scholarly journals Emotional Coping Differences Among Breast Cancer Patients From an Online Support Group: A Cross-Sectional Study

2014 ◽  
Vol 16 (2) ◽  
pp. e28 ◽  
Author(s):  
Anika Batenburg ◽  
Enny Das
2020 ◽  
Vol 11 (1) ◽  
pp. 126
Author(s):  
Sri Rahayu ◽  
Teti Rahmawati

AbstrakSebutan “Caregivers” di Indonesia masih asing dibanding dengan negara lain. Mereka juga belum mendapat perhatian sepenuhnya dari masyarakat. Padahal, 85% pemberi perawatan kepada pasien adalah caregivers keluarga. Sehingga dapat digarisbawahi bahwa peran caregivers keluarga dalam merawat pasien dengan penyakit kronis adalah sangat penting. Tidak dapat dipungkiri, kemungkinan mereka mengalami berbagai permasalahan, stress, cemas, khawatir, dan terbebani akan kondisi pasien dengan penyakit kronis. Maka dari itu perlu adanya sebuah wadah yang dapat menampung permasalahan yang mereka hadapi, seperti pembuatan group baik secara ketemu langsung atau online. Tujuan penelitian ini adalah untuk mengidentifikasi kebutuhan caregivers keluarga dari pasien dengan penyakit kronis tentang online support group (OSG).  Metode penelitian yang digunakan adalah metode deskriptif dengan pendekatan cross sectional study dengan jumlah responden sejumlah 97 orang. Hasil penelitian menunjukkan bahwa (56,7%) caregivers keluarga menyatakan pentingnya support group, (57,7%) memilih untuk bertemu langsung dibanding online group, (70,1%) bersedia untuk tergabung dalam OSG, dan (80,5%) memilih WhatsApp sebagai media yang sering digunakan. Sehingga dapat disimpulkan bahwa temuan pada penelitian ini sangatlah menarik karena selain ingin ketemu langsung, caregivers keluarga lebih cenderung ingin terlibat dalam OSG.Kata Kunci : Caregivers, Keluarga, Online Support Group AbstractThe term "Caregivers" in Indonesia is not as popular as another country. They also have not received attention from society. An 85% of people giving care to the patients are family caregivers. It can be underlined that the role of family caregivers in caring for patients with chronic diseases is vital in the health care system. It is not a public secret that they may face various problems, stress, anxiety, worry, and burdened with the condition of patients with chronic illness. At this level, they need such kind of forum to accommodate their problems. For example, create groups either face to face or online. The purpose of this study was to identify the needs of family caregivers of patients with chronic diseases regarding online support groups (OSG). The research method used is a descriptive method with a cross-sectional study approach with a total of 97 samples. The results showed that (56.7%) family caregivers expressed the importance of support groups, (57.7%) chose to meet directly compared to online groups, (70.1%) were willing to enter online support groups, and (80.5%) chose WhatsApp as the most media frequently used. It can be concluded that the findings in this study are very attractive because apart from the face to face group, family caregivers prefer to join OSG. Keywords: Caregivers, Family, Online Support Group


2021 ◽  
pp. 107815522110391
Author(s):  
Sujana H Chowdhury ◽  
Bilkis Banu ◽  
Nasrin Akter ◽  
Sarder M Hossain

Background Breast cancer survivor goes through a period of needs in their post-treatment daily life. Relatively few studies have been conducted to understand the unmet needs among breast cancer survivors in Bangladesh. Recognize and measure patterns and predictors of unmet needs of breast cancer patients was the aim of the study. Objective To identify and measure patterns and predictors of unmet needs of breast cancer patients in Bangladesh. Method A cross-sectional study among 138 breast cancer patients; conveniently selected from two public and two private cancer institutes. Face-to-face interview for data collection and medical record review for checklist was done. Unmet needs have been determined by the supportive care needs survey short form 34 scale. Logistic regression analyses were performed to identify the predictors of unmet needs. Results The study indicated the top 10 moderate-to-high needs; among which the top five needs were from the information need domain. Surprisingly, private cancer treatment centers were identified as a significant predictor for unmet needs. Patients from private cancer institutes reported more explanation needs as well as needs with their physical and daily living and sexuality. Furthermore, the type of treatment like patient receiving combine treatment therapy reported more need for help compared to the patient receiving chemotherapy alone. Moreover, housewives reported the low need for patient care and support systems as a result of their reluctant behavior towards their health. Conclusion Individual’s unmet need assessment should be a part of every treatment protocol of breast cancer for a better treatment outcome.


2008 ◽  
Vol 26 (15_suppl) ◽  
pp. 22160-22160
Author(s):  
N. Raizada ◽  
H. S. Vadiraja ◽  
R. M. Raghavendra ◽  
B. S. Ajaikumar ◽  
R. S. Bilimagga ◽  
...  

2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e18132-e18132
Author(s):  
Elna Kuehnle ◽  
Wulf Siggelkow ◽  
Iris Schrader ◽  
Kristina Luebbe ◽  
Stefanie Noeding ◽  
...  

e18132 Background: In 2003 the German Cancer Society and the German Society for Breast Disease introduced a number of Quality Indicators (QIs) to improve standards of breast cancer care. Although QIs should be based on clinical evidence, evidence for important subpopulations (i.e. vulnerable patients) is often limited. In this prospective cross-sectional study we assessed conformity and non-conformity of guidelines and their impact on clinical outcome in a real-world setting. Methods: This prospective analysis included patients with primary breast cancer. Patients with stage IV and recurrent breast cancer were excluded. Data was collected from 2012-2016 in six certified breast care centers using a personal questionnaire and data from the patients' medical records. Guideline adherence to a set of 11 QIs was explored. Overall survival (OS) and disease free survival (DFS) were correlated with fulfillment of QIs and tumor characteristics. Results: Survival analysis was conducted in 2390 patients with a median follow-up of 16 months. 88 (4%) patients had a recurrent disease. 31 (1.3%) patients died of breast cancer. Tumor stage, grading, Her2- and hormone receptor status and Ki-67 correlated with DFS and OS. 1725/1907 patients (90.5%) received a guideline adherent treatment. The most prevalent reasons for non-conformity were old age (24.7%) and/or comorbidity (20.9%). Breast cancer specific DFS and OS were not significantly different between patients treated adherent or not adherent to the guidelines. In contrast, survival analysis of death other than breast cancer showed a significantly worse OS (p = 0.006) for patients not treated according to guideline recommendation. Conclusions: Conformity of clinical guidelines was observed in the majority of patients including healthy and vulnerable patients. These patients tended to have a longer breast cancer specific survival. Patients who were not considered suitable for guideline-adherent therapy died more often from other medical reasons rather than from breast cancer. In our study 10% of the patients had a limited life expectancy due to old age and co-morbidities with no assumed benefit from guideline adherence.


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