‘This is Still All about Love’: Practitioners’ Perspectives of Working with Family Carers Affected by the Harmful Behaviour of the Older Person for Whom They Care

2020 ◽  
Author(s):  
Louise Isham ◽  
Caroline Bradbury-Jones ◽  
Alistair Hewison
Keyword(s):  
Later Life ◽  
Ethical Challenges ◽  
Family Carers ◽  
Care Needs ◽  
Group Discussions ◽  
Health And Social Care ◽  
The Family ◽  
The Uk ◽  
Policy Systems

Abstract This article explores a hidden and under-acknowledged dimension of caring in family life: when older people with care needs act in a harmful, abusive or violent way towards the family member(s) who cares for them. Thirty-eight health and social care professionals, working in the UK, took part in five focus groups to explore their experience of working with families in this situation. The group discussions were stimulated by vignettes developed from interviews with carers affected by harmful behaviour, and the data generated using this method were analysed using a thematic approach. There were two principal findings: (i) ‘carer harm’ is a serious and under-acknowledged problem, which practitioners have extensive experiential knowledge of and (ii) practitioners face considerable practical and ethical challenges working with affected families. Drawing on Miranda Fricker’s concept of epistemic injustice, we discuss how contemporary social, legal and policy systems can make it difficult for practitioners to identify and meet the needs of affected families. Finally, we explore the role of social workers—and the support they need as a professional group—to work alongside a ‘hidden’ group of families seeking to manage the intersection of care, harm and intimacy in later life.

scholarly journals The value of psychiatrists in leadership and management

2016 ◽  
Vol 22 (4) ◽  
pp. 263-268 ◽  
Author(s):  
Jennifer Perry ◽  
Fiona L. Mason
Keyword(s):  
Social Care ◽  
Self Awareness ◽  
Management Styles ◽  
Leadership And Management ◽  
Health And Social Care ◽  
The Uk ◽  
Medical Leadership ◽  
The Impact ◽  
Organisational Level

SummaryThe health and social care landscape in the UK is changing, and there is now, more than ever, a real need for doctors to embrace leadership and management. Evidence shows that medical leadership is associated with better outcomes for patients. Psychiatrists are particularly well suited to such roles, given the interpersonal skills and self-awareness that they develop in their training. In this article, we examine the role of the psychiatrist in leading at a patient, team and organisational level and the impact this has. We also discuss different leadership and management styles.

scholarly journals The Social Environment’s Relationship With Frailty: Evidence From Existing Studies

2017 ◽  
Vol 38 (1) ◽  
pp. 3-26 ◽  
Author(s):  
Daan Duppen ◽  
Michaël C. J. Van der Elst ◽  
Sarah Dury ◽  
Deborah Lambotte ◽  
Liesbeth De Donder ◽  
...  
Keyword(s):  
Social Support ◽  
Social Networks ◽  
Social Environment ◽  
Social Participation ◽  
Later Life ◽  
Informal Networks ◽  
Five Dimensions ◽  
The Social ◽  
The Family

Increasingly, policymakers assume that informal networks will provide care for frail older people. While the literature has mainly discussed the role of the family, broader social networks are also considered to be important. However, these social networks can diminish in later life. This systematic review investigates whether the social environment increases the risk of frailty or helps to prevent it. Findings from 15 original studies were classified using five different factors, which denoted five dimensions of the social environment: (a) social networks, (b) social support, (c) social participation, (d) subjective neighborhood experience, and (e) socioeconomic neighborhood characteristics. The discussion highlights that the social environment and frailty are indeed related, and how the neighborhood dimensions and social participation had more consistent results than social support and social networks. Conclusively, recommendations are formulated to contemplate all dimensions of the social environment for further research examining frailty and community care.

Role of the Single Assessment Process in the Care of Older People. How Will Primary Dental Care Practitioners be Involved?

2006 ◽  
Vol os13 (4) ◽  
pp. 130-134 ◽  
Author(s):  
Elizabeth A Lane ◽  
Jennifer E Gallagher
Keyword(s):  
Older People ◽  
Dental Care ◽  
Social Care ◽  
Assessment Process ◽  
Care Needs ◽  
National Service Framework ◽  
Health And Social Care ◽  
Dental Practitioners ◽  
One Stop

Following the publication of the National Service Framework for Older People, there have been developments across health and social care to facilitate holistic assessment of older people's needs, through what is called a ‘single assessment process’ or ‘SAP’. In this paper, readers are introduced to the SAP. The process can be seen as a ‘one-stop’ approach to the assessment of vulnerable older people that facilitates cross-referral between the agencies involved and triggers access to dental care. The paper explores the benefits of this new way of working in support of older people and how it will provide an opportunity for innovative dental practitioners to integrate oral healthcare for people with complex health and social care needs into the SAP. In concludes that as local commissioning evolves, opportunities for practitioners to develop targeted services for this important patient group should be expanded to improve the uptake of healthcare and oral healthcare.

Family-Centered, Community-Based, Coordinated Care for Children With Special Needs

PEDIATRICS ◽  
1989 ◽  
Vol 83 (6) ◽  
pp. 1061-1061
Author(s):  
RICHARD M. NARKEWICZ
Keyword(s):  
Task Force ◽  
Case Manager ◽  
Community Services ◽  
Coordinated Care ◽  
Care Needs ◽  
Care Coordinator ◽  
Community Based ◽  
The Family ◽  
Family Centered

Assuring that all children with special health care needs have access to family-centered, community-based, coordinated care, as described by Brewer et al in this issue of Pediatrics, is a timely and commendable goal that the American Academy of Pediatrics (AAP) shares. Pediatricians have a major role to play in the shaping of these services and assuring their accessibility by the children who need them. Last winter, the AAP held three task force meetings to discuss the role of pediatricians vis-á-vis the case manager/care coordinator. A consensus emerged from these meetings that a variety of roles should be available to pediatricians, depending upon the child's diagnosis, the pediatrician's training and interest, the skills of the family, and the community services available.

scholarly journals Social Workers’ Reflections on Ethics in Relation to Adoption in the UK: Everywhere but Nowhere?

2019 ◽  
Vol 50 (3) ◽  
pp. 833-849 ◽  
Author(s):  
Brid Featherstone ◽  
Anna Gupta
Keyword(s):  
Social Workers ◽  
Moral Distress ◽  
Codes Of Ethics ◽  
Adoption Process ◽  
Ethical Theories ◽  
Group Discussions ◽  
The Social ◽  
Primary Focus ◽  
The Uk

Abstract Empirical research with social workers exploring their understandings and use of codes or ethical theories in practice remain underdeveloped in the UK. This article, based on the British Association of Social Work commissioned Enquiry into the role of the social worker in adoption with a focus on ethics and human rights, provides an important contribution in this context. The Enquiry engaged with a range of stakeholders and explored their perspectives on the adoption process, but the primary focus of this article is on how ethics were understood and discussed by social workers. One hundred and five social workers participated in the Enquiry through questionnaires, interviews and group discussions, and a thematic analysis of their data revealed important findings. For example, the social workers made no explicit reference to codes of ethics or specific ethical theories. However, some of the themes that emerge from the analysis support discussions in what is now a substantial international literature on the importance of recognising ‘ethics work’ by social workers (Banks, 2016). Weinberg’s (2009) explorations of moral distress and ethical trespass are also important and underdeveloped concepts that resonate with themes from the Enquiry and could support more ethically enquiring cultures within organisations and more broadly.

Migration and nutrition

2018 ◽  
pp. 197-216
Author(s):  
Janice L. Thompson ◽  
Joy Merrell ◽  
Barry Bogin ◽  
Hannah Jennings ◽  
Michael Heinrich ◽  
...  
Keyword(s):  
Future Research ◽  
Cultural Norms ◽  
Eating Behaviours ◽  
Care Needs ◽  
Future Health ◽  
Family Structures ◽  
Health And Social Care ◽  
Two Generations ◽  
The Uk ◽  
Actual Health

This chapter describes Project MINA, an intergenerational and transnational project using a mixed-methods approach to investigate migration, nutrition, and ageing in two generations of Bangladeshi women living in the UK or Sylhet, Bangladesh. Results indicate that varied migration histories and changing family structures play an important role in influencing nutritional status, perceived and actual health status, and future health and social care needs of ageing Bangladeshis in the UK. Future research should focus on developing culturally and linguistically tailored research tools to assess dietary intake and eating behaviours within this population, and examine the complex interplay between family dynamics, cultural norms and social influences that impact the ability of older Bangladeshi adults to eat more healthfully and engage in physical and social activities that promote healthy ageing.

Young People’s Embodiment of Physical Activity: The Role of the ‘Pedagogized’ Family

2012 ◽  
Vol 29 (2) ◽  
pp. 210-226 ◽  
Author(s):  
Symeon Dagkas ◽  
Thomas Quarmby
Keyword(s):  
Physical Activity ◽  
Social Class ◽  
Family Environment ◽  
Strong Influence ◽  
Pedagogical Practices ◽  
Young Adolescents ◽  
The Family ◽  
Personal Histories ◽  
The Uk

Drawing from Bourdieu, this study investigated the multifaceted influences that operate in and through combinations of family and social class with regard to the embodiment of physical activity in young adolescents in the UK. The findings suggest that pedagogical practices within the family environment are crucial to the development of embodied dispositions toward physical activity and health. The results illustrate that the family operates as a “pedagogical” field where personal histories and prevailing social circumstances exert a strong influence on children’s embodied physicalities.

scholarly journals Exploring perceptions and attitudes of black Sub-Sahara African (BSSA) migrants towards residential care in England

2020 ◽  
Vol 16 (3) ◽  
pp. 307-315
Author(s):  
Mathew Nyashanu ◽  
Scovia Nalugo Mbalinda ◽  
Fungisai Mushawa ◽  
Mandu Stephene Ekpenyong
Keyword(s):  
Focus Group ◽  
Residential Care ◽  
Social Care ◽  
Death And Dying ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Early 19Th Century ◽  
Content Type ◽  
Health And Social Care ◽  
The Uk

Purpose Since the early 19th century, the UK has seen a decrease in mortality rates and increase in life expectancy. This has increased the number of elderly people being put into residential care. Change in British population demography with the arrival of many Africans from the black Sub-Sahara African (BSSA) countries has increased the need of these services. The purpose of this paper is to explore perceptions and attitude of BSSA towards residential care from potential user perspective. Design/methodology/approach This study was explorative qualitative in nature, using focus group discussions and one-on-one follow up semi-structured interviews. The focus group discussions and interviews were audio recorded and transcribed verbatim. The Silences Framework was used to guide this study, and the collection of data was done using the thematic analysis approach. Findings This study found out that the sense of confinement, lack of ownership, non-provision of culturally friendly food, non-provision of culturally friendly personal care, non-provisional of culturally orientated death and dying care, stigma for being neglected and perceived poor inclusivity leading to loneliness were found to discourage BSSA research participants from taking up residential care in the UK. Research limitations/implications In future, there is need for cross-cultural comparisons of BSSA communities living in the UK and BSSA communities living in Africa or other parts of the world. This may enhance understanding the differences and similarities based on contextual social, political and economic factors. Practical implications There is a need to understand the needs and concerns of new communities in relation to residential care and make necessary changes to enhance diversity and inclusivity. More importantly, the curriculum and professional development courses for staff in health and social care need to factor in the concepts of cultural competency and inclusivity to prepare them for the increasingly changing terrain of social care. Originality/value Owing to the changing demography and diversity in the UK population, there is a need to re-orient and re-design residential care services provision to make it diverse and inclusive of new communities from other cultures.

The health and social care needs of family carers supporting adults with autistic spectrum disorders

Autism ◽  
2004 ◽  
Vol 8 (4) ◽  
pp. 425-444 ◽  
Author(s):  
Dougal Julian Hare ◽  
Catherine Pratt ◽  
Mark Burton ◽  
Jo Bromley ◽  
Eric Emerson
Keyword(s):  
Social Care ◽  
Autistic Spectrum Disorders ◽  
Family Carers ◽  
Care Needs ◽  
Autistic Spectrum ◽  
Health And Social Care ◽  
Spectrum Disorders

scholarly journals Multimorbidity, disadvantage, and patient engagement within a specialist homeless health service in the UK: an in-depth study of general practice data

BJGP Open ◽  
2017 ◽  
Vol 1 (3) ◽  
pp. bjgpopen17X100941 ◽  
Author(s):  
Anton B Queen ◽  
Richard Lowrie ◽  
Janice Richardson ◽  
Andrea E Williamson
Keyword(s):  
Health Care ◽  
Health Service ◽  
Patient Engagement ◽  
Data Extraction ◽  
Care Needs ◽  
Long Term Conditions ◽  
Health And Social Care ◽  
Data Extraction Form ◽  
Depth Study ◽  
The Uk

BackgroundThere is a paucity of current health data regarding users of a specialist homeless health service in the UK.AimTo describe the health of users of a specialist homeless health service by assessing levels of multimorbidity, social exclusion — by measuring severe and multiple disadvantage (SMD) — and patient engagement with health care.Design & settingAnalysis of patient-level data from computerised records of patients registered with a specialist homeless health service in Glasgow, Scotland.MethodData for 133 patients were extracted using a data extraction form. Multimorbidity and SMD were described using categorisation adapted from previous literature in this field. Stepwise regression analysis was carried out to assess the relationship between domains of SMD experienced and the number of long-term conditions (LTCs) a patient had.ResultsThe average age of patients in the cohort was 42.8 years, however levels of multimorbidity were comparable to those aged ≥85 years in the general population. The average number of LTCs was 2.8 per patient, with 60.9% of patients having both mental and physical comorbidity. SMD was categorised into three domains: homelessness; substance misuse; and previous imprisonment. More than 90.0% of patients experienced ≥2 domains of SMD, and SMD experiences were associated with multimorbidity: as domains of SMD experiences increased, so did the number of LTCs a patient was recorded as having.ConclusionThis cohort of patients has a complex burden of health and social care needs, which may act as barriers in the provision of effective health care.

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