How can we improve patient-centered care of motor neuron disease?

2020 ◽  
Vol 10 (2) ◽  
pp. 95-101
Author(s):  
Anne Hogden ◽  
Camille Paynter ◽  
Karen Hutchinson

This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.

2019 ◽  
Vol 35 (11) ◽  
pp. 1352-1355
Author(s):  
Marianna V. Mapes ◽  
Peter A. DePergola ◽  
William T. McGee

Decision-making for the hospitalized dying and critically ill is often characterized by an understanding of autonomy that leads to clinical care and outcomes that are antithetical to patients’ preferences around suffering and quality of life. A better understanding of autonomy will facilitate the ultimate goal of a patient-centered approach and ensure compassionate, high-quality care that respects our patients’ values. We reviewed the medical literature and our experiences through the ethics service, palliative care service, and critical care service of a large community teaching hospital. The cumulative experience of a senior intensivist was filtered through the lens of a medical ethicist and the palliative care team. The practical application of patient-centered care was discerned from these interactions. We determined that a clearer understanding of patient-centeredness would improve the experience and outcomes of care for our patients as well as our adherence to ethical practice. The practical applications of autonomy and patient-centered care were evaluated by the authors through clinical interactions on the wards to ascertain problems in understanding their meaning. Clarification of autonomy and patient-centeredness is provided using specific examples to enhance understanding and application of these principles in patient-centered care.


Iproceedings ◽  
2016 ◽  
Vol 2 (1) ◽  
pp. e18
Author(s):  
Marianne Julie Webb ◽  
Greg Wadley ◽  
Sylvia Deidre Kauer ◽  
Lena Amanda Sanci

2017 ◽  
Vol 157 (4) ◽  
pp. 543-544
Author(s):  
Nausheen Jamal

It is now well recognized that patient engagement in health care is a key factor in improving satisfaction; however, it is also critical if we are to improve the health outcomes of our patients, as well as the economic and quality outcomes of our health system. Medicine, though, has traditionally resisted a culture of patient-centered or patient-controlled care. What follow are the reflections of one otolaryngologist on the importance and challenges of making the transition to patient-centered care.


2014 ◽  
Vol 20 (8) ◽  
pp. S12-S13
Author(s):  
Kismet Rasmusson ◽  
Stephanie Croasdell ◽  
Sean Meegan ◽  
Jen Nixon ◽  
A.G. Kfoury ◽  
...  

2011 ◽  
Vol 26 (11) ◽  
pp. 1297-1304 ◽  
Author(s):  
Lisa A. Cooper ◽  
Debra L. Roter ◽  
Kathryn A. Carson ◽  
Lee R. Bone ◽  
Susan M. Larson ◽  
...  

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Jacques Spycher ◽  
Patrick Bodenmann ◽  
Raphaël Bize ◽  
Joachim Marti

Abstract Background Switzerland, with its decentralized health system, has seen the emergence of a variety of care models to meet the complex needs of asylum seekers. A network of public and private providers was designed in the canton Vaud, in which a nurse-led team acts as a first contact point to the health system and provides health checks, preventive care, and health education to this population. In addition, the service plays a case management role for more complex and vulnerable patients. While the network has been examined from a clinical angle, we provide the first descriptive evidence on the care and cost trajectories of asylum seekers in the canton. Methods We used routinely collected administrative, patient-level data in a Swiss region responsible for 10% of the asylum seekers in the country. We extracted data on all asylum seekers aged 18 or older who entered the network between 2012 and 2015. The data covered all healthcare costs during the period until they left the network, either because they were granted residence, they left the country, or until 31 December 2018. We estimated random effects regression models for costs and consultations within and outside the network for each month of stay in the network. We investigated language barriers in access to care by stratifying the analysis between patients who spoke one of the official Swiss languages or English and patients who did not speak any of these languages. Principal findings We found that both overall health care costs and contacts with the nurse-led team were relatively high during the first year of stay. Asylum seekers then progressively integrated into the regular health system. Individuals who did not speak the language generally had more contacts with the network and fewer contacts outside. Conclusions In this exploratory study, we observe a transition from nurse-led specific care with frequent contacts to care in the regular health system. This leads us to generate the hypothesis that a nurse-led, patient-centered care network for asylum seekers can play an important role in providing primary care during the first year after their arrival and can subsequently help them navigate autonomously within the conventional healthcare system.


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