Oncologists' attitudes towards patient and family-centered care.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 111-111
Author(s):  
Timothy K. Nguyen ◽  
Glenn Bauman ◽  
Christoper J Watling ◽  
Karin Hahn
Keyword(s):  
Patient Autonomy ◽  
Care Delivery ◽  
Family Centered Care ◽  
Structured Interviews ◽  
Roles And Responsibilities ◽  
Continued Education ◽  
Creative Solutions ◽  
Centered Care ◽  
Physician Support ◽  
Family Centered

111 Background: Patient and family-centered care (PFCC) represents an evolution from traditional models of provider-focused and patient-focused care that places a strong emphasis on optimal patient communication, patient autonomy, and shared decision-making within care teams. A shift towards PFCC requires participation across all provider groups. Despite the importance of physician buy-in, research examining physicians’ perspectives on PFCC is lacking. We sought to explore oncologists’ familiarity with the principles of PFCC and perceived barriers to implementing principles of PFCC. Methods: In this qualitative exploratory study, we conducted semi-structured interviews with 18 oncologists (8 radiation, 4 medical, 4 surgical, 2 hematologist-oncologists) at a single Canadian academic cancer institution. Interview data were analyzed using coding principles drawn from grounded theory. Constant comparisons were used to identify recurring themes. Results: We identified 3 dominant themes related to physicians’ interpretations of PFCC: 1) Physicians expressed a limited understanding of the formal principles of PFCC, 2) Physicians identified patient autonomy as essential to PFCC and 3) Disparities between patient and physician objectives exist and result in compromises that may affect the quality of PFCC delivered. Oncologists perceived that spending more time with patients improved PFCC, but also recognized that it would leave less time for other necessary activities. Participants also identified a number of ‘system’ barriers to PFCC, including limited staff and clinical space, excessive case load, a lack of physician support and input into operational decisions, and funding constraints. Many felt that PFCC was challenged by inefficiencies in the system of care delivery, and that progress might lie in reorganization to more clearly match health care staff’s roles and responsibilities to their credentials and skills. Conclusions: Advancing PFCC in our institution will require continued education of physicians regarding the principles of PFCC, acknowledgement and preservation of the PFCC behaviors already in practice and creative solutions to address the system issues that may hamper their abilities to enact PFCC.

scholarly journals A qualitative study to conceptualize levels of awareness, acceptance and expectations in parents of children with cerebral palsy in Gujarat, India

2018 ◽  
Vol 5 (2) ◽  
pp. 442
Author(s):  
Vivek H. Ramanandi ◽  
Maitry D. Jayswal ◽  
Dhara N. Panchal
Keyword(s):  
Cerebral Palsy ◽  
Care Program ◽  
Family Centered Care ◽  
Structured Interviews ◽  
Rehabilitation Team ◽  
Wide Range ◽  
Children With Cerebral Palsy ◽  
Centered Care ◽  
Family Centered

Background: Caring for a child with a disability presents a multifaceted challenge for managing and coping with the child’s functional limitations and possible long term dependence to the caregiver and family. A wide range of psychosocial problems are experienced by the parents of children with CP. As an important member of the rehabilitation team, Physiotherapists comes in regular and long term contact with family and care givers of the CP child. This increase responsibilities of a physiotherapist from more than just dealing with sensory-motor rehabilitation of a CP child to understand need and expectations and guide/counsel the caregiver, parents or family as and when needed. Studies like this can provide valuable information for designing a family centered care program for children with CP. Objective of present study was to identify the main concepts which represent levels of awareness, acceptance and their expectations in parents of children with cerebral palsy in Gujarat.Methods: Qualitative research design using in-depth semi structured interviews was used for the study. Total 21 parents were selected using purposive sampling and were interviewed till data saturation was achieved. The main descriptive elements regarding their levels of awareness, acceptance and expectations were extracted using content analysis method.Results: Common themes such as disturbed social relationships, health problems, financial problems, worries about future of the child, need for more support services, and lack of adequate number of trained physiotherapists were experienced by the parents.Conclusions: A wide range of experiences were described by the parents of children with CP. Studies like this can provide valuable information for improving depth and quality of rehabilitation services by a physiotherapist through a family centered care program for children with CP. 

scholarly journals Caregiver and Adolescent Patient Perspectives on Comprehensive Care for Inflammatory Bowel Diseases: Building a Family-Centered Care Delivery Model

2020 ◽  
Vol 2 (3) ◽  
Author(s):  
Hilary K Michel ◽  
Nalyn Siripong ◽  
Robert B Noll ◽  
Sandra C Kim
Keyword(s):  
Primary Care ◽  
Inflammatory Bowel Diseases ◽  
Care Delivery ◽  
Comprehensive Care ◽  
Family Centered Care ◽  
Bowel Diseases ◽  
Centered Care ◽  
Inflammatory Bowel ◽  
Preferences For Care ◽  
Family Centered

Abstract Background Children with inflammatory bowel diseases (IBDs) require primary and gastrointestinal (GI) care, but little is known about patient and family preferences for care receipt. We aimed to understand caregiver perceptions of current healthcare quality, describe barriers to receiving healthcare, and elicit caregiver and adolescent preferences for how comprehensive care ideally would be delivered. Methods This was an anonymous survey of caregivers of 2- to 17-year olds with IBD and adolescents with IBD aged 13–17 years at a large, free-standing children’s hospital. Surveys assessed patient medical history, family demographics, perceptions of health care quality and delivery, barriers to primary and GI care, and preferences for optimal care delivery. Results Two hundred and seventeen caregivers and 140 adolescents were recruited, 214 caregivers and 133 adolescents consented/assented, and 160 caregivers and 84 adolescents completed the survey (75% and 60% response rate, respectively). Mean patient age was 14 years (SD = 3); 51% male; 79% Crohn’s disease, 16% ulcerative colitis, and 4% indeterminate colitis. Caregivers were primarily female (86%), Caucasian (94%), and living in a 2-caregiver household (79%). Most caregivers reported that their child’s primary care physician (PCP) and GI doctor oversaw their primary care (71%) and their IBD care (94%), respectively. Caregivers were satisfied with communication with their PCP and GI providers (>90%) but did not know how well they communicated with one another (54%). Barriers to primary and GI care varied, and few caregivers (6%) reported unmet healthcare needs. Caregivers and adolescents saw PCPs and GI doctors having important roles in comprehensive care, though specific preferences for care delivery differed. Conclusion Caregivers and adolescent perspectives are essential to developing family-centered care models for children with IBD.

A Qualitative Study of Family Experience With Hospitalization for Neonatal Abstinence Syndrome

2018 ◽  
pp. 113-119
Author(s):  
Emily C. Atwood ◽  
Grace Sollender ◽  
Erica Hsu ◽  
Christine Arsnow ◽  
Victoria Flanagan ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Iterative Process ◽  
Care Team ◽  
Neonatal Abstinence Syndrome ◽  
Family Centered Care ◽  
Abstinence Syndrome ◽  
Structured Interviews ◽  
Family Experience ◽  
Centered Care ◽  
Family Centered

BACKGROUND AND OBJECTIVES Although the incidence of neonatal abstinence syndrome (NAS) in the United States quintupled between 2000 and 2012, little is known about the family perspective of the hospital stay. We interviewed families to understand their experiences during the newborn hospitalization for NAS and to improve family-centered care. METHODS A multidisciplinary team from 3 hospital units composed open-ended interview questions based on a literature review, clinical experience, and an internal iterative process. Trained investigators conducted semi-structured interviews with 20 families of newborns with NAS at hospital discharge. Interviews were recorded and transcribed verbatim. Two investigators independently analyzed each transcript, identified themes via an inductive qualitative approach, and reached a consensus on each code. The research team sorted the themes into broader domains through an iterative process that required consensus of 4 team members. RESULTS Five domains of family experience were identified: parents’ desire for education about the course and treatment of NAS; parents valuing their role in the care team; quality of interactions with staff (supportive versus judgmental) and communication regarding clinical course; transfers between units and inconsistencies among providers; and external factors such as addiction recovery and economic limitations. CONCLUSIONS Families face many challenges during newborn hospitalization for NAS. Addressing parental needs through improved perinatal education, increased involvement in the care team, consistent care and communication, and minimized transitions in care could improve the NAS hospital experience. The results of this qualitative study may allow for improvements in family-centered care of infants with NAS.

When Family-Centered Care Is Challenged by Infectious Disease: Pediatric Health Care Delivery During the SARS Outbreaks

2006 ◽  
Vol 16 (1) ◽  
pp. 47-60 ◽  
Author(s):  
Donna F. Koller ◽  
David B. Nicholas ◽  
Robyn Salter Goldie ◽  
Robin Gearing ◽  
Enid K. Selkirk
Keyword(s):  
Infectious Disease ◽  
Health Care ◽  
Health Care Delivery ◽  
Care Delivery ◽  
Family Centered Care ◽  
Pediatric Health ◽  
Pediatric Health Care ◽  
Centered Care ◽  
Family Centered

scholarly journals Nurses' Perception of Family-Centered Care in Neonatal Intensive Care Units

2019 ◽  
Vol 09 (01) ◽  
pp. 016-020
Author(s):  
Haydeh Heidari ◽  
Marjan Mardani-Hamooleh
Keyword(s):  
Intensive Care ◽  
Data Analysis ◽  
Intensive Care Units ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Family Centered Care ◽  
Face To Face ◽  
Centered Care ◽  
Conventional Content Analysis ◽  
Family Centered

AbstractFamily-centered care (FCC) is one of the important elements of care in neonatal intensive care units (NICUs). The aim of this study was to understand the nurses' perception of FCC in NICUs. This qualitative study was performed using conventional content analysis. Participants in this study included 18 nurses who were selected by a purposeful method. Semistructured, in-depth and face-to-face interviews were conducted with the participants. All interviews were written down, reviewed, and analyzed. Two categories were identified after the data analysis: (1) prerequisite for providing FCC and (2) parents' participation. Prerequisite for providing FCC consisted of two subcategories namely suitable facilities and adequate personnel. Parents' participation included subcategories of parents: neonate's attachment and parents' training. Nurses' perception of FCC in NICUs can facilitate an appropriate condition for the participation of family members in the care of neonates.

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