GROUP DISCUSSIONS WITH THE PARENTS OF LEUKEMIC CHILDREN

Group meetings are being used in increasing numbers in many divergent areas of patient care. A group for parents of children with acute leukemia was established in conjunction with a leukemia treatment program. The group met weekly and served as a means of problem identification and solution. Areas discussed were problems concerning patients, parents, siblings, friends, and the medical team. It also served as a forum for information dissemination. It was found that in the management of leukemia in children, the group served as a strengthening of the family during crisis episodes. Discussions of death and dying were difficult, and the death of another parent's child was traumatic to all. However, the benefits of shared experiences outweighed these difficulties. Parents developed a better understanding of leukemia and its treatment and felt that their ability to cope with associated problems was enhanced. Both the families and staff felt the group was a valuable adjunct to the management of acute leukemia in children. As far as the authors are able to determine this use of a group has not been reported in this form in leukemia management. The evaluation of the success of this group is largely subjective. It is hoped that others will employ the use of such a group and in larger numbers perhaps some degree of objectivity might be able to be developed to adequately evaluate the role of groups in leukemia clinics as well as other areas of medical practice.

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THE ROLE OF CHEMICAL AGENTS IN THE GENESIS OF ACUTE LEUKEMIA IN CHILDREN

Современные проблемы науки и образования (Modern Problems of Science and Education) ◽

10.17513/spno.29663 ◽

2020 ◽

pp. 93-93

Author(s):

A.Y. Dulatov ◽

A.A. Amankulova ◽

E.K. Makimbetov

Keyword(s):

Acute Leukemia ◽

Chemical Agents ◽

Leukemia In Children

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Acute Leukemia in Children: Time Spent in Hospitalization

PEDIATRICS ◽

10.1542/peds.49.5.765 ◽

1972 ◽

Vol 49 (5) ◽

pp. 765-766

Author(s):

Donald J. Fernbach ◽

William L. Henrich ◽

Kenneth A. Starling

Keyword(s):

Acute Leukemia ◽

Family Physician ◽

General Purpose ◽

Study Group ◽

Baylor College ◽

Research Protocols ◽

The Family ◽

Local Physician ◽

Chemotherapy Study ◽

Leukemia In Children

Since 1958 the Hematology and Oncology Section of the Department of Pediatrics, Baylor College of Medicine, has participated in the studies of the Southwest Cancer Chemotherapy Study Group. From the beginning it was intended that this section would maintain an emphasis on ambulatory care for children with neoplastic diseases and would develop a close liaison with the practicing physician. The general purpose was to supplement the care given by the local physician rather than to assume total management of the patient. The key to the success of any such program, where virtually all patients are referred and are registered on research protocols, is to maintain close communication with the family physician at all times.

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‘This is Still All about Love’: Practitioners’ Perspectives of Working with Family Carers Affected by the Harmful Behaviour of the Older Person for Whom They Care

The British Journal of Social Work ◽

10.1093/bjsw/bcaa129 ◽

2020 ◽

Author(s):

Louise Isham ◽

Caroline Bradbury-Jones ◽

Alistair Hewison

Keyword(s):

Later Life ◽

Ethical Challenges ◽

Family Carers ◽

Care Needs ◽

Group Discussions ◽

Health And Social Care ◽

The Family ◽

The Uk ◽

Policy Systems

Abstract This article explores a hidden and under-acknowledged dimension of caring in family life: when older people with care needs act in a harmful, abusive or violent way towards the family member(s) who cares for them. Thirty-eight health and social care professionals, working in the UK, took part in five focus groups to explore their experience of working with families in this situation. The group discussions were stimulated by vignettes developed from interviews with carers affected by harmful behaviour, and the data generated using this method were analysed using a thematic approach. There were two principal findings: (i) ‘carer harm’ is a serious and under-acknowledged problem, which practitioners have extensive experiential knowledge of and (ii) practitioners face considerable practical and ethical challenges working with affected families. Drawing on Miranda Fricker’s concept of epistemic injustice, we discuss how contemporary social, legal and policy systems can make it difficult for practitioners to identify and meet the needs of affected families. Finally, we explore the role of social workers—and the support they need as a professional group—to work alongside a ‘hidden’ group of families seeking to manage the intersection of care, harm and intimacy in later life.

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Evidence Against the Role of Hepatitis C Virus in Severe Liver Damage Occurring Early in the Course of Acute Leukemia in Children

Leukemia & Lymphoma ◽

10.3109/10428199409051661 ◽

1994 ◽

Vol 13 (1-2) ◽

pp. 119-122 ◽

Cited By ~ 6

Author(s):

Anna Locasciulli ◽

Patrizia Pontisso ◽

Daniela Cavalletto ◽

Donatella Fraschini ◽

Cornelio Uderzo ◽

...

Keyword(s):

Hepatitis C Virus ◽

Hepatitis C ◽

Acute Leukemia ◽

Liver Damage ◽

Severe Liver ◽

Severe Liver Damage ◽

Leukemia In Children

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Food Security and the Futures of Farmers in Decentralisation Era: a Case Study From Sigi District Central Sulawesi

KOMUNITAS INTERNATIONAL JOURNAL OF INDONESIAN SOCIETY AND CULTURE ◽

10.15294/komunitas.v7i1.3620 ◽

2015 ◽

Vol 7 (1) ◽

pp. 118-132

Author(s):

Muhammad Nur Alamsyah ◽

Sultan Sultan ◽

Sayuti Sayuti

Keyword(s):

Food Security ◽

Information Dissemination ◽

Local Policy ◽

Top Down ◽

Group Discussions ◽

Regional Food ◽

South Sulawesi ◽

Standard Information

Decentralization is a form of democratization used to push development at district level. The formation of new autonomous regions results into more land conversion and politicization of society, rather than the strengthening of food security and the wellbing of farmers. This study examines the effectivity of local policy of Sigi District South Sulawesi to strengthen food security and elevate the prosperity of farmers. Through qualitative methods to bring together stakeholders (farmers, local authorities) through focus group discussions and in-depth interviews, the study found that the district policy still is formalistic. There is no standard information dissemination,no better attitude and commitment to the policy, limited resources, and there is no work standard. The role of regional food security council is not optimal, a lot of institutional barriers, there is no involvement of the community in accessing the programmes and also high politicization of this top down policy. Key Word: Policy, Local Goverment, food security, DecentralizationDesentralisasi merupakan wujud demokratisasi daerah untuk pembangunan. Pembentukan daerah otonom baru (DOB) melahirkan terjadinya alih fungsi lahan dan politisasi masyarakat seperti petani daripada penguatan ketahanan pangan dan penguatan petani. Penelitian ini bertujuan meneliti kebijakan Kabupaten Sigi dalam hal penguatan ketahanan pangan dan petani. Melalui metode kualitatif dengan mempertemukan pemangku kepentingan (petani, pejabat daerah) melalui diskusi kelompok terfokus dan wawancara mendalam, diketahui bahwa kebijakan masih bersifat formalistik. Tidak ada sosialisasi informasi secara baik, sikap dan komitmen terhadap kebijakan kurang, keterbatasan sumber daya, tidak ada standar kerja. Dewan ketahanan pangan daerah belum optimal, hambatan struktur dan kelembagaan, tidak ada keterlibatan masyarakat dalam mengakses penyusunan program serta tingginya politisasi pada bidang pertanian yang semuanya dikelola secara top down di daerah.

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The Life Tape Project: Increasing Family Social Support and Symbolic Immortality with a Brief Existential Intervention for Cancer Patients and Their Families

OMEGA - Journal of Death and Dying ◽

10.2190/f143-5363-3442-5163 ◽

2006 ◽

Vol 53 (4) ◽

pp. 321-339 ◽

Cited By ~ 13

Author(s):

Ernest Rosenbaum ◽

Robert W. Garlan ◽

Naama Hirschberger ◽

Alison L. Siegel ◽

Lisa D. Butler ◽

...

Keyword(s):

Social Support ◽

Death And Dying ◽

Self Awareness ◽

Medical Team ◽

Supportive Environment ◽

Symbolic Immortality ◽

Family Social Support ◽

The Family ◽

Emotional Equilibrium

Cancer poses a powerful threat to the emotional equilibrium of patients and their families. A key role of the family and medical team is to provide a supportive environment as the patient confronts the reality of death. Few interventions have been developed to help families support patients in dealing with fears of death and dying. We present one such approach, the Life Tape Project (LTP), that helps bring families closer together, increases communication, and acts as an existential intervention leading to greater sense of legacy, meaning, self-awareness, identity, and connection. Additionally, the results of a pilot study exploring the benefits of the LTP are presented, and we describe symbolic immortality, an aspect of existential coping, to illuminate how existential and social support factors can work together to benefit patients and their families.

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The Last Gift: Advanced Healthcare Directives and the Family Members of Incapacitated Patients

International Journal of Law Policy and the Family ◽

10.1093/lawfam/ebaa010 ◽

2020 ◽

Author(s):

Eunice Collins

Keyword(s):

Death And Dying ◽

Family Members ◽

Adult Patients ◽

Best Interests ◽

Resuscitation Orders ◽

The Family ◽

The Usa ◽

Incapacitated Patients ◽

The Uk

Abstract This article will provide an overview of the law related to the withdrawal of treatment from incapacitated adult patients in Ireland and the role of family members in such decisions. This overview will touch on the best interests test, how the wishes of an incapacitated patient may be assessed, and the tension that may arise between medical assessments and the views of the family of the patient. Cases arising in the UK and the USA will be discussed where relevant. It will be argued that family members should be provided with more information, particularly with respect to Do Not Attempt Resuscitation orders. The article calls for greater discussion about death and dying, and greater use of advance healthcare directives.

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Role of family in the hospitalization of critical patients in the intensive care unit

MEDISAINS ◽

10.30595/medisains.v18i1.6482 ◽

2020 ◽

Vol 18 (1) ◽

pp. 4

Author(s):

Fitri Arofiati ◽

Miranti Primadani ◽

Ruhyana Ruhyana

Keyword(s):

Intensive Care Unit ◽

Intensive Care ◽

Family Background ◽

Data Retrieval ◽

Phenomenological Approach ◽

Group Discussions ◽

Physical Support ◽

The Family ◽

Critical Patients

Background: Patients need help from others to meet their needs during hospitalization in the Intensive Care Unit (ICU). The role of the family is significant in the care of critical patients in the ICU because it helps fulfill the satisfaction and providing supportive care of patients related to their intimacy.Objectives: This study aims to explore the role of families in the hospitalization of critical patients in the ICU.Method: This study used a qualitative method with a phenomenological approach. Data retrieval is done through in-depth interviews, focused group discussions, and observations. The participant recruitment technique uses pur-posive sampling. The research participants were 24 people and were following with the inclusion criteria. Source triangulation is done to find out the validity of research data and the roles performed by the family. This qualitative data was analyzed using N-Vivo 12 plus methods.Results: There are five themes accompanied by 12 sub-themes in them, including developing emotional relationships with patients, providing physical support to patients, becoming information partners with health personnel, fami-lies, and patients, supporting patient facilities and infra-structure, families meeting patients' spiritual needs.Conclusion: Family members are involved in patient care because families are given the opportunity and sufficient time to visit patients. Suggestions for further research can consider the family background in the involvement of roles and factors that influence family roles during hospitalization of patients in the ICU.

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