scholarly journals Sharing Lessons Learned from Beta-Testing the CAN Quit Facebook Group Prototype to Promote Smoking Treatment Utilization among Alaska Native People (Preprint)

2021 ◽  
Author(s):  
Pamela S Sinicrope ◽  
Colleen Young ◽  
Ken Resnicow ◽  
Zoe T Merritt ◽  
Clara R McConnell ◽  
...  
Keyword(s):  
Social Media ◽  
Smoking Cessation ◽  
Native American ◽  
Alaska Native ◽  
Lessons Learned ◽  
Native People ◽  
Evidence Based ◽  
American Indian People ◽  
Beta Testing ◽  
Group Engagement

UNSTRUCTURED Social media presents an effective tool to reach, engage, and connect smokers in cessation efforts. Our team developed the Facebook group, CAN Quit (Connecting Alaska Native People to Quit smoking), to promote utilization of evidence-based smoking cessation resources for Alaska Native (AN) people living in Alaska, which are underutilized despite their effectiveness. Often separated by geography and climate, AN people prefer group-based approaches for tobacco cessation that support their culture and values. Such preferences make AN people candidates for social-media-based interventions which promote connection. This Viewpoint discusses the steps involved and lessons learned in building and beta-testing our Facebook (FB) group prototype. We describe the process of training moderators to facilitate group engagement and foster community and we describe how we developed and beta tested our intervention prototype and FB group. All parts of the prototype are designed to facilitate utilization of evidence-based cessation treatments. We include recommendations for best practices with the hope that lessons learned from the CAN Quit prototype could provide a model for others to create similar platforms that benefit Alaska Native / American Indian people in the context of smoking cessation.

scholarly journals Social Media Intervention to Promote Smoking Treatment Utilization and Cessation Among Alaska Native People Who Smoke: Protocol for the Connecting Alaska Native People to Quit Smoking (CAN Quit) Pilot Study

10.2196/15155 ◽  
2019 ◽  
Vol 8 (11) ◽  
pp. e15155 ◽  
Author(s):  
Pamela S Sinicrope ◽  
Kathryn R Koller ◽  
Judith J Prochaska ◽  
Christine A Hughes ◽  
Martha J Bock ◽  
...  
Keyword(s):  
Social Media ◽  
Alaska Native ◽  
Tobacco Cessation ◽  
Culturally Relevant ◽  
Pilot Trial ◽  
Native People ◽  
Evidence Based ◽  
Treatment Utilization ◽  
Intervention Content ◽  
Beta Testing

Background Despite the high prevalence of tobacco use among Alaska Native (AN) people, tobacco cessation interventions developed specifically for this group are lacking. Social media hold promise as a scalable intervention strategy to promote smoking treatment utilization and cessation, given the barriers to treatment delivery (ie, geographic remoteness, limited funding, climate, and travel costs) in the state of Alaska (AK). Building on a longstanding tobacco control research partnership with the AK Tribal Health System, in this study, we are developing and pilot-testing a culturally relevant, Facebook (FB)-delivered intervention that incorporates a digital storytelling approach adapted from the effective Centers for Disease Control Tips from Former Smokers campaign. Objective This study aims to promote evidence-based smoking treatment (eg, state quitline and Tribal cessation programs) uptake and cessation among AN people. Methods This study fulfills the objectives for stage 1 of the National Institute on Drug Abuse behavioral integrative treatment development program. In stage 1a, we will use a mixed method approach to develop the FB intervention. Cultural variance and surface/deep structure frameworks will address the influence of culture in designing health messages. These developmental activities will include qualitative and quantitative assessments, followed by beta testing of proposed intervention content. In stage 1b, we will conduct a randomized pilot trial enrolling 60 AN adults who smoke. We will evaluate the feasibility, uptake, consumer response, and potential efficacy of the FB intervention compared with a control condition (quitline/treatment referral only). Primary outcome measures include feasibility and biochemically verified smoking abstinence at 1-, 3-, and 6-month follow-ups. Secondary outcomes will include self-reported smoking cessation treatment utilization and abstinence from tobacco/nicotine products. We will also explore interdependence (relationship orientation and collaborative efforts in lifestyle change) as a culturally relevant mediator of intervention efficacy. Results The study enrolled 40 participants for phase 1, with data saturation being achieved at 30 AN people who smoke and 10 stakeholders. For phase 2, we enrolled 40 participants. Qualitative assessment of proposed intervention content was completed with 30 AN smokers and 10 stakeholders. We are currently analyzing data from the quantitative assessment with 40 participants in preparation for the beta testing, followed by the randomized pilot trial. Conclusions The project is innovative for its use of social media communication tools that are culturally relevant in a behavioral intervention designed to reach AN people statewide to promote smoking treatment utilization and cessation. The study will further advance tobacco cessation research in an underserved disparity group. If the pilot intervention is successful, we will have a blueprint to conduct a large randomized controlled efficacy trial. Our approach could be considered for other remote AN communities to enhance the reach of evidence-based tobacco cessation treatments. International Registered Report Identifier (IRRID) DERR1-10.2196/15155

scholarly journals Social Media Intervention to Promote Smoking Treatment Utilization and Cessation Among Alaska Native People Who Smoke: Protocol for the Connecting Alaska Native People to Quit Smoking (CAN Quit) Pilot Study (Preprint)

2019 ◽  
Author(s):  
Pamela S Sinicrope ◽  
Kathryn R Koller ◽  
Judith J Prochaska ◽  
Christine A Hughes ◽  
Martha J Bock ◽  
...  
Keyword(s):  
Social Media ◽  
Alaska Native ◽  
Tobacco Cessation ◽  
Culturally Relevant ◽  
Pilot Trial ◽  
Native People ◽  
Evidence Based ◽  
Treatment Utilization ◽  
Intervention Content ◽  
Beta Testing

BACKGROUND Despite the high prevalence of tobacco use among Alaska Native (AN) people, tobacco cessation interventions developed specifically for this group are lacking. Social media hold promise as a scalable intervention strategy to promote smoking treatment utilization and cessation, given the barriers to treatment delivery (ie, geographic remoteness, limited funding, climate, and travel costs) in the state of Alaska (AK). Building on a longstanding tobacco control research partnership with the AK Tribal Health System, in this study, we are developing and pilot-testing a culturally relevant, Facebook (FB)-delivered intervention that incorporates a digital storytelling approach adapted from the effective Centers for Disease Control Tips from Former Smokers campaign. OBJECTIVE This study aims to promote evidence-based smoking treatment (eg, state quitline and Tribal cessation programs) uptake and cessation among AN people. METHODS This study fulfills the objectives for stage 1 of the National Institute on Drug Abuse behavioral integrative treatment development program. In stage 1a, we will use a mixed method approach to develop the FB intervention. Cultural variance and surface/deep structure frameworks will address the influence of culture in designing health messages. These developmental activities will include qualitative and quantitative assessments, followed by beta testing of proposed intervention content. In stage 1b, we will conduct a randomized pilot trial enrolling 60 AN adults who smoke. We will evaluate the feasibility, uptake, consumer response, and potential efficacy of the FB intervention compared with a control condition (quitline/treatment referral only). Primary outcome measures include feasibility and biochemically verified smoking abstinence at 1-, 3-, and 6-month follow-ups. Secondary outcomes will include self-reported smoking cessation treatment utilization and abstinence from tobacco/nicotine products. We will also explore interdependence (relationship orientation and collaborative efforts in lifestyle change) as a culturally relevant mediator of intervention efficacy. RESULTS The study enrolled 40 participants for phase 1, with data saturation being achieved at 30 AN people who smoke and 10 stakeholders. For phase 2, we enrolled 40 participants. Qualitative assessment of proposed intervention content was completed with 30 AN smokers and 10 stakeholders. We are currently analyzing data from the quantitative assessment with 40 participants in preparation for the beta testing, followed by the randomized pilot trial. CONCLUSIONS The project is innovative for its use of social media communication tools that are culturally relevant in a behavioral intervention designed to reach AN people statewide to promote smoking treatment utilization and cessation. The study will further advance tobacco cessation research in an underserved disparity group. If the pilot intervention is successful, we will have a blueprint to conduct a large randomized controlled efficacy trial. Our approach could be considered for other remote AN communities to enhance the reach of evidence-based tobacco cessation treatments. INTERNATIONAL REGISTERED REPORT DERR1-10.2196/15155

scholarly journals Sharing Lessons Learned from Beta-Testing the CAN Quit Facebook Group Prototype to Promote Smoking Treatment Utilization among Alaska Native People (Preprint)

10.2196/28704 ◽  
2021 ◽  
Author(s):  
Pamela S Sinicrope ◽  
Colleen Young ◽  
Ken Resnicow ◽  
Zoe T Merritt ◽  
Clara R McConnell ◽  
...  
Keyword(s):  
Alaska Native ◽  
Lessons Learned ◽  
Native People ◽  
Treatment Utilization ◽  
Beta Testing

scholarly journals Developing a Social Media Intervention to Connect Alaska Native People Who Smoke with Resources and Support to Quit Smoking: The CAN Quit Study

2020 ◽  
Author(s):  
Zoe T Merculieff ◽  
Kathryn R Koller ◽  
Pamela S Sinicrope ◽  
Christine A Hughes ◽  
Martha J Bock ◽  
...  
Keyword(s):  
Social Media ◽  
Alaska Native ◽  
Group Intervention ◽  
Tobacco Cessation ◽  
Online Survey ◽  
Phase 1 ◽  
Cultural Relevance ◽  
Native People ◽  
Perceived Effectiveness ◽  
Smoking Cessation Treatment

Abstract Background Face-to-face tobacco cessation has had limited reach and efficacy in Alaska Native (AN) communities. We describe our 2-phased approach to develop content for CANQuit, a Facebook (FB) group intervention to reduce barriers to evidence-based smoking cessation treatment for AN people in Alaska. Methods Phase 1 included semi-structured telephone interviews with 30 AN people who smoke and 10 stakeholders. They provided feedback on existing content from the CDC Tips TM campaign and AN digital stories. Phase 2 included an online survey with a new group of 40 AN smokers who provided feedback on existing content via a measure of perceived effectiveness and cultural relevance. Results Phase I results revealed participants evaluated content based upon story strength, relevance to AN culture, emotional appeal, relatability to AN people, and favorite video. No single posting was rated highly across all themes. All perceived effectiveness (PE) and cultural relevance median scores fell between 3.5 and 4.4 (range 1-5). PE scores varied across participant demographic groups. Conclusions Content embodying characteristics perceived to be most appealing, effective and culturally relevant was selected for the private FB group content library with refinements made to incorporate images of AN people engaged in AN activities. PE scores indicate a need for a wide variety of content that moderators could pull from when conducting the intervention. Implications Social media content targeting specific population sectors, such as AI/AN people for tobacco cessation needs to be culturally tailored. Our approach provides a model others can follow to determine what is appealing, relevant and effective messaging.

scholarly journals Recruiting and Engaging American Indian and Alaska Native Teens and Young Adults in a SMS Help-Seeking Intervention: Lessons Learned from the BRAVE Study

2020 ◽  
Vol 17 (24) ◽  
pp. 9437
Author(s):  
David Stephens ◽  
Roger Peterson ◽  
Michelle Singer ◽  
Jacqueline Johnson ◽  
Stephanie Craig Rushing ◽  
...  
Keyword(s):  
Social Media ◽  
Young Adults ◽  
American Indian ◽  
Alaska Native ◽  
Help Seeking ◽  
Text Messages ◽  
Lessons Learned ◽  
Health Board ◽  
Science Technology ◽  
Media Channels

This paper shares lessons learned recruiting and engaging participants in the BRAVE study, a randomized controlled trial carried out by the Northwest Portland Area Indian Health Board and the mHealth Impact Lab. The team recruited 2330 American Indian/Alaska Native (AI/AN) teens and young adults nationwide (15–24 years old) via social media channels and text message and enrolled 1030 to participate in the 9 month study. Teens and young adults who enrolled in this study received either: 8 weeks of BRAVE text messages designed to improve mental health, help-seeking skills, and promote cultural pride and resilience; or 8 weeks of Science Technology Engineering and Math (STEM) text messages, designed to elevate and re-affirm Native voices in science, technology, engineering, math and medicine; and then received the other set of messages. Results indicate that social media channels like Facebook and Instagram can be used to recruit AI/AN teens and young adults. Retention in this study was high, with 87% of participants completing both the BRAVE and STEM intervention arms. Lessons learned from this process may help teen and young adult-serving organizations, prevention programs, policy makers, researchers, and educators as they support the next generation of AI/AN change makers.

scholarly journals Association between social media use and self-reported symptoms of depression in US adults

2021 ◽  
Author(s):  
Roy H Perlis ◽  
Jon Green ◽  
Matthew Simonson ◽  
Katherine Ognyanova ◽  
Mauricio Santillana ◽  
...  
Keyword(s):  
Social Media ◽  
Native American ◽  
Depressive Symptoms ◽  
Alaska Native ◽  
Media Use ◽  
The United States ◽  
Internet Survey ◽  
Social Media Use ◽  
Subsequent Increase ◽  
The Impact

Importance: Some studies suggest that social media use is associated with risk for depression, particularly among children and young adults. Objective: To characterize the association between self-reported use of individual social media platforms, and worsening of depressive symptoms, among adults. Design: We included data from 13 waves of a non-probability internet survey conducted between May 2020 and May 2021 among individuals age 18 and older in the United States. We applied logistic regression with 5 or more point increase in PHQ-9 as outcome, and sociodemographic features, baseline PHQ-9, and use of each social media platform as independent variables, without reweighting. Participants: Survey respondents 18 and older. Main Outcome and Measure: PHQ-9 worsening by 5 points or more. Results: A total of 5395/8045 (67.1%) individuals with a PHQ-9<5 on initial survey completed a second PHQ-9. These respondents had mean age 55.82 years (SD 15.17); 3546 (65.7%) reported female gender, the remainder male; 329 (6.1%) were Asian, 570 (10.6%) Black, 256 (4.7%) Hispanic, 4118 (76.3%) White, and 122 (2.3%) Native American or Alaska Native, Pacific Islander or Native Hawaiian, or Other. Among them, 482 (8.9%) reported 5 point or greater worsening at second survey. In fully-adjusted models for increase in symptoms, largest odds ratio associated with social media use was observed for Snapchat (aOR 1.53, 95% CI 1.19-1.96), Facebook (aOR 1.42, 1.10-1.81), and TikTok (aOR 1.39, 95% CI 1.03-1.87). Conclusions and Relevance: Among survey respondents who did not report depressive symptoms initially, social media use was associated with greater likelihood of subsequent increase in depressive symptoms after adjustment for sociodemographic features and news sources. These data cannot elucidate the nature of this relationship, but suggest the need for further study to understand the impact of social media use.

scholarly journals The Alaska Native/American Indian experience of hepatitis C treatment with sofosbuvir-based direct-acting antivirals

2021 ◽  
Author(s):  
Lisa Townshend-Bulson ◽  
Elena Roik ◽  
Youssef Barbour ◽  
Dana Bruden ◽  
Chriss Homan ◽  
...  
Keyword(s):  
Native American ◽  
Hepatitis C ◽  
American Indian ◽  
Alaska Native ◽  
Sustained Virologic Response ◽  
Real Life ◽  
Virologic Response ◽  
Native People ◽  
Common Symptom ◽  
Direct Acting

AbstractBackgroundDirect-acting antiviral (DAA) drugs have been effective in the treatment of chronic hepatitis C virus (HCV) infection. Limited data are available on safety, tolerability, and efficacy in American Indian or Alaska Native people. We aim to evaluate the treatment outcomes of sofosbuvir-based regimens for treatment of HCV in a real life setting in Alaska Native/American Indian (AN/AI) people.MethodsAN/AI patients within the Alaska Tribal Health System with confirmed positive anti-HCV and HCV RNA, who were 18 years of age and older were included in the study. Pretreatment baseline patient characteristics, treatment efficacy based on sustained virologic response (SVR) 12 weeks after treatment completion, and adverse effects were assessed. The following treatments were given according to the American Association for the Study of Liver Diseases/Infectious Disease Society of America (AASLD/IDSA) HCV Guidance: ledipasvir/sofosbuvir, sofosbuvir plus weight-based ribavirin, and sofosbuvir/velpatasvir.ResultsWe included 501 patients with a mean age of 54.3 (range 21.3 -78.3) in the study. Overall SVR was achieved in 95.2% of patients who received one of the three DAA regimens. For those with cirrhosis, overall SVR was 92.8% and for those with genotype 3 91.1% achieved SVR. The most common symptom experienced during treatment was headache. Joint pain was found to decrease during treatment. One person discontinued sofosbuvir plus ribavirin due to myocardial infarction and one discontinued sofosbuvir/velpatasvir due to urticaria.ConclusionsIn the real-world setting, sofosbuvir-based treatment is safe, effective, and well tolerated in AN/AI patients. Sustained virologic response was high regardless of HCV genotype or cirrhosis status.

scholarly journals The Alaska Native/American Indian experience of hepatitis C treatment with sofosbuvir-based direct-acting antivirals

PLoS ONE ◽  
2021 ◽  
Vol 16 (12) ◽  
pp. e0260970
Author(s):  
Lisa Townshend-Bulson ◽  
Elena Roik ◽  
Youssef Barbour ◽  
Dana J. T. Bruden ◽  
Chriss E. Homan ◽  
...  
Keyword(s):  
Native American ◽  
Hepatitis C ◽  
American Indian ◽  
Alaska Native ◽  
Sustained Virologic Response ◽  
Real Life ◽  
Virologic Response ◽  
Native People ◽  
Common Symptom ◽  
Direct Acting

Background Direct-acting antiviral (DAA) drugs have been effective in the treatment of chronic hepatitis C virus (HCV) infection. Limited data are available on safety, tolerability, and efficacy in American Indian or Alaska Native people. We aim to evaluate the treatment outcomes of sofosbuvir- based regimens for treatment of HCV in a real life setting in Alaska Native/American Indian (AN/AI) people. Methods AN/AI patients within the Alaska Tribal Health System with confirmed positive anti-HCV and HCV RNA, who were 18 years of age and older were included in the study. Pretreatment baseline patient characteristics, treatment efficacy based on sustained virologic response (SVR) 12 weeks after treatment completion, and adverse effects were assessed. The following treatments were given according to the American Association for the Study of Liver Diseases/Infectious Disease Society of America (AASLD/IDSA) HCV Guidance: ledipasvir/sofosbuvir, sofosbuvir plus weight-based ribavirin, and sofosbuvir/velpatasvir. Results We included 501 patients with a mean age of 54.3 (range 21.3–78.3) in the study. Overall SVR was achieved in 95.2% of patients who received one of the three DAA regimens. For those with cirrhosis, overall SVR was 92.8% and for those with genotype 3 91.1% achieved SVR. The most common symptom experienced during treatment was headache. Joint pain was found to decrease during treatment. One person discontinued sofosbuvir plus ribavirin due to myocardial infarction and one discontinued sofosbuvir/velpatasvir due to urticaria. Conclusions In the real-world setting, sofosbuvir-based treatment is safe, effective, and well tolerated in AN/AI patients. Sustained virologic response was high regardless of HCV genotype or cirrhosis status.

scholarly journals Implementing collaborative care to reduce depression for rural native American/Alaska native people

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Deborah J. Bowen ◽  
Diane M. Powers ◽  
Joan Russo ◽  
Robert Arao ◽  
Erin LePoire ◽  
...  
Keyword(s):  
Native American ◽  
Alaska Native ◽  
Collaborative Care ◽  
Native People

Data & Native American Identity

Contexts ◽  
2020 ◽  
Vol 19 (3) ◽  
pp. 10-15
Author(s):  
Kimberly R. Huyser
Keyword(s):  
Native American ◽  
Alaska Native ◽  
Social Research ◽  
Lessons Learned ◽  
American Identity ◽  
Native American Identity ◽  
Indian Country ◽  
History Of ◽  
The U.S ◽  
Meaningful Data

The history of the U.S. Census is needed to understand the count and participation of American Indian and Alaska Native peoples. The challenges and lessons learned from the census reveal an opportunity for social research to collect meaningful data in Indian Country.

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