Feasibility of a voice-enabled medical diary app (SpeakHealth) with caregivers of children with special healthcare needs and healthcare providers: A mixed methods study (Preprint)
UNSTRUCTURED Children with special health care needs (CSHCN) require more than the usual care management and coordination efforts from caregivers and health care providers (HCP). Health information and communication technologies can potentially facilitate these efforts in order to increase the quality of care received by CSHCN. In this study, we assessed the feasibility of a voice-enabled medical diary app (SpeakHealth). Following a mixed methods approach, caregivers of CSHCN were interviewed (n=10) and surveyed (n=86) about their care management and communication technology use. Only interviewed participants were introduced to SpeakHealth app prototype, and they tested the app during the interview session. In addition, we interviewed complex care HCPs (n=15) to understand their perception of the value of a home medical diary like SpeakHealth app. Overall, the findings demonstrated the needs and challenges for caregivers of CSHCN and opportunities of voice interactive medical diary apps in care management and coordination. We also reported the themes for enablers and barriers in care communication and communication technologies. We believe the perspectives of caregiver and providers suggested both benefits and challenges in using SpeakHealth app for medical note taking and health events tracking at home. We believe the findings could inform researchers and developers about development and use of a voice-enabled medical diary app.