio particular (n=27, 84,3% versus n=7, 21,2%; respectivamente) (p<0,001). Nas funções física, cognitiva e social, a média foi de 73,2 pontos para pacientes do SUS e 62,6 pontos para pacientes atendidos em hospital particular (p=0,005). Nas escalas de sintomas, a média foi de 29,7 para pacientes do hospital público e 34,9 para clientes do hospital particular (p = 0,043).CONCLUSÕES: A doença e o tratamento quimioterápico parecem exercer impacto mais negativo sobre a QV dos pacientes em tratamento pelo convênio particular. Entretanto, a presença de sintomas ansiosos e depressivos foi bastante frequente nos usuários de ambos os serviços hospitalares.


2020 ◽  
Vol 28 (11) ◽  
pp. 5469-5478
Author(s):  
Yemataw Wondie ◽  
Andreas Hinz

Abstract Purpose Cancer is of increasing prevalence in less-developed countries. However, research on the patients’ quality of life (QoL) in these countries is very limited. The aim of this study was to examine QoL of cancer patients in Africa. Method A sample of 256 cancer patients treated in an Ethiopian hospital was examined with the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire EORTC QLQ-C30, the Multidimensional Fatigue Inventory, and the Hospital Anxiety and Depression Scale. A group of 1664 German cancer patients served as a comparison group. Results Most of the scales of the EORTC QLQ-C30 showed acceptable reliability in the Ethiopian sample. Compared with the German cancer patients, the Ethiopian patients showed lower QoL in most dimensions, especially in financial difficulties, physical functioning, pain, and appetite loss (effect sizes between 0.52 and 0.75). Illiteracy, tumor stage, and treatment (surgery and chemotherapy) were associated with QoL in the Ethiopian sample. QoL was strongly correlated with fatigue, anxiety, and depression. Conclusion The EORTC QLQ-C30 is a suitable instrument for measuring QoL in Ethiopia. The detriments in QoL in the Ethiopian patients indicate specific cancer care needs for the patients in a developing country.


Author(s):  
Kristina Holmegaard Nørskov ◽  
Dorthe Overgaard ◽  
Jannie Boesen ◽  
Anne Struer ◽  
Sarah Elke Weber Due El-Azem ◽  
...  

Abstract Purpose This study investigated the feasibility of patient ambassador support in newly diagnosed patients with acute leukemia during treatment. Methods A multicenter single-arm feasibility study that included patients newly diagnosed with acute leukemia (n = 36) and patient ambassadors previously treated for acute leukemia (n = 25). Prior to the intervention, all patient ambassadors attended a 6-h group training program. In the intervention, patient ambassadors provided 12 weeks of support for patients within 2 weeks of being diagnosed. Outcome measures included feasibility (primary outcome), safety, anxiety, and depression measured by the Hospital Anxiety and Depression Scale, quality of life by the Functional Assessment of Cancer Therapy–Leukemia and the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire, and symptom burden by MD Anderson Symptom Inventory, the Patient Activation Measure, and the General Self-Efficacy Scale. Results Patient ambassador support was feasible and safe in this population. Patients and patient ambassadors reported high satisfaction with the individually adjusted support, and patients improved in psychosocial outcomes over time. Patient ambassadors maintained their psychosocial baseline level, with no adverse events, and used the available support to exchange experiences with other patient ambassadors and to manage challenges. Conclusion The patient ambassador support program is feasible and has the potential to be a new model of care incorporated in the hematology clinical care setting, creating an active partnership between patients and former patients. This may strengthen the existing supportive care services for patients with acute leukemia. Trial registration NCT03493906


2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Lucía Dafauce ◽  
David Romero ◽  
Carlos Carpio ◽  
Paula Barga ◽  
Santiago Quirce ◽  
...  

Abstract Background Severe asthma affects a small population but carries a high psychopathological risk. Therefore, the psychodemographic profile of these patients is of interest. A substantial prevalence of anxiety, depression, alexithymia and hyperventilation syndrome in severe asthma is known, but contradictory results have been observed. These factors can also affect patients’ quality of life. For this reasons, our purpose is to evaluate the psychodemographic profile of patients with severe asthma and assess the prevalence of anxiety, depression, alexithymia and hyperventilation syndrome and their impact on the quality of life of patients with severe asthma. Methods A cross-sectional study of 63 patients with severe asthma. Their psychodemographic profile was evaluated using the Hospital Anxiety and Depression Scale (HADS), Toronto Alexithymia Scale (TAS-20), Nijmegen questionnaire and Asthma Control Test (ACT) to determine the state of anxiety and depression, alexithymia, hyperventilation syndrome and control of asthma, respectively. Quality of life was assessed with the Mini Asthma Quality of Life Questionnaire (Mini-AQLQ). Results The mean age was 60 ± 13.6 years. Personal psychopathological histories were found in 65.1% of participants, and 8% reported previous suicidal attempts. The rate of anxiety and/or depression (HADS ≥ 11) was 68.3%. These patients present higher scores on the TAS-20 (p < 0.001) for the level of dyspnea (p = 0.021), and for emotional function (p = 0.017) on the Mini-AQLQ, compared with patients without anxiety or depression. Alexithymia (TAS-20 ≥ 61) was observed in 42.9% of patients; these patients were older (p = 0.037) and had a higher HADS score (p = 0.019) than patients with asthma without alexithymia. On the other hand, patients with hyperventilation syndrome (Nijmegen ≥ 23) scored higher on the HADS (p < 0.05), on the Mini-AQLQ (p = 0.002) and on the TAS-20 (p = 0.044) than the group without hyperventilation syndrome. Quality of life was related to anxiety-depression symptomatology (r =  − 0.302; p = 0.016) and alexithymia (r =  − 0.264; p = 0.036). Finally, the Mini-AQLQ total score was associated with the Nijmegen questionnaire total score (r =  − 0.317; p = 0.011), and the activity limitation domain of the Mini-AQLQ correlated with the ACT total score (r = 0.288; p = 0.022). Conclusions The rate of anxiety, depression, alexithymia and hyperventilation syndrome is high in patients with severe asthma. Each of these factors is associated with a poor quality of life.


2010 ◽  
Vol 20 (6) ◽  
pp. 1017-1024 ◽  
Author(s):  
Soo Hyun Kim ◽  
Sokbom Kang ◽  
Yong-Man Kim ◽  
Byoung-Gie Kim ◽  
Seok Ju Seong ◽  
...  

Purpose:With increasing survival rates of women with cervical cancer, quality of life of the survivors becomes a more important issue. However, little is known about the mental health of cervical cancer survivors (CCSs). This study investigated the prevalence of anxiety and depression in CCSs compared with healthy controls and identified factors associated with multidimensional model including sociodemographic, clinical, functioning and well-being, and symptom variables.Methods:The participants included 828 CCSs (mean time since treatment, 6.9 years) enrolled at 6 tertiary hospitals from 1983 to 2004 and 500 control subjects selected randomly from a representative sample of Korean women. Subjects completed the following questionnaires: the Hospital Anxiety and Depression Scale, the European Organization for Research and Treatment of Cancer Quality of Life questionnaire-C30, its Cervical Cancer module, and the McGill Quality of Life Questionnaire.Results:Hospital Anxiety and Depression Scale-defined anxiety in CCSs did not differ from that in healthy controls (39.5% and 32.2%, respectively; P = 0.218). Anxiety was significantly more prevalent in younger CCSs (≤50 years) than in controls (40% vs 26.4%, respectively; P < 0.001). Hospital Anxiety and Depression Scale-defined depression was even lower in CCSs than in controls (34.6% vs 48.0%, respectively; P < 0.001). In multivariate analyses, the Hospital Anxiety and Depression Scale-defined anxiety and depression in CCSs were commonly associated with financial difficulty, poor body image, sexual inactivity, and low existential well-being. Low support and insomnia were uniquely related to anxiety, with older age and decrement role function uniquely related to depression. However, disease-related clinical factors were not related to either anxiety or depression.Conclusions:Cervical cancer survivors showed relatively good mental health compared with healthy controls; however, women who have low functioning and well-being could be at high risk of anxiety or depression or both.


2014 ◽  
Author(s):  
Φλωρεντία Μπακομήτρου

Σκοπός της έρευνας αυτής είναι η αξιολόγηση ενός προγράμματος ομαδικής ψυχοεκπαίδευσης που εφαρμόστηκε σε ασθενείς με Σακχαρώδη Διαβήτη τύπου 2 (ΣΔτ2). Εξήντα ασθενείς με ΣΔτ2, οι οποίοι παρακολουθούνταν σε εξωτερική βάση στο Διαβητολογικό Κέντρο του Γ.Ν.Ν. «Άγιος Παντελεήμων», χωρίστηκαν σε τρεις ομάδες, την Ομάδα 1, την Ομάδα 2 και την Ομάδα Ελέγχου, ενώ δε διέφεραν ως προς την ηλικία, το βάρος, το Δείκτη Μάζας Σώματος, τη διάρκεια του ΣΔτ2, τη ληφθείσα αγωγή και τη Γλυκοζυλιωμένη Αιμοσφαιρίνη (HbA1c) πριν την παρέμβαση. Τα ψυχομετρικά εργαλεία που χορηγήθηκαν στους συμμετέχοντες ήταν τα ακόλουθα: ένα αυτοσχέδιο Ερωτηματολόγιο Δημογραφικών Στοιχείων, το Ερωτηματολόγιο για την Ποιότητα Ζωής στο Σακχαρώδη Διαβήτη (Audit of Diabetes Dependent Quality of Life Questionnaire, ADDQoL-19) (Bradley, 1996), το Ερωτηματολόγιο Ικανοποίησης από τη Θεραπεία στο Διαβήτη (Diabetes Treatment Satisfaction Questionnaire–Status and Change Versions, D.T.S.Qs.) (Bradley, 1994), η Κλίμακα Άγχους και Κατάθλιψης στο Γενικό Νοσοκομείο (Hospital Anxiety and Depression Scale-HADS) (Zigmond & Snaith, 1983), το Αναθεωρημένο Ερωτηματολόγιο των Αντιλήψεων για την Ασθένεια-Διαβήτης (The Revised Illness Perception Questionnaire-Diabetes) (Moss-Morris et al., 2002), η Κλίμακα των Εμποδίων στην Αυτο-φροντίδα του Διαβήτη (Barriers to Diabetes Self-Care Scale) (Glasgow, 1994) και η Κλίμακα Αξιολόγησης της Συμπεριφοράς της Οικογένειας απέναντι στο Σακχαρώδη Διαβήτη (Diabetes Family Behavior Checklist-DFBC) (Schafer, McCaul & Glasgow, 1986). Παράλληλα, υπολογίστηκε και ο βιοχημικός δείκτης της Γλυκοζυλιωμένης Αιμοσφαιρίνης (HbA1c). Η Ομάδα 1 (Ν=20) ακολούθησε ένα δομημένο πρόγραμμα ψυχο-εκπαίδευσης και ψυχοθεραπείας 15 εβδομαδιαίων συναντήσεων διάρκειας τριών ωρών, η Ομάδα 2 (Ν=20) ακολούθησε ένα πρόγραμμα ψυχο-εκπαίδευσης 5 εβδομαδιαίων συναντήσεων διάρκειας τριών ωρών, ενώ η Ομάδα Ελέγχου (Ν=20) συμμετείχε στην κλασική ιατρική εξέταση και δεν ακολούθησε κανένα πρόγραμμα ψυχολογικής παρέμβασης. Οι ασθενείς των τριών ομάδων συμμετείχαν και σε μια συνάντηση επανελέγχου 3 μήνες μετά την ολοκλήρωση της παρέμβασης. Σύμφωνα με τα αποτελέσματα της παρούσας έρευνας φάνηκε ότι η ομαδική ψυχολογική παρέμβαση (πρόγραμμα ψυχο-εκπαίδευσης και ψυχοθεραπείας ή αποκλειστικά πρόγραμμα ψυχο-εκπαίδευσης) επέδρασε θετικά στη γλυκαιμική ρύθμιση (Γλυκοζυλιωμένη Αιμοσφαιρίνη-HbA1c) των ατόμων με ΣΔτ2, ενώ παρατηρήθηκε επιπλέον θετική επίδραση σε μια σειρά σημαντικών ψυχοκοινωνικών μεταβλητών (Ποιότητα Ζωής, Ικανοποίηση από τη θεραπεία, Άγχος, Εξέλιξη της ασθένειας (οξεία/χρόνια), Εμπόδια στη φροντίδα της διατροφής, Εμπόδια στη λήψη φαρμάκων, Συνοχή της ασθενείας, Συναισθηματικές αναπαραστάσεις). Η προαναφερθείσα θετική επίδραση διατηρήθηκε και μετά το τέλος της παρέμβασης σε αρκετές μεταβολικές και ψυχοκοινωνικές παραμέτρους. Θα πρέπει να σημειωθεί εδώ ότι οι Σχέσεις με την Οικογένεια δε φάνηκαν να επηρεάζονται από την παρέμβαση που εφαρμόστηκε στους διαβητικούς ασθενείς.


2006 ◽  
Vol 120 (12) ◽  
pp. 1049-1054 ◽  
Author(s):  
P Martinez-Devesa ◽  
M L Barnes ◽  
C J Alcock ◽  
R S C Kerr ◽  
C A Milford

In general, patients with malignant tumours of the skull base have a poor prognosis. Treatment may have a disfiguring physical and disabling mental effect on patients.To evaluate the effect of treatment on physical and mental quality of life in patients with skull base malignancy, we conducted a cross-sectional patient survey of 18 patients treated for such tumours, using the University of Washington (version 4) quality of life questionnaire and the hospital anxiety and depression scale.The total quality of life score (median value) was 980 (550–1125). Patients with anterior skull base malignancy scored lower than those with lateral skull base malignancy (p=0.003).In general, the worst individual domain scores were: mood (64 per cent); activity (69 per cent); and, specifically for patients with anterior skull base malignancy, taste (54 per cent, p=0.004) and anxiety (60 per cent, p=0.034).One-third of skull base cancer patients were at risk of suffering from mental distress and psychiatric morbidity (indicated as a score of more than seven on the hospital anxiety and depression scale).


2013 ◽  
Vol 61 (1) ◽  
pp. 17-26 ◽  
Author(s):  
Katrin Leenen ◽  
Michael Rufer ◽  
Hanspeter Moergeli ◽  
Hans-Jörgen Grabe ◽  
Josef Jenewein ◽  
...  

Aus Untersuchungen in der Normalbevölkerung ist bekannt, dass Menschen mit erhöhten Alexithymiewerten eine verminderte Lebensqualität (LQ) aufweisen. Für Patienten mit psychischen Störungen wurde dieser Zusammenhang jedoch kaum untersucht. Ziel dieser Studie war es, den möglichen Zusammenhang zwischen alexithymen Patientenmerkmalen und der LQ bei Patienten mit Angststörungen zu überprüfen. Bei 79 ambulanten Patienten mit Angststörungen wurden alexithyme Charakteristika mit der Toronto Alexithymia Scale (TAS-20), die LQ mit der Kurzversion des World Health Organization Quality of Life Questionnaire 100 (WHOQOL-BREF) erfasst. Darüber hinaus fand eine Erhebung der psychischen Symptombelastung (SCL-90-R) und depressiven Symptomatik (MADRS) statt. Mittels hierarchischer Regressionsanalysen wurde der Zusammenhang zwischen der alexithymen Charakteristika und den unterschiedlichen LQ-Domänen berechnet. Die Patienten zeigten eine im Vergleich zur Normalbevölkerung deutlich verminderte LQ. Als Hauptergebnis fand sich, auch nach Kontrolle von Depression, Ängstlichkeit und Geschlecht, ein signifikanter Zusammenhang zwischen den beiden TAS-20 Subskalen Schwierigkeiten, Gefühle zu identifizieren und zu beschreiben und vor allem der psychischen LQ. Unsere Ergebnisse sprechen dafür, bei der Diagnostik und Therapieplanung von Patienten mit Angststörungen alexithyme Merkmale einzubeziehen. Im Falle von ausgeprägten alexithymen Merkmalen sollten psychotherapeutische Interventionen zur Verbesserung der Schwierigkeiten Gefühle wahrzunehmen und zu kommunizieren in Betracht gezogen werden.


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