scholarly journals Self-Reports of Psychosocial Functioning among Children and Young Adults with Cleft Lip and Palate

2006 ◽  
Vol 43 (5) ◽  
pp. 598-605 ◽  
Author(s):  
Orlagh Hunt ◽  
Donald Burden ◽  
Peter Hepper ◽  
Mike Stevenson ◽  
Chris Johnston
Keyword(s):  
Young Adults ◽  
Behavioral Problems ◽  
Psychosocial Functioning ◽  
Psychological Functioning ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Self Esteem ◽  
Facial Appearance ◽  
Significant Difference ◽  
Children And Young Adults

Objective: A cross-sectional study was employed to determine the psychosocial effects of cleft lip and/or palate among children and young adults, compared with a control group of children and young adults without cleft lip and palate. Participants: The study comprised 160 children and young adults with cleft lip and/or palate and 113 children and young adults without cleft lip and/or palate. All participants were between 8 and 21 years of age. Outcome measures: Psychological functioning (anxiety, self-esteem, depression, and behavioral problems) was assessed using validated psychological questionnaires. Happiness with facial appearance was rated using a visual analog scale. Social functioning, including experience of teasing/bullying and satisfaction with speech, was assessed using a semistructured interview. Results: Participants with cleft lip and/or palate reported greater behavioral problems (p < .001) and more symptoms of depression (p < .01); they were teased more often (p < .001) and were less happy with their facial appearance (p < .01) and speech (p < .001), compared with controls. There were no significant difference between subjects with cleft lip and/or palate and subjects without cleft lip and/or palate in terms of anxiety (p > .05) or self-esteem (p > .05). Having been teased was a significant predictor of poor psychological functioning, more so than having a cleft lip and/or palate per se (p < .001). Conclusions: Teasing was greater among participants who had cleft lip and/ or palate and it was a significant predictor of poorer psychosocial functioning. Children and young adults with cleft lip and/or palate require psychological assessment, specifically focusing on their experience of teasing, as part of their routine cleft care.

Effect of Infant Orthopedics on Facial Appearance of Toddlers with Complete Unilateral Cleft Lip and Palate (Dutchcleft)

2008 ◽  
Vol 45 (4) ◽  
pp. 407-413 ◽  
Author(s):  
Catharina A. M. Bongaarts ◽  
Birte Prahl-Andersen ◽  
Ewald M. Bronkhorst ◽  
Paul H. M. Spauwen ◽  
Jan W. Mulder ◽  
...  
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Controlled Clinical Trial ◽  
Minor Effect ◽  
Facial Appearance ◽  
Surgical Closure ◽  
Significant Difference ◽  
Full Face ◽  
Infant Orthopedics ◽  
Positive Effect

Objective: To evaluate the effect of infant orthopedics (IO) on facial appearance of 54 patients with unilateral cleft lip and palate (UCLP), aged 4 and 6 years. Design: Prospective two-arm randomized controlled clinical trial in three Cleft Palate Centers in the Netherlands (Dutchcleft-trial). Interventions: Patients were divided randomly into two groups. Half of the patients (IO+) had a plate until surgical closure of the soft palate at the age of ± 52 weeks; the other half (IO−) received no intervention. Main Outcome Measures: Facial appearance at 4 and 6 years of age assessed on full face photographs and photographs showing only nose and mouth. Ratings were performed on a VAS-scale by professionals and laymen. Results: At 4 years of age the full face pictures of IO+ children were scored to be more attractive than those of IO− children. However, this difference had disappeared at 6 years of age. At the age of 6, only professionals saw a significant difference on nasolabial photographs between IO+ and IO−. Regression analysis showed a minor effect of occlusion, lip revision, or type of nose reconstruction on the esthetic results. Conclusions: IO had a positive effect on full facial appearance of UCLP children at the age of 4 years, but at the age of 6, only professionals saw a positive effect of IO on the nasolabial photographs. This is irrelevant for UCLP patients since they deal with laymen in their daily life.

Psychosocial Functioning and Sleep Patterns in Children and Adolescents with Cleft Lip and Palate (CLP) Compared with Healthy Controls

2009 ◽  
Vol 46 (2) ◽  
pp. 124-135 ◽  
Author(s):  
Serge Brand ◽  
Anja Blechschmidt ◽  
Andreas Müller ◽  
Robert Sader ◽  
Katja Schwenzer-Zimmerer ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Psychosocial Functioning ◽  
Psychological Functioning ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Skill Training ◽  
Psychosocial Assessment ◽  
Sleep Patterns ◽  
Social Competencies ◽  
And Gender

Objective: The aim of this study was twofold: to assess psychological functioning, interactional competencies, and sleep patterns in children and adolescents with cleft lip and palate (CLP), and to compare these results with those from age- and gender-matched controls. It was hypothesized that participants with CLP would exhibit greater difficulties in psychological functioning, more interactional difficulties, and poorer sleep patterns than those without CLP. Participants: Thirty-two children and adolescents with CLP and 34 controls were recruited. Ages ranged from 6 to 16 years. Main Outcome Measures: For psychosocial assessment, the Strength and Difficulties Questionnaire (SDQ) and a questionnaire on interactional competencies (PIELCQ) were completed; for sleep assessment, a sleep log was completed for seven consecutive nights. Results: Participants with and without CLP did not differ with respect to emotional problems, conduct problems, or hyperactivity. With respect to interactional competencies, participants with CLP were six times more likely to report difficulties. Unfavorable sleep patterns were associated with psychosocial strain but not with the presence of CLP. Conclusions: Results indicate that children and adolescents with CLP may report that they have sleep irregularities as often as those without CLP. In adolescence, the presence of CLP may be associated with increased difficulties. Consequently, skill training to improve context-related social competencies may be appropriate.

Audiological Status of Chinese Patients with Cleft Lip/Palate

2005 ◽  
Vol 42 (3) ◽  
pp. 280-285 ◽  
Author(s):  
Katie M. Y. Chu ◽  
Bradley McPherson
Keyword(s):  
Young Adults ◽  
Hong Kong ◽  
Health Status ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Chinese Patients ◽  
Ventilation Tubes ◽  
Cleft Lip Palate ◽  
Children And Young Adults ◽  
Hearing Health

Objective To review the audiological and otoscopic status of Chinese children and young adults seen at a cleft lip and palate clinic in Hong Kong and compare with previous studies of Western clinical populations. Design The hearing health status of the patients was analyzed on the basis of the results of their otoscopic, pure tone audiometric, and tympanometric examinations. The patients’ sex, age, race, and type of cleft pathology were examined for their potential relationship to hearing health status. Participants The records of 180 predominantly Chinese patients attending the Cleft Lip and Palate Centre, Prince Philip Dental Hospital/University of Hong Kong from July 1977 to December 1999 were reviewed. Results and Conclusion The results indicated 13.4% of patient ears failed the audiometric screening and 23.7% of patient ears yielded abnormal tympanometric results. Patients’ sex, age, and type of cleft pathology were found not to be related to hearing screening results. The prevalence of hearing disorder was in contrast with Western studies that show a much higher rate of audiological problems in children and young adults with cleft lip/palate. Racial factors were considered to be possible reasons for this disparity. Other factors, such as timely medical and surgical intervention, including early cleft palate repair and the insertion of ventilation tubes in cases of middle ear effusion, do not convincingly account for the study findings.

scholarly journals Parent Reports of the Psychosocial Functioning of Children with Cleft Lip and/or Palate

2007 ◽  
Vol 44 (3) ◽  
pp. 304-311 ◽  
Author(s):  
Orlagh Hunt ◽  
Donald Burden ◽  
Peter Hepper ◽  
Mike Stevenson ◽  
Chris Johnston
Keyword(s):  
Behavioral Problems ◽  
Psychosocial Functioning ◽  
Child Behavior Checklist ◽  
Cleft Lip ◽  
Previous History ◽  
Psychosocial Problems ◽  
Self Esteem ◽  
Cross Sectional Study ◽  
Control Group ◽  
Cross Sectional

Objectives: (1) to determine the opinion of parents regarding the psychosocial functioning of their child with cleft lip and/or palate (CLP); (2) to identify predictors of psychosocial functioning; and (3) to determine the level of agreement between children with CLP and their parents. Participants: One hundred twenty-nine parents of children with CLP and 96 parents of children without CLP participated in this cross-sectional study. Outcome measures: Parental opinion of the child's self-esteem, anxiety, happiness, and problems caused by facial appearance were assessed using visual analogue scales. Parents completed the Child Behavior Checklist and were interviewed. Results: Children with CLP were more anxious (p < 0.05), less happy with their appearance (p < 0.001), and in general (p < 0.05) had lower self-esteem (p < 0.05) and greater behavioral problems (p < 0.001) compared with non-CLP children. Parents reported that their child with CLP was teased more often (p < 0.001) and was less satisfied with his/her speech (p < 0.01) compared with reports of parents in the control group. A number of factors affected parents’ ratings of their child's psychosocial functioning (presence of CLP, appearance happiness, previous history of CLP, and visibility of scar). Children who had been teased were more anxious (p ≤ 0.01), less happy with their appearance (p < 0.001) and had greater behavioral problems (p < 0.001). Conclusions: Parents of children with CLP reported various psychosocial problems among their children. Parents considered children who had been teased to have greater psychosocial problems.

Psychosocial Functioning in Children and Young Adults With Juvenile Arthritis

PEDIATRICS ◽  
1988 ◽  
Vol 81 (2) ◽  
pp. 195-202
Author(s):  
Judy A. Ungerer ◽  
Barbara Horgan ◽  
Jeffrey Chaitow ◽  
G. David Champion
Keyword(s):  
High School ◽  
Young Adults ◽  
Primary School ◽  
Disease Severity ◽  
Social Relationships ◽  
Psychosocial Functioning ◽  
Juvenile Arthritis ◽  
Developmental Model ◽  
Physical Strain ◽  
Children And Young Adults

A questionnaire survey of 363 children and young adults with juvenile arthritis was conducted to assess the relations among disease severity, psychosocial functioning, and adjustment in three age groups—primary school, high school, and young adult. Parents were surveyed separately to determine which characteristics of the ill child at different ages most significantly impact the well-being of the family. Indices of psychologic functioning and disease severity were associated with adjustment in the primary school and high school groups, whereas measures of social relationships were strongly associated with adjustment only in the high school group. Relations among measures of psychologic functioning, social relationships, disease severity, and adjustment in young adults were minimal. Level of disease severity was associated with the presence of financial concerns, emotional problems, and physical strain in parents of high school children and young adults. The results emphasize the importance of using a developmental model for understanding the adjustment of individuals with chronic juvenile arthritis and their families.

scholarly journals Effects of rapid maxillary expansion in cleft patients resulting from the use of two different expanders

2016 ◽  
Vol 21 (6) ◽  
pp. 82-90 ◽  
Author(s):  
Daniel Santos Fonseca Figueiredo ◽  
Lucas Cardinal ◽  
Flávia Uchôa Costa Bartolomeo ◽  
Juan Martin Palomo ◽  
Martinho Campolina Rebello Horta ◽  
...  
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Rapid Maxillary Expansion ◽  
Cone Beam ◽  
Tomographic Image ◽  
Maxillary Expansion ◽  
Downward Movement ◽  
Computed Tomographic ◽  
Significant Difference ◽  
Maxillary Region

ABSTRACT Objective: The aim of this study was to evaluate the skeletal and dental effects of rapid maxillary expansion (RME) in cleft patients using two types of expanders. Methods: Twenty unilateral cleft lip and palate patients were randomly divided into two groups, according to the type of expander used: (I) modified Hyrax and (II) inverted Mini-Hyrax. A pretreatment cone-beam computed tomographic image (T0) was taken as part of the initial orthodontic records and three months after RME, for bone graft planning (T1). Results: In general, there was no significant difference among groups (p > 0.05). Both showed a significant transverse maxillary expansion (p < 0.05) and no significant forward and/or downward movement of the maxilla (p > 0.05). There was greater dental crown than apical expansion. Maxillary posterior expansion tended to be larger than anterior opening (p < 0.05). Cleft and non-cleft sides were symmetrically expanded and there was no difference in dental tipping between both sides (p > 0.05). Conclusions: The appliances tested are effective in the transverse expansion of the maxilla. However, these appliances should be better indicated to cleft cases also presenting posterior transverse discrepancy, since there was greater expansion in the posterior maxillary region than in the anterior one.

Habilitation of Patients with Clefts: Parent and Child Ratings of Satisfaction with Appearance and Speech

1992 ◽  
Vol 29 (3) ◽  
pp. 262-267 ◽  
Author(s):  
Hillary L. Broder ◽  
Fraser B. Smith ◽  
Ronald P. Strauss
Keyword(s):  
Patient Satisfaction ◽  
Cleft Palate ◽  
Age Differences ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Facial Appearance ◽  
School Aged Children ◽  
Speech Performance ◽  
Female Subjects ◽  
Parent Child

This study examined ratings regarding satisfaction with facial appearance and speech performance from 495 parent-child pairs. Data were obtained from school-aged children (5–18 years old) and their parents using standardized independent interviews. Results revealed that 54 percent of the children with cleft lip (CL) or cleft lip and palate (CLP) were very pleased with their appearance, and 62 percent of the cleft palate or CLP subjects were very pleased with speech. Low, but statistically significant correlations exist between the female subjects and their parents in satisfaction with appearance. Although older cleft lip and/or palate patients reported increased satisfaction with speech, no age differences in patient satisfaction with appearance were observed in subjects with CL/CLP. Parents of females expressed more concern about their daughters' appearance than parents of males, while parents of males were more concerned about speech. Implications for craniofacial habilitation teams and research suggestions are discussed.

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