scholarly journals Say what? A Guided Virtual Level I Fieldwork for Occupational Therapy Assistant (OTA) Students

2019 ◽  
Vol 5 (4) ◽  
pp. 1-3
Author(s):  
Amy M Wix ◽  
Keyword(s):  
Spina Bifida ◽  
Occupational Therapy ◽  
Neural Tube ◽  
Neural Tube Defect ◽  
Life Experience ◽  
Fetal Surgery ◽  
Virtual Level ◽  
Level I ◽  
Severe Type

Life experience is what makes us who we are. I started my career in academia as a fieldwork coordinator in fall 2013, so I learned quickly that securing traditional fieldwork sites can be difficult. I am certainly a fan of faculty led fieldwork and have used this approach. In spring 2017, I was excited to find out that I was expecting my first baby however in the summer of 2017, at the 20-week anatomy ultrasound, my excitement turned to tears as we found out our baby had a Neural Tube Defect (NTD) and the most severe type of spina bifida (myelomeningocele). I was then introduced as to what I call the “spina bifida underworld” private pages for moms who were considering fetal surgery, moms who had fetal surgery, moms who had post-natal repair, pages called united by spina bifida, blogs from various individuals with spina bifida etc., I have personally found these pages to be a wealth of knowledge and have made many friends in unexpected places.

scholarly journals 312: Initial results of a novel fetoscopic neural tube defect repair technique versus open fetal surgery

2016 ◽  
Vol 214 (1) ◽  
pp. S177-S178 ◽  
Author(s):  
Michael Belfort ◽  
William E. Whitehead ◽  
Alireza A. Shamshirsaz ◽  
Sundeep G. Keswani ◽  
Tim Lee ◽  
...  
Keyword(s):  
Neural Tube ◽  
Neural Tube Defect ◽  
Fetal Surgery ◽  
Repair Technique ◽  
Defect Repair ◽  
Initial Results

scholarly journals Craniorachischisis: first case reported in Madagascar

2018 ◽  
Vol 6 (4) ◽  
pp. 1454
Author(s):  
Hary F. Rabarikoto ◽  
Patrick S. Rakotozanany ◽  
Rosa L. Tsifiregna ◽  
Willy Ratovondrainy ◽  
Domoina M. A. Randriambololona
Keyword(s):  
Spinal Cord ◽  
Spina Bifida ◽  
Neural Tube Defect ◽  
Female Fetus ◽  
First Case ◽  
Medical Termination ◽  
Gestational Week ◽  
Brain And Spinal Cord ◽  
Severe Type ◽  
Open Spina Bifida

Craniorachischisis is the most severe type of neural tube defect in which almost the entire brain and spinal cord remain open. We report a case in a female fetus born at gestational week 38, with both anencephaly and open spina bifida. It was the second pregnancy of a 26-year-old woman. The first pregnancy had to be interrupted by a medical termination at 18th gestational week because of an anencephaly. We aim to report the first case documented in Madagascar.

scholarly journals Sirenomelia in Dicephalic parapagus twins discordant for anencephaly and spina bifida.

2020 ◽  
Vol 15 (1) ◽  
pp. 81-83
Author(s):  
Tripti Shrestha ◽  
Gehanath Baral ◽  
Nesuma Sedhain
Keyword(s):  
Spina Bifida ◽  
Key Words ◽  
Neural Tube ◽  
Neural Tube Defect ◽  
Congenital Anomalies ◽  
Rare Case ◽  
In Utero ◽  
Termination Of Pregnancy ◽  
High Incidence

An extremely rare case of sirenomelia in dicephalic parapagus twins discordant for anencephaly and spina bifida that was diagnosed after birth is presented. High incidence of congenital anomalies both with sirenomelia and parapagus twins independently make the prognosis much worse, with additional neural tube defect rendering it almost incompatible with life. Termination of pregnancy is advised when diagnosed in utero. Key words: anencephaly, dicephalic parapagus, spina bifida, sirenomelia

scholarly journals Successful One Stage Operation for Giant Frontonasal Encephalocele in a Very Young Child: A Case Report

2018 ◽  
Vol 4 (1) ◽  
pp. 58-62
Author(s):  
DM Arman ◽  
Sheikh Muhammad Ekramullah ◽  
Sudipta Kumer Mukherjee ◽  
Md Rahimullah Chowdhury ◽  
Md Abdul Quddus Mia ◽  
...  
Keyword(s):  
Case Report ◽  
Young Child ◽  
Spina Bifida ◽  
Neural Tube ◽  
Neural Tube Defect ◽  
Cerebral Tissue ◽  
Type Defect ◽  
One Stage

Encephalocele is defined as protrusion of cranial contents like meninges and cerebral tissue beyond the normal confines of the skull through a defect in the cranium. It is one form of a neural tube defect as are anencephaly and spina bifida. There are 2 main types of encephalomeningocele, frontoethmoidal and occipital, according to the location of the defect. The frontoethmoidal type defect, which is located in the area of the frontal and ethmoidal bones. The authors present a case of frontonasal encephalocele in a very young child.Journal of National Institute of Neurosciences Bangladesh, 2018;4(1): 58-62

scholarly journals Affinity Chromatography of Amniotic Fluid Alphafetoprotein Using Concanavalin A-Sepharose

1981 ◽  
Vol 18 (6) ◽  
pp. 350-352 ◽  
Author(s):  
Jennifer A Noyes ◽  
P J Wood
Keyword(s):  
Spina Bifida ◽  
Amniotic Fluid ◽  
Neural Tube ◽  
Neural Tube Defect ◽  
Concanavalin A ◽  
Con A ◽  
Potential Value ◽  
Significant Difference ◽  
Normal Outcome ◽  
Chromatography Columns

We measured Concanavalin A (Con A) non-binding alphafetoprotein in amniotic fluid from 21 normal pregnancies and 20 abnormal pregnancies (complicated by anencephaly, spina bifida, or exomphalos) using small Con A-sepharose chromatography columns. There was a highly significant difference between percentage non-binding alphafetoprotein levels for pregnancies with a normal outcome (mean result 32%; range 18–47%) and pregnancies complicated by a neural tube defect or exomphalos (mean 14%; range 7–20%). The test is therefore of potential value in cases where there is uncertainty over the interpretation of total amniotic fluid alphafetoprotein levels.

YouTube as a Source of Patient Information for Prenatal Repair of Myelomeningocele

2019 ◽  
Author(s):  
Jayme Castillo ◽  
Christina Wassef ◽  
Audrey Wassef ◽  
Katie Stormes ◽  
Anna E. Berry
Keyword(s):  
Success Rate ◽  
Neural Tube ◽  
Neural Tube Defect ◽  
Patient Information ◽  
General Public ◽  
Fetal Surgery ◽  
Medical Professionals ◽  
Eligibility Criteria ◽  
Health Related ◽  
Fetal Repair

Abstract Objective With the increasing interest in fetal repair of myelomeningoceles (MMCs) over the last decade, it is reasonable to anticipate the need for high quality and accessible educational materials for patients. Patients often look to the internet for details regarding medical topics and specifically to YouTube for informative health-related videos. This study aims to analyze the content and shortcomings of currently available videos on YouTube regarding prenatal repair of MMCs. Study Design A YouTube search was performed on December 15, 2018, using the terms “fetoscopic surgery for neural tube defect” and “fetal surgery for neural tube defect.” The first 50 videos from each search were sorted by relevance and evaluated for video source (i.e., professional, personal, or other), target audience (medical professionals or general public), general descriptive statistics (i.e., video length, number of views, number of comments), and for five areas of content determined by the authors to constitute basic patient information regarding a surgical procedure: (1) procedure details, (2) eligibility criteria, (3) alternatives to surgery, (4) surgical risks, and (5) success rate. Accuracy of videos was not assessed. Results Of the 16 videos that met inclusion criteria, only 1 discussed fetoscopic surgery. The majority (62.5%) of videos were produced by a professional source and 81.3% were targeted toward the general public rather than medical professionals. Of the 16 videos, 10 (62.5%) included details regarding the surgery, 3 (18.8%) discussed eligibility criteria, and 8 (50.0%) mentioned alternatives to surgery. Additionally, seven videos (43.8%) discussed risks of the procedure and six (37.5%) included surgical success rate. Conclusion Only 2 of the 16 videos included all five areas of content that were evaluated, and both were in regard to open fetal repair. This study not only calls attention to the initial shortcomings of YouTube videos regarding fetal surgery for neural tube defects but also demonstrates the need for further investigation and more comprehensive analysis.

Prenatal diagnosis of rare form of chromosomal abnormality: double trisomy 48,XXX,+18 in the first trimester in association with spina bifida

2020 ◽  
Author(s):  
K.K. Otaryan , M.A. Kolyshkina , Y.B. Aninyan et all
Keyword(s):  
Prenatal Diagnosis ◽  
Spina Bifida ◽  
Neural Tube ◽  
Neural Tube Defect ◽  
Chromosomal Abnormality ◽  
First Trimester ◽  
Termination Of Pregnancy ◽  
Rare Form ◽  
Double Trisomy ◽  
Chorion Villus

The case of prenatal diagnosis of neural tube defect at 11+5 weeks of gestation is presented. Chorion villus sampling performed. Karyotyping revealed double trisomy (48,XXX,+18). Termination of pregnancy was performed at 13 weeks of gestation.

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