scholarly journals Overview of scales and questionnaires applied in the assessment of the «quality of life» for craniopharyngioma patients

2016 ◽  
Vol 19 (4) ◽  
pp. 195-202
Author(s):  
Maxim A. Kutin ◽  
Yu. G Sidneva ◽  
T. I Ionova
Keyword(s):  
Quality Of Life ◽  
The Self ◽  
Self Assessment ◽  
Assessment Systems ◽  
The Given

In this article there was reviewed the literature devoted to the problem of the assessment of the quality of life ofpatients with craniopharyngiomas. The given article raises questions about the application of questionnaires for the assessment of the quality of life, inability to the use the self-assessment systems in the classic sense in patients with craniopharyngiomas, and the need for the doctor himself to deliver systems for the evaluation of results of the management and outcomes.

scholarly journals ASPEK DAN PENILAIAN KESEJAHTERAAN SUBJEKTIF: KEBAHAGIAAN, KEGEMBIRAAN, KEPUASAN DAN KUALITI HIDUP

2021 ◽  
Vol 32 (2) ◽  
pp. 95-112
Author(s):  
Nik Shahrizan Nik Mad ◽  
Marzudi Md Yunus ◽  
Muhammad Shamsinor Abdul Azziz
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Family Environment ◽  
Good Life ◽  
Well Being ◽  
The Self ◽  
Subjective Well Being ◽  
Negative Effects ◽  
Self Assessment

Subjective well-being is the self-assessment of happiness, pleasure, satisfaction and quality of life, measured specifically and holistically. The assessment of subjective well-being is varied based on the area of focus of the researcher. Events that occur over some time also could affect an individual’s evaluation. Various factors assess well-being, such as character, love, wisdom, excitement and experiences leading to a good life. The evaluation of the positive and negative effects also affects the subjects’ emotions and mood during a study. Earlier studies showed that well-being is not merely related to income and ownership, but issues on health, activities, personality, emotions, mood, family, environment and various other factors. Therefore, this article aims to discuss aspects, assessment methods, theories and progress based on articles, books and research related to subjective well-being. This study utilises the literature review approach to collect data on subjective well-being. The finding shows that the level of subjective well-being is diverse and dynamic, and not limited to certain aspects and factors that could affect humans. Keywords: subjective well-being; self-assessment; happiness; life satisfaction; quality of life.

scholarly journals REiNS: Patient Report of Hearing in Neurofibromatosis Type 2: Recommendations for Clinical Trials

Neurology ◽  
2021 ◽  
pp. 10.1212/WNL.0000000000012424
Author(s):  
Heather L. Thompson ◽  
Ann Blanton ◽  
Barbara Franklin ◽  
Vanessa L. Merker ◽  
Kevin H. Franck ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Clinical Trials ◽  
Neurofibromatosis Type ◽  
The Self ◽  
Self Assessment ◽  
Hearing Function ◽  
Patient Reported ◽  
Related Quality

Objective:To systematically evaluate published patient-reported outcome measures for the assessment of hearing function and hearing-related quality of life, and subsequently recommend measures selected by the Response Evaluation in Neurofibromatosis and Schwannomatosis International Collaboration (REiNS) as endpoints for clinical trials in Neurofibromatosis Type 2.Methods:The REiNS patient-reported outcomes working group systematically evaluated published patient-reported outcome measures of (1) hearing function and (2) hearing-related quality of life for individuals with hearing loss of various etiologies using previously published REiNS rating procedures. Ten measures of hearing functioning and 11 measures of hearing-related quality of life were reviewed. Measures were numerically scored and compared primarily on their participant characteristics (including participant age range and availability of normative data), item content, psychometric properties, and feasibility for use in clinical trials.Results:The Self-Assessment of Communication and the Self-Assessment of Communication-Adolescent were identified as most useful for adult and pediatric populations with NF2, respectively, for the measurement of both hearing function and hearing-related quality of life. Measures were selected for their strengths in participant characteristics, item content, psychometric properties, and feasibility for use in clinical trials.Conclusions:Currently, REiNS recommends the Self-Assessment of Communication adult and adolescent forms for the assessment of patient-reported hearing function and hearing-related quality of life for clinical trials for neurofibromatosis type 2. Further work is needed to demonstrate the utility of these measures in evaluating pharmacological and/or behavioral interventions.

scholarly journals Gender Differences in the Self-assessment of Quality of Life and Disability After Spinal Fusion for Chronic Low Back Pain at a Neurosurgical Center in Eastern Europe

Neurospine ◽  
2018 ◽  
Vol 15 (3) ◽  
pp. 261-268 ◽  
Author(s):  
Gheorghe Ungureanu ◽  
Alexandra Chitu ◽  
Ioana Iancu ◽  
Cristian Kakucs ◽  
Tiberiu Maior ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Gender Differences ◽  
Low Back Pain ◽  
Back Pain ◽  
Eastern Europe ◽  
Chronic Low Back Pain ◽  
The Self ◽  
Low Back ◽  
Self Assessment

scholarly journals Comprehensive assessment of the quality of life in primary episode of bipolar affective disorder

2020 ◽  
pp. 60-63
Author(s):  
Yuriy Mysula
Keyword(s):  
Quality Of Life ◽  
Affective Disorder ◽  
Bipolar Affective Disorder ◽  
Self Esteem ◽  
The Self ◽  
Assessment Data ◽  
Self Assessment ◽  
Quality Of Life Indicators ◽  
Mixed Medium

A study of quality of life in 153 patients with a primary episode of bipolar aff ective disorder found a signifi cantly lower quality of life score in women in individual areas and in general, these differences were most pronounced in manic and depressive variant of primary episode of bipolar affective disorder. The clinical variant of primary episode of BD had a decisive influence on the self-esteem of quality of life in patients: patients with the depressive variant had low quality of life indicators, with manic — high, and with mixed — medium ones. When comparing quality of life self-assessment data, a tendency was found for the quality of life to decrease in all key areas in the depressive variant, and a tendency for overestimation — in the manic one. In the mixed version, the self-esteem indicators of quality of life did not have significant differences from the qualification score by a specialist psychiatrist. The identifi ed patterns should be taken into account when determining treatment and rehabilitation measures. Keywords: bipolar affective disorder, primary episode, quality of life

scholarly journals Meaning of verbal, spatial and emotional components of intelligence in the self-assessment of quality of life at a young age

2017 ◽  
Vol 10 (4) ◽  
pp. 34-45
Author(s):  
O. Razumnikova ◽  
A.A. Yashanina ◽  
N.V. Asanova
Keyword(s):  
Quality Of Life ◽  
Emotional Intelligence ◽  
Emotional Regulation ◽  
Prognostic Significance ◽  
Well Being ◽  
The Self ◽  
Regression Equations ◽  
Physical And Mental Health ◽  
Self Assessment

It is known that the general, and emotional intelligence reflects a person’s ability to adapt and are predictors of vitality, but it is unknown how these characteristics are combined to assess the current state of health. In this regard, the aim of the study was to investigate the contribution of verbal, spatial and emotional components of intelligence in the self-assessment of the quality of life of students. The study involved students aged 18,7 ± 1,5 years, 66% — women. It was found that the negative expressivity and empathy unhappiness are the main components of emotional intelligence that are negatively correlated with integral indicators of both physical and mental health. Spatial intelligence component has a greater prognostic significance than verbal component for the self-assessment of health status and its high values correspond to fewer symptoms of health disorders. Identified various forms of regression equations to describe the quality of life based on the components of emotional intelligence indicate the possibility of correction of psychological well-being using different contours of emotional regulation of behavior

Self-Compassion and Quality of Life in Adults Who Stutter

2020 ◽  
Vol 29 (4) ◽  
pp. 2097-2108
Author(s):  
Robyn L. Croft ◽  
Courtney T. Byrd
Keyword(s):  
Quality Of Life ◽  
Social Connectedness ◽  
The Self ◽  
Future Research ◽  
Self Compassion ◽  
Adults Who Stutter ◽  
And Gender ◽  
Relationship Of ◽  
The Impact

Purpose The purpose of this study was to identify levels of self-compassion in adults who do and do not stutter and to determine whether self-compassion predicts the impact of stuttering on quality of life in adults who stutter. Method Participants included 140 adults who do and do not stutter matched for age and gender. All participants completed the Self-Compassion Scale. Adults who stutter also completed the Overall Assessment of the Speaker's Experience of Stuttering. Data were analyzed for self-compassion differences between and within adults who do and do not stutter and to predict self-compassion on quality of life in adults who stutter. Results Adults who do and do not stutter exhibited no significant differences in total self-compassion, regardless of participant gender. A simple linear regression of the total self-compassion score and total Overall Assessment of the Speaker's Experience of Stuttering score showed a significant, negative linear relationship of self-compassion predicting the impact of stuttering on quality of life. Conclusions Data suggest that higher levels of self-kindness, mindfulness, and social connectedness (i.e., self-compassion) are related to reduced negative reactions to stuttering, an increased participation in daily communication situations, and an improved overall quality of life. Future research should replicate current findings and identify moderators of the self-compassion–quality of life relationship.

The Vietnamese Version of the Health-related Quality of Life Measure for Children with Epilepsy (CHEQOL-25): Reliability

MedPharmRes ◽  
2017 ◽  
Vol 1 (1) ◽  
pp. 9-14
Author(s):  
Tri Doan ◽  
Tuan Tran ◽  
Han Nguyen ◽  
◽  
◽  
...  
Keyword(s):  
Quality Of Life ◽  
Good Practice ◽  
The Self ◽  
Self Report ◽  
Health Related Quality ◽  
Life Measure ◽  
Related Quality ◽  
Health Related ◽  
Parent Proxy

Purpose: This study aimed to translate and culturally adapt the self-report and parent-proxy Health-Related Quality of Life Measure for Children with Epilepsy (CHEQOL-25) into Vietnamese and to evaluate their reliability. Methods: Both English versions of the self-report and parent-proxy CHEQOL-25 were translated and culturally adapted into Vietnamese by using the Principles of Good Practice for the Translation and Cultural Adaptation Process. The Vietnamese versions were scored by 77 epileptic patients, who aged 8–15 years, and their parents/caregivers at neurology outpatient clinic of Children Hospital No. 2 – Ho Chi Minh City. Reliability of the questionnaires was determined by using Cronbach’s coefficient α and intra-class correlation coefficient (ICC). Results: Both Vietnamese versions of the self-report and parent-proxy CHEQOL-25 were shown to be consistent with the English ones, easy to understand for Vietnamese children and parents. Thus, no further modification was required. Cronbach’s α coefficient for each subscale of the Vietnamese version of the self-report and parent-proxy CHEQOL-25 was 0.65 to 0.86 and 0.83 to 0.86, respectively. The ICC for each subscale of the self-report and parent-proxy CHEQOL-25 was in the range of 0.61 to 0.86 and 0.77 to 0.98, respectively. Conclusion: The Vietnamese version of the self-report and parent-proxy CHEQOL-25 were the first questionnaires about quality of life of epileptic children in Vietnam. This Vietnamese version was shown to be reliable to assess the quality of life of children with epilepsy aged 8–15 years.

scholarly journals SAT0625-HPR FATIGUE AND CONTRIBUTING FACTORS IN CHINESE PATIENTS WITH ANKYLOSING SPONDYLITIS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1272.2-1272
Author(s):  
W. Zhou ◽  
J. Guo ◽  
R. Zhao ◽  
C. Dong ◽  
Z. Gu
Keyword(s):  
Quality Of Life ◽  
Logistic Regression ◽  
Ankylosing Spondylitis ◽  
Sleep Quality ◽  
Binary Logistic Regression ◽  
The Self ◽  
Chinese Patients ◽  
Self Rating ◽  
Chi Square Analysis

Background:Ankylosing spondylitis (AS) is a systemic chronic inflammatory disease, which most likely occurs in young men. It mainly affects sacroiliac joints, axial skeleton, thoracic cage and seriously decreasing quality of life in AS patients[1,2]. In recent years, fatigue of AS patients has been paid more and more attention[3]. Fatigue is a complex feeling, diseased individuals describe fatigue as a sense of tiredness at rest, exhaustion with activity, lack of energy which affects daily work, inertia or lack of endurance, or as loss of vitality. It has been confirmed that fatigue is not only a symptom but may also be quantified by fatigue scores and can be modified by various measures depending on the underlying cause[4]. However, there has been no study about fatigue in AS patients in China.Objectives:This study aimed to evaluate the predictors of fatigue and the effects of fatigue on HR-QoL among patients with AS.Methods:A total of 150 AS patients were involved in the study. A series of questionnaires included: Bath Ankylosing Spondylitis Disease Activity Index (BASDAI), Bath Ankylosing Spondylitis Metrology Index (BASMI), Bath Ankylosing Spondylitis Functional Index (BASFI), the 10 cm Visual Analog Scale (VAS), the Self-Rating Anxiety Scale (SAS), the Self-Rating Depression Scale (SDS), the Pittsburgh Sleep Quality Index (PSQI), the Health Assessment Questionnaire-Disability Index (HAQ-DI), the Short Form 36 Health Survey (SF-36) and the Fatigue Severity Scale(FSS). Independent samples t-test, Mann–Whitney U-test, Chi-square analysis, Pearson /Spearman correlation and binary logistic regression were used to analyze the data.Results:The results demonstrated that 48.7% individuals with AS suffered from fatigue. Compared with AS patients without fatigue, AS patients with fatigue showed higher WHR(P<0.05), increased BASDAI (P<0.01) and poorer BASFI (P<0.05). Meanwhile, AS patients with fatigue tended to have more severe pain(P<0.05), higher degree of anxiety(P=0.001), more serious functional disability(P=0.001) and worse sleep quality(P=0.001). Binary logistic regression indicated that WHR (OR=1.78,P<0.05), BASDAI (OR=1.34,P=0.01), sleep disturbance (OR=2.35,P<0.05) were independent predictors of fatigue in AS patients. Additionally, the occurrence of fatigue significantly reduced the quality of life in AS patients both physically and psychologically.Conclusion:These findings suggested that medical personnel should pay more attention to AS patients with fatigue and take effective measures to relieve fatigue.References:[1]Law L, Beckman Rehnman J, Deminger A, Klingberg E, Jacobsson LTH, Forsblad-d’Elia H (2018) Factors related to health-related quality of life in ankylosing spondylitis, overall and stratified by sex. Arthritis research & therapy 20 (1):284. doi:10.1186/s13075-018-1784-8[2]Hanson A, Brown MA (2017) Genetics and the Causes of Ankylosing Spondylitis. Rheumatic diseases clinics of North America 43 (3):401-414. doi:10.1016/j.rdc.2017.04.006[3]Ulus Y, Akyol Y, Bilgici A, Kuru O (2019) Association of work instability with fatigue and emotional status in patients with ankylosing spondylitis: comparison with healthy controls. Clinical rheumatology 38 (4):1017-1024. doi:10.1007/s10067-018-4366-x[4]Finsterer J, Mahjoub SZ (2014) Fatigue in healthy and diseased individuals. The American journal of hospice & palliative care 31 (5):562-575. doi:10.1177/1049909113494748Acknowledgments:Thanks to all the authors for their efforts and thanks to all members of the Department of Rheumatology of Affiliated Hospital of Nantong University for their helpfulness in the acquisition of data.Disclosure of Interests:None declared

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