scholarly journals Validity of the DISABKIDS® - Cystic Fibrosis Module for Brazilian children and adolescents

2014 ◽  
Vol 22 (5) ◽  
pp. 819-825 ◽  
Author(s):  
Danielle Maria de Souza Serio dos Santos ◽  
Keila Cristiane Deon ◽  
Monika Bullinger ◽  
Claudia Benedita dos Santos
Keyword(s):  
Cystic Fibrosis ◽  
Federal District ◽  
Structural Equations ◽  
Cronbach’S Alpha ◽  
Frequency Distributions ◽  
Cronbach's Alpha ◽  
Related Quality ◽  
Health Related ◽  
High Internal Consistency ◽  
Brazilian Children

OBJECTIVES: to validate the health-related quality of life measuring instrument DISABKIDS(r) - Cystic Fibrosis Module (self version) for Brazilian children and adolescents.METHOD: methodological study in which a sample of 113 participants (54 girls and 59 boys; mean age 11.91 years and SD=2.79) was considered, from four Brazilian states, São Paulo, Paraná, Minas Gerais and the Federal District, 51 of whom participated in the pilot study and 62 in the field study. The answers to the questionnaire were analyzed, considering the frequency distributions with regard to the floor and ceiling effects, Cronbach's Alpha statistics, Pearson's Linear Correlation Coefficient, Mulitrait-Multimethod analysis and Confirmatory Factor Analysis according to Structural Equations Modeling.RESULTS: the instrument showed a high internal consistency coefficient (verified using Cronbach's Alpha) and construct validity, according to the Multitrait-Multimethod analysis. The DISABKIDS(r) - Cystic Fibrosis Module, self version, maintained the same factorial structure as in the originally proposed model.CONCLUSION: the instrument validation has been finished and indicates that the self version is validated for use in Brazil and can be included into the monitoring routine of this population.

scholarly journals Psychosocial assessment and quality of life assessment in children with congenital heart in a developing country

2021 ◽  
Vol 69 (1) ◽  
Author(s):  
Aly Abdel Mohsen ◽  
Mona Gamal Kassem ◽  
Manal A.-M. Antonios
Keyword(s):  
Quality Of Life ◽  
Congenital Heart ◽  
Life Assessment ◽  
Psychosocial Assessment ◽  
Health Related Quality ◽  
Cronbach’S Alpha ◽  
Cronbach's Alpha ◽  
Related Quality ◽  
Health Related

Abstract Background Few studies have examined the clinical utility of a brief psychosocial screening questionnaire and assessing the health-related quality of life as part of routine care in a pediatric cardiology clinic. Subject and methods A cross-sectional study was conducted over 6 months duration involving 224 patients with congenital heart diseases (CHD) aged 4–18 years and their parents to fulfill Pediatric Symptom Checklist (PSC) and Health related – Quality Of Life (HR-QOL) score. Statistical analysis of reliability of these scores among the studied population was carried using Cronbach’s alpha value. Results The studied population with CHD, aged 4–18 years with a mean ± standard deviation of 99.48 ± 43.37 months. They were 54.5% males (n = 122) and 45.5% females (n = 102). Internalizing problems were identified by PSC in 12.95% of patients (n = 29), Cyanosis was found to be the only significant independent risk factor for developing internalizing defects (p < 0.001). Quality of school functioning was the most affected domain in HR-QOL. While, the quality of social functioning remained good in the majority of cases. Cronbach’s alpha value coefficient of PSC and HR-QOL scores were 0.846 and 0.900 respectively, reflecting good to excellent reliability of these scores within the studied population. Conclusions Children with CHD have increased need for psychosocial assessment for improvement of their quality of life.

scholarly journals 357 Factors associated with changes in health-related quality of life in children with cystic fibrosis during one-year follow-up

2017 ◽  
Vol 16 ◽  
pp. S154
Author(s):  
M. Van Horck ◽  
B. Winkens ◽  
G. Wesseling ◽  
K. de Winter-de Groot ◽  
I. De Vreede ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Health Related Quality ◽  
Factors Associated ◽  
Related Quality ◽  
Health Related ◽  
One Year

scholarly journals Economic Burden And Health-Related Quality Of Life Of Patients With Cystic Fibrosis In Bulgaria

Folia Medica ◽  
2015 ◽  
Vol 57 (1) ◽  
pp. 56-64 ◽  
Author(s):  
Georgi G. Iskrov ◽  
Rumen S. Stefanov ◽  
Julio López-Bastida ◽  
Renata Linertová ◽  
Juan Oliva-Moreno ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Economic Burden ◽  
Resource Utilisation ◽  
Informal Carer ◽  
Health State ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

AbstractObjective:The aim of this study was to determine the economic burden from a societal perspective and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) in Bulgaria.Materials and methods:We conducted a cross-sectional study of 33 patients with CF and 17 caregivers from Bulgaria. Data on socio-demographic characteristics, health resource utilisation, informal care, labor productivity losses and HRQOL were collected from questionnaires completed by patients or their caregivers. HRQOL was evaluated with the EuroQol 5-domain (EQ-5D-3L) questionnaire.Results:Median annual costs of CF in Bulgaria were € 24 152 per patient in 2012 as a reference year. Median annual costs for children were found to be significantly higher than those for adults – € 31 945 vs. € 15 714 (p = 0.012). This outcome came from statistically significant differences in costs for main informal carer (p < 0.001) and costs for other informal carers (p = 0.022). As a single cost item, drugs had the biggest monetary impact. Median annual drug costs were € 13 059. Bulgarian CF patients showed low HRQOL results – 50 median VAS score and 0.592 median health utilities. A quarter of patients even rated their health state as worse than death.Conclusion:CF patients from Eastern Europe remain a vulnerable population with risk factors for worse health outcomes. Our study provided a state-of-the art analysis that facilitates the elaboration, adoption and application of targeted public health policies to tackle CF-related problems at national and European level.

scholarly journals Good practices in normal childbirth: reliability analysis of an instrument by Cronbach’s Alpha

2018 ◽  
Vol 26 (0) ◽  
Author(s):  
Leila Bernarda Donato Gottems ◽  
Elisabete Mesquita Peres De Carvalho ◽  
Dirce Guilhem ◽  
Maria Raquel Gomes Maia Pires
Keyword(s):  
Scientific Evidence ◽  
Federal District ◽  
Cross Sectional Study ◽  
Public Hospitals ◽  
Evaluation Instrument ◽  
Cronbach’S Alpha ◽  
Cross Sectional ◽  
Good Practices ◽  
Cronbach's Alpha ◽  
Childbirth Care

ABSTRACT Objectives: to analyze the internal consistency of the evaluation instrument of the adherence to the good practices of childbirth and birth care in the professionals, through Cronbach’s Alpha Coefficient for each of the dimensions and for the total instrument. Method: this is a descriptive and cross-sectional study performed in obstetric centers of eleven public hospitals in the Federal District, with a questionnaire applied to 261 professionals who worked in the delivery care. Results: The study was attended by 261 professionals, 42.5% (111) nurses and 57.5% (150) physicians. The reliability evaluation of the instrument by the Cronbach Alfa resulted in 0.53, 0.78 and 0.76 for dimensions 1, 2 and 3, after debugging that resulted in the exclusion of 11 items. Conclusions: the instrument obtained Cronbach’s alpha of 0.80. There is a need for improvement in the items of dimension 1 that refer to attitudes, knowledge, and practices of the organization of the network of care to gestation, childbirth, and birth. However, it can be applied in the way it is used to evaluate practices based on scientific evidence of childbirth care.

scholarly journals Relationships Among Health-Related Quality of Life, Pulmonary Health, and Newborn Screening for Cystic Fibrosis

CHEST Journal ◽  
2011 ◽  
Vol 140 (1) ◽  
pp. 170-177 ◽  
Author(s):  
Audrey Tluczek ◽  
Tara Becker ◽  
Anita Laxova ◽  
Adam Grieve ◽  
Caroline N. Racine Gilles ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Newborn Screening ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related
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