scholarly journals Child with autistic spectrum disorder: care from the family

2018 ◽  
Vol 22 (4) ◽  
Author(s):  
Lina Domenica Mapelli ◽  
Mayara Caroline Barbieri ◽  
Gabriela Van Der Zwaan Broekman Castro ◽  
Maria Aparecida Bonelli ◽  
Monika Wernet ◽  
...  
Keyword(s):  
Narrative Analysis ◽  
Autistic Spectrum Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Change Of Direction ◽  
Descriptive Research ◽  
Children With Asd ◽  
The Family ◽  
Family Acceptance ◽  
Stimulation Of

Abstract Objective: To know the experience of the family in the care of the child with Autism Spectrum Disorder (ASD) and to discuss possibilities of health care. Method: Descriptive research with qualitative approach, carried out with 15 families of children with ASD, living in two municipalities in the interior of the state of São Paulo, from October 2016 to March 2017. The Symbolic Interactionism was used as theoretical reference, and Narrative Analysis, as method. Results: Families perceive signs of autism, however, believe that there are not suspicious behaviors, but the child's personalities. When diagnosis is defined, family acceptance is painful and sad. The mother shows to be the main caretaker, while the father remains in the background. A significant change of direction of the family towards the care/attention/stimulation of the autistic child is observed. Conclusion: Unveiling family experience in the care of children with ASD amplifies strategies for reinforcement and adaptation.

Increasing, Stable, or Decreasing? The Dynamics of Family Harmony Involving Children With Autism Spectrum Disorder: A Qualitative Research

2021 ◽  
pp. 106648072110272
Author(s):  
Nailul Fauziah ◽  
Nurul Hartini ◽  
Wiwin Hendriani ◽  
Dewi Retno Suminar ◽  
Duta Nurdibyanandaru
Keyword(s):  
Autism Spectrum Disorder ◽  
Family Income ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Children With Asd ◽  
Qualitative Thematic Analysis ◽  
The Family ◽  
Family Acceptance ◽  
Family Harmony

Purpose: To investigate the dynamics of family harmony involving children with autism spectrum disorder (ASD). Methodology: Research was conducted using an instrumental case study on 20 participants (10 couples). Data were analyzed in two stages: quantitative content analysis and qualitative thematic analysis. Result: Results indicate the strengthening dynamics of family harmony involving children with ASD. Specifically, parents increasingly develop closeness as they focus on parenting. The commitment between husband and wife is also strengthened as they develop supportive communication patterns and search for various solutions to overcome conflicts and crises in the family. In dealing with conflicts, for example, the role of each family member is clearly delineated, and discussion among family members is encouraged. Other factors that affect family harmony include family acceptance of child’s condition, extended moral and material support by the family, the process and progress of child care, length of marriage, length of care for children, family income, and level of education of parents. Differences exist between the determinants of family harmony in families with children with ASD and those of a general family. Applications/Originality/Value: The condition of children with ASD might strengthen family harmony. Family harmony is an important concept, but the research on the dynamics of family harmony involving children with ASD is limited.

scholarly journals Clinical Characteristics of Autism Spectrum Disorder in Israel: Impact of Ethnic and Social Diversities

2015 ◽  
Vol 2015 ◽  
pp. 1-7 ◽  
Author(s):  
Muhammad Mahajnah ◽  
Rajech Sharkia ◽  
Haitham Shalabe ◽  
Ruth Terkel-Dawer ◽  
Ashraf Akawi ◽  
...  
Keyword(s):  
Autistic Spectrum Disorder ◽  
Psychiatric Comorbidity ◽  
Arab World ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Cultural Bias ◽  
Children With Asd ◽  
Jewish Ancestry ◽  
Arab Sector ◽  
Child Development Centers

Despite the increased global prevalence and recognition of autistic spectrum disorder (ASD), it is still scarcely reported in the Arab world. Though Israel has a higher prevalence of ASD, a previous national survey of patients diagnosed between 1972 and 2004, demonstrated that 98% of them were of Jewish ancestry. The disproportional low number of Arab children with ASD in Israel is unclear but may reflect lower awareness and cultural bias. In the present study we collected clinical and demographic characteristics of 200 children with ASD from Arab and Jewish sectors in Israel that were evaluated in two child development centers. We compared the incidence and the medical comorbidity of autism between these two ethnics groups. The medical and psychiatric comorbidity profile in these children was similar to the worldwide published studies. In the present study the prevalence of autism in the Arab sector in Israel was similar to that of the Jewish sector. The Arab patients presented with more severe autistic manifestations and higher incidence of mental retardation, familial members with autism, and consanguinity (P<0.05), while in the Jewish sector milder forms (such as Asperger syndrome and PDD-NOS) were more frequent. This discrepancy might be explained by both genetic and cultural factors.

scholarly journals Alterations of Mitochondrial Biology in the Oral Mucosa of Chilean Children with Autism Spectrum Disorder (ASD)

Cells ◽  
2019 ◽  
Vol 8 (4) ◽  
pp. 367 ◽  
Author(s):  
Manuel Carrasco ◽  
Celia Salazar ◽  
William Tiznado ◽  
Lina María Ruiz
Keyword(s):  
Mitochondrial Dna ◽  
Oral Mucosa ◽  
Autistic Spectrum Disorder ◽  
Stereotyped Behavior ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Communicative Skills ◽  
Children With Asd ◽  
Opa1 Gene ◽  
High Oxidative Stress

Autistic Spectrum Disorder (ASD) is characterized by the impairment of socio-communicative skills and the presence of restricted and stereotyped behavior patterns. Recent researches have revealed the influence of mitochondrial physiology on the development of ASD. Several research groups have identified defects in respiratory complexes, coenzyme-Q10 deficiency, increased oxidative damage, decreased of superoxide dismutase (SOD2). A study on the influence of mitochondrial physiology on the development of ASD can provide new alternatives and challenges. That is why we set ourselves the general objective to initiate studies of mitochondrial physiology in Chilean children with ASD. A sample of oral mucosa was collected in a group of 12 children diagnosed with ASD and 12 children without ASD. In children with ASD, we found a significant increase in mitochondrial DNA levels. Likewise, in these children, an increase in the protein oxidation was observed. Finally, a downward trend in the expression of the HIGD2A and SOD2 genes was observed, while DRP1, FIS1, MFN1, MFN2, and OPA1 gene expression show an upward trend. The increment of mitochondrial DNA, high oxidative stress, and high expression of the MFN2 gene could help as a scanner of the mitochondrial function in children with ASD.

Family assistant opportunities in the area of supporting family with a child with autism spectrum (ASD)

2020 ◽  
Vol 35 (5) ◽  
pp. 155-174
Author(s):  
Anna Banasiak ◽  
Agata Niezabitowska
Keyword(s):  
Autism Spectrum Disorder ◽  
Pregnant Women ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Comprehensive System ◽  
Instrumental Support ◽  
Children With Asd ◽  
The Family ◽  
The Right

The family assistant’s tasks include providing emotional and instrumental support and empowering the family in its subjectivity. As raising a child with ASD poses many specific challenges (e.g. the lack of a comprehensive system of support), the assistant should be able to guide the family to the right institutions. The aim of this article is to indicate the need for family assistants to know the specificity of autism spectrum disorder. In addition, based on the ‘For Life’ Act, the available benefits and services for pregnant women, children with ASD and their families are described, and a list of support facilities is provided.

“His inner-self must be good”: An ethnographic-vignette study of social interactions between children with autism spectrum disorder and typically developing peers

2020 ◽  
Vol 38 (1) ◽  
pp. 232-255
Author(s):  
Huso Yi ◽  
Queenie K. Y. Siu
Keyword(s):  
Autism Spectrum Disorder ◽  
Peer Relationships ◽  
Narrative Analysis ◽  
Peer Interactions ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Positive Interactions ◽  
Typically Developing ◽  
Children With Asd

Children with autism spectrum disorder (ASD) can benefit from greater social integration through positive peer relationships. The study aimed to understand children’s views toward autism as well as experiences of interactions between children with ASD and typically developing (TD) peers. After ethnographic observations in a mainstream primary school educating diverse students, interviews were conducted with 10 students with ASD and ten of their TD peers using open-ended and vignette questions about three hypothetical scenarios set in varied contexts: a classroom, a birthday party, and a public setting. Narrative analysis focused on how the children constructed their experiences in response to these vignettes. Children with ASD frequently experienced isolation in peer interactions. While their TD peers favored interactions with those with ASD, believing that their behaviors of concern are extrinsic and their intentions must be good, their lack of understanding of ASD and of social skills that could be used to facilitate more positive interactions could result in unintended harm and exclusion. Early school-based intervention would assist in increasing the acceptance of neurodevelopmental differences and diversity.

Enhancing Sexual Awareness in Children With Autism Spectrum Disorder

2020 ◽  
pp. 79-98
Author(s):  
Stefanos Plexousakis ◽  
Maria Georgiadi ◽  
Constantinos Halkiopoulos ◽  
Evgenia Gkintoni ◽  
Elias Kourkoutas ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Case Report ◽  
Early Intervention ◽  
Sex Education ◽  
Educational Program ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Social Deficits ◽  
Children With Asd ◽  
The Family

Autism spectrum disorder (ASD) involves difficulties in communication, relationships, and social interactions. Social deficits, in conjunction with sensory issues, can provoke several difficulties regarding the capacity of a child to be engaged in a relationship. The present study is a case report that outlines the implementation of a sex educational program, aiming at increasing participant awareness and the ability to improve/establish relationships. Findings also revealed the need for early intervention on issues regarding sex education and the involvement of the family of children with ASD.

scholarly journals A Survey of Parents' Use of Music in the Home With Their Child with Autism Spectrum Disorder: Implications for Building the Capacity of Families

2014 ◽  
Vol 14 (1) ◽  
Author(s):  
Grace Anne Thompson
Keyword(s):  
Autism Spectrum Disorder ◽  
Music Therapy ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Family Outcomes ◽  
Children With Asd ◽  
The Family ◽  
Central Tenet ◽  
Childhood Intervention

Preschool aged children with disabilities including Autism Spectrum Disorder (ASD) typically receive early childhood intervention services that adopt a family-centred approach to supporting child and family outcomes. Family-centred approaches aim to build the capacity of parents to support their child’s development immediately and into the future, and therefore offer parents a variety of resources. One indication of whether these resources have been relevant and useful to the family is to consider how well they have been incorporated into everyday life. This study surveyed 11 families of children with ASD aged 3- 6 years who were receiving music therapy as part of a broader study, and asked them to keep a journal of their use of the music experiences modelled within the sessions during their typical week. It is the first study to ask parents of children with ASD to quantify the time spent in music experiences. Results showed that families can and do use music to engage with their child with ASD, with a total median time of 2.8 hours per week recorded. The total average time comprised four categories of music experiences, including singing, singing and playing instruments, improvising with instruments, and listening to music. Of these, singing and listening to music were the most popular (37% each of the total time) and were best maintained at follow up. These results provide preliminary support demonstrating that music therapy could be a successful way to support capacity building in families by encouraging them to embed therapeutic music experiences into their daily life. Further and more detailed research is needed to investigate this central tenet of family-centred practice, particularly in regards to how families’ use of music experiences change over time.

scholarly journals The Family Role in Fulfilling the Activities of Daily Living (ADLs) among Children with Autism Spectrum Disorder

2019 ◽  
Vol 6 (1) ◽  
pp. 014-018
Author(s):  
Suprajitno Suprajitno ◽  
Frizcha Illah Arisky
Keyword(s):  
Autism Spectrum Disorder ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Family Role ◽  
Validity And Reliability ◽  
Children With Asd ◽  
The Family

Children with autism spectrum disorder (ASD) have difficulty of activity and readability so that dependently to a parent or others. The study purpose to describe the family role in fulfilling of the Activities of Daily Living (ADLs) for children with ASD who gets service at Autism Center of Blitar City (Bahasa: Pusat Layanan Autis Kota Blitar). The study used descriptive-survey as a design to determine family roles among ASD children, the researcher purposively selected 34 families to be part of the study. Questionnaires were developed inspired by the theory of basic human needs and self-care and underwent validity and reliability tests. This study result showed that the family role in fulfilling the ADLs for children with ASD in the good category as many as 67.6% (23 families), in enough category as many as 29.4% (10 families), and in less category as many as 3.0% (1 family). Fulfillment of ADLs for children with ASD who need attention is the fulfillment of nutrition because parents must ensure that food that has entered into the mouth should be swallowed. Results also found out that inadequate nutrition affects child’s with ASD growth and development. The study strongly recommends the roles of parents as vital in meeting the needs of the children  and stimulates development.

Space at Home for Families with a Child with Autistic Spectrum Disorder

2009 ◽  
Vol 72 (9) ◽  
pp. 378-383 ◽  
Author(s):  
Sue Pengelly ◽  
Phil Rogers ◽  
Kerri Evans
Keyword(s):  
Home Environment ◽  
Autistic Spectrum Disorder ◽  
Physical Space ◽  
Spectrum Disorder ◽  
Occupational Engagement ◽  
Theoretical Understanding ◽  
Autistic Spectrum ◽  
Children With Asd ◽  
The Family ◽  
At Home

The interrelationship between the home environment, occupations and wellbeing was explored in relation to the lived experiences of three families with a child diagnosed with autistic spectrum disorder (ASD). Each family had acquired an extra downstairs room through moving or adapting their home, which they dedicated to their child with ASD. This project used diary records and narrative interviews to gain an in-depth understanding of how the room was used, the meaning that the family attached to this additional space and its impact on their occupational engagement. The findings reflected the complexity of problems experienced by children with ASD and their families. They revealed that dedicated physical space was experienced as important personal, emotional and occupational space for all family members. This study helps to develop a theoretical understanding of the importance of establishing a good fit between individuals with developmental disabilities and their home environment. It argues that space at home influences the behaviour of children with ASD, the stress levels of their parents and the occupational engagement of all members of their family, and emphasises the importance of adequate space at home for children with ASD and their families.

scholarly journals Children with autistic spectrum disorder: perception and experience of families

2021 ◽  
Vol 31 (2) ◽  
pp. 224-235
Author(s):  
Patricia Poleto Monhol ◽  
Juliana Maria Bello Jastrow ◽  
Yasmin Neves Soares ◽  
Nathalya Das Candeias Pastore Cunha ◽  
Micael Colodette Pianissola ◽  
...  
Keyword(s):  
Autistic Spectrum Disorder ◽  
Ethics Committee ◽  
Qualitative Approach ◽  
Spectrum Disorder ◽  
Human Beings ◽  
Life Changes ◽  
Autistic Spectrum ◽  
Children With Asd ◽  
The Family ◽  
Families With Children

Introduction: Autistic Spectrum Disorder (ASD) is part of neurodevelopmental disorders, which are behavioral and cognitive. These symptoms appear according to the child's development, however, most of the time, they present themselves before the age of three, and they may evolve to greater intensities or not. Objective: To analyze the experience of families with children with Autistic Spectrum Disorder. Methods: Exploratory study with a qualitative approach carried out at the Associação de Pais e Amigos dos Excepcionais (Association of Parents and Friends of the Exceptional/APAE). 46 families and 10 professionals participated in the study. For the analysis of the results, the technique of content analysis proposed by Bardin was used. The research project for this study was approved by the Ethics Committee for Research with Human Beings under opinion No. 3172.942 on February 27, 2019. Results: It was evident that the family is an important instrument for the care of children with ASD and, for this reason, it should be seen in an integrated and not fragmented way in care, thus revealing the need to promote actions that take care of the caregiver and not just of the child itself, because as seen, every process that goes from birth to diagnosis and treatment of the child requires changes that can also bring harm to the health of the family. Conclusion: The experience of families of children with ASD goes through phases of acceptance and adaptation and depends on the interaction and assistance of professionals so that they can, despite life changes, perceive them as important in promoting the child's life from the motor and cognitive interaction with society.

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