Assistive Device Utilization and Quality of Life in Adults with Spinal Cord Injuries or Cerebral Palsy Two Years Later

1990 ◽  
Vol 21 (4) ◽  
pp. 36-44 ◽  
Author(s):  
Marcia J. Scherer
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Cerebral Palsy ◽  
Spinal Cord Injuries ◽  
Assistive Device ◽  
Perceived Quality Of Life ◽  
Functional Capacities ◽  
Study Participants ◽  
Over Time

A study was done in 1986 that compared assistive device (AD) users and non-users on their functioning, temperament, and perceived quality of life. A follow-up study was conducted in 1988 with all of the original study participants in order to assess changes over time in the above mentioned areas. The original methodology was repeated with five female adults with cerebral palsy (CP) and five male adults with spinal cord Injuries (SCI). Additionally, two individuals with recent spinal cord injuries were added to the sample. The findings indicate that the functional capacities and temperament of participants with CP both tended to improve over time whereas most SCI participants seemed to become less well-adjusted in several areas. While the SCI users of ADs continued to display the best overall functioning of all participant groups, the SCI non-users reported the most functional declines over time with the gaps between them and the SCI users widening.

Assistive Device Utilization And Quality-of-Life in Adults With Spinal Cord Injuries or Cerebral Palsy

1988 ◽  
Vol 19 (2) ◽  
pp. 21-30 ◽  
Author(s):  
Marcia J. Scherer
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Cerebral Palsy ◽  
Spinal Cord Injuries ◽  
Assistive Device ◽  
Research Approach ◽  
Emotional Inhibition ◽  
Functional Capabilities ◽  
Four Quadrant

A preliminary assessment of assistive device (AD) utilization by adults with cerebral palsy (CP) and spinal cord injuries (SCI) was conducted during the winter, 1986. A qualitative research approach was selected over a quantitative one so that pre-selected themes would not be imposed upon the data but, rather, would emerge from the data obtained. Five males with SCI and five females with CP, all subjects having a four-quadrant involvement, were interviewed about their AD use and quality-of-life. The findings indicate that female AD users with CP emphasize the capability to do things for the first time in their lives because of their ADs. They speak in terms of gains. In contrast, male AD non-users with SCI interpret ADs as poor replacements for their own functioning and see them as reminders of loss. AD users of both disabilities see their quality-of-life as being within their control whereas non-users believe otherwise. It was concluded that increased functional capabilities gained through AD utilization and the attainment of a “normalized” quality-of-life may present users with generalized “high functioning” expectations and frustrations for which their prior socialization did not prepare them. This, coupled with little peer contact, was discussed as contributing to participants' feelings of nervousness, depression, emotional inhibition and a sense of identity confusion.

Psychosocial Adaptation to Spinal Cord Injury: A Dimensional Perspective

2005 ◽  
Vol 97 (2) ◽  
pp. 577-586 ◽  
Author(s):  
Hanoch Livneh ◽  
Erin Martz
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injuries ◽  
Psychosocial Adaptation ◽  
Dimensional Structure ◽  
Scaling Analysis ◽  
Multidimensional Scaling Analysis ◽  
Perceived Quality Of Life ◽  
Cord Injury

From 313 individuals who sustained spinal cord injuries self-reported responses were examined on their psychosocial adaptation to disability and perceived quality of life. A multidimensional scaling analysis yielded a 2-dimensional structure of adaptation. The first dimension indicated adaptive versus nonadaptive reactions. The second dimension was suggestive of denial versus realization of the affect related to the medical impairment.

scholarly journals Long term outcome of functional independence and quality of life after traumatic SCI in Germany

Spinal Cord ◽  
2021 ◽  
Author(s):  
Florian Möller ◽  
Rüdiger Rupp ◽  
Norbert Weidner ◽  
Christoph Gutenbrunner ◽  
Yorck B. Kalke ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Functional Independence ◽  
Term Outcome ◽  
Long Term Outcome ◽  
Cord Injury ◽  
Over Time

Abstract Study design Multicenter observational study. Objective To describe the long-term outcome of functional independence and quality of life (QoL) for individuals with traumatic and ischemic SCI beyond the first year after injury. Setting A multicenter study in Germany. Methods Participants of the European multicenter study about spinal cord injury (EMSCI) of three German SCI centers were included and followed over time by the German spinal cord injury cohort study (GerSCI). Individuals’ most recent spinal cord independence measure (SCIM) scores assessed by a clinician were followed up by a self-report (SCIM-SR) and correlated to selected items of the WHO short survey of quality of life (WHO-QoL-BREF). Results Data for 359 individuals were obtained. The average time passed the last clinical SCIM examination was 81.47 (SD 51.70) months. In total, 187 of the 359 received questionnaires contained a completely evaluable SCIM-SR. SCIM scores remained stable with the exception of reported management of bladder and bowel resulting in a slight decrease of SCIM-SR of −2.45 points (SD 16.81). SCIM-SR scores showed a significant correlation with the selected items of the WHO-QoL-BREF (p < 0.01) with moderate to strong influence. Conclusion SCIM score stability over time suggests a successful transfer of acquired independence skills obtained during primary rehabilitation into the community setting paralleled by positively related QoL measurements but bladder and bowel management may need special attention.

scholarly journals Psychological and socioeconomic status, complications and quality of life in people with spinal cord injuries after discharge from hospital in Bangladesh: a cohort study

Spinal Cord ◽  
2015 ◽  
Vol 54 (6) ◽  
pp. 483-489 ◽  
Author(s):  
M S Hossain ◽  
M A Rahman ◽  
J L Bowden ◽  
M M Quadir ◽  
R D Herbert ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Socioeconomic Status ◽  
Cohort Study ◽  
Spinal Cord Injuries ◽  
Discharge From Hospital

scholarly journals Quality of Life and Related Factors Among People With Spinal Cord Injuries in Tehran, Iran

2015 ◽  
Vol 4 (3) ◽  
Author(s):  
Maryam Moghimian ◽  
Fahimeh Kashani ◽  
Mohammad Ali Cheraghi ◽  
Esmaeil Mohammadnejad
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injuries ◽  
Related Factors

Emotional Factors and Subjective Quality of Life in Subjects with Spinal Cord Injuries

2002 ◽  
Vol 81 (6) ◽  
pp. 437-445 ◽  
Author(s):  
Hervé Bénony ◽  
Lionel Daloz ◽  
Catherine Bungener ◽  
Khadija Chahraoui ◽  
Cécile Frenay ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injuries ◽  
Subjective Quality ◽  
Subjective Quality Of Life ◽  
Emotional Factors

Physical Activity, Quality of Life, and Functional Autonomy of Adults With Spinal Cord Injuries

2013 ◽  
Vol 30 (4) ◽  
pp. 317-337 ◽  
Author(s):  
Camilla Yuri Kawanishi ◽  
Márcia Greguol
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Spinal Cord Injuries ◽  
Functional Independence ◽  
Cord Injury ◽  
Functional Autonomy ◽  
Using Data

This study aimed to perform a systematic review of studies that address the influence of physical activity on the quality of life and functional independence of adult individuals with spinal cord injury. The review was performed using data obtained from the MEDLINE, CINAHL, SciELO, LILACS, SPORTDiscus, Web of Science, Academic Search Premier, and PEDro databases using the following keywords: quality of life; functional independence; autonomy; independence; physical activity; activities of daily living; physical exercise; tetraplegia; paraplegia; spinal cord injury; physical disabilities; and wheelchair. Eleven studies met the inclusion criteria. Although there was a lack of consensus among the selected studies, the majority of them presented a strong correlation between physical activity and variables of quality of life and/or functional independence. Thus, physical activity appears to have an important influence on social relationships, functional independence, psychological factors, and physical aspects, which can enhance quality of life and independence in the performance of daily activities.

Patterns of internet use by persons with spinal cord injuries and relationship to health-related quality of life

2004 ◽  
Vol 85 (11) ◽  
pp. 1872-1879 ◽  
Author(s):  
Mari-Lynn Drainoni ◽  
Bethlyn Houlihan ◽  
Steve Williams ◽  
Mark Vedrani ◽  
David Esch ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Internet Use ◽  
Spinal Cord Injuries ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Enhancement of Quality of Life and Body Satisfaction Through the Use of Adapted Exercise Devices for Individuals with Spinal Cord Injuries

2005 ◽  
Vol 11 (2) ◽  
pp. 95-108 ◽  
Author(s):  
Tamar Semerjian ◽  
Suzanne Montague ◽  
Jesus Dominguez ◽  
Artin Davidian ◽  
Ray de Leon
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Body Satisfaction ◽  
Spinal Cord Injuries
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