scholarly journals Relationship between Psychological Well-Being and Coping Strategies among Family Caregivers of Children with Down syndrome

2020 ◽  
Vol 11 (4) ◽  
pp. 155-172
Author(s):  
Amgad Said Mohammed ◽  
Sahar Mahmoud Eliwa ◽  
Rania Abdel-Hamid Zaki
2021 ◽  
Vol 19 (5) ◽  
pp. 49-60
Author(s):  
Amgad Said Mohammed ◽  
Sahar Mahmoud Mohamed ◽  
Rania Abdel-Hamid Zaki

Background: Training family caregivers of children with Down Syndrome on how to promote their own psychological well-being and to cope effectively is essential as they are frequently unstable and forego their psychological well-being. Aim: This study aimed to assess the effect of psycho-educational nursing intervention on coping strategies and psychological well-being among family caregivers of children with Down Syndrome. Design: A quasi-experimental design was utilized in this study. Setting: This study was carried out in the Genes Clinics of Down Syndrome in the specialized clinics of the university pediatric hospital affiliated to Ain Shams University Hospitals. Subjects: A sample of 60 family caregivers of children with Down Syndrome. The study tools were: 1) Interviewing Questionnaire, 2) Brief-COPE inventory (Carver, 1997), 3) Ryff’s Psychological well-being scale (1989) and 4) Psycho-educational program. The results: There were highly statistically significant differences between pre & post intervention regarding to emotion-focused coping strategies except for humor, acceptance, religion, venting and substance use and there were highly statistically significant differences between pre & post intervention regarding to problem-focused coping strategies except for use of instrumental support. Conclusions: There were highly statistically significant differences between pre & post intervention regarding the level of psychological well-being. There was a negative statistically significant correlation between psychological well-being pre & post intervention and all types of emotion-focused coping strategies except for humor, acceptance and religion. Meanwhile, there was a highly positive statistically significant correlation between psychological well-being pre & post intervention and problem-focused coping strategies regarding active coping and positive reframing and a positive statistically significant correlation regarding use of instrumental support and planning. Recommendations: Future research to assess challenges encountered by siblings of Down Syndrome children and to apply supportive intervention that promotes positive relationships and attitudes.


2018 ◽  
Vol 34 (5) ◽  
pp. 352-360 ◽  
Author(s):  
Silvia Bonino ◽  
Federica Graziano ◽  
Martina Borghi ◽  
Davide Marengo ◽  
Giorgia Molinengo ◽  
...  

Abstract. This research developed a new scale to evaluate Self-Efficacy in Multiple Sclerosis (SEMS). The aim of this study was to investigate dimensionality, item functioning, measurement invariance, and concurrent validity of the SEMS scale. Data were collected from 203 multiple sclerosis (MS) patients (mean age, 39.5 years; 66% women; 95% having a relapsing remitting form of MS). Fifteen items of the SEMS scale were submitted to patients along with measures of psychological well-being, sense of coherence, depression, and coping strategies. Data underwent Rasch analysis and correlation analysis. Rasch analysis indicates the SEMS as a multidimensional construct characterized by two correlated dimensions: goal setting and symptom management, with satisfactory reliability coefficients. Overall, the 15 items reported acceptable fit statistics; the scale demonstrated measurement invariance (with respect to gender and disease duration) and good concurrent validity (positive correlations with psychological well-being, sense of coherence, and coping strategies and negative correlations with depression). Preliminary evidence suggests that SEMS is a psychometrically sound measure to evaluate perceived self-efficacy of MS patients with moderate disability, and it would be a valuable instrument for both research and clinical applications.


2021 ◽  
pp. 1-8
Author(s):  
Beatrix Lábadi ◽  
Nikolett Arató ◽  
Tímea Budai ◽  
Orsolya Inhóf ◽  
Diána T. Stecina ◽  
...  

2020 ◽  
Vol 9 (10) ◽  
pp. 3225 ◽  
Author(s):  
Dariusz Krok ◽  
Beata Zarzycka

The well-being of healthcare personnel during the COVID-19 pandemic depends on the ways in which they perceive the threat posed by the virus, personal resources, and coping abilities. The current study aims to examine the mediating role of coping strategies in the relationship between risk perception of COVID-19 and psychological well-being, as well as the relationship between meaning-based resources and psychological well-being amongst healthcare personnel in southern Poland. Two hundred and twenty-six healthcare personnel who worked in hospitals, outpatient clinics, and medical laboratories during the first few months of the coronavirus pandemic (March–May 2020) filled in questionnaires measuring risk perception of COVID-19, meaning-based resources, coping, and psychological well-being. The results demonstrate that risk perception was negatively related to psychological well-being, whereas meaning-based resources were positively associated with well-being. Two coping strategies—problem-focused and meaning-focused coping—mediated the relationship between risk perception and psychological well-being as well as the relationship between meaning-based resources and psychological well-being. This indicates that perception processes and personal factors do not directly influence healthcare personnel’s psychological well-being, but rather they do indirectly through coping processes.


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