scholarly journals Parent Reports of the Psychosocial Functioning of Children with Cleft Lip and/or Palate

2007 ◽  
Vol 44 (3) ◽  
pp. 304-311 ◽  
Author(s):  
Orlagh Hunt ◽  
Donald Burden ◽  
Peter Hepper ◽  
Mike Stevenson ◽  
Chris Johnston

Objectives: (1) to determine the opinion of parents regarding the psychosocial functioning of their child with cleft lip and/or palate (CLP); (2) to identify predictors of psychosocial functioning; and (3) to determine the level of agreement between children with CLP and their parents. Participants: One hundred twenty-nine parents of children with CLP and 96 parents of children without CLP participated in this cross-sectional study. Outcome measures: Parental opinion of the child's self-esteem, anxiety, happiness, and problems caused by facial appearance were assessed using visual analogue scales. Parents completed the Child Behavior Checklist and were interviewed. Results: Children with CLP were more anxious (p < 0.05), less happy with their appearance (p < 0.001), and in general (p < 0.05) had lower self-esteem (p < 0.05) and greater behavioral problems (p < 0.001) compared with non-CLP children. Parents reported that their child with CLP was teased more often (p < 0.001) and was less satisfied with his/her speech (p < 0.01) compared with reports of parents in the control group. A number of factors affected parents’ ratings of their child's psychosocial functioning (presence of CLP, appearance happiness, previous history of CLP, and visibility of scar). Children who had been teased were more anxious (p ≤ 0.01), less happy with their appearance (p < 0.001) and had greater behavioral problems (p < 0.001). Conclusions: Parents of children with CLP reported various psychosocial problems among their children. Parents considered children who had been teased to have greater psychosocial problems.

Author(s):  
Jennifer A Hansen-Moore ◽  
Hillary M Kapa ◽  
Jennifer L Litteral ◽  
Leena Nahata ◽  
Justin A Indyk ◽  
...  

Abstract Objective To assess health-related quality of life (HRQoL), psychosocial adjustment, and family functioning of children with differences of sex development (DSD) or cleft lip and/or palate (CL/P). Methods In this cross-sectional study, parents of children with DSD (n = 67), CL/P (n = 121), and a comparison group of unaffected youth (n = 126) completed standardized measures assessing family functioning and their children’s HRQoL and psychosocial adjustment. Medical charts were abstracted for youth with either congenital condition. Results Children with DSD were rated as having significantly lower HRQoL and greater internalizing problems compared to youth with CL/P and unaffected youth. Children in the DSD group were also significantly more likely to fall into the clinical risk categories for total and internalizing problems relative to the CL/P and unaffected groups. Caregivers of children with DSD were significantly more likely to endorse items about child suicidality compared with caregivers in the CL/P and unaffected groups. No significant differences were found between groups for externalizing problems or the expressiveness domain of family functioning; parents of children with DSD reported significantly less family conflict relative to the other groups and greater cohesion relative to the unaffected group. Conclusions Youth with DSD appear to be at greater risk for psychosocial problems relative to children with CL/P and unaffected peers. Results underscore the need for integrated interdisciplinary care and ongoing psychosocial risk monitoring in youth with DSD.


Author(s):  
Manoel Itaguacy Leite NOVAIS JUNIOR ◽  
Manuella Santos Carneiro ALMEIDA ◽  
Camila Helena Machado da COSTA ◽  
Tassia Cristina de Almeida Pinto SARMENTO ◽  
Luis Ferreira de SOUSA FILHO ◽  
...  

ABSTRACT Objective: Evaluating the development of the permanent cuspids in children from Paraíba with cleft lip and palate applying the Nolla and the Demirjian methods. Methods: A cross-sectional study using an inductive approach and applying a comparative statistical procedure and direct documentation research technique. The universe of the study consisted of children assisted at the orthodontic practice of the Brazilian Association of Dentistry - Paraíba Section. The sample comprised 72 pairs of panoramic radiographs of children with and without cleft lip and palate from the same gender and, age difference of up to 30 days, ranging from 5 to 13 years of age. The study has evaluated the development of 576 cuspids. The images were evaluated by three duly calibrated examiners concomitantly, and the calcification stages were determined by a consensus. The stages of the cuspids calcification were evaluated in the panoramic radiographs according to Nolla and Demirjian classifications. Results: The average of the calcification stage of teeth was correspondingly higher in the control group than in the case group, showing a development delay of the cuspid teeth in the cleft lip and palate patients. The lower cuspids were significantly more developed than the upper cuspids (p <0.001). There were no significant differences between the sides. There was early tooth development in females but without significant difference. Conclusion: It was possible to note that patients with cleft lip and palate presented a delay in the development of the permanent cuspids when compared to non-cleft lip and palate patients, thus, reinforcing the importance of the individualization of the orthodontic planning.


Author(s):  
Seyed Mohamad Kazem Nourbakhsh ◽  
Minoo Atamanesh ◽  
Mohammad Effatpanah ◽  
Mona Salehi ◽  
Morteza Heidari

Objective: High prevalence of behavioral and psychological disorders in children with thalassemia can be associated with a decrease in the self-esteem of patients and can completely alter the person's self-concept. The aim of this study was to determine the prevalence of behavioral problems and its relationship with self-esteem and self-concept in patients with thalassemia major aged 6 to 18 years. Method: In a cross-sectional study, 30 patients with thalassemia major at the age of 6 to 18 years were enrolled. behavioral problems, self-esteem, and self-concept were evaluated by the child's behavioral check list at the ages of 6 to 18 years (CBCL 6-18), the Coopersmith's Self-Esteem Inventory, and the Piers-Harris Children's Self-Concept Scale. Results: A total of 10.0% of patients had behavioral disorders, 3 (10.0%) desirable self-esteem, 15 (50.0%) moderate self-esteem, and 12 (40.0%) poor self-esteem. There was a strong but adverse correlation between behavioral disorder score and both self-esteem score (correlation coefficient equal to -0.886, p value = 0.001) and self-concept score (correlation coefficient equal to -0.498, p value = 0.001), and thus those patients with behavioral disorder had less appropriate self-esteem and self-concept. Conclusion: The incidence of behavioral disorders is associated with decreased self-esteem and poor self-concept in these patients. Therefore, improvement in behavioral disorders can be expected by improving self-esteem and selfconcept in such patients.


2021 ◽  
pp. 9-11
Author(s):  
Nirmalya Manna ◽  
Shibasish Banerjee ◽  
Pulak Kumar Jana ◽  
Soumitra Mondal ◽  
Saikat Bhattacharya

Adolescence is characterized by conicts of values, emotional stress and readiness to extreme attitudes, which invariably leads to several psychosocial problems of adolescents. During adolescence, the frequency and severity of violent interactions increase. Worldwide, the prevalence of clinically signicant psychiatric disorder in children is at least 7%. This rate rises in socially disadvantaged and densely populated urban areas. It also increases by 3%-4% after puberty. Substance abuse is a common trigger of behavioral problems and often requires specic therapy. Behavioral problems may be the rst sign of depression or other mental health disorders. With this background this study is conducted to nd out different behavioral and psychological problems of underprivileged adolescents studying in a school of Kolkata and their background information as well. This observational & descriptive epidemiological study was cross-sectional in design, was conducted from December 2019 to February, 2020. The School has at present 500 students from class Ι to X. In each class there are 50 students. The school has provisional afliation from ICSE Board. 20 students were selected from each class by Stratied Random Sampling method by using random number table from the list of the students of class VI to X. A predesigned, pretested, self-administered questionnaire was used for data collection. The questionnaire was translated to two local languages i.e. Bengali & Hindi. Most common behavioral problems were lying (88%), phobia (86%). Anxiety (80%), followed by cruelty and destruction (44%), school failures (36%), depression (28%), stealing (20%), masturbation (10%), addiction (8%). Common problems among male students were Anxiety, Phobia, Lying, Cruelty, School failure. Among female students, Phobia, Depression, Anxiety & Lying were common behavioural problems. 62 adolescents told that they had phobia. Among them 62.9% adolescent had phobia to specic object. 32.26% had social phobia and 4.84% had school phobia. Further longitudinal studies should be planned to nd out temporal association of these behavioral and psychological problems among this study group.


2017 ◽  
Vol 55 (2) ◽  
pp. 220-225 ◽  
Author(s):  
Ieva Bagante ◽  
Inta Zepa ◽  
Ilze Akota

Objective: Rhinoplasty in patients with complete unilateral cleft lip and palate (UCLP) is challenging, and the surgical outcome of the nose is complicated to evaluate. The aim of this study was to assess the nasolabial appearance of patients with UCLP compared with a control group. Design: Cross-sectional study. Setting: Riga Cleft Lip and Palate Centre, Latvia. Participants: All consecutive 35 patients born between 1994 and 2004 with nonsyndromic complete UCLP were included. Of 35 patients, 29 came for checkup; the mean age was 14.7 years (range 10-18). In the control group, 35 noncleft participants at 10 years of age were included. Interventions: Nasolabial appearance was evaluated from 3-dimensional images using a 3-dimensional stereo-photogrammetric camera setup (3dMDface System), the results being analysed statistically. Results: In UCLP group, a statistically significant difference between cleft and noncleft side was found only in alar wing length ( P < .05). The difference of nasolabial anthropometric distances in the control group between the left and right side was not significant. The difference between the UCLP group and the control group was significant in all anthropometric distances except the lateral lip length to cupid’s bow. Conclusions: The nasolabial appearance with acceptable symmetry after cleft lip and reconstructive surgery of the nose was achieved. Symmetry of the nasolabial appearance in patients with UCLP differed from those in the control group. The 3D photographs with a proposed set of anthropometric landmarks for evaluation of nasolabial appearance seems to be a convenient, accurate, and noninvasive way to follow and evaluate patients after surgery.


2021 ◽  
pp. 105566562110314
Author(s):  
Marije van Dalen ◽  
Mireille M. Hermans ◽  
Willem H. Leemreis ◽  
Vivian Kraaij ◽  
Peter C. J. De Laat ◽  
...  

Objective: Life can be challenging for children with a visible difference due to a medical condition, and they might be at risk for emotional and behavioral problems. This study examines emotional and behavioral problems in children with a cleft lip with or without palate (CL ± P) or an infantile hemangioma (IH) in relation to the visibility of the condition, the presence of additional condition-related problems, and parental affect. Setting: This cross-sectional study took place in an academic medical hospital in the Erasmus MC Sophia Children’s Hospital, the Netherlands. Participants: A total of 309 parents (mean age = 40.34, 44.00% male) of 182 children with CL ± P and 48 parents (mean age = 39.21, 37.50% male) of 33 children with an IH completed questionnaires. Children were 1.5 to 12 years old. Results: Parents reported fewer child emotional and behavioral problems compared to normative data. Problems reported were mainly related to learning difficulties and parent gender, while visibility of the condition had no significant influence. Parental negative affect was related to child internalizing problems. Parental positive affect was not related to any of the outcome measures. Conclusions: Parents reported fewer problems for their children compared to normative data. This is inconsistent with previous research, showing similar or worse scores for these children compared to peers. Our findings may be explained by a protective parenting style, a response shift in parents, or problems developing at a later point in life.


2011 ◽  
Vol 48 (6) ◽  
pp. 736-740 ◽  
Author(s):  
W.E.J.C. Vogels ◽  
I.H.A. Aartman ◽  
J.S.J. Veerkamp

Objective To assess the level of dental fear in children with a cleft lip and/or palate, to compare this level with that of a normative group testing the hypothesis that children with a cleft lip and/or palate have a higher level of dental anxiety than children from the general population, and to assess the relation between dental fear and coping. Design Cross-sectional study. Setting VU Medical Centre University Amsterdam. Patients A total of 110 children (4 to 12 years old, 50 girls) with a cleft lip and/or palate. Interventions Dental fear in the study group was compared with a normative group of Dutch children. Main Outcome Measures Dental fear was investigated using the parental version of the dental subscale of the Children's Fear Survey Schedule for children aged 4 and 5 years old (n = 36). Also the Inventory of Stressful Situations was completed. Children aged 6 to 12 years old also completed the Dental Cope Questionnaire. Results Young children with a cleft lip and/or palate experience more dental fear compared with children in a normative control group (Children's Fear Survey Schedule dental subscale scores: 30.3 ± 14.6 compared with 24.6 ± 8.6, p < .01). A weak correlation was found between the child's dental anxiety (Children's Fear Survey Schedule dental subscale) and his or her coping behavior (Dental Coping Questionnaire) ( r = .196 p < .05). A clear correlation exists between the total Inventory of Stressful Situations and total Children's Fear Survey Schedule scores of the youngest age group ( r = .507 p < .01). Conclusions Findings support the hypothesis that dental anxiety is related to a higher level of exposure to medical interventions at a young age.


2020 ◽  
Vol 4 (1-3) ◽  
pp. 41
Author(s):  
Salsabila Yasmine Dyahputri ◽  
Rini Sekartini

Background: Short stature is a growth problem that are commonly found in developing countries. In Indonesia, the prevalence of primary school-aged children with short stature reaches 23.6% in 2018. Short stature in children is associated with psychosocial problems that are thought to be related to abuse, stigmatization, and social isolation faced by children. However, previous studies discussing this topic had mixed results and the number of studies has not been adequate.Objective: This study aimed to look for the relationship between short stature and psychosocial problems in primary school-aged children.Methods: A cross-sectional study design was used in primary school-aged children at SDN 01 Kampung Melayu. The study was conducted by comparing groups of children’s height and screening results for psychosocial problems using the PSC-17 questionnaire, which assesses three subscales of behavioral problems (internalizing, externalizing, and attention).Results: The prevalence of short statured children in SDN 01 Kampung Melayu reached 15.28%. The prevalence of children with psychosocial problems is 18.12% and the prevalence of short statured children with psychosocial problems is 22.73%. Analysis of association between short stature and psychosocial problems showed no statistically significant relationship, for general psychosocial problems (p=0.268), internalization subscale (p=0.532), externalization (p=0.400), attention (p=0.414), and PSC-17 total score (p=0.614).Conclusion: No significant relationship was found between short stature and psychosocial problems in primary school-aged children.


2018 ◽  
Vol 55 (8) ◽  
pp. 1103-1114
Author(s):  
Staffan Morén ◽  
Per Åke Lindestad ◽  
Mats Holmström ◽  
Maria Mani

Objectives: The aim of the current study was to assess voice quality among adults treated for unilateral cleft lip and palate (UCLP), after one- or two-stage palate closure, and compare it to a noncleft control group. Study Design: Cross-sectional study of patients with UCLP with long-term follow-up and noncleft controls. Participants: Patients with UCLP born between 1960 and 1987, treated at Uppsala University Hospital, Sweden, were examined (n = 73) at a mean of 35 years after primary surgery. Forty-seven (64%) patients had been treated with 1-stage palate closure and 26 with 2-stage closure (36%). The noncleft control group consisted of 63 age-matched volunteers. Main Outcome Measures: Ratings of perceptual voice characteristics from blinded voice recordings with Swedish Voice Evaluation Approach method. Acoustic voice analysis including pitch and spectral measures. Results: Among the patients, the mean values for the 12 evaluated variables on a visual analog scale (0 = no abnormality, 100 = maximal abnormality) ranged between 0.1 and 17, and the mean for all was 6 mm. Voice variables were similar between patients and controls, except the total mean of all the perceptual voice variables, as well as “vocal fry”; both slightly lower among patients ( P = .018 and P = .009). There was no difference in any variable between patients treated with 1-stage and 2-stage palate closure. No clear relationship was found between velopharyngeal insufficiency and dysphonia. Conclusions: The voice characteristics among adults treated for UCLP in childhood are not different from those of individuals without cleft.


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