Unexpected

2021 ◽  
Author(s):  
Alison Piepmeier ◽  
George Estreich ◽  
Rachel Adams
Keyword(s):  
Down Syndrome ◽  
Life Writing ◽  
Single Parent ◽  
Scholarly Work ◽  
Disabled Children ◽  
Cultural Narratives ◽  
Prospective Parents

Unexpected is a feminist meditation on parenthood and disability in an age of genomics. It examines a rich array of cultural narratives about parenting disabled children, particularly those with Down syndrome: published memoirs and excerpts from Alison Piepmeier’s interviews with parents and prospective parents, as well as the pronouncements and implied narratives of bioethicists, cultural critics, and disability advocates. The book splices Piepmeier’s scholarly work with life writing about the experience of being a single parent to a daughter with Down syndrome and her own disabling illness.

scholarly journals A family of a Child with Down Syndrome in Terms of Interpersonal Relationships Research

2018 ◽  
Vol 7 (1) ◽  
pp. 28-39
Author(s):  
T. Brazgun ◽  
V.V. Tkacheva
Keyword(s):  
Down Syndrome ◽  
Interpersonal Relationships ◽  
Traumatic Event ◽  
Family Relations ◽  
Disabled Children ◽  
Entire Family ◽  
The Family ◽  
Patterns Of Behavior ◽  
Effective Program ◽  
Intra Family

The article deals with the study of interpersonal relationships of families with disabled children. The birth of a baby with a disability can be a traumatic event for parents and can have profound effects on the entire family. In this regard, it is especially important to provide the specialist with the opportunity to identify the characteristics of intra-family relations in order to create an effective program for correcting disharmonious patterns of behavior in the family. The authors present the program of studies of the interpersonal relationships and the case of relationships research of the family who is parenting a child with Down syndrome.

Conversational patterns of children with disabled and nondisabled siblings

1997 ◽  
Vol 18 (3) ◽  
pp. 277-291 ◽  
Author(s):  
Marcia Summers ◽  
Jennifer Hahs ◽  
Carl R. Summers
Keyword(s):  
Down Syndrome ◽  
Preschool Children ◽  
Language Development ◽  
Disabled Children ◽  
Developmentally Delayed ◽  
Older Children ◽  
Younger Child ◽  
Different Types ◽  
The Disabled ◽  
Nondisabled Siblings

ABSTRACTThis study examined the conversational patterns of older children with their younger siblings. The sample included 26 nondisabled, 10 hearing impaired, 14 Down syndrome, and 13 developmentally delayed preschool children and their older, nondisabled siblings. Significant differences were found between the nondisabled and the disabled children. The siblings of disabled children appeared to be less conversationally sensitive with their brothers and sisters than the siblings of nondisabled children. Significant differences were also observed between the different types of disabilities. Few significant differences were found in variables believed to be facilitative of language development in the younger child, and those that were found tended not to be in the expected direction.

scholarly journals The Functionality and Usability of Critical Approaches to Life Writing Methods in Qualitative Research: A Book Review

2018 ◽  
Author(s):  
Umair Majid
Keyword(s):  
Qualitative Research ◽  
Critical Theory ◽  
Life Writing ◽  
Research Process ◽  
Scholarly Work ◽  
Critical Approaches

In this book review, I examine the functionality and usability of Critical Approaches to Life Writing Methods in Qualitative Research by Mulvihill and Swaminathan by interrogating my own preconceptions of life writing and how they informed my purview. The authors of this book map out distinct life writing methods by building on seminal literary and scholarly work. Through their use of metaphors, theory, and frameworks, the authors paint each life writing method canvas in a way that is tangible and appropriate to both novice and seasoned investigators. By coalescing life writing with critical theory, the authors describe an important perspective on life writing, and how it may be integrated into the research process.

scholarly journals Developmental disabilities of children and their health outcomes

2016 ◽  
Vol 29 (1) ◽  
pp. 55-62
Author(s):  
Md Rasheduzzaman Mondol ◽  
Muhammad Tanvir Faysol ◽  
Md Shaheen Sikder
Keyword(s):  
Down Syndrome ◽  
Cerebral Palsy ◽  
Intellectual Disability ◽  
Developmental Disabilities ◽  
Disabled Children ◽  
Skilled Birth Attendants ◽  
Birth Attendants ◽  
History Of ◽  
History Of Violence ◽  
Violence During Pregnancy

A study was conducted among 155 mothers of disabled children. The health outcome of disabled children in Bangladesh focuses overall on their health status. The cross sectional study was carried out in Bangladesh Protibondhi foundation and Society for the welfare of the Intellectual disability from august 2014 to March 2015. The analysis shows that age of most of the mothers of disabled children were between 30 and 39 years and the disabled children were their first baby. The mothers who had less than 3 antenatal visits have a great chance of having a developmental disabled child. Among 155 respondents, 27 per cent had autism and 72.9 per cent had other disabilities (Cerebral palsy, Down syndrome and intellectual disability). 35.5 per cent blood groups of fathers and mothers of children with developmental disabilities have different positive blood groups. After birth weight of 58.71 per cent baby with developmental disabilities were from 1.00 - 2.00 kg which is a low birth weight. About 70 per cent of mothers have not given exclusive breastfeeding to their disabled child. Only 29 per cent of mothers have given exclusive breastfeeding. There is a significant relationship between having delivery without skilled birth attendants and health outcomes of children. 57.7 per cent mothers with disabilities (Cerebral palsy, intellectual disability and Down syndrome) and 42.3 per cent mothers who had deliveries through non-skilled birth attendants gave birth to autistic babies. 9.1% mothers having history of violence during pregnancy gave birth to autistic babies and 90.9% mothers having history of violence during pregnancy gave birth to babies with other disabilities.Bangladesh J. Sci. Res. 29(1): 55-62, June-2016

scholarly journals Amamentação de crianças com necessidades especiais em saúde: Uma revisão integrativa

2021 ◽  
Vol 10 (8) ◽  
pp. e48410817542
Author(s):  
Bárbara Hirschmann ◽  
Roberta Hirschmann ◽  
Ruth Irmgard Bärtschi Gabatz ◽  
Viviane Marten Milbrath
Keyword(s):  
Down Syndrome ◽  
Cerebral Palsy ◽  
Breast Feeding ◽  
Disabled Children

Esta revisão tem como objetivo conhecer a produção científica sobre as dificuldades e facilidades da amamentação de crianças com necessidades especiais em saúde. Trata-se de uma revisão integrativa realizada nas bases de dados PubMed, Lilacs, BDENF e INDEX Psicologia por meio da combinação dos seguintes descritores: breast feeding OR breastfeeding OR infant AND disabled children OR cerebral palsy OR down syndrome sem restrição de idiomas e período. A pesquisa foi norteada pela seguinte questão: “O que vem sendo produzido sobre as dificuldades e facilidades encontradas no processo de amamentação de crianças com necessidades especiais em saúde?”. Foram selecionados 11 artigos, quatro utilizaram abordagem qualitativa, cinco eram quantitativos e dois eram quanti-qualitativos. Dentre os fatores que podem influenciar na amamentação de crianças com necessidades especiais em saúde destacaram-se dificuldades como falta de apoio, desencorajamento, hospitalização e sentimentos negativos e entre as facilidades, experiências prévias com amamentação e apoio dos profissionais de saúde foram relatadas. Ressalta-se a importância do papel da família e dos serviços de saúde na assistência para o estabelecimento do aleitamento materno e sua manutenção.

A Validation Report of the Stanford-Binet Intelligence Scale 4th Edition: An Appropriate Instrument for Assessment of Children with Intellectual Disabilities

1993 ◽  
Vol 10 (1) ◽  
pp. 22-26 ◽  
Author(s):  
Anna Bower
Keyword(s):  
Down Syndrome ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Children And Adolescents ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
Intelligence Scale

AbstractThis paper reviews the Stanford-Binet Intelligence Scale 4th Edition (SB-4) and compares and contrasts it with the instrument it supersedes, the Stanford-Binet 3rd Edition (L-M) (SB-3). Specific emphasis is placed on the use of the SB-4 with children and adolescents with intellectual disability. It can differentiate between intellectually disabled children and adolescents who have Down syndrome, and those who have other etiologies.

scholarly journals Comparison of oral health status among normal and disabled children of Karachi, Pakistan.

2019 ◽  
Vol 26 (11) ◽  
pp. 2009-2014
Author(s):  
Marium Azfar ◽  
Sameer Quershi ◽  
Ahmed Omer ◽  
Khadijah Abid
Keyword(s):  
Down Syndrome ◽  
Oral Health ◽  
Oral Hygiene ◽  
Epidemiological Survey ◽  
Disabled Children ◽  
Speech Impairment ◽  
Normal Children ◽  
Cross Sectional ◽  
Impaired Children ◽  
Good Hygiene

Objectives: To compare the oral hygiene status of normal children with hearing and speech impaired and Down syndrome children. Study Design: Cross-sectional study. Setting: Special needs children school, Deaf Reach School & a public school of Karachi, Pakistan. Period: 6 months from October 2017 to April 2018. Material and Methods: A total of 210 children of age 7-15 years of either gender were enrolled in the study; 70 hearing & speech impaired children, 70 Down syndrome children and 70 normal children were randomly selected for comparison. After taking informed consent the subjects were examined for dental status. Oral hygiene status was assessed by using oral hygiene index‑simplified (OHI-S). The data were analyzed using SPSS version 23. Results: Out of 70 hearing and speech impaired children, majority had fair hygiene status (41.4%), 38.6% had good hygiene status and only 20% had poor hygiene status. Out of 70 Down syndrome children, majority had good hygiene status (45.7%), 28.6% had fair hygiene status and only 25.7% had poor hygiene status. Out of 70 normal children, majority had good hygiene status (68.6%), 20% had fair hygiene status and only 11.4% had poor hygiene status. Conclusion: The high proportion of poor oral health was observed among children with hearing and speech impairment and Down syndrome as compared to normal children. Hence, there is a high need for an epidemiological survey followed by the comprehensive dental care programs for disabled children as well as efforts should be made to spread the awareness and importance of oral health among these children and their family because everyone deserves the opportunity of good oral health and hygiene.”

Alopecia areata and Down syndrome

1976 ◽  
Vol 112 (10) ◽  
pp. 1397-1399 ◽  
Author(s):  
D. M. Carter
Keyword(s):  
Down Syndrome ◽  
Alopecia Areata
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