scholarly journals The Adaptation and Validation of the Satisfaction with Stroke Care Questionnaire (Homesat) (SASC10-MyTM) for use in public primary healthcare facilities caring for long- term stroke survivors residing at home in the community.

2020 ◽  
Author(s):  
Aznida Firzah Abdul Aziz ◽  
Chai-Eng Tan ◽  
Mohd Fairuz Ali ◽  
Syed Mohamed Aljunid
Keyword(s):  
Social Support ◽  
Factor Analysis ◽  
Support Services ◽  
Care Delivery ◽  
Stroke Care ◽  
Healthcare Services ◽  
Post Stroke ◽  
Care Services ◽  
Social Support Services ◽  
Discharge Transition

Abstract Background Satisfaction with post stroke services would assist stakeholders in addressing gaps in service delivery. Tools used to evaluate satisfaction with stroke care services need to be validated to match healthcare services provided in each country. Studies on satisfaction with post discharge stroke care delivery in low- and middle-income countries (LMIC) are scarce, despite knowledge that post stroke care delivery is fragmented and poorly coordinated. This study aims to modify and validate the HomeSat subscale of the Dutch Satisfaction with Stroke Care-19 (SASC-19) questionnaire for use in Malaysia and in countries with similar public healthcare services in the region. Methods The HomeSat subscale of the Dutch SASC-19 questionnaire (11 items) underwent back-to-back translation to produce a Malay language version. Content validation was done by Family Medicine Specialists involved in community post-stroke care. Community social support services in the original questionnaire were substituted with equivalent local services to ensure contextual relevance. Internal consistency reliability was determined using Cronbach alpha. Exploratory factor analysis was done to validate the factor structure of the Malay version of the questionnaire (SASC10-My TM ). The SASC10-My TM was then tested on 175 post-stroke patients who were recruited at ten public primary care health centres across Peninsular Malaysia, in a trial-within a trial study. Results One item from the original Dutch SASC19 (HomeSat) was dropped. Internal consistency for remaining 10 items was high (Cronbach alpha 0.830). Exploratory factor analysis showed the SASC10-My TM had 2 factors: discharge transition and social support services after discharge. The mean total score for SASC10-My TM was 10.74 (SD 7.33). Overall, only 18.2% were satisfied with outpatient stroke care services (SASC10-My TM score ≥ 20). Detailed analysis revealed only 10.9% of respondents were satisfied with discharge transition services, while only 40.9% were satisfied with support services after discharge. Conclusions The SASC10-My TM questionnaire is a reliable and valid tool to measure caregiver or patient satisfaction with outpatient stroke care services in the Malaysian healthcare setting. Studies linking discharge protocol patterns and satisfaction with outpatient stroke care services should be conducted to improve care delivery and longer-term outcomes.

scholarly journals The Adaptation and Validation of the Satisfaction with Stroke Care Questionnaire (Homesat) (SASC10-MyTM) for use in public primary healthcare facilities caring for long- term stroke survivors residing at home in the community.

2020 ◽  
Author(s):  
Aznida Firzah Abdul Aziz ◽  
Chai-Eng Tan ◽  
Mohd Fairuz Ali ◽  
Syed Mohamed Aljunid
Keyword(s):  
Social Support ◽  
Factor Analysis ◽  
Support Services ◽  
Care Delivery ◽  
Stroke Care ◽  
Healthcare Services ◽  
Post Stroke ◽  
Care Services ◽  
Social Support Services ◽  
Discharge Transition

Abstract Background Satisfaction with post stroke services would assist stakeholders in addressing gaps in service delivery. Tools used to evaluate satisfaction with stroke care services need to be validated to match healthcare services provided in each country. Studies on satisfaction with post discharge stroke care delivery in low- and middle-income countries (LMIC) are scarce, despite knowledge that post stroke care delivery is fragmented and poorly coordinated. This study aims to modify and validate the HomeSat subscale of the Dutch Satisfaction with Stroke Care-19 (SASC-19) questionnaire for use in Malaysia and in countries with similar public healthcare services in the region.Methods The HomeSat subscale of the Dutch SASC-19 questionnaire (11 items) underwent back-to-back translation to produce a Malay language version. Content validation was done by Family Medicine Specialists involved in community post-stroke care. Community social support services in the original questionnaire were substituted with equivalent local services to ensure contextual relevance. Internal consistency reliability was determined using Cronbach alpha. Exploratory factor analysis was done to validate the factor structure of the Malay version of the questionnaire (SASC10-My TM ). The SASC10-My TM was then tested on 175 post-stroke patients who were recruited at ten public primary care health centres across Peninsular Malaysia, in a trial-within a trial study.Results One item from the original Dutch SASC19 (HomeSat) was dropped. Internal consistency for remaining 10 items was high (Cronbach alpha 0.830). Exploratory factor analysis showed the SASC10-My TM had 2 factors: discharge transition and social support services after discharge. The mean total score for SASC10-My TM was 10.74 (SD 7.33). Overall, only 18.2% were satisfied with outpatient stroke care services (SASC10-My TM score ≥ 20). Detailed analysis revealed only 10.9% of respondents were satisfied with discharge transition services, while only 40.9% were satisfied with support services after discharge.Conclusions The SASC10-My TM questionnaire is a reliable and valid tool to measure caregiver or patient satisfaction with outpatient stroke care services in the Malaysian healthcare setting. Studies linking discharge protocol patterns and satisfaction with outpatient stroke care services should be conducted to improve care delivery and longer-term outcomes.Trial registration: No.: ACTRN12616001322426 (Registration Date: 21st September 2016

scholarly journals Emotional and Mental Wellbeing Following COVID-19 Public Health Measures on People Living With Dementia and Carers

2021 ◽  
pp. 089198872199681
Author(s):  
Kerry Hanna ◽  
Clarissa Giebel ◽  
Hilary Tetlow ◽  
Kym Ward ◽  
Justine Shenton ◽  
...  
Keyword(s):  
Public Health ◽  
Mental Health ◽  
Social Support ◽  
Support Services ◽  
Mental Wellbeing ◽  
Daily Lives ◽  
Health Measures ◽  
Social Support Services ◽  
The Uk ◽  
The Impact

Background: To date, there appears to be no evidence on the longer-term impacts caused by COVID-19 and its related public health restrictions on some of the most vulnerable in our societies. The aim of this research was to explore the change in impact of COVID-19 public health measures on the mental wellbeing of people living with dementia (PLWD) and unpaid carers. Method: Semi-structured, follow-up telephone interviews were conducted with PLWD and unpaid carers between June and July 2020. Participants were asked about their experiences of accessing social support services during the pandemic, and the impact of restrictions on their daily lives. Results: 20 interviews were conducted and thematically analyzed, which produced 3 primary themes concerning emotional responses and impact to mental health and wellbeing during the course of the pandemic: 1) Impact on mental health during lockdown, 2) Changes to mental health following easing of public health, and 3) The long-term effect of public health measures. Conclusions: The findings from this research shed light on the longer-term psychological impacts of the UK Government’s public health measures on PLWD and their carers. The loss of social support services was key in impacting this cohort mentally and emotionally, displaying a need for better psychological support, for both carers and PLWD.

Stroke Care Services in Africa: A Systematic Review

2018 ◽  
Vol 1 (1) ◽  
pp. 55-64 ◽  
Author(s):  
Rufus O. Akinyemi ◽  
Olaleye A. Adeniji
Keyword(s):  
Large Scale ◽  
Systems Of Care ◽  
Care Delivery ◽  
Stroke Care ◽  
Developed Countries ◽  
High Morbidity ◽  
New Paradigm ◽  
African Countries ◽  
Care Services ◽  
Stroke Services

Background: Stroke is the second leading cause of death and adult-onset disability globally. Although its incidence is reducing in developed countries, low- and middle-income countries, especially African countries, are witnessing an increase in cases of stroke, leading to high morbidity and mortality. Evidently, a new paradigm is needed on the continent to tackle this growing burden of stroke in its preventative and treatment aspects. Aims and Objectives: The aim of this study was to determine the scope of stroke care services, where they exist, and their relationship with currently existing health systems. Methods: A detailed literature search was undertaken referring to PubMed and Google Scholar for articles from January 1960 to March 2018, using a range of search terms. Of 93 publications, 45 papers were shortlisted, and 21 reviewed articles on existing stroke services were included. Results: The literature on models of stroke services in Africa is sparse. We identified focused systems of care delivery in the hyperacute, acute, and rehabilitative phases of stroke in a few African countries. There is a continent-wide paucity of data on the organization of prehospital stroke services. Only 3 African countries (South Africa, Egypt, and Morocco) reported experiences on thrombolysis. Also, the uptake of dedicated stroke units appears limited across the continent. Encouragingly, there are large-scale secondary prevention models on the continent, mostly within the context of experimental research projects, albeit with promising results. We found only 1 article on the interventional aspects of stroke care in our review, and this was a single-center report. Conclusions: The literature on the organization of stroke services is sparse in Africa. Dedicated action at policy, population, community, and hospital-based levels is urgently needed toward the organization of stroke services to tame the burgeoning burden of stroke on the African continent.

Coping with Genetic Disorder: A Sociological Understanding of Parent-Caregivers' Experiences

2005 ◽  
Vol 13 (4) ◽  
pp. 315-331 ◽  
Author(s):  
Tanuka Roy ◽  
Suhita Chopra Chatterjee
Keyword(s):  
Social Support ◽  
Support Services ◽  
Genetic Disorder ◽  
Intervention Strategies ◽  
Stress And Strain ◽  
Religious Background ◽  
Existential Crisis ◽  
Social Support Services ◽  
Parent Caregivers ◽  
Culturally Sensitive Intervention

Parent-caregivers (PACs) of Thalassaemic children face a variety of stress and strain. The article looks into the different experiences of PACs in a relatively underdeveloped setting in India characterized by poor medical and social support services. The problem is compounded by illiteracy and poverty of the PACs. The study highlights the different ways in which PACs cope with the existential crisis of illness in their lives. Central to coping, meanings play an important role. Hoping and normalization are other mechanisms which help them to confront the crisis. The findings indicate considerable differences in caregiving experiences according to PACs' education and religious background. These differences are also reflected in their awareness and preferences for different intervention programmes. The article concludes by indicating the need to develop culturally sensitive intervention strategies which can take into account these variations.

How to support families of children with disabilities? An exploratory study of social support services

2012 ◽  
Vol 19 (3) ◽  
pp. 272-281 ◽  
Author(s):  
Sylvie Tétreault ◽  
Sophie Blais-Michaud ◽  
Pascale Marier Deschênes ◽  
Pauline Beaupré ◽  
Hubert Gascon ◽  
...  
Keyword(s):  
Social Support ◽  
Support Services ◽  
Exploratory Study ◽  
Children With Disabilities ◽  
Social Support Services

scholarly journals 1289Decline in duration, satisfaction and sleep quality among informal caregivers of stroke survivors, 18-months post-stroke

2021 ◽  
Vol 50 (Supplement_1) ◽  
Author(s):  
Phd Filipa Teixeira ◽  
Ana Moura ◽  
Elisabete Alves
Keyword(s):  
Sleep Quality ◽  
Informal Caregivers ◽  
Stroke Care ◽  
Stroke Survivors ◽  
Care Provision ◽  
Post Stroke ◽  
Adverse Health Outcomes ◽  
Care Services ◽  
The North ◽  
Falling Asleep

Abstract Background Data on stroke caregivers’ sleep is scarce. We aimed to assess changes in duration, satisfaction and sleep quality among informal caregivers of stroke survivors. Methods Informal caregivers (n = 126) of stroke survivors hospitalized between September 2018 and August 2019 in the 12 Stroke Units of the North of Portugal were invited to participate in the study, 18 months’ post-stroke. Sociodemographic and sleep characteristics (duration, satisfaction and quality) were collected through structured questionnaires. Odds ratios and 95% confidence intervals (95%CI) were estimated through logistic regression, adjusted for age and sex. Answers to open-ended questions were synthetized using content analysis. Results Due to care provision, informal caregivers reported sleeping, on average (SD), significantly less hours (7.0 (1.7) vs. 6.4 (1.8); p < 0.001). Since its beginning, caregivers’ satisfaction with their sleep decreased approximately 30%. Changes in sleep quality, namely difficulties in falling asleep and constant interruptions during sleep, were reported by almost 70% of caregivers. Only 6.4% described the prescription of medication to sleep after beginning care provision. Participants who returned to work (adjusted OR = 0.34; 95%CI:0.16-0.76) and with a monthly income above 1000€ (adjusted OR = 0.29; 95%CI:0.13-0.66) were less likely to report changes in sleep quality. Conclusions A decline in duration, satisfaction and sleep quality of informal caregivers of stroke survivors, 18 months’ post-stroke, was observed. Changes in sleep quality revealed socioeconomic inequalities, highlighting the need to prevent adverse health outcomes related to sleep disturbance. Key messages Sleep health dimensions of stroke caregivers should be considered an additional dimension of the post-stroke care services.

scholarly journals Leaving rehab: enhancing transitions into stable housing

2021 ◽  
Author(s):  
Cameron Duff ◽  
Nicholas Hill ◽  
Hazel Blunden ◽  
kylie valentine ◽  
Sean Randall ◽  
...  
Keyword(s):  
Mental Health ◽  
Social Support ◽  
Substance Use ◽  
Support Services ◽  
Transition Planning ◽  
International Comparisons ◽  
Housing Instability ◽  
Substance Use Problems ◽  
Stable Housing ◽  
Social Support Services

The project will examine the coordination between residential treatment and housing and social support services using international comparisons and linked administrative data followed by testing in the field. It aims to enhance transition planning and reduce the risk of housing instability for individuals leaving treatment for mental health and/or substance use problems.

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