A Qualitative Study of Family Experience With Hospitalization for Neonatal Abstinence Syndrome

2018 ◽  
pp. 113-119
Author(s):  
Emily C. Atwood ◽  
Grace Sollender ◽  
Erica Hsu ◽  
Christine Arsnow ◽  
Victoria Flanagan ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Iterative Process ◽  
Care Team ◽  
Neonatal Abstinence Syndrome ◽  
Family Centered Care ◽  
Abstinence Syndrome ◽  
Structured Interviews ◽  
Family Experience ◽  
Centered Care ◽  
Family Centered

BACKGROUND AND OBJECTIVES Although the incidence of neonatal abstinence syndrome (NAS) in the United States quintupled between 2000 and 2012, little is known about the family perspective of the hospital stay. We interviewed families to understand their experiences during the newborn hospitalization for NAS and to improve family-centered care. METHODS A multidisciplinary team from 3 hospital units composed open-ended interview questions based on a literature review, clinical experience, and an internal iterative process. Trained investigators conducted semi-structured interviews with 20 families of newborns with NAS at hospital discharge. Interviews were recorded and transcribed verbatim. Two investigators independently analyzed each transcript, identified themes via an inductive qualitative approach, and reached a consensus on each code. The research team sorted the themes into broader domains through an iterative process that required consensus of 4 team members. RESULTS Five domains of family experience were identified: parents’ desire for education about the course and treatment of NAS; parents valuing their role in the care team; quality of interactions with staff (supportive versus judgmental) and communication regarding clinical course; transfers between units and inconsistencies among providers; and external factors such as addiction recovery and economic limitations. CONCLUSIONS Families face many challenges during newborn hospitalization for NAS. Addressing parental needs through improved perinatal education, increased involvement in the care team, consistent care and communication, and minimized transitions in care could improve the NAS hospital experience. The results of this qualitative study may allow for improvements in family-centered care of infants with NAS.

Rooming-In to Treat Neonatal Abstinence Syndrome: Improved Family-Centered Care at Lower Cost

PEDIATRICS ◽  
2016 ◽  
Vol 137 (6) ◽  
pp. e20152929-e20152929 ◽  
Author(s):  
A. V. Holmes ◽  
E. C. Atwood ◽  
B. Whalen ◽  
J. Beliveau ◽  
J. D. Jarvis ◽  
...  
Keyword(s):  
Lower Cost ◽  
Neonatal Abstinence Syndrome ◽  
Family Centered Care ◽  
Abstinence Syndrome ◽  
Centered Care ◽  
Family Centered

scholarly journals Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study

2021 ◽  
Vol 21 (3) ◽  
pp. 231-236
Author(s):  
Lubna Qutranji ◽  
Burçin Yorgancı Kale ◽  
Hatice Barış ◽  
Kübra Tezel Gökçe ◽  
Okan Çetin ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Family Centered Care ◽  
Centered Care ◽  
Family Centered

Oncologists' attitudes towards patient and family-centered care.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 111-111
Author(s):  
Timothy K. Nguyen ◽  
Glenn Bauman ◽  
Christoper J Watling ◽  
Karin Hahn
Keyword(s):  
Patient Autonomy ◽  
Care Delivery ◽  
Family Centered Care ◽  
Structured Interviews ◽  
Roles And Responsibilities ◽  
Continued Education ◽  
Creative Solutions ◽  
Centered Care ◽  
Physician Support ◽  
Family Centered

111 Background: Patient and family-centered care (PFCC) represents an evolution from traditional models of provider-focused and patient-focused care that places a strong emphasis on optimal patient communication, patient autonomy, and shared decision-making within care teams. A shift towards PFCC requires participation across all provider groups. Despite the importance of physician buy-in, research examining physicians’ perspectives on PFCC is lacking. We sought to explore oncologists’ familiarity with the principles of PFCC and perceived barriers to implementing principles of PFCC. Methods: In this qualitative exploratory study, we conducted semi-structured interviews with 18 oncologists (8 radiation, 4 medical, 4 surgical, 2 hematologist-oncologists) at a single Canadian academic cancer institution. Interview data were analyzed using coding principles drawn from grounded theory. Constant comparisons were used to identify recurring themes. Results: We identified 3 dominant themes related to physicians’ interpretations of PFCC: 1) Physicians expressed a limited understanding of the formal principles of PFCC, 2) Physicians identified patient autonomy as essential to PFCC and 3) Disparities between patient and physician objectives exist and result in compromises that may affect the quality of PFCC delivered. Oncologists perceived that spending more time with patients improved PFCC, but also recognized that it would leave less time for other necessary activities. Participants also identified a number of ‘system’ barriers to PFCC, including limited staff and clinical space, excessive case load, a lack of physician support and input into operational decisions, and funding constraints. Many felt that PFCC was challenged by inefficiencies in the system of care delivery, and that progress might lie in reorganization to more clearly match health care staff’s roles and responsibilities to their credentials and skills. Conclusions: Advancing PFCC in our institution will require continued education of physicians regarding the principles of PFCC, acknowledgement and preservation of the PFCC behaviors already in practice and creative solutions to address the system issues that may hamper their abilities to enact PFCC.

A Qualitative Study of Family Experience With Hospitalization for Neonatal Abstinence Syndrome

2016 ◽  
Vol 6 (10) ◽  
pp. 626-632 ◽  
Author(s):  
E. C. Atwood ◽  
G. Sollender ◽  
E. Hsu ◽  
C. Arsnow ◽  
V. Flanagan ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Neonatal Abstinence Syndrome ◽  
Abstinence Syndrome ◽  
Family Experience

scholarly journals A qualitative study to conceptualize levels of awareness, acceptance and expectations in parents of children with cerebral palsy in Gujarat, India

2018 ◽  
Vol 5 (2) ◽  
pp. 442
Author(s):  
Vivek H. Ramanandi ◽  
Maitry D. Jayswal ◽  
Dhara N. Panchal
Keyword(s):  
Cerebral Palsy ◽  
Care Program ◽  
Family Centered Care ◽  
Structured Interviews ◽  
Rehabilitation Team ◽  
Wide Range ◽  
Children With Cerebral Palsy ◽  
Centered Care ◽  
Family Centered

Background: Caring for a child with a disability presents a multifaceted challenge for managing and coping with the child’s functional limitations and possible long term dependence to the caregiver and family. A wide range of psychosocial problems are experienced by the parents of children with CP. As an important member of the rehabilitation team, Physiotherapists comes in regular and long term contact with family and care givers of the CP child. This increase responsibilities of a physiotherapist from more than just dealing with sensory-motor rehabilitation of a CP child to understand need and expectations and guide/counsel the caregiver, parents or family as and when needed. Studies like this can provide valuable information for designing a family centered care program for children with CP. Objective of present study was to identify the main concepts which represent levels of awareness, acceptance and their expectations in parents of children with cerebral palsy in Gujarat.Methods: Qualitative research design using in-depth semi structured interviews was used for the study. Total 21 parents were selected using purposive sampling and were interviewed till data saturation was achieved. The main descriptive elements regarding their levels of awareness, acceptance and expectations were extracted using content analysis method.Results: Common themes such as disturbed social relationships, health problems, financial problems, worries about future of the child, need for more support services, and lack of adequate number of trained physiotherapists were experienced by the parents.Conclusions: A wide range of experiences were described by the parents of children with CP. Studies like this can provide valuable information for improving depth and quality of rehabilitation services by a physiotherapist through a family centered care program for children with CP. 

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