MODERN APPROACHES TO THE ASSESSMENT OF THE DISORDER OF FUNCTIONING IN DISABLED CHILDREN IN TERMS OF THE QUALITY OF LIFE

2019 ◽  
Vol 22 (3) ◽  
pp. 176-181 ◽  
Author(s):  
Irina V. Vinyarskaya ◽  
R. N. Terletskaya ◽  
V. V. Chernikov ◽  
E. V. Antonova ◽  
E. I. Alekseeva ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cognitive Abilities ◽  
Heart Diseases ◽  
Pain Syndrome ◽  
Russian Language ◽  
Healthy Children ◽  
Disabled Children ◽  
Language Version

Introduction. Currently, there are still problems in the rehabilitation of children with chronic diseases and children with disabilities, as well as in the establishment of the disability itself, which is primarily due to the lack of common criteria for describing the health, functioning of the child’s body, their disorders at different ages and assessing the effectiveness of rehabilitation measures. Purpose. To develop criteria of functioning disturbance in children suffered from various chronic disabling diseases in terms of quality of life. Materials and methods. By means of the developed Russian-language version of the standardized international questionnaire (HUI) applicable for children’s age, 832 children at the age of 5-17 years were examined (healthy children, children with chronic disabling diseases and the children in need of palliative care). Results. For the first time, domestic pediatrics profiles of functioning disturbance with the use of HUI questionnaire in healthy and sick children are developed. Indices of healthy children can be used as standard criteria. Juvenile idiopathic arthritis patients were revealed to have functioning disturbances in almost all aspects, except sight, hearing, and speech. In children with the heart diseases followed by chronic heart failure, the capability to move, cognitive abilities are disturbed, emotional violations and a pain syndrome were noted. Patients with cystic fibrosis had functioning disturbance concerned emotions and pain. The most expressed disturbances on all aspects included in the HUI questionnaire, except hearing, are noted in disabled children needing palliative care. Conclusion. The data can be used for obtaining information of impact of the disease on the activity of a child, extent of functioning disturbance on this or that aspect of quality of life, for development and assessment of efficiency of individual rehabilitation programs.

scholarly journals QUALITY OF LIFE OF CHILDREN IN NEED OF PALLIATIVE CARE, IN CONDITIONS OF INSTITUTIONS FOR ORPHANS AND CHILDREN LEFT WITHOUT PARENTAL CARE

2019 ◽  
Vol 20 (1) ◽  
pp. 35-39
Author(s):  
I. V. Vinyarskaya ◽  
N. N. Savva ◽  
N. V. Ustinova ◽  
O. V. Krasko ◽  
V. V. Chernikov ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Parental Care ◽  
Russian Language ◽  
Severe Condition ◽  
Language Version ◽  
Quality Of Life Inventory ◽  
The Impact ◽  
Life Inventory

The improvement of the quality of life (QL) of the child is the main goal of palliative care (PC). However, studies on the assessment of QL of the given contingent is not enough, especially for the children being in conditions of institutions for orphans and children left without parental care. There were studied the QL of 409 children, out of whom 113 being in need of PC were held at four centers for the promotion to the family education in Moscow. Pediatric Quality of Life Inventory - PedsQLтм4.0. The questionnaire survey was executed with the use of the Russian-language version of the international questionnaire for the assessment of QL «Pediatric Quality of Life Inventory - PedsQLtm4.0». There were established very low values of as the overall QL of children in need of palliative care, which are being in conditions of institutions for orphans and children left without parental care, as for all its compartments. The severe condition of the child that requires the provision of PC was established to decline the influence of gender, age, nosological, social factors on QL. There was detected only the impact of rehabilitation potential on the QL indices.

scholarly journals Effectiveness of Palliative Care in Patients with Malignant Neoplasms of II and IV Clinical Groups

2020 ◽  
pp. 50-58
Author(s):  
G. E. Litvinov ◽  
N. N. Usova ◽  
N. L. Ksenzov ◽  
A. P. Voronina ◽  
O. S. Pukhovich
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Pain Syndrome ◽  
Pain Scale ◽  
Malignant Neoplasms ◽  
Clinical Group ◽  
Short Treatment ◽  
Intensity Index ◽  
Care Course

Objective: to evaluate the effectiveness of palliative care in patients with malignant neoplasms of II and IV clinical groups in terms of the changes of the quality of life indicators regardless of the stage of the development of the disease and the degree of its malignancy. Material and methods. 61 patients of the Palliative Care Ward suffering from malignant neoplasms of II and IV clinical groups were examined at the beginning (day 2) and at the end of the treatment course (day 14). The patients' psychoemotional condition, characteristics of pain syndrome and clinical mobility were analyzed. The effectiveness of the palliative care course was evaluated using the standardized questionnaires and scales: visual-analog pain scale, DN4, Pain Detect, Rivermid Mobility Index, Beck Depression Inventory, Spielberger-Hanin Anxiety Scale (assessment of situational and personal anxiety). The Garkawi Adaptation Intensity Index was used to calculate the body's reactivity to the disease at the beginning and upon completion of the palliative care course. The Calf-Caliph leukocyte index was calculated twice to assess the dynamics of endogenous intoxication.Results. The course of the inpatient palliative treatment has showed its effectiveness by improving the category of clinical mobility on the Rivermid scale and the psychological condition of the patients with malignant neoplasms of II and IV clinical groups: there was a decrease in anxiety and depression, some decrease in the degree of pain syndrome. The Garkawi and Calf-Caliph indices were not effective tools for the assessment of the short treatment course.Conclusion. Inpatient palliative care for patients with malignant neoplasms of II clinical group reduces undesirable effects of radical treatment, thus improving the quality of life, and it relieves the suffering in the patients of IV clinical group in whom the application of radical methods is not possible.

scholarly journals Evaluation of efficacy of the Olyfrin spray in treatment of patients with atrophic rhinitis using the Russian-language version of SNOT-25 questionnaire with Houser's modifications

2020 ◽  
Vol 19 (4) ◽  
pp. 102-112
Author(s):  
N. D. Chuchueva ◽  
◽  
E. L. Savlevich ◽  
V. S. Kozlov ◽  
V. A. Doronina ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Nasal Spray ◽  
Russian Language ◽  
Current Therapy ◽  
Atrophic Rhinitis ◽  
Language Version ◽  
Chronic Rhinitis ◽  
Significant Difference ◽  
The Russian Language

Atrophic rhinitis at the same time significantly reduces the quality of life of patients suffering from it and is a refractory pathology. The current therapy for the disease includes conservative and sometimes surgical treatment. Nevertheless, the problem of effective therapeutic method remains to be relevant and requires the search for new medicines. Also, there is no tool for assessing the severity of symptoms and quality of life in patients with atrophic rhinitis. The internationally accepted SNOT-25 (Sino-Nasal Outcome Test-25) questionnaire with Houser’s modifications is used to assess the severity of symptoms of patients with empty nose syndrome and could be successfully applied for examination of patients with atrophic rhinitis. Research objectives. This research is aimed to evaluate the efficacy of the Russian nasal spray Olyfrin in the treatment of atrophic rhinitis. And also, to assess the possibility of using the SNOT 25 questionnaire with Houser’s modifications to determine symptom severity of atrophic rhinitis. Materials and Methods. At the first stage - validation of the SNOT-25 questionnaire modified by Houser - 64 patients were included in the study: 29 patients with atrophic rhinitis, 35 with other forms of chronic rhinitis. All patients filled in a prepared and adapted Russian-language version of the questionnaire. At the second stage - determination of the effectiveness of the spray Olyfrin in the treatment of atrophic rhinitis - the study included 29 patients with atrophic rhinitis. Olyfrin was used in 1 dose 3 times a day for 14 days. The dynamics of the severity of symptoms was assessed on the 7th and 14th days using the SNOT-25 questionnaire with Houser’s modifications. Analysis of the total number of points according to SNOT 25 with Houser’s modifications, along with the number of points scored for each of the questions, revealed a significant difference between the group of patients with atrophic rhinitis and the group of patients with other forms of chronic rhinitis (p <0.05). When studying the efficacy of the spray Olyfrin, statistically significant differences were found in the sum of points on the questionnaire before treatment and on the 7th day after treatment (p = 0.005), as well as before treatment and on the 14th day after treatment (p <0.001). A significant difference (p <0.05) was also obtained depending on the day of treatment with a decrease in the number of points of the severity of dryness in the nose (3.75 ± 1.55 vs 1.76 ± 1.43), sensation of excessive openness of the nose (0, 62 ± 0.26 vs 0.41 ± 0.14) and the formation of crusts in the nasal cavity (3.45 ± 1.37 vs 1.76 ± 0.87) already on the 7th day of treatment, and for all these symptoms with an additional decrease in the severity of the feeling of suffocation (1.14 ± 0.29 vs 0.28 ± 0.1) and difficulty in nasal breathing (1.62 ± 0.33 vs 0.45 ± 0.12) on the 14th day of treatment. Conclusions. According to our study, Olyfrin nasal spray is advisable to use when prescribing empirical therapy for patients with atrophic rhinitis. And to assess the quality of life and the dynamics of treatment of patients with atrophic rhinitis, the Russian-language version of the SNOT-25 questionnaire with Houser’s modifications can be successfully used.

87: Biopsychosocial Factors in Quality of Life in men with Chronic Prostatitis/Chronic Pelvic Pain Syndrome

2007 ◽  
Vol 177 (4S) ◽  
pp. 31-31
Author(s):  
J. Curtis Nickel ◽  
Dean Tripp ◽  
Shannon Chuai ◽  
Mark S. Litwin ◽  
Mary McNaughton-Collins
Keyword(s):  
Quality Of Life ◽  
Pelvic Pain ◽  
Chronic Prostatitis ◽  
Chronic Pelvic Pain ◽  
Chronic Pelvic Pain Syndrome ◽  
Pain Syndrome ◽  
Pelvic Pain Syndrome

Results of osteopathic correction of patients with post-traumatic coccygodynia

2019 ◽  
pp. 19-27
Author(s):  
Yu. V. Antonova ◽  
A. M. Iskandarov ◽  
I. B. Mizonova
Keyword(s):  
Quality Of Life ◽  
Emotional State ◽  
Pain Syndrome ◽  
Control Group ◽  
Life Questionnaire ◽  
Treatment Area ◽  
Diffi Cult ◽  
Osteopathic Treatment ◽  
Post Traumatic

Introduction.Coccygodynia is a multidisciplinary disease which is diffi cult to treat. It seriously limits the ability to work and signifi cantly affects the quality of life of patients. The study of somatic dysfunctions in patients with coccygodynia and the analysis of the results of osteopathic treatment of such patients makes it possible to justify the necessity of osteopathic correction of coccygodynia.Goal of the study— to determine the structure of the leading somatic dysfunctions in patients with coccygodynia and to study the effectiveness of osteopathic treatment of this pathology.Materials and methods.The study involved 44 patients from 25 to 65 years old, randomly divided into two groups. The main group of 24 people (20 women and 4 men) received osteopathic treatment, in accordance with the identifi ed leading somatic dysfunctions. Patients of the control group (16 women and 4 men) were treated locally with soft manual techniques (the treatment area was limited by the pelvic region). In order to assess the results of the treatment, we examined the intensity of the pain syndrome and the psycho-emotional state of patients. The severity of the pain syndrome was assessed in accordance with the visual analogue scale (VAS). The psycho-emotional state (with physical and mental components) was assessed with the help of the SF-36 quality of life questionnaire.Results.Somatic dysfunctions typical for patients with coccygodynia have been identifi ed. Osteopathic treatment has proven to be more effective in comparison with local manual therapy of coccygodynia both in early periods and in 3 months after the end of the treatment course.Conclusion.Osteopathic treatment of post-traumatic coccygodynia is effective, and can be recommended for treatment of such patients.

Histamine metabolism disorder in pathogenesis of chronic pelvic pain in patients with external genital endometriosis

2017 ◽  
pp. 56-60
Author(s):  
М.Р. Оразов ◽  
В.Е. Радзинский ◽  
М.Б. Хамошина ◽  
Е.Н. Носенко ◽  
Э.С. Токаева ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pelvic Pain ◽  
Peripheral Blood ◽  
Chronic Pelvic Pain ◽  
Pain Syndrome ◽  
Histamine Level ◽  
Life Assessment ◽  
Assay Method ◽  
Histamine Metabolism

Цель исследования - изучение особенностей обмена гистамина при хронической тазовой боли у пациенток с наружным генитальным эндометриозом. Методика. В сыворотке крови 100 пациенток методом высокоточного (в нг/мл) иммуноферментного твердофазного анализа определяли концентрацию гистамина. Использованы реактивы «Histamine ЕLISA», аппарат BAE-1000 Гистамин (Labor Diagnostika Nord - LDN, Германия). Оценка выраженности болевого синдрома осуществлялась по шкале ВАШ, оценка качества жизни - на основании опросника для оценки качества жизни при эндометриозе (EHR-30), оценка тревожности - опросника Спилбергера-Ханина. Результаты. Показано статистически значимое повышение уровня гистамина у пациенток с высокой интенсивностью болевого синдрома. Женщины с наружным генитальным эндометриозом, сопровождающимся интенсивным болевым синдромом в 100% случаев обнаруживали высокие уровни ситуативной и личностной тревожности, тогда как, лишь у 40% женщин (n = 16) контрольной группы выявлен умеренный уровень тревожности. Депрессивные расстройства выявлены у 58,3% женщин с хронической тазовой болью (n = 35), из них основную часть (n = 20) составили женщины с выраженной степенью болевого синдрома по ВАШ. Заключение. Психоэмоциональное состояние женщин с тазовой болью, ассоциированной с наружным генитальным эндометриозом, характеризуется высокими уровнями депрессивных и тревожных расстройств, значительным снижением уровня качества жизни. Выявлена прямая связь между интенсивностью болевого синдрома и уровнем гистамина в периферической крови пациенток с наружным генитальным эндометриозом. Objective. To study features of histamine metabolism in patients with chronic pelvic pain associated with external genital endometriosis. Methods. For quantitative assessment of histamine level in peripheral blood was taken from 100 patients which than was centrifuged. In blood serum histamine concentration was determined by enzyme-linked immunosorbent assay method with reagents «Histamine ЕLISA» on the machine BAE-1000 Histamine (Labor Diagnostika Nord - LDN, Hermany). A pain syndrome was assessed by Visual Analog Scale (VAS), quality of life assessment - by Endometriosis Health Profile Questionnaire (EHR-30), level of anxiety was determined by Spielberger-Khanin questionnaire. The results. Showed statistically higher histamine level in patients with severe pain according to VAS. After assessment of results obtained from Spielberger-Khanin questionnaire 100% experimental group’s women with external genital endometriosis (n = 60) were noted to be have high level of state and trait anxiety, then 40% women of control group (n = 16) have moderate level of anxiety. The incidence of depression in women with chronic pelvic pain was 58.3% (n = 35) and the main part (n = 20) were women with severe stage of pelvic pain according to VAS. Conclusions. Psycho emotional condition of women with external genital endometriosis associated pelvic pain characterized by higher depression and anxiety levels, with significant decrease quality of life. Direct relationship also was found between pain syndrome intensity and histamine level in peripheral blood in patients with external genital endometriosis.

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