scholarly journals Towards a Better Future for Canadians with Bipolar Disorder: Principles and Implementation of a Community-Based Participatory Research Model

2015 ◽  
Vol 1 (1) ◽  
Author(s):  
Erin E. Michalak ◽  
Kathleen Lane ◽  
Rachelle Hole ◽  
Steven J. Barnes ◽  
Nasreen Khatri ◽  
...  
Keyword(s):  
Bipolar Disorder ◽  
Participatory Research ◽  
Knowledge Exchange ◽  
Community Based Participatory Research ◽  
Psychosocial Interventions ◽  
Community Members ◽  
Community Based ◽  
Services And Supports ◽  
Health Field

The Collaborative RESearch Team to study psychosocial factors in bipolar disorder (CREST.BD) is a multidisciplinary network dedicated to advancing science and practice around psychosocial issues associated with bipolar disorder (BD), improving the care and wellness of people living with bipolar disorder, and strengthening services and supports for these individuals. CREST.BD specializes in community-based participatory research, in which research is conducted as a partnership between researchers and community members. This article describes the evolution of the CREST.BD network and CREST.BD’s commitment to community-based participatory research in bipolar disorder research. Examples of CREST.BD projects using community-based participatory research to study stigma, quality of life, psychosocial interventions, and creativity in bipolar disorder are highlighted, and opportunities and challenges of engaging in community-based participatory research in bipolar disorder specifically and the mental health field more broadly are discussed. This article demonstrates how CBPR can be used to enhance the relevance of research practices and products through community engagement, and how community-based participatory research can enrich knowledge exchange and mobilization. 

scholarly journals Menopause experience in First Nations women and initiatives for menopause symptom awareness; a community-based participatory research approach

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Beate C. Sydora ◽  
Bonny Graham ◽  
Richard T. Oster ◽  
Sue Ross
Keyword(s):  
Quality Of Life ◽  
Knowledge Translation ◽  
First Nations ◽  
Participatory Research ◽  
Family Members ◽  
Community Based Participatory Research ◽  
Community Members ◽  
Community Based ◽  
Menopause Symptom

Abstract Background Little research has been conducted about menopause in First Nations women. In response to the wishes of Cree women living in Maskwacis, Alberta, to start a dialogue on menopause, we undertook community-based participatory research (CBPR) to explore menopause experience and raise awareness of menopause symptoms in the community. Methods The research adhered to the principles of Ownership, Control, Access and Possession (OCAP™) and was guided by the interest of the participating women. Local women (target age 40–65 years) were invited to participate in workshops using word-of-mouth and community posters in health centers. Five research workshops were held in community settings, attended by experienced women’s health researchers and consenting women. The participants guided the informal discussions. They also completed questionnaires which included menopause-related quality of life. The researchers used extensive hand-written field notes to record data; qualitative content analysis was applied to identify themes. Simple descriptive analysis was used for the questionnaire results. The findings were discussed at a community feedback session and laid the basis for further knowledge translation initiatives. Results The five workshops included a total of 37, mostly post-menopausal women with 6–11 women/workshop. The main discussion themes were: "experiences of menopause symptoms" including their impact on quality of life; "menopause knowledge prior to their own experience" with most women feeling that they had insufficient information before menopause; "menopause symptom management" which mainly included practical strategies; "impact of menopause on family members" which was of prime concern with uncontrollable mood changes affecting the whole family and sometimes causing matrimonial disharmony. Questionnaire responses corroborated the workshop discussions. Knowledge translation of the research findings produced two information pamphlets specifically for the Maskwacis community: one for husband/partner, the other for women and family members. These pamphlets have been distributed in all areas of the community. Conclusion This CBPR project addressed a topic identified by the community as being important. Community members developed informative pamphlets in response to the women’s concern of lack of understanding for menopause symptoms among families. This simple solution has been widely accepted by community members, opening the possibility of wider discussion about menopause.

scholarly journals Integrating Delphi Consensus Consultation and Community- Based Participatory Research

2019 ◽  
Vol 5 (1) ◽  
pp. 21-35
Author(s):  
Melinda J. Suto ◽  
Sara Lapsley ◽  
Anusha Balram ◽  
Steven J. Barnes ◽  
Sharon Hou ◽  
...  
Keyword(s):  
Bipolar Disorder ◽  
Participatory Research ◽  
Management Strategies ◽  
Community Based Participatory Research ◽  
Self Management ◽  
Delphi Consensus ◽  
Community Members ◽  
Community Based ◽  
Personal Reflections ◽  
Five Phases

Delphi consensus consultation methods and community-based participatory research (CBPR) are distinct approaches that have traditionally been employed separately. This paper explores the integration of Delphi methods with CBPR in a research project that sought to identify effective self-management strategies for bipolar disorder (BD). We introduce our Canadian-based network which specializes in CBPR in BD, and outline the key principles of CBPR approaches. Delphi consensus consultation methods are described and we present the five phases of our Delphi consensus consultation project, conducted within a CBPR framework. Examples of how each project phase incorporated the principles of CBPR are provided, as are personal reflections of community members involved in the project, and broader reflections on challenges commonly encountered in CBPR projects. 

scholarly journals nr="13"Interdisciplinary Research Methods: Considering the Potential of Community-based Participatory Research in Translation

2021 ◽  
Vol 1 (1) ◽  
pp. 13-26
Author(s):  
LYNNE BOWKER
Keyword(s):  
Research Methods ◽  
Participatory Research ◽  
Interdisciplinary Research ◽  
Community Based Participatory Research ◽  
Community Based ◽  
Research Traditions ◽  
Related Research ◽  
Potential Barriers ◽  
Health Field ◽  
Population And Public Health

Abstract Different disciplines have different research traditions, including the use of discipline-specific research methods. However, adopting methods from other disciplines can provide fresh perspectives and lead to new insights. Community-based participatory research (CBPR) originated in the population and public health field, but it has potential to be applied in a broader range of disciplines. This article explains the fundamental characteristics of CBPR, explores some misconceptions associated with this method, and describes some potential barriers to its application. Finally, using the example of a machine translation literacy project, the article walks readers through this example of how CBPR was applied to a translation- related research project and evaluates the success of this method for the project.

Community-Based Participatory Research

2013 ◽  
Author(s):  
Tracey Marie Barnett
Keyword(s):  
Action Research ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Collaborative Action Research ◽  
Participatory Action ◽  
Community Members ◽  
Community Based ◽  
Community Based Research ◽  
Partnership Approach

Community-based participatory research (CBPR) embraces a partnership approach to research that equitably involves community members, organizational representatives, social workers, and researchers in all aspects of the research process. CBPR begins with a research topic of importance to the community and has the aim of combining knowledge with action and achieving social change. It is community based in the sense that community members become part of the research team and researchers become engaged in the activities of the community. Community–researcher partnerships allow for a blending of values and expertise, promoting co-learning and capacity building among all partners, and integrating and achieving a balance between research and action for the mutual benefit of all partners. Various terms have been used to describe this research, including participatory action research (PAR), action research (AR), community based research (CBR), collaborative action research (CAR), anti-oppressive research, and feminist research.

When the R and the CBP Clash: Research in Schools

2007 ◽  
Vol 29 (3) ◽  
pp. 22-26
Author(s):  
Sara Curtin-Mosher ◽  
Elizabeth Leo
Keyword(s):  
High Schools ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Community Members ◽  
Community Based ◽  
University Of Arizona ◽  
Ambos Nogales ◽  
The University ◽  
The Relationship

This paper speaks to a potential dilemma between the R and the CBP of Community Based Participatory Research (CBPR) within the context of a partnership called the Asociación de Reforestación de Ambos Nogales (ARAN). We focus on the relationship between students and educators from the University of Arizona (UA) and two high schools from Nogales, Sonora, Mexico that constitute part of this organization. ARAN has been influenced by but not restricted to a framework of CBPR where community members and academics engage in all aspects of research.

scholarly journals Catalyzing Action on First Nations Respiratory Health Using Community-based Participatory Research: Integrated Knowledge Translation through Strategic Symposia

2017 ◽  
Vol 2 (1) ◽  
pp. 57-70
Author(s):  
Tarun Reddy Katapally ◽  
Sylvia Abonyi ◽  
Jo-Ann Episkenew ◽  
Vivian Ramsden ◽  
Chandima Karunanayake ◽  
...  
Keyword(s):  
Knowledge Translation ◽  
First Nations ◽  
Participatory Research ◽  
Respiratory Health ◽  
Community Based Participatory Research ◽  
Integrated Knowledge Translation ◽  
Community Members ◽  
Community Based ◽  
Nations Community ◽  
Integrated Knowledge

 Assess, Redress, Re-assess: Addressing Disparities in Respiratory Health Among First Nations is an ongoing community-based participatory research initiative involving two First Nations communities in Saskatchewan. The initiative’s rationale is grounded in the ethos of transformative community-based participatory research and facilitated through integrated knowledge translation with the aim of building community capacity. The initiative’s goal was to engage community members to actively participate in all research phases, from the development of the research questions to dissemination of results and evaluation of community-chosen interventions that evolved from the results. After baseline assessment of predictors and indicators of respiratory health, a program of integrated knowledge translation was adopted. As part of this program, a community-researcher collaboration was put in place that produced two knowledge translation symposia. The two symposia have brought together First Nations community members, interdisciplinary researchers, federal and provincial policy makers, and multiple Aboriginal organizational stakeholders. The symposia provided a pathway for knowledge synthesis and sharing to ultimately integrate knowledge into practice and enable First Nations’ community capacity building in addressing and redressing critical respiratory health issues. This article delineates the processes involved in developing this model of integrated knowledge translation and highlights the continuing engagement with the participating communities supported by Knowledge Translation (KT) Symposia.

Overcoming Barriers: Practical Strategies to Assess Latinos Living in Low-Income Communities

2019 ◽  
Vol 21 (3) ◽  
pp. 355-362 ◽  
Author(s):  
Alejandra Calva ◽  
Rebecca A. Matthew ◽  
Pamela Orpinas
Keyword(s):  
Data Collection ◽  
Participatory Research ◽  
Low Income ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Community Members ◽  
Community Based ◽  
Leverage Points ◽  
Communities Of Interest ◽  
Health And Well Being

The value of community assessments depends on the researchers’ ability to reach a diverse and representative sample of participants. This process is particularly challenging when assessing the health and well-being of vulnerable populations that are reticent to participate in research because of demographic and sociopolitical factors. One such group is Latinxs (the gender-neutral version of Latinos or Latinas) of mixed immigration status who live in low-income, socially and geographically isolated enclaves in the Southeast. Framed by community-based participatory research and social marketing theories, this study describes practical strategies for health researchers, practitioners, and advocates seeking to engage and build trusting relationship within U.S. Latinx communities. First, identify and leverage points of entry to different segments of the communities of interest by engaging meaningful gatekeepers from different sections of the population and searching for places where potential participants gather. Second, reduce the burden of assessments by using incentives and creating intentional reciprocity. Third, establish critical, long-lasting trust with community members, leaders, and allies by adapting data collection procedures, ensuring confidentiality, engaging bilingual facilitators, and most important, being present with and for the community. Finally, presenting the findings back to the community can increase the ownership of the process.

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