scholarly journals Community translation in the context of the translation and cross-cultural adaptation of patient reported outcome measures: a South African perspective

2021 ◽  
Vol 51 (2) ◽  
Author(s):  
Susan de Klerk ◽  
Harold M. Lesch
Keyword(s):  
Outcome Measures ◽  
Cultural Adaptation ◽  
English Language ◽  
Health Sector ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Cross Cultural ◽  
Cross Cultural Adaptation ◽  
Cultural Adaption ◽  
Patient Reported

ABSTRACT INTRODUCTION: Occupational Therapists should use relevant patient reported outcome measures as part of providing evidence for occupational therapy intervention. Measures must be responsive, valid and reliable for use in all health sectors. An essential requirement is that the measure be available in the language of the populations it is intended for. As most measures are developed in the English language for use in English speaking countries, we put forward an opinion on the practice of community translation during the translation and cross-cultural adaption of patient reported outcome measures towards increased clinical utility in the public health sector of South Africa Keywords: patient reported outcome measures, translation and cross-cultural adaptation, community translation

scholarly journals Toward Ensuring Health Equity: Readability and Cultural Equivalence of OMERACT Patient-reported Outcome Measures

2015 ◽  
Vol 42 (12) ◽  
pp. 2448-2459 ◽  
Author(s):  
Jennifer Petkovic ◽  
Jonathan Epstein ◽  
Rachelle Buchbinder ◽  
Vivian Welch ◽  
Tamara Rader ◽  
...  
Keyword(s):  
Outcome Measures ◽  
Cultural Adaptation ◽  
Working Group ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Cross Cultural ◽  
Low Literacy ◽  
Cross Cultural Adaptation ◽  
Patient Reported

Objective.The goal of the Outcome Measures in Rheumatology (OMERACT) 12 (2014) equity working group was to determine whether and how comprehensibility of patient-reported outcome measures (PROM) should be assessed, to ensure suitability for people with low literacy and differing cultures.Methods.The English, Dutch, French, and Turkish Health Assessment Questionnaires and English and French Osteoarthritis Knee and Hip Quality of Life questionnaires were evaluated by applying 3 readability formulas: Flesch Reading Ease, Flesch-Kincaid grade level, and Simple Measure of Gobbledygook; and a new tool, the Evaluative Linguistic Framework for Questionnaires, developed to assess text quality of questionnaires. We also considered a study assessing cross-cultural adaptation with/without back-translation and/or expert committee. The results of this preconference work were presented to the equity working group participants to gain their perspectives on the importance of comprehensibility and cross-cultural adaptation for PROM.Results.Thirty-one OMERACT delegates attended the equity session. Twenty-six participants agreed that PROM should be assessed for comprehensibility and for use of suitable methods (4 abstained, 1 no). Twenty-two participants agreed that cultural equivalency of PROM should be assessed and suitable methods used (7 abstained, 2 no). Special interest group participants identified challenges with cross-cultural adaptation including resources required, and suggested patient involvement for improving translation and adaptation.Conclusion.Future work will include consensus exercises on what methods are required to ensure PROM are appropriate for people with low literacy and different cultures.

Systematic Review of Cross-cultural Adaptations of Hip-specific Patient-reported Outcome Measures in Spanish

2018 ◽  
Vol 14 (6) ◽  
pp. 372-378
Author(s):  
Sara Gómez-Valero ◽  
Fernando García-Pérez ◽  
Mariano Tomás Flórez-García ◽  
Juan Carlos Miangolarra-Page
Keyword(s):  
Systematic Review ◽  
Outcome Measures ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Cross Cultural ◽  
Cultural Adaptations ◽  
Specific Patient ◽  
Patient Reported

scholarly journals A systematic review of patient-reported outcome measures in paediatric otolaryngology

2017 ◽  
Vol 132 (1) ◽  
pp. 2-7 ◽  
Author(s):  
J Powell ◽  
S Powell ◽  
A Robson
Keyword(s):  
Outcome Measures ◽  
English Language ◽  
Health Assessment ◽  
Paediatric Population ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Specific Patient ◽  
Patient Reported ◽  
The Impact

AbstractBackground:Recently, there has been increased emphasis on the development and application of patient-reported outcome measures. This drive to assess the impact of illness or interventions, from the patient's perspective, has resulted in a greater number of available questionnaires. The importance of selecting an appropriate patient-reported outcome measure is specifically emphasised in the paediatric population. The literature on patient-reported outcome measures used in paediatric otolaryngology was reviewed.Methods:A comprehensive literature search was conducted using the databases Medline, Embase, Cumulative Index to Nursing and Allied Health Literature, and PsycInfo, using the terms: ‘health assessment questionnaire’, ‘structured questionnaire’, ‘questionnaire’, ‘patient reported outcome measures’, ‘PROM’, ‘quality of life’ or ‘survey’, and ‘children’ or ‘otolaryngology’. The search was limited to English-language articles published between 1996 and 2016.Results:The search yielded 656 articles, of which 63 were considered relevant. This included general paediatric patient-reported outcome measures applied to otolaryngology, and paediatric otolaryngology disease-specific patient-reported outcome measures.Conclusion:A large collection of patient-reported outcome measures are described in the paediatric otolaryngology literature. Greater standardisation of the patient-reported outcome measures used in paediatric otolaryngology would assist in pooling of data and increase the validation of tools used.

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