Psycho-educational Nursing Intervention for Improving Coping Strategies and Psychological Well-Being among Family Caregivers of Children with Down Syndrome

2021 ◽  
Vol 19 (5) ◽  
pp. 49-60
Author(s):  
Amgad Said Mohammed ◽  
Sahar Mahmoud Mohamed ◽  
Rania Abdel-Hamid Zaki
Keyword(s):  
Down Syndrome ◽  
Coping Strategies ◽  
Family Caregivers ◽  
Well Being ◽  
Nursing Intervention ◽  
Instrumental Support ◽  
Post Intervention ◽  
Psychological Well Being ◽  
Children With Down Syndrome ◽  
Brief Cope

Background: Training family caregivers of children with Down Syndrome on how to promote their own psychological well-being and to cope effectively is essential as they are frequently unstable and forego their psychological well-being. Aim: This study aimed to assess the effect of psycho-educational nursing intervention on coping strategies and psychological well-being among family caregivers of children with Down Syndrome. Design: A quasi-experimental design was utilized in this study. Setting: This study was carried out in the Genes Clinics of Down Syndrome in the specialized clinics of the university pediatric hospital affiliated to Ain Shams University Hospitals. Subjects: A sample of 60 family caregivers of children with Down Syndrome. The study tools were: 1) Interviewing Questionnaire, 2) Brief-COPE inventory (Carver, 1997), 3) Ryff’s Psychological well-being scale (1989) and 4) Psycho-educational program. The results: There were highly statistically significant differences between pre & post intervention regarding to emotion-focused coping strategies except for humor, acceptance, religion, venting and substance use and there were highly statistically significant differences between pre & post intervention regarding to problem-focused coping strategies except for use of instrumental support. Conclusions: There were highly statistically significant differences between pre & post intervention regarding the level of psychological well-being. There was a negative statistically significant correlation between psychological well-being pre & post intervention and all types of emotion-focused coping strategies except for humor, acceptance and religion. Meanwhile, there was a highly positive statistically significant correlation between psychological well-being pre & post intervention and problem-focused coping strategies regarding active coping and positive reframing and a positive statistically significant correlation regarding use of instrumental support and planning. Recommendations: Future research to assess challenges encountered by siblings of Down Syndrome children and to apply supportive intervention that promotes positive relationships and attitudes.

Resettled Bhutanese Refugees in Ottawa: What Coping Strategies Promote Psychological Well-Being?

2019 ◽  
Vol 51 (3) ◽  
pp. 168-178 ◽  
Author(s):  
Anita Subedi ◽  
Dana S. Edge ◽  
Catherine L. Goldie ◽  
Monakshi Sawhney
Keyword(s):  
Coping Strategies ◽  
Well Being ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Psychological Well Being ◽  
Bhutanese Refugees ◽  
Self Blame ◽  
Brief Cope ◽  
Positive Reframing

Background Since 2008, Bhutanese refugees have been resettled in Canada, including Ottawa. This relocation and resettling process is associated with significant physical and psychological stress, as individuals acclimatize to a new country. Purpose To assess the relationship between coping strategies and psychological well-being of Bhutanese refugees resettled in Ottawa. Methods A cross-sectional survey utilizing a convenience sample of adults (n = 110) was conducted in the fall of 2015 in Ottawa. Two tools, Brief COPE and general well-being schedule were used. Results Bhutanese refugees were in moderate distress. Using multiple linear regression, age, education, and three coping strategies (positive reframing, self-blame, and venting) were identified as predictors of general well-being ( F (11, 96) = 3.61, p < .001, R2 = 21.2%). Higher levels of education and positive reframing were associated with greater general well-being scores, while self-blame and well-being between ages 41 and 50 years were inversely associated with general well-being. Conclusions Findings suggest that a broad intersectorial approach between nurses and partner agencies is needed to enhance the mental health of this population for better adjustment in the host country. Nurses could provide support and counseling to minimize the use of self-blame and venting and promote positive coping strategies.

The mediating role of positive perceptions on coping strategies and psychological well-being among mothers of children with intellectual disabilities

2020 ◽  
Vol 14 (6) ◽  
pp. 263-272
Author(s):  
Simmi Gupta ◽  
Aneesh Kumar
Keyword(s):  
Intellectual Disabilities ◽  
Coping Strategies ◽  
Active Avoidance ◽  
Well Being ◽  
Avoidance Coping ◽  
Psychological Well Being ◽  
Content Type ◽  
Positive Effects ◽  
Brief Cope ◽  
The Relationship

Purpose Research on caregiving has been considering the positive effects experienced by the mothers of children with disabilities. This paper aims to examine whether positive perceptions mediate the relationships between coping strategies used and psychological well-being among mothers of children with intellectual disabilities. Design/methodology/approach The study opted for a quantitative approach that includes a correlation research design to examine the relationships between the variables of coping, positive perceptions and well-being among mothers of children with intellectual disabilities attending special schools in the metropolitan city Bengaluru, India. The four-factor structure of Brief COPE examined were active avoidance coping, problem-focussed coping, positive coping and religious-denial coping. “Positive perceptions” refer to the positive contributions for the mother from the experiences of raising a child with intellectual disability. Mediation analysis explored the relationship between the variables. Findings Problem-focussed coping was the most commonly reported coping factor and was associated with higher levels of well-being. Active-avoidance coping was the least commonly reported coping strategy. Positive perceptions partially mediated the relationship between the four coping factors and maternal well-being. These findings indicate that positive maternal perceptions have important implications for the employment of effective coping strategies that are associated with enhancement of psychological well-being. Originality/value The focus on positive perceptions would help in understanding the use of coping strategies and planning of support services or interventions. The positive mental health of mothers paves the way for positive developments in the child’s physical and psychological health.

The Self-Efficacy in Multiple Sclerosis (SEMS) Scale

2018 ◽  
Vol 34 (5) ◽  
pp. 352-360 ◽  
Author(s):  
Silvia Bonino ◽  
Federica Graziano ◽  
Martina Borghi ◽  
Davide Marengo ◽  
Giorgia Molinengo ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Coping Strategies ◽  
Measurement Invariance ◽  
Sense Of Coherence ◽  
Self Efficacy ◽  
Concurrent Validity ◽  
Rasch Analysis ◽  
Well Being ◽  
Psychological Well Being ◽  
And Coping

Abstract. This research developed a new scale to evaluate Self-Efficacy in Multiple Sclerosis (SEMS). The aim of this study was to investigate dimensionality, item functioning, measurement invariance, and concurrent validity of the SEMS scale. Data were collected from 203 multiple sclerosis (MS) patients (mean age, 39.5 years; 66% women; 95% having a relapsing remitting form of MS). Fifteen items of the SEMS scale were submitted to patients along with measures of psychological well-being, sense of coherence, depression, and coping strategies. Data underwent Rasch analysis and correlation analysis. Rasch analysis indicates the SEMS as a multidimensional construct characterized by two correlated dimensions: goal setting and symptom management, with satisfactory reliability coefficients. Overall, the 15 items reported acceptable fit statistics; the scale demonstrated measurement invariance (with respect to gender and disease duration) and good concurrent validity (positive correlations with psychological well-being, sense of coherence, and coping strategies and negative correlations with depression). Preliminary evidence suggests that SEMS is a psychometrically sound measure to evaluate perceived self-efficacy of MS patients with moderate disability, and it would be a valuable instrument for both research and clinical applications.

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