scholarly journals ONLINE SUPPORT GROUP UNTUK CAREGIVERS KELUARGA

2020 ◽  
Vol 11 (1) ◽  
pp. 126
Author(s):  
Sri Rahayu ◽  
Teti Rahmawati
Keyword(s):  
Family Caregivers ◽  
Support Groups ◽  
Support Group ◽  
Cross Sectional Study ◽  
Online Support ◽  
Online Support Groups ◽  
Sectional Study ◽  
Online Support Group ◽  
Cross Sectional ◽  
Face To Face

AbstrakSebutan “Caregivers” di Indonesia masih asing dibanding dengan negara lain. Mereka juga belum mendapat perhatian sepenuhnya dari masyarakat. Padahal, 85% pemberi perawatan kepada pasien adalah caregivers keluarga. Sehingga dapat digarisbawahi bahwa peran caregivers keluarga dalam merawat pasien dengan penyakit kronis adalah sangat penting. Tidak dapat dipungkiri, kemungkinan mereka mengalami berbagai permasalahan, stress, cemas, khawatir, dan terbebani akan kondisi pasien dengan penyakit kronis. Maka dari itu perlu adanya sebuah wadah yang dapat menampung permasalahan yang mereka hadapi, seperti pembuatan group baik secara ketemu langsung atau online. Tujuan penelitian ini adalah untuk mengidentifikasi kebutuhan caregivers keluarga dari pasien dengan penyakit kronis tentang online support group (OSG).  Metode penelitian yang digunakan adalah metode deskriptif dengan pendekatan cross sectional study dengan jumlah responden sejumlah 97 orang. Hasil penelitian menunjukkan bahwa (56,7%) caregivers keluarga menyatakan pentingnya support group, (57,7%) memilih untuk bertemu langsung dibanding online group, (70,1%) bersedia untuk tergabung dalam OSG, dan (80,5%) memilih WhatsApp sebagai media yang sering digunakan. Sehingga dapat disimpulkan bahwa temuan pada penelitian ini sangatlah menarik karena selain ingin ketemu langsung, caregivers keluarga lebih cenderung ingin terlibat dalam OSG.Kata Kunci : Caregivers, Keluarga, Online Support Group AbstractThe term "Caregivers" in Indonesia is not as popular as another country. They also have not received attention from society. An 85% of people giving care to the patients are family caregivers. It can be underlined that the role of family caregivers in caring for patients with chronic diseases is vital in the health care system. It is not a public secret that they may face various problems, stress, anxiety, worry, and burdened with the condition of patients with chronic illness. At this level, they need such kind of forum to accommodate their problems. For example, create groups either face to face or online. The purpose of this study was to identify the needs of family caregivers of patients with chronic diseases regarding online support groups (OSG). The research method used is a descriptive method with a cross-sectional study approach with a total of 97 samples. The results showed that (56.7%) family caregivers expressed the importance of support groups, (57.7%) chose to meet directly compared to online groups, (70.1%) were willing to enter online support groups, and (80.5%) chose WhatsApp as the most media frequently used. It can be concluded that the findings in this study are very attractive because apart from the face to face group, family caregivers prefer to join OSG. Keywords: Caregivers, Family, Online Support Group

scholarly journals The Public Health Impact and Policy Implications of Online Support Group Use for Mental Health in Singapore: Cross-Sectional Survey (Preprint)

2020 ◽  
Author(s):  
Kumarasan Roystonn ◽  
Janhavi Ajit Vaingankar ◽  
Boon Yiang Chua ◽  
Rajeswari Sambasivam ◽  
Saleha Shafie ◽  
...  
Keyword(s):  
Public Health ◽  
Mental Health ◽  
Support Groups ◽  
Support Group ◽  
Mental Health Problems ◽  
Online Support ◽  
Online Support Groups ◽  
Online Support Group ◽  
Cross Sectional ◽  
Treatment Services

BACKGROUND The wide mental health treatment gap continues to pose a global and local public health challenge. Online support groups are on the rise and could be used to complement formal treatment services for mental health. OBJECTIVE This study aimed to examine the prevalence of online support group use and explore factors associated with the use in the general population using data from a national cross-sectional mental health survey in Singapore. METHODS Singapore residents aged 18 years and above participated in a nationally representative household survey in which the World Health Organization Composite International Diagnostic Interview 3.0 was administered by trained interviewers to examine the use of online support groups for mental health. Multiple logistic regressions were used to analyze the association of online support group use with various sociodemographic and health factors. RESULTS A total of 6110 respondents with complete data were included in this study. Overall, 10 individuals per 1000 adults (1%) reported seeking help from online support groups for their mental health problems. Compared to younger adults (those aged 18 to 34 years) and those with university education, individuals aged 50 to 64 years (<i>P</i>&lt;.001; OR 0.1, 95% CI 0.0-0.3) and those with preuniversity qualifications (<i>P</i>=.02; OR 0.1, 95% CI 0.0-0.8) were less likely to use online support groups for mental health, respectively. Participants with a Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV) mental disorder were 6.8 times more likely (<i>P</i>&lt;.001; 95% CI 3.0-15.4) to use an online support group; in particular, individuals with major depressive disorder (<i>P</i>&lt;.001; OR 5.4, 95% CI 2.1-13.8) and obsessive compulsive disorder (<i>P</i>=.01; OR 3.5, 95% CI 1.3-9.7) were more likely to use an online support group for their mental health. CONCLUSIONS Online support groups could be used to complement formal treatment services, especially for mood and anxiety-related disorders. As online support group use for mental health issues may be more prevalent among younger people, early detection and accurate information in online support groups may guide individuals toward seeking professional help for their mental health problems.

scholarly journals The Public Health Impact and Policy Implications of Online Support Group Use for Mental Health in Singapore: Cross-Sectional Survey

10.2196/18114 ◽  
2020 ◽  
Vol 7 (8) ◽  
pp. e18114
Author(s):  
Kumarasan Roystonn ◽  
Janhavi Ajit Vaingankar ◽  
Boon Yiang Chua ◽  
Rajeswari Sambasivam ◽  
Saleha Shafie ◽  
...  
Keyword(s):  
Public Health ◽  
Mental Health ◽  
Support Groups ◽  
Support Group ◽  
Mental Health Problems ◽  
Online Support ◽  
Online Support Groups ◽  
Online Support Group ◽  
Cross Sectional ◽  
Treatment Services

Background The wide mental health treatment gap continues to pose a global and local public health challenge. Online support groups are on the rise and could be used to complement formal treatment services for mental health. Objective This study aimed to examine the prevalence of online support group use and explore factors associated with the use in the general population using data from a national cross-sectional mental health survey in Singapore. Methods Singapore residents aged 18 years and above participated in a nationally representative household survey in which the World Health Organization Composite International Diagnostic Interview 3.0 was administered by trained interviewers to examine the use of online support groups for mental health. Multiple logistic regressions were used to analyze the association of online support group use with various sociodemographic and health factors. Results A total of 6110 respondents with complete data were included in this study. Overall, 10 individuals per 1000 adults (1%) reported seeking help from online support groups for their mental health problems. Compared to younger adults (those aged 18 to 34 years) and those with university education, individuals aged 50 to 64 years (P<.001; OR 0.1, 95% CI 0.0-0.3) and those with preuniversity qualifications (P=.02; OR 0.1, 95% CI 0.0-0.8) were less likely to use online support groups for mental health, respectively. Participants with a Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV) mental disorder were 6.8 times more likely (P<.001; 95% CI 3.0-15.4) to use an online support group; in particular, individuals with major depressive disorder (P<.001; OR 5.4, 95% CI 2.1-13.8) and obsessive compulsive disorder (P=.01; OR 3.5, 95% CI 1.3-9.7) were more likely to use an online support group for their mental health. Conclusions Online support groups could be used to complement formal treatment services, especially for mood and anxiety-related disorders. As online support group use for mental health issues may be more prevalent among younger people, early detection and accurate information in online support groups may guide individuals toward seeking professional help for their mental health problems.

Investigation of the “alternative” effects of an online support group for mental health problems among Japanese adults: A cross-sectional study (Preprint)

2020 ◽  
Author(s):  
Osamu Kobori ◽  
Naoki Yoshinaga
Keyword(s):  
Mental Health ◽  
Support Groups ◽  
Support Group ◽  
Help Seeking ◽  
Mental Health Problems ◽  
Health Problems ◽  
Online Support ◽  
Online Support Groups ◽  
Online Support Group ◽  
Usage Frequency

BACKGROUND Owing to the rapid development of social networking services, online support groups vary widely both in goal and structure. Several studies have shown the potential effectiveness of online support groups, such as reducing psychological distress (eg depression) among individuals with mental health problems. However, online support groups often do not aim at effectiveness regarding distress-relief-related outcomes. OBJECTIVE The U2plus.jp (hereinafter U2plus) is an online support group for individuals with depression; in it, people support each other in structured ways while engaging in simple cognitive behavioral therapy (CBT) exercises. This study aimed to examine if usage frequency of the U2plus functions are associated with decreased stigma and increased consumer. METHODS In total, 355 U2plus users took part in an online survey. They were asked what therapy they had ever received, how often they logged into it and used each of its functions, and completed the following questionnaires: The Patient Health Questionnaire-9 (PHQ-9), the Perceived Devaluation Discrimination Scale, and the General Help Seeking Scale. RESULTS Regarding the therapy they received, 89.3% (n=308) had been on medication for mental health problems, and 67.5% (n=233) had received psychotherapy or mental health counselling. Regarding the usage frequency, approximately 20% of the participants signed in to U2plus and used its functions more than once a week. The usage frequency of U2plus functions was not associated with perceived stigma. However, usage frequency of some functions was correlated to help seeking intentions from formal sources (eg doctors and psychologists). Moreover, 90% of the participants had a history of medication for their mental health. Additionally, the more depressed participants were, the more frequently they used U2plus. CONCLUSIONS It was suggested that online support groups may serve as an alternative treatment option for those who are already undergoing pharmacological treatment and are willing to seek help from whatever source they deem helpful.

Ethics and Engagement in Communication Scholarship

2004 ◽  
pp. 174-202 ◽  
Author(s):  
Mary K. Walstrom
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Theoretical Framework ◽  
Online Support ◽  
Research Approach ◽  
Online Support Groups ◽  
Ethical Orientation ◽  
Ethical Challenges ◽  
Online Support Group ◽  
Ethical Concerns

This chapter asserts an engaged research approach that aims to meet the ethical challenges of public, online support group studies. First, the intrinsic ethical orientation of the theoretical framework undergirding this approach is detailed. Second, how this approach may guide qualitative-interpretive analyses of public, online support groups is explored. This section features two excerpts from a larger study conducted of one such group. Third, three additional features of engaged research that bolsters its capacity to address the ethical concerns of public, online support group studies are presented. The chapter with a call and rationale for future engaged research of such sites, stressing the benefits to research and support group communities alike.

Online Support Groups as a means of Chronic Pain Management for Patients with Genetic Disorders (Preprint)

2021 ◽  
Author(s):  
Sadaf Ashtari ◽  
Joseph Taylor ◽  
Kelsie Goff
Keyword(s):  
Chronic Pain ◽  
Pain Management ◽  
Information Extraction ◽  
Support Groups ◽  
Support Group ◽  
Rare Diseases ◽  
Online Support ◽  
Online Support Groups ◽  
Online Support Group ◽  
Ehlers Danlos Syndrome

BACKGROUND Rare diseases with symptoms that include chronic pain present a challenge for patients and providers to manage. Lack of experience with rare diseases may result in clinicians relying on general pain management strategies such as narcotics in circumstances where alternative forms of pain support may be available. OBJECTIVE In this research, we examine how patients extract information, and receive emotional support, through the use of an online support group. We develop a model to describe factors that both enhance and constrain the use of online support groups to engage with patients. METHODS This study uses path analysis to examine survey data related to participation in an online support group from patients managing Ehlers-Danlos Syndrome (EDS). RESULTS We present a model with excellent goodness of fit indices that exceed a CFI of .995, and an RMSEA value of less than .04. Our model presents nine hypotheses which are all supported. Our analysis of the data shows a significant value of all predicted paths with a p<.001. CONCLUSIONS Our findings demonstrate that a feeling of belonging, a willingness to share, and comfort with the technology that supports an online community are associated with patients reporting greater levels of information extraction and social support from online support groups. We further find that greater levels of concern regarding privacy and security of information were associated with lower levels of willingness to share and information extraction of patients from online support groups.

Exploring Member-Leader Behaviors and Interaction in an Online Support Group

2018 ◽  
Vol 49 (4) ◽  
pp. 452-474 ◽  
Author(s):  
Emily A. Paskewitz ◽  
Stephenson J. Beck
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Process Analysis ◽  
Online Support ◽  
Online Support Groups ◽  
Leader Behaviors ◽  
Online Support Group ◽  
Online Groups ◽  
Meaning Attribution ◽  
To Receive

Online support groups are a common way for people to receive social support. Utilizing online support sites allows members to connect with people in similar situations, without the need for geographic proximity. Many online groups rely on member-leaders, or individuals with personal experience, to lead groups. These member-leaders are often favored by members over professional leaders but often lack training in leadership. This project explored how member-leaders interact in an online support group. This article uses both interaction process analysis (IPA) and research on leader behaviors to understand how member-leaders communicate in online support groups. Results show that leaders primarily use task messages, with the majority of leader behaviors labeled as meaning attribution and use of self. Member-leaders primarily focused on perspective taking rather than discussion facilitation. An examination of the task and relational interaction profile in terms of leader behaviors is also explored.

Caregiver Burden and Compassion Fatigue Among Arab Family Caregivers of Older Relatives

2020 ◽  
pp. 073346482092010
Author(s):  
Rabia Khalaila
Keyword(s):  
Family Caregivers ◽  
Compassion Fatigue ◽  
Caregiver Burden ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Face To Face ◽  
Stress Scale ◽  
Factors Associated ◽  
Multiple Mediator Model

Objectives: To examine the associations and the mechanisms between caregiver burden and compassion fatigue among family caregivers. Method: A cross-sectional study comprising 300 family caregivers of older relatives in Arab communities in Israel was conducted. Data were collected via face-to-face interviews in Arabic using structured questionnaires to identify factors associated with compassion fatigue (using a secondary traumatization stress scale). Bootstrapping with resampling strategies tested the multiple mediator model. Main findings: The results show a significant total effect of caregiver burden on compassion fatigue ( b = 3.79, t(300) = 3.47, p < .001; R2 =.50). This association was found to be partially mediated by family support ( B = .81, 95% confidence interval [CI] = 0.23, 1.85) and disengagement coping ( B = .97, 95% CI = 0.19, 2.14), but was not mediated by engagement coping strategies. Conclusion: Compassion fatigue is prevalent among family caregivers and requires more attention from professionals and policymakers.

scholarly journals KARAKTERISTIK DAN KESEDIAAN CAREGIVERS KELUARGA DARI PASIEN DENGAN PENYAKIT KRONIS TENTANG PEMBENTUKAN SUPPORT GROUP

2019 ◽  
Vol 2 (2) ◽  
pp. 53-62
Author(s):  
Sri Rahayu, Teti Rahmawati
Keyword(s):  
Family Caregivers ◽  
Chronic Diseases ◽  
Support Groups ◽  
Support Group ◽  
Quantitative Research ◽  
Cross Sectional Study ◽  
Public Attention ◽  
Cross Sectional ◽  
The Family ◽  
Minimum Age

Family caregivers have a crucial role in patients with chronic diseases. During caregiving care, they might have various experiences, successes, failures, problems, and also obstacles in caring the patients. Surely, they might feel stressed, anxious, frustrated, depressed, feel alone, and health problems. Subsequently, they need public attention to by finding solutions such as the idea of creating a group. The purpose of this study was to identify the characteristics and willingness of family caregivers of patients with chronic diseases related to creating support groups. Quantitative research with cross-sectional study design was used. A total of 97 family caregivers of patients with chronic diseases were involved in this study with inclusion and exclusion criteria. The results showed that family caregivers aged an average of 45.71 ± 13.94 years with a minimum age of 20 years and a maximum age of 83 years, 69 people (71.1%) were female, 46 people (47.4%) had high school education level, 58 people (59.8%) was employee, 41 people (42.3%) have a relationship with patients as housewife, and 69 people (71.1%) are willing to build a support group. The conclusion of this study is expected to be the foundation in creating a support group in the family caregivers of patients with chronic diseases.

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