ACROMEGALY IN REMISSION: A VIEW FROM THE PARTNER

2021 ◽  
Author(s):  
Rachel Fourneaux ◽  
Marie Vermalle ◽  
Frederique Albarel ◽  
Isabelle Morange ◽  
Thomas Graillon ◽  
...  

Background A relative can be an asset in dealing with chronic illnesses, such as acromegaly, where quality of life is altered even after remission. However, it has been shown that quality of life of caregivers can also be impacted. Our main objective was to compare the perception of acromegaly in remission in the patient-relative dyad. Methods In this observational study, 27 patients in remission and relatives were first asked to complete quality of life, anxiety/depression and coping strategy questionnaires. Then, the patient’s body image and self-esteem were evaluated from both the patient’s and from the relative’s point of view using the same questionnaires with modified instructions. Results Relatives had overall an accurate estimation of patient body image using the Figure Rating Scale by Stunkard. However, there were wide variations between the patient’s and the relative’s responses regarding self-esteem and body perception. The quality of life of relatives was not altered and was significantly higher in the social domain than for the patient. Conclusions Our results show that relatives require education concerning all the steps involved in the management of acromegaly, as they likely do not fully understand the sequelae of acromegaly.

2021 ◽  
Vol 36 (1) ◽  
pp. 19-36
Author(s):  
Iqra Nazar ◽  
Fatima Kamran ◽  
Afsheen Masood

The present study was designed to examine psychosocial predictors of quality of life (QoL) such as body image, self-esteem, impact of Vitiligo (psychologically and socially), and perceived stigmatization in patients with Vitiligo. The sample (N =120) comprised of individuals with Vitiligo recruited from dermatology units of different hospitals in Lahore. Body Image State Scale (Cash, Fleming, Alindogan, Steadman, & Whitehead 2002), Rosenberg Self-Esteem Scale (Rosenberg, 1965), Vitiligo Impact Scale (Rammam, Khaitan, Mehta, Sreenivas, & Gupta, 2014), Perceived Stigmatization Questionnaire (Lawrence, Fauerbach, Heinberg, & Thomas, 2006) and Dermatology Life Quality Index (Finlay & Khan, 1994) were used as assessment measures. Results revealed that most of the individuals with Vitiligo reported poorer perception of QoL; while, men with Vitiligo expressed better perceived QoL as compared to women. Individuals with both types of Vitiligo (lesions on exposed/unexposed regions) expressed poor body image, negative impact of Vitiligo on their psycho-social functioning, and higher levels of perceived stigmatization. Individuals with exposed Vitiligo affected regions exhibited lower self-esteem. In addition, body image, impact of Vitiligo (psychologically and socially), and perceived stigmatization (absence of friendly behavior) significantly predicted QoL. It was concluded that Vitiligo had a greater impact on individual’s psychological health and social functioning rather than physiological complications.


2019 ◽  
Vol 1 ◽  
pp. 132-136
Author(s):  
B. Kowalewska ◽  
N. Gawek ◽  
J. Kowalewska

<br/><b>Introduction:</b> Skin diseases s ignificantly affect the perception of quality of life of people because they interfere with body image and self perception, lower self esteem and cause stigmatisation by the environment. <br/><b>The aim of the study:</b> Was to assess the quality of life and sense o f stigmatisation among patients with psoriasis. <br/><b>Materiałs and methods:</b> The study involved 60 people with psoriasis. Own questionnaire , standardized DLQI Scale and 6 Scale were used to collect the material for assessing stigmatisation. <br/><b>Results:</b> According t o the majority of respondents (58,3%) , dermatological patients should deal with the disease through dermatological treatment. Part of the respondents declared that they were asked several times what the illness is and whether it is treated (16,7%) or w h ether it is a contagious disease (11,7%). <br/><b>Conclusions:</b> The quali ty of life of dermatological patients was slightly reduced. The majority of respondents did not experience stigmatisation or experienced it slightly.


2008 ◽  
Vol 28 (2) ◽  
pp. 81-88 ◽  
Author(s):  
Linda M. Martin ◽  
Michelle Bliven ◽  
Rosemary Boisvert

A non-randomized pretest—posttest design was used to evaluate changes in occupational performance, self-esteem, and quality of life among clients completing a substance abuse recovery program that included occupational therapy services addressing life skills. Seventy-five clients participated in intake and discharge assessment (4- to 6-month interval) that used the Occupational Performance History Interview (Version 2.0), the Rosenberg Self-Esteem Scale, and the Quality of Life Rating scale. A limited number of follow-up interviews at 3 and 6 months were also conducted. Marked improvement with significant differences and large effect sizes were found between intake and discharge scores for all measures. Most clients scored in the range of moderate occupational dysfunction at discharge, when their highest performance level was seen. Follow-up data revealed that occupational performance declined at 3 months and improved again at 6 months. Change in occupational performance is clearly reflected in the recovery process, but recovery is challenged when clients leave the supportive halfway house environment.


2020 ◽  
pp. 49-52
Author(s):  
Simran Arya ◽  
Madhu Jain ◽  
Shuchi Jain ◽  
Tej Bali Singh

Background: Polycystic ovary syndrome (PCOS) have serious health issues, affecting female health, causing body disfigurement, lowers self- esteem decreases the quality of life and, lifelong health consequences related to metabolic disorders. Objective: The objective of the study was to evaluate, 'the impact of various clinical features of PCOS namely obesity, hirsutism, acne, menstrual irregularities on psychological well-being in adolescent girls'. Material and methods: A cross-sectional study conducted in the adolescent clinic, BHU. Tools used for data collection were a self-structured questionnaire which includes socio-demographic status, menstrual history, and anthropometric assessment. Hirsutism was assessed by the Ferriman-Gallwey scoring system, acne by the Global acne grading system, self-esteem by Rosenberg self-esteem scale, and body image by Body Image Concern Inventory scale. Statistical analysis was done by SPSS version '22'. Results: Findings of multiple regression analysis suggests that adolescent girls with hirsutism experienced poorer self-esteem (β= -2.621, p=0.01) and greater body dissatisfaction (β= 0.258, p= 0.02) than adolescents girls without hirsutism. Furthermore, obese adolescents had a lower level of self-esteem (β= -0.056, p=0.01) and negative body image (β= 0.748, p=0.01) compared with non- obese PCOS adolescents. Adolescent girls with menstrual irregularities had higher body dissatisfaction (β=0.143, p=0.05) than patients with a regular cycle. Conclusion: PCOS in adolescents having obesity, menstrual irregularities, and features of hyper-androgenism have a profound effect on psychological well being. So, the recognition of the early signs of PCOS during adolescence and early treatment can improve the quality of life.


2020 ◽  
Author(s):  
Samaneh Youseflu ◽  
Shahideh Jahanian Sadatmahalleh

Abstract Background: This study aimed to test a conceptual model considering the interrelated role of menorrhagia, body image concern, self-esteem, anxiety and depression, sexual function, on quality of life (QOL) of sterilized women.Methods: The current study was conducted as a retrospective cohort study on 200 sterilized women. Data were collected using a socio-demographic checklist, Short Form Health Survey (SF-12), Pictorial Blood Loss Assessment Chart (PBLAC), Female Sexual Function Index (FSFI), Hospital Anxiety and Depression Scale (HADS), Body Image Concern Inventory (BICI), and Rosenberg Self-Esteem Scale.Results: Results show that anxiety (β =-0.51), sexual function (β =0.15) self-esteem (β =0.15), and body image dissatisfaction (β = -0.10) have a direct effect on women’s QOL. Higher level of anxiety, body dissatisfaction with direct effect can be reduce QOL. Anxiety (β =-0.05), sexual function (β =0.20), and menorrhagia (β =-0.09) with indirect effect impress QOL. Higher level of anxiety with indirect effect thorough self-esteem can worsen QOL (β =-0.05).Conclusion: Regarding the psycho-sexual influence of sterilization on women’s QOL, a comprehensive consultation about the negative consequence of sterilization before TL, and psychotherapeutic and psychosexual help after sterilization should be offered.


2019 ◽  
Vol 140 (1) ◽  
pp. 1-10 ◽  
Author(s):  
Lukas A. Holzer ◽  
Nicolas Huyer ◽  
Jörg Friesenbichler ◽  
Andreas Leithner

2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e21550-e21550
Author(s):  
Anna Kieszkowska-Grudny ◽  
Monika Rucinska ◽  
Robert Ciesak ◽  
Marta Wisniewska

e21550 Background:Cancers are the second most common cause of death. Treatment of cancers is complex and might be aggressive, takes a long time and is usually difficult to accept for patients. As a result of disease and treatment a body image(BI) is impaired and can reduce quality of life(QoL),which has become a very important factor. The objective of the study was to investigate BI and QoL during oncological treatment of breast cancer(BCa), cervical cancer(CeCa) and prostate cancer(PCa) patients and to compare with healthy groups of men(HM) and women(HW). Methods:The analysis included 280 participants: 31 BCa-pts just after oncological surgery (age26-86 years,M = 63,23,Me = 65), 44 BCa-pts during adjuvant radiotherapy (age37-69years, M = 57,23,Me = 60), 21 CeCa-pts during therapy (age30-68years,M = 54,43,Me = 60), 52 PCa-pts with clinical stage T1-T2N0M0 (age57-86;M = 70,65;Me = 70) after standard three-dimensional conformal radiation treatment (3DCRT), 32 PCa-pts (age59-84;M = 74;Me = 75) after stereotactic hypofractionated radiotherapy (HRT), than without any type of cancer 50HM (age47-92years;M = 62,28;Me = 60) and 50HW (age30-84 years,M = 51,46,Me = 50). The subjects filled out the questionnaire EORTC QLQ-C30 (ver3.0.) and a specially designed questionnaire for a body image assessment. Results:All factors associated with BI between groups differed significantly (p < 0,05): general appearance, self-esteem, physical and sexual attractiveness. The highest assessment in all categories were done by HRT-pts and the lowest by BCa-pts during radiotherapy, than BCa-pts after surgery. HM and HW perceived BI on a similar level, however lower than HRT-pts. Overall QoL was significantly lowest in BCa-pts after surgery (p < 0,05), but physical, role, emotional, and general functioning were the worst in BCa-pts during radiotherapy (p < 0,05). The lowest social QoL was assessed by CeCa-pts (p < 0,05). Conclusions:It seems that oncological treatment influences significantly BI of cancer patients and worsens QoL especially in breast cancer women just after surgery and adjuvant radiotherapy. HTR-pts assesses BI and general QoL even better than healthy groups.


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