scholarly journals The Development of an Experience Measure for an Online Digital Mental Health Community

2021 ◽  
Author(s):  
Charlotte Mindel ◽  
Lily Mainstone-Cotton ◽  
Santiago de Ossorno Garcia ◽  
Aaron Sefi ◽  
Georgia Sugarman ◽  
...  
Keyword(s):  
Mental Health ◽  
Action Research ◽  
Participatory Action Research ◽  
Participatory Action ◽  
Digital Service ◽  
Modified Delphi ◽  
Health Community ◽  
Health Communities ◽  
Community Roles ◽  
Experience Measure

Online digital mental health communities can contribute to users’ mental health positively and negatively. Yet the measurement of outcomes and impact relating to digital mental health communities is difficult to capture. In this paper we demonstrate the development of an online experience measure for a specific children and young people’s community inside a digital mental health service. The development is informed by three phases: (i) item reduction through Estimate-Talk-Estimate modified Delphi methods, (ii) user testing with participatory action research and (iii) a pilot within the digital service community to explore its use. Rounds of experts talks help to reduce the items. User experience workshops helped to inform the usability and appearance, wording, and purpose of the measure. Finally, the pilot results highlight completion rates, difference in scores for age and community roles and a preference to ‘relate to others’; as a mechanism of support. Outcomes frequently selected in the measure show the importance of certain aspects of the community, such as safety, connection, and non-judgment previously highlighted in the literature. Self-reported helpfulness scales like this one could be used as indicators of meaningful engagement within the community and its content but further research is required to ascertain its acceptability and validity. Phased approaches involving stakeholders and participatory action research enhances the development of digitally enabled measurement tools.

Allyship and solidarity, not therapy, in child and youth mental health: Lessons from a participatory action research project with psychiatrized youth

2020 ◽  
Vol 10 (1) ◽  
pp. 78-89 ◽  
Author(s):  
Maria Liegghio
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Action Research ◽  
Young People ◽  
Participatory Action Research ◽  
Youth Mental Health ◽  
Participatory Action ◽  
Action Research Project ◽  
Research Project ◽  
The Social

While globally advances have been made to recognize children as social actors in their own right, for psychiatrized young people their experiences of distress are often seen as a limitation and thus used as a justification for denying their meaningful participation in matters of concern to their lives. However, what would it mean if ‘mental illness’ was not seen as a ‘limitation’, but rather as an ‘epistemological position’ from which the social world is experienced, understood and acted upon? What would it mean if our theories about ‘distress’ and ‘helping’ were premised on the subjugated knowledges of psychiatrized children and youth? The consumer/survivor-led research movement has made significant gains in answering these questions for the adult, but not necessarily for the child and youth mental health field. The purpose of this article is to critically examine the significance of psychiatrized young people setting and executing their own research and, ultimately, practice agendas. Presented are the outcomes of an evaluation of a participatory action research project examining the stigma of mental illness conducted with seven psychiatrized youth, 14 to 17 years old. The outcomes suggest our roles as practitioners and researchers need to shift from being ‘agents’ working on behalf of to ‘allies’ working in solidarity with young people to change the social conditions of their marginalization. The article concludes with the limits of consumer/survivor-led research for addressing adultism and, instead, ends with a call for decolonizing children’s mental health.

scholarly journals Participatory action research and oral history as natural allies in mental health research

2021 ◽  
pp. 146879412110399
Author(s):  
Verusca Calabria ◽  
Di Bailey
Keyword(s):  
Mental Health ◽  
Action Research ◽  
Participatory Action Research ◽  
Oral History ◽  
Health Research ◽  
Mental Health Research ◽  
Participatory Action ◽  
Mental Health Settings ◽  
Methodological Approaches ◽  
The Uk

This article explores the similarities and differences between oral history and participatory action research (PAR) as two qualitative research methods that both accord with an interpretivist paradigm. It examines how combining these two methodologies can benefit mental health research, offering opportunities for reflection and reciprocity. Drawing from the authors’ respective knowledge and experience of using oral history and PAR methods within social care and mental health settings in the UK, the article considers these opportunities in relation to key concepts, namely, the sharing of power, reciprocity and positionality that are inherent in both methodological approaches. The article concludes that PAR-led oral history offers a trans-disciplinary methodology that can offer fresh insights for improving practices and social outcomes and for reducing inequalities.

How mental health clinicians want to evaluate the care they give: a Western Australian study

2013 ◽  
Vol 37 (3) ◽  
pp. 375 ◽  
Author(s):  
Sophie Davison ◽  
Yvonne Hauck ◽  
Philippa Martyr ◽  
Daniel Rock
Keyword(s):  
Mental Health ◽  
Action Research ◽  
Participatory Action Research ◽  
Service Level ◽  
Consumer Involvement ◽  
Mental Health Clinicians ◽  
Participatory Action ◽  
Research Framework ◽  
Clinical Resource ◽  
Western Australian

Objectives. To explore how Western Australian mental health clinicians want to evaluate their care. Methods. Using a participatory action research framework, 10 senior psychiatrists and 11 clinical nurse specialists working in an inpatient mental health setting participated in individual interviews, focus groups and meetings. All interviews were de-identified during transcription and transcripts and field notes were analysed for common themes. Results. Participants identified what they wanted to measure, how they wanted to measure it and how these changes could be implemented. Clinicians stressed the importance of measuring context (physical, clinical and service) and process as well as outcome, and of evaluating care at an individual and service level with consumer involvement. What is known about the topic? Completion rates of mandatory national outcome measures in mental health in Australia are variable and clinicians have mixed views as to their value. Several barriers have been identified as to their use including clinical, resource and ownership issues. What does this paper add? Some studies have identified areas of good practice and elicited practical suggestions for improvement but few have asked clinicians how they actually want to evaluate the care they provide. This study explored how mental health clinicians wanted to evaluate their care, using a participatory action research framework that encouraged participants to pinpoint problems and issues, account for their social context and develop actions to address them. What are the implications for practitioners? Clinicians were enthusiastic for high quality care and evaluation, but pessimistic about their ability to introduce sustainable change. Establishing and supporting active and responsible leadership at service level may solve this, as may encouraging local standard setting and benchmarking in collaboration with consumers and carers.

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