scholarly journals “Most of Them Are Amateurs”: Women with Spinal Cord Injury Experience the Lack of Education and Training among Medical Providers While Seeking Gynecological Care

2015 ◽  
Vol 35 (3) ◽  
Author(s):  
Heather Elise Dillaway ◽  
Catherine L. Lysack

<span>Although the American Disabilities Act (ADA, 1990) became federal law more than two decades ago, individuals with disabilities continue to experience substandard healthcare. We use this article to hone in on disabled women's experiences of seeking gynecological care and the access disparities they still face. The data for this qualitative study were gathered using in-depth interviews with 20 women living with spinal cord injuries in or around Detroit, Michigan. Each interviewee was questioned about overall health and physical functioning, accessibility of doctor offices, interactions with health care providers, and gynecological health-seeking behaviors. In this paper we report on women's gynecological healthcare experiences and related attitudes and practices, and what women see as the primary structural and social barriers to comprehensive care. Findings echo past literature about the inaccessibility of doctor's offices, including the lack of suitable exam tables. However, our findings also suggest that the lack of education and training among medical providers could be a key social barrier and determinant of whether individual women actually secure gynecological care.</span>

2018 ◽  
Vol 12 (6) ◽  
pp. 2044-2054 ◽  
Author(s):  
Kirsten Aikman ◽  
John L. Oliffe ◽  
Mary T. Kelly ◽  
Fairleth McCuaig

Sexual health has been well established as a salient priority for men following traumatic spinal cord injury; yet, it continues to be under-addressed by health-care providers in both inpatient and community settings. Given that most men with traumatic spinal cord injuries will be followed by community-based primary health-care providers, including family physicians and nurse practitioners, for their long-term health-care needs, these clinicians are well positioned to address ongoing sexual health issues with this population. A scoping review of literature published between 2007 and 2017 inclusive was undertaken to identify what is known about the sexual health of men with spinal cord injuries. Twenty articles met the inclusion criteria. The findings are presented in four themes: (a) patterns and diversity of sexual health concerns; (b) sexual health recovery as an ongoing priority; (c) clinical barriers to addressing sexual health concerns, and (d) recommended interventions and strategies for primary health-care providers. The findings indicate that physiological changes as well as psychological and social factors influence men’s sexual function following spinal cord injury, and that sexual health recovery is an enduring rehabilitation priority. Several barriers including lack of sexual rehabilitation services and consensus around clinician roles, and societal stigmas related to disability and sexuality impede treatment. Attention to sexual health recovery has mainly focused on formal rehabilitation settings; however, many evidence-based clinical strategies and resources are relevant to and adaptable for primary care providers caring for these men in the community.


2012 ◽  
Vol 5 (3) ◽  
pp. 133-134 ◽  
Author(s):  
Jill Ward ◽  
Christopher Walker

In 2008 there were an estimated 259,000 people living in the USA with spinal cord injuries (SCI). The majority of these people are in their reproductive years, and over 19% are estimated to be women. Advances in medical management have allowed many women to live successfully with congenital defects or injuries resulting in SCI that even a few years ago would have been fatal. Although many of these women may be classified as ‘disabled’, fertility is not usually affected in SCI and many of these women desire children of their own. It is important to counsel these women regarding the range of issues related to pregnancy. These include conception issues, parenting with a disability, emotional concerns of the family, nutrition and exercise in pregnancy, risks in pregnancy, labour and delivery, postpartum care, and breastfeeding. For health-care providers it is important to know and understand your patient’s disability and be able to provide the best patient-centred quality care, understanding that each patient's circumstance may be unlike any other patient.


Spinal Cord ◽  
2021 ◽  
Vol 59 (4) ◽  
pp. 373-380 ◽  
Author(s):  
Armin Gemperli ◽  
Mirjam Brach ◽  
Isabelle Debecker ◽  
Inge Eriks-Hoogland ◽  
Anke Scheel-Sailer ◽  
...  

2004 ◽  
Vol 25 (11) ◽  
pp. 933-940 ◽  
Author(s):  
Sherri L. LaVela ◽  
Bridget Smith ◽  
Frances M. Weaver ◽  
Marcia W. Legro ◽  
Barry Goldstein ◽  
...  

AbstractObjective:To examine influenza vaccination status and predictors for vaccine receipt among healthcare workers (HCWs) caring for patients with spinal cord injuries and disorders.Design:Cross-sectional, nationwide anonymous survey.Setting:Twenty-three Veterans Affairs spinal cord injury centers.Participants:One thousand five hundred fifty-six HCWs.Methods:The primary outcome was staff vaccination status. Independent variables included staff demographic and employment characteristics, health status, attitudes and beliefs about the vaccine, and implications for its use.Results:The staff vaccination rate was 51%. Leading motivators of vaccine receipt were self-protection (77%) and patient protection (49%). The most common reasons for nonreceipt were concerns about side effects (49%), preventive quality (20%), and inconvenience (14%). Logistic regression results suggested that age of 50 years or older (OR, 1.47; P = .021), male gender (OR, 2.50; P < .001), strong belief in vaccine effectiveness (OR, 19.03; P = .008), and importance of HCW vaccination (OR, 20.50; P = .005) significantly increased the probability of vaccination. Recommending the vaccine to coworkers, patients, or patients' families was also associated with HCW vaccination (OR, 3.20; P < .001). Providers who did not believe the vaccine was protective (P < .001) or effective P < .001) were less likely to recommend it to patients.Conclusions:Strategies to increase vaccination rates among HCWs should address concerns about side effects, effectiveness, and protective value of the vaccine and access to it. The impact of provider recommendations should be stressed. Vaccination and subsequent prevention of illness may limit morbidity and mortality, thus benefiting HCWs, healthcare facilities, and patients.


1988 ◽  
Vol 3 (1) ◽  
pp. 97-103 ◽  
Author(s):  
P. K. McCarthy ◽  
H. Schietinger ◽  
Z. A. Fitzhugh

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