scholarly journals Factors affecting quality of life among parents having a child with autism spectrum disorder in Jeddah, 2019 (cross-sectional study)

2020 ◽  
Vol 6 (1) ◽  
pp. 27-36
Author(s):  
Abeer Ahmad Subke ◽  
Adeel Ahmed Khan ◽  
Safinaz Abdullah Alharthi
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Cross Sectional Study ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Sectional Study ◽  
Cross Sectional ◽  
Factors Affecting

scholarly journals An international comparison of factors affecting quality of life among patients with congestive heart failure: A cross-sectional study

PLoS ONE ◽  
2020 ◽  
Vol 15 (4) ◽  
pp. e0231346 ◽  
Author(s):  
Brita Roy ◽  
Judith R. L. M. Wolf ◽  
Michelle D. Carlson ◽  
Reinier Akkermans ◽  
Bradley Bart ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Congestive Heart Failure ◽  
International Comparison ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Factors Affecting

scholarly journals Tensions in Maternal Care for Children, Youth, and Adults With Autism Spectrum Disorder

2020 ◽  
Vol 7 ◽  
pp. 233339362090758
Author(s):  
David B. Nicholas ◽  
Radha MacCulloch ◽  
Wendy Roberts ◽  
Lonnie Zwaigenbaum ◽  
Patricia McKeever
Keyword(s):  
Autism Spectrum Disorder ◽  
Cross Sectional Study ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Sectional Study ◽  
Adults With Autism ◽  
Cross Sectional ◽  
Maternal Caregiving ◽  
Recommendations For Practice ◽  
Care Demands

This study explored the experiences of mothers caring for an individual with autism spectrum disorder (ASD) ranging from 5 to 25 years of age, and examined pervasive tensions in caregiving. Guided by ethnographic methods, a retrospective cross-sectional study was conducted. Interviews with 85 mothers were analyzed inductively. Prevalent tensions in maternal caregiving were identified: (a) difficulties obtaining, yet resistance to, an ASD diagnosis; (b) identified giftedness of the child versus notions of deficit imposed by others; (c) disability-related behaviors erroneously interpreted as ‘poor parenting’; (d) contradictory considerations in diagnosis disclosure; (e) the invisibility yet pervasiveness of ASD; (f) extensive need for, yet the lack of, accessible services; (g) ASD-related care demands versus other pressing responsibilities; (h) arguments for inclusive versus exclusive services; and (i) aims of nurturing independence versus managing safety risk. Tensions were heightened by insufficient supports relative to need. Implications and recommendations for practice and policy are offered.

scholarly journals Parents' perspectives on the value of assistance dogs for children with autism spectrum disorder: a cross-sectional study

BMJ Open ◽  
2014 ◽  
Vol 4 (6) ◽  
pp. e004786-e004786 ◽  
Author(s):  
L. Burgoyne ◽  
L. Dowling ◽  
A. Fitzgerald ◽  
M. Connolly ◽  
J. P Browne ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Cross Sectional Study ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Sectional Study ◽  
Cross Sectional ◽  
Assistance Dogs

Sleep disturbances in children with autism spectrum disorder in Lahore, Pakistan; a cross-sectional study

2020 ◽  
pp. 1-9
Author(s):  
Usman Baig ◽  
Syed Muslim Mehdi ◽  
Hafiz Muhammad Imtiaz Afzal ◽  
Admin
Keyword(s):  
Autism Spectrum Disorder ◽  
Sleep Disorders ◽  
Sleep Disturbances ◽  
Children With Autism ◽  
Cross Sectional Study ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Sectional Study ◽  
Cross Sectional ◽  
Institutional Ethics

Abstract Objective: To assess the frequency of insomnia and other sleep disturbances among children with autism spectrum disorder. Methods: Sleep disturbance scale for children was used in this descriptive cross-sectional study and the parents were asked to fill out the questionnaire along with the consent form. Initial sample size was 97, out of which 93 were included in study. The research was approved by institutional ethics committee of Sharif medical and Dental College. Results: This study showed that 37 (39.8%) children had at least one type of the sleeping disorder. Most common type were insomnia 24 (25.8%) and sleep-awake transition disorders 15 (16.1%), less common were disorders of arousal 10 (10.8%), disorders of excessive somnolence 7 (7.5%), sleep hyperhidrosis 5 (5.4%) and sleep breathing disorders 4 (4.3%). Conclusion: Nearly forty percent of children with autism spectrum disorder suffer from sleep disorders, among which the most frequent was insomnia. Keywords: Autism spectrum disorder, insomnia, sleep disorders, children

scholarly journals Quality of life and factors affecting it in patients with Alzheimer’s disease: a cross-sectional study

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Burcu Akpınar Söylemez ◽  
Özlem Küçükgüçlü ◽  
Merve Aliye Akyol ◽  
Ahmet Turan Işık
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Factors Affecting ◽  
Area Of Interest ◽  
Modifiable Factors

Abstract Background Quality of life (QoL) is a growing area of interest in dementia research. However, it remains a controversial topic. This study aimed to determine the QoL of people with Alzheimer’s disease (PwAD) and investigate the factors affecting patients’ and caregivers’ QoL scores. Methods A cross-sectional study design was used. A total of 98 home-dwelling PwADs and their primary caregivers were recruited in the study. Sociodemographic characteristics and QoL scores, activities of daily living (ADL) and instrumental ADL (IADL), Mini-mental State Examination (MMSE) scores, neuropsychiatric inventory (NPI), and NPI–distress were determined to assess the relevant outcomes. All statistical analyses were performed using SPSS version 22.0. Descriptive statistics, t-test, Pearson correlation, and multinomial regression were used for analysis. Results The patients’ ratings of their QoL were higher than those of the caregivers. Caregiver education, patients’ ADL, and IADL were associated with the patients’ score on the Quality of Life in Alzheimer’s Disease (QoL-AD) scale. In addition to these variables, MMSE, NPI, and NPI–distress were associated with the caregiver scores on QoL-AD. Conclusion From a clinical point of view, the proxy-rated scores of QoL cannot replace the self-ratings of the patients. This study suggests that both self- and proxy-rated QoL scores should be applied whenever possible. Focusing on the management of behavioral problems and supporting functionality and cognitive functions may be modifiable factors that may represent targets for intervention to improve the QoL. The findings of this study should also be used to design caregiver educational programs about the determinants of QoL.

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