scholarly journals A Systematic Multidisciplinary Process for User Engagement and Sensor Evaluation: Development of a Digital Toolkit for Assessment of Movement in Children With Cerebral Palsy

2021 ◽  
Vol 3 ◽  
Author(s):  
Lisa Kent ◽  
Ian Cleland ◽  
Catherine Saunders ◽  
Andrew Ennis ◽  
Laura Finney ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Multidisciplinary Approach ◽  
Systematic Approach ◽  
Research Study ◽  
Evaluation Process ◽  
Future Research ◽  
User Requirements ◽  
User Engagement ◽  
Children With Cerebral Palsy ◽  
Device Selection

Objectives: To describe and critique a systematic multidisciplinary approach to user engagement, and selection and evaluation of sensor technologies for development of a sensor-based Digital Toolkit for assessment of movement in children with cerebral palsy (CP).Methods: A sequential process was employed comprising three steps: Step 1: define user requirements, by identifying domains of interest; Step 2: map domains of interest to potential sensor technologies; and Step 3: evaluate and select appropriate sensors to be incorporated into the Digital Toolkit. The process employed a combination of principles from frameworks based in either healthcare or technology design.Results: A broad range of domains were ranked as important by clinicians, patients and families, and industry users. These directly informed the device selection and evaluation process that resulted in three sensor-based technologies being agreed for inclusion in the Digital Toolkit, for use in a future research study.Conclusion: This report demonstrates a systematic approach to user engagement and device selection and evaluation during the development of a sensor-based solution to a healthcare problem. It also provides a narrative on the benefits of employing a multidisciplinary approach throughout the process. This work uses previous frameworks for evaluating sensor technologies and expands on the methods used for user engagement.

An Instrumentation Approach for Assessing the Effects of a Hand Positioning Device on Reaching Motion of Children with Cerebral Palsy

1992 ◽  
Vol 12 (5) ◽  
pp. 278-295 ◽  
Author(s):  
Denise T. Reid
Keyword(s):  
Cerebral Palsy ◽  
Upper Extremity ◽  
Movement Time ◽  
Single Point ◽  
Three Dimensional ◽  
Future Research ◽  
Hand Position ◽  
Children With Cerebral Palsy ◽  
Positioning Device

The effects of a hand positioning device (HPD) on the quality of upper-extremity movement of five children with cerebral palsy were examined in this pilot study. Hand position was monitored during a reaching task using a single-point, 3°-of-freedom, three-dimensional tracker device. Three-dimensional path length, average velocity, movement time, response time, and the number of accelerations and decelerations (movement units) were measured. Operational definitions for each of these variables were developed for this study. Each subject performed 15 reaching trials at a pretest and posttest. A 6-week intervention period followed the pretest where each subject wore the HPD for 1 hour daily for functional activities. Group results showed no significant differences for any of the variables being measured. However, individual data analysis revealed that the HPD has the potential for modifying the quality of reaching motions in some children with cerebral palsy. The nature of the changes observed among these five subjects is discussed, as well as suggestions for future research studies. Finally, this initial study shows that the tracker is a sensitive method for recording qualitative changes in the upper-extremity motion of children with cerebral palsy in occupational therapy research.

scholarly journals Applying Engagement Frameworks to Case Scenarios: A Retrospective Analysis

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 789-789
Author(s):  
Erin McGaffigan
Keyword(s):  
Interest Group ◽  
Research Study ◽  
Lessons Learned ◽  
Future Research ◽  
User Engagement ◽  
Ethical Considerations ◽  
Patient Centered ◽  
Factors Influencing ◽  
Creative Solutions ◽  
Study Case

Abstract The LeadingAge LTSS Center @UMass Boston has worked with the Patient-Centered Outcomes Research Institute (PCORI), service recipients, researchers, and providers since 2017 to understand the obstacles and creative solutions for meaningful and effective engagement in research. The LTSS Center’s work has been informed by multiple engagement frameworks, including Dr. McGaffigan’s 2011 PAE Attention Framework, the result of a multi-state, multi-site research study examining the factors to user engagement in Cash & Counseling programs. In this presentation, we will apply the PAE Attention Framework (2011), the PCORI Engagement Rubric (2014), and the NHS INVOLVE Framework (2015) to three research study case scenarios to understand the strategies used, outcomes realized, and factors influencing engagement success. Lessons learned from each and their application to future research will be discussed, including ethical considerations. Part of a symposium sponsored by the Patient/Person Engagement in Research Interest Group.

Preliminary Investigation of the Perspectives of Parents of Children With Cerebral Palsy on the Supports, Challenges, and Realities of Integrating Augmentative and Alternative Communication Into Everyday Life

2020 ◽  
Vol 29 (1) ◽  
pp. 238-254
Author(s):  
Tara O'Neill ◽  
Krista M. Wilkinson
Keyword(s):  
Cerebral Palsy ◽  
Everyday Life ◽  
Augmentative And Alternative Communication ◽  
Effective Interaction ◽  
Preliminary Investigation ◽  
Leisure Activities ◽  
Future Research ◽  
Alternative Communication ◽  
Environmental Controls ◽  
Children With Cerebral Palsy

Purpose To ensure long-term adoption and use of augmentative and alternative communication (AAC) technologies, they must be designed to support children to participate within everyday activities and routines that are prioritized by families. The aim of this study was to gain parent perspectives on how AAC technologies were integrated into everyday life. Method Nine parents of children with cerebral palsy who used AAC technologies participated in semistructured interviews to provide their perspectives on how AAC technologies were integrated into the functional contexts of everyday life. Results Five major themes emerged from the discussions: (a) integrating AAC into life, (b) AAC technologies, (c) child needs and skills, (d) parent responsibilities and priorities, and (e) AAC process and decision making. Children were able to use AAC technologies within a variety of everyday contexts with various partners; however, challenges included access to technologies within care routines and outdoor activities as well as partners who lacked knowledge regarding operational competencies and effective interaction strategies. To integrate AAC technologies into life, parents prioritized technology features including ease of programming, improved physical design, features to enhance efficiency and ease of access, and availability of multiple functions and features (e.g., games and leisure activities, environmental controls). Conclusion AAC manufacturers and mainstream technology developers should work to ensure that technologies are responsive to the supports, limitations, and ideal features identified by parents. Future research should seek input from a larger group of stakeholders and use longitudinal methods to examine perceptions of AAC technologies over time. Supplemental Material https://doi.org/10.23641/asha.11625543

A Proposed Multidisciplinary Approach for Identifying Feeding Abnormalities in Children With Cerebral Palsy

2011 ◽  
Vol 27 (6) ◽  
pp. 708-712 ◽  
Author(s):  
Amelia Santoro ◽  
Maria Bianca Dasso Lang ◽  
Elena Moretti ◽  
Stefano Sellari-Franceschini ◽  
Laura Orazini ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Multidisciplinary Approach ◽  
Children With Cerebral Palsy

Parenting Children With Cerebral Palsy: A Longitudinal Examination of the Role of Child and Parent Factors

2021 ◽  
pp. 001440292098646
Author(s):  
Lisa M. Dieleman ◽  
Bart Soenens ◽  
Peter Prinzie ◽  
Lana De Clercq ◽  
Sarah S. W. De Pauw
Keyword(s):  
Cerebral Palsy ◽  
Autonomous Motivation ◽  
Psychological Needs ◽  
Need Satisfaction ◽  
Future Research ◽  
Yearly Variation ◽  
Controlling Parenting ◽  
Children With Cerebral Palsy ◽  
Psychologically Controlling Parenting

Because parents of children with cerebral palsy encounter many challenges, the quality of their parenting varies substantially across time. To understand how and why their parenting behaviors change across time, we examined the contributions of child behavior and parents’ psychological needs to explanations of yearly variation in responsive, autonomy-supportive, and psychologically controlling parenting. We also explored whether parents’ motivation to take care of their child explained why some parents engage in better-quality parenting than others. Parents ( N = 117) of children with cerebral palsy ( Mage = 10.98 years) participated in a three-wave longitudinal study. Multilevel analyses indicated that yearly variations in parents’ need satisfaction and frustration related to yearly fluctuations in, respectively, autonomy-supportive and psychologically controlling parenting. Child behaviors had few unique effects on parenting. Parents’ autonomous motivation was associated with better overall quality of parenting. We discuss implications for practice and directions for future research.

scholarly journals Acceptability and feasibility of a vestibular nerve stimulation headset protocol in children with cerebral palsy

2022 ◽  
Vol 22 (1) ◽  
Author(s):  
Karen McConnell ◽  
Daniel Topley ◽  
Jason McKeown ◽  
Claire Kerr
Keyword(s):  
Cerebral Palsy ◽  
Nerve Stimulation ◽  
Healthcare Professionals ◽  
Vestibular Nerve ◽  
Interview Data ◽  
Future Research ◽  
Structured Interviews ◽  
Balance Tests ◽  
The Family ◽  
Children With Cerebral Palsy

Abstract Background Research suggests electrical Vestibular Nerve Stimulation (VeNS) may improve balance for people with neurological impairments. This study aimed to assess the feasibility and acceptability of a VeNS headset protocol in children with cerebral palsy (CP). Methods Children aged 5–18 years with ambulant CP, their parents, and healthcare professionals were recruited via social media. Children completed a battery of balance tests and wore a sham VeNS headset one hour per day for four weeks. Perspectives on the balance tests and headset were ascertained from children, parents and healthcare professionals using semi-structured interviews. Interview data were analysed thematically. Results Two families and four healthcare professionals participated. Balance outcome measures were fully completed and deemed acceptable. Adherence with wearing the headset was 89–100% but discomfort with self-adhesive electrodes was reported. Four themes emerged from interview data: headset issues, perceptions about VeNS, the importance of balance, and modifications for future study. Conclusions Although the VeNS headset had high acceptability, the volunteer sample was small, potentially suggesting limited interest in VeNS as a treatment for children with CP, or reluctance to trial a ‘non-active’ headset. Recruitment via clinicians known to the family and use of an ‘active’ headset may increase participation in future research.

Sign in / Sign up

Export Citation Format

Share Document