scholarly journals MUSIC THERAPY IN RETT SYNDROME CASES

Author(s):  
Vita Andziule ◽  
Vilmante Aleksiene ◽  
Sigita Lesinskiene

Rett syndrome is a rare (0,01%) genetic disorder affecting girls' development. Individuals with Rett syndrome experience a full range of health problems that severely influence and complicate their mobility, intellect, communication, learning, and entire lifestyle. The treatment of Rett's syndrome is still aimed at investigating new pathways to ensure the best possible patient’s development and quality of life. The distinctive feature of Rett syndrome is the two main sensations with little damage: hearing and vision. Therefore, music therapy plays an exceptional role in the treatment and special education of children with Rett syndrome. The goal of this study is to find the most effective music therapy techniques and their specific indications whilst working with individuals with Rett syndrome. Research method used: music therapists’ online survey conducted internationally. The research suggests that the most effective methods in Rett syndrome cases are structured musical games that promote targeted hands-on movements, as well as listening to the songs and choice of favourite songs using pictures or other symbols. Music therapy can be applied for various health needs of individuals with Rett syndrome, especially to enhance hand functions as well as to improve non-verbal communication and to help individuals experience togetherness and joy.

Author(s):  
Vita Andziule ◽  
Vilmante Aleksiene ◽  
Sigita Lesinskiene

Rett syndrome is a rare (0,01%) genetic disorder affecting girls' development. Individuals with Rett syndrome experience a full range of health problems that severely influence and complicate their mobility, intellect, communication, learning, and entire lifestyle. The treatment of Rett's syndrome is still aimed at investigating new pathways to ensure the best possible patient’s development and quality of life. The distinctive feature of Rett syndrome is the two main sensations with little damage: hearing and vision. Therefore, music therapy plays an exceptional role in the treatment and special education of children with Rett syndrome. The goal of this study is to find the most effective music therapy techniques and their specific indications whilst working with individuals with Rett syndrome. Research method used: music therapists’ online survey conducted internationally. The research suggests that the most effective methods in Rett syndrome cases are structured musical games that promote targeted hands-on movements, as well as listening to the songs and choice of favourite songs using pictures or other symbols. Music therapy can be applied for various health needs of individuals with Rett syndrome, especially to enhance hand functions as well as to improve non-verbal communication and to help individuals experience togetherness and joy.


2021 ◽  
Vol 39 (2) ◽  
pp. 181-201
Author(s):  
Emily Carlson ◽  
Ian Cross

Although the fields of music psychology and music therapy share many common interests, research collaboration between the two fields is still somewhat rare. Previous work has identified that disciplinary identities and attitudes towards those in other disciplines are challenges to effective interdisciplinary research. The current study explores such attitudes in music therapy and music psychology. A sample of 123 music therapists and music psychologists answered an online survey regarding their attitudes towards potential interdisciplinary work between the two fields. Analysis of results suggested that participants’ judgements of the attitudes of members of the other discipline were not always accurate. Music therapists indicated a high degree of interest in interdisciplinary research, although in free text answers, both music psychologists and music therapists frequently characterized music therapists as disinterested in science. Music therapists reported seeing significantly greater relevance of music psychology to their own work than did music psychologists of music therapists. Participants’ attitudes were modestly related to their reported personality traits and held values. Results overall indicated interest in, and positive expectations of, interdisciplinary attitudes in both groups, and should be explored in future research.


2010 ◽  
Vol 10 (1) ◽  
Author(s):  
Eunmi Emily Kwak

The concept of quality of life is a fundamental goal in the practice of music therapy, whether implicitly or explicitly defined in the philosophy of the practitioner. To improve the quality of life is often mentioned as one of the goals for music therapy treatment. However, the definition of quality of life has not always been clearly defined. The purpose of this article is to review the literature concerned with a definition for quality of life in other disciplines and to suggest a model for a more comprehensive definition of the quality of life for use in the practice of music therapy. Anecdotal examples are given to stir the issues toward a more comprehensive definition of the quality of life to be used in music therapy. As the title suggests, this article will not give a decisive answer for the definition of quality of life. However, this article will afford readers a chance to think and revisit their experiences as music therapists and define their own definition for quality of life.


2021 ◽  
Vol 10 (4) ◽  
pp. 207
Author(s):  
Mohammed Abdullah Al-Nofli

The research-teaching nexus is an important factor in the enhancement of the quality of teaching and learning in higher education institutions. The purpose of the study was to explore undergraduate students’ awareness and experiences of research in one faculty at Sohar University, Oman. Data were gathered from 240 undergraduate students using an online survey. Overall, results indicated that while there was good evidence of students’ awareness and experiences of research, less than half of the students in the sample were aware of or had experienced important research activities. Some students reported advantages arising from their participation in research—including developing research skills and gaining new knowledge. They also reported the need for more hands-on research experience and instructor support. Some findings were generally consistent with the literature on students’ awareness and experiences of research. The study provided important implications for the research-teaching nexus at Sohar University.


2021 ◽  
Author(s):  
◽  
I-Chen Sun

<p>This study was prompted in response to increased interest in, and demand for, music therapy provision in improving quality of care for dementia patients. It is an exploration of the strategies to facilitate memory and reminiscence in persons with dementia, and considers the need for those preparing for end of life to recall identities, connect with family and others, and express feelings. This research is a qualitative study involving secondary analysis of clinical data from my clinical practice and identifies the strategies, techniques and procedures that I applied in my clinical work to stimulate preserved memory ‘islands’. The findings show that familiarity is central in enabling a remembering process, and music can have unique ways of accessing memory in people with limited cognitive and social abilities. Eight core categories of music therapy strategies were found to be helpful in enabling memory and reminiscence. This study includes examples of both individual and group music therapy. The objective of this study was to examine my music therapy practice, and potentially provide some beneficial ideas and insights to other music therapists working on memory and reminiscence with dementia patients.</p>


2021 ◽  
Author(s):  
◽  
I-Chen Sun

<p>This study was prompted in response to increased interest in, and demand for, music therapy provision in improving quality of care for dementia patients. It is an exploration of the strategies to facilitate memory and reminiscence in persons with dementia, and considers the need for those preparing for end of life to recall identities, connect with family and others, and express feelings. This research is a qualitative study involving secondary analysis of clinical data from my clinical practice and identifies the strategies, techniques and procedures that I applied in my clinical work to stimulate preserved memory ‘islands’. The findings show that familiarity is central in enabling a remembering process, and music can have unique ways of accessing memory in people with limited cognitive and social abilities. Eight core categories of music therapy strategies were found to be helpful in enabling memory and reminiscence. This study includes examples of both individual and group music therapy. The objective of this study was to examine my music therapy practice, and potentially provide some beneficial ideas and insights to other music therapists working on memory and reminiscence with dementia patients.</p>


1993 ◽  
Vol 9 (4) ◽  
pp. 37-39 ◽  
Author(s):  
Susan E. Mandel

Music therapists make significant contributions to the multidisciplinary hospice team in its efforts to provide holistic palliative care to terminally ill patients and family members and to promote quality of life. The role of a hospice music therapist is described, including providing direct patient music therapy service, training the hospice team in music therapy, developing and maintaining a music therapy resource centre, and offering bereavement services. A review of patient charts Provides information about patient age, sex, diagnosis, and source and reasons for referral.


2018 ◽  
Vol 10 (01) ◽  
pp. e72-e78
Author(s):  
Hercules Logothetis ◽  
Dmitry Pyatetsky ◽  
Jeanine Baqai ◽  
Nicholas Volpe

Purpose In this study, we set out to better understand the factors that influenced current ophthalmology residents' internship selection. We then tested the hypothesis that certain clinical or research experiences in medical school and internship may influence residents' confidence upon entering ophthalmology residency. Furthermore, we investigated whether completing internship at the same program as one's residency is correlated with confidence at the start of residency. Design Observational, cross-sectional, multicenter survey. Participants U.S. ophthalmology residents (Post Graduate Year 2/3) belonging to the class of 2018. Eighty surveys were submitted of which 63 were analyzed based on established inclusion criteria. Methods Residents responded to a 22-question online survey addressing how residents chose their internship, internship curriculum, exposure to ophthalmology in medical school and during internship, confidence level entering ophthalmology residency, confidence in managing various ocular pathologies, and factors that built confidence prior to ophthalmology residency. A Likert scale format was used for the majority of survey questions. Kruskal–Wallis testing and Fisher's exact testing were used to compare outcome variables among three groups defined by sense of confidence entering ophthalmology training. Main Outcome Measures Level of confidence at the start of ophthalmology residency. Results Quality of life and geographic location were found to be the most important factors in choosing internship programs, while obtaining ophthalmology skills was least. Although 32.3% of residents either agreed or strongly agreed that they felt confident at the start of ophthalmology residency, 42.9% disagreed or strongly disagreed. Residents who felt most confident for ophthalmology training spent more time on ophthalmology rotations in medical school (p = 0.05) or internship (p = 0.02) and worked up patients independently during their internship ophthalmology rotation (s) (0.01). Completing one's internship at the same institution as one's ophthalmology residency did not correlate with confidence entering residency. Conclusions Residents chose internships based on quality-of-life factors rather than enhancing ophthalmology training. Residents who felt confident at the start of ophthalmology residency had more hands on clinical ophthalmology experience than residents who did not feel confident. No statistically significant correlation was found between completion of internship at the same institution as one's ophthalmology residency and confidence entering residency.


Author(s):  
Kimberly Sena Moore ◽  
Laurie Peebles

Abstract Music therapy services are currently being reimbursed through state and private insurance funding streams, yet to date, there is no known systematic exploration on music therapy reimbursement practices. Such information would be helpful to include when communicating with third-party payers and can assist in tracking reimbursement trends. Thus, we sought to provide baseline information on how music therapy services are currently being reimbursed in the United States, with a focus on approved treatment parameters, referral sources, Current Procedural Terminology (CPT) codes used, and types of music interventions and music therapy experiences implemented. Board-certified music therapists in private practice who had successfully obtained reimbursement for music therapy services between 2012 and 2018 completed a 28-item online survey. In total, 7 respondents provided information on 55 unique reimbursement cases from 5 different states, most of which were based on Medicaid waiver programs. We conducted descriptive analyses to summarize music therapy reimbursement practices. Most of the clients were referred by doctors or physician’s assistants. The most common CPT code utilized was 97530 (Therapeutic Activities, one-on-one, each 15 minutes), and most of the International Classification of Diseases, 10th Revision (ICD-10) diagnostic codes were based on specific diagnoses rather than general clinical needs. In most of the cases, reimbursement of music therapy was ongoing, and services incorporated a variety of music therapy methods, with few specific music interventions identified. Most notably, reimbursement practice varied by state; thus, we recommend the creation and dissemination of state-specific surveys.


Author(s):  
Cochavit Elefant

Rett syndrome (RTT) is a genetic disorder resulting from an X-linked dominant mutation in MECP2 gene. It primarily affects females and is found in a variety of racial and ethnic groups worldwide with a versatile clinical phenotype. This chapter describes the authors musical and personal encounters with individuals with RTT and their families over many years with the aim of helping the reader to understand what lies behind those deep and penetrating eyes and behind the “screaming silence”. Through short vignettes, I will shed light on these girls’ inner capacity and demonstrate how music can help to bring them to life as well as motivate their families. Interactions in music therapy provide an opportunity to discover hidden resources that may not be readily accessed because of the disability. With each positive shift in musical interactions, the person can become empowered and experience new challenges that enhance growth.


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