scholarly journals Applying Engagement Frameworks to Case Scenarios: A Retrospective Analysis

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 789-789
Author(s):  
Erin McGaffigan
Keyword(s):  
Interest Group ◽  
Research Study ◽  
Lessons Learned ◽  
Future Research ◽  
User Engagement ◽  
Ethical Considerations ◽  
Patient Centered ◽  
Factors Influencing ◽  
Creative Solutions ◽  
Study Case

Abstract The LeadingAge LTSS Center @UMass Boston has worked with the Patient-Centered Outcomes Research Institute (PCORI), service recipients, researchers, and providers since 2017 to understand the obstacles and creative solutions for meaningful and effective engagement in research. The LTSS Center’s work has been informed by multiple engagement frameworks, including Dr. McGaffigan’s 2011 PAE Attention Framework, the result of a multi-state, multi-site research study examining the factors to user engagement in Cash & Counseling programs. In this presentation, we will apply the PAE Attention Framework (2011), the PCORI Engagement Rubric (2014), and the NHS INVOLVE Framework (2015) to three research study case scenarios to understand the strategies used, outcomes realized, and factors influencing engagement success. Lessons learned from each and their application to future research will be discussed, including ethical considerations. Part of a symposium sponsored by the Patient/Person Engagement in Research Interest Group.

scholarly journals A Systematic Multidisciplinary Process for User Engagement and Sensor Evaluation: Development of a Digital Toolkit for Assessment of Movement in Children With Cerebral Palsy

2021 ◽  
Vol 3 ◽  
Author(s):  
Lisa Kent ◽  
Ian Cleland ◽  
Catherine Saunders ◽  
Andrew Ennis ◽  
Laura Finney ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Multidisciplinary Approach ◽  
Systematic Approach ◽  
Research Study ◽  
Evaluation Process ◽  
Future Research ◽  
User Requirements ◽  
User Engagement ◽  
Children With Cerebral Palsy ◽  
Device Selection

Objectives: To describe and critique a systematic multidisciplinary approach to user engagement, and selection and evaluation of sensor technologies for development of a sensor-based Digital Toolkit for assessment of movement in children with cerebral palsy (CP).Methods: A sequential process was employed comprising three steps: Step 1: define user requirements, by identifying domains of interest; Step 2: map domains of interest to potential sensor technologies; and Step 3: evaluate and select appropriate sensors to be incorporated into the Digital Toolkit. The process employed a combination of principles from frameworks based in either healthcare or technology design.Results: A broad range of domains were ranked as important by clinicians, patients and families, and industry users. These directly informed the device selection and evaluation process that resulted in three sensor-based technologies being agreed for inclusion in the Digital Toolkit, for use in a future research study.Conclusion: This report demonstrates a systematic approach to user engagement and device selection and evaluation during the development of a sensor-based solution to a healthcare problem. It also provides a narrative on the benefits of employing a multidisciplinary approach throughout the process. This work uses previous frameworks for evaluating sensor technologies and expands on the methods used for user engagement.

scholarly journals Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics

Geriatrics ◽  
2019 ◽  
Vol 4 (2) ◽  
pp. 35
Author(s):  
Lee A. Lindquist ◽  
Anne Seltzer ◽  
Chris Forcucci ◽  
Norine Wong ◽  
Vanessa Ramirez-Zohfeld
Keyword(s):  
Outcomes Research ◽  
Qualitative Interviews ◽  
Medical Patient ◽  
Community Partnerships ◽  
Lessons Learned ◽  
Future Research ◽  
Community Partner ◽  
Patient Centered ◽  
Community Partners ◽  
Future Researcher

Background: With the growth of patient-centered outcomes research (PCOR), partnerships between researchers and patients have presented novel opportunities for disseminating results. A large gap exists in disseminating patient-centered research results to older adult patient end-users. We sought to examine the experiences of patient/community partners in disseminating PCOR results and characterize lessons learned that may facilitate future researcher-patient/community dissemination partnerships. Methods: Patient/community partners who participated in geriatrics-focused PCORI-funded research and were active in disseminating results, as part of their planned activities, were recruited for one-to-one qualitative interviews. Constant comparative and thematic analysis were used to identify and describe common themes that emerged in a survey of open-ended questions. Results: Ten individuals (four community partners, six patients) aged 55–87 years were interviewed. Analysis revealed that for successful dissemination, subjects felt it was vital to reach out to people affected by the results, leverage personal stories, and tap into pre-developed programming. Patient/Community partners identified potential audiences through word-of-mouth, community requests, and mapping a list of audiences—targeting those directly affected as well as those who worked with the audience (e.g., not specifically medical). Patient/community partners recommended that researchers engage patient/community partners for suggestions on audiences, show empathy, include diverse populations, and maintain a community-focus. One community partner stated, “Why wouldn’t we help disseminate results? It’s a no-brainer. We know people!” Conclusion: Patient/community partners provide effective ways to communicate results, new audiences to reach, improved communication with different audiences, and improved credibility of the findings. The lessons learned have implications for assisting future research-patient/community partnerships in the dissemination of their patient-centered research.

Reducing Ethical Complaints Through Professional Counselor Competency in Court Testimony

2018 ◽  
Vol 26 (1) ◽  
pp. 64-72 ◽  
Author(s):  
Joshua D. Francis ◽  
Gina R. Oswald ◽  
Brandé Flamez
Keyword(s):  
Professional Competence ◽  
Negative Impact ◽  
Future Research ◽  
Children And Families ◽  
Professional Counselors ◽  
Ethical Considerations ◽  
Factors Influencing ◽  
Counselor Competency ◽  
Professional Counselor ◽  
Main Effect

Professional counselors experience increasing levels of ethical complaints when they provide opinions in child custody cases; the complaints question their competency levels. The purpose of the study was to examine competencies and ethical considerations for 277 counselors and 66 psychologists. The study used a new, validated professional competence standards instrument through a closed-ended survey. Data analysis included a t test and found that psychologists had higher levels of competency than did counselors, a Mann–Whitney U test found that psychologists had higher levels of complaints than did counselors, and factorial analyses of variance showed a main effect between experience and ethical complaints. Recommendations for future research include studying factors influencing levels of competency among counselors when providing testimony. These findings may assist the counseling profession with a greater understanding of competency in custody matters, resulting in counselors better serving children and families embroiled in conflicted divorce and custody disagreements, and minimizing the negative impact on the mental health of all involved.

Incorporating Stakeholder Perspectives on Scarce Resource Allocation: Lessons Learned from Policymaking in a Time of Crisis

2021 ◽  
Vol 30 (2) ◽  
pp. 390-402
Author(s):  
BETHANY BRUNO ◽  
HEATHER MCKEE HURWITZ ◽  
MARYBETH MERCER ◽  
HILARY MABEL ◽  
LAUREN SANKARY ◽  
...  
Keyword(s):  
Policy Development ◽  
Ethical Decision Making ◽  
Stakeholder Involvement ◽  
Organizational Ethics ◽  
Lessons Learned ◽  
Future Research ◽  
Patient Centered ◽  
Stakeholder Perspectives ◽  
Stakeholder Input ◽  
Ethics Dilemma

AbstractThe coronavirus disease (COVID-19) crisis provoked an organizational ethics dilemma: how to develop ethical pandemic policy while upholding our organizational mission to deliver relationship- and patient-centered care. Tasked with producing a recommendation about whether healthcare workers and essential personnel should receive priority access to limited medical resources during the pandemic, the bioethics department and survey and interview methodologists at our institution implemented a deliberative approach that included the perspectives of healthcare professionals and patient stakeholders in the policy development process. Involving the community more, not less, during a crisis required balancing the need to act quickly to garner stakeholder perspectives, uncertainty about the extent and duration of the pandemic, and disagreement among ethicists about the most ethically supportable way to allocate scarce resources. This article explains the process undertaken to garner stakeholder input as it relates to organizational ethics, recounts the stakeholder perspectives shared and how they informed the triage policy developed, and offers suggestions for how other organizations may integrate stakeholder involvement in ethical decision-making as well as directions for future research and public health work.

Lessons on Political Violence from America’s Post–9/11 Wars

2016 ◽  
Vol 62 (1) ◽  
pp. 174-202 ◽  
Author(s):  
Christoph Mikulaschek ◽  
Jacob N. Shapiro
Keyword(s):  
Knowledge Base ◽  
Political Violence ◽  
External Validity ◽  
Quantitative Data ◽  
Two Dimensions ◽  
Lessons Learned ◽  
Future Research ◽  
Qualitative And Quantitative ◽  
Factors Influencing ◽  
Iraq Wars

A large literature has emerged in political science that studies the wars in Afghanistan and Iraq. This article summarizes the lessons learned from this literature, both theoretical and practical. To put this emerging knowledge base into perspective, we review findings along two dimensions of conflict: factors influencing whether states or substate groups enter into conflict in the first place and variables affecting the intensity of fighting at particular times and places once war has started. We then discuss the external validity issues entailed in learning about contemporary wars and insurgencies from research focused on the Afghanistan and Iraq wars during the period of US involvement. We close by summarizing the uniquely rich qualitative and quantitative data on these wars (both publicly available and what likely exists but has not been released) and outline potential avenues for future research.

scholarly journals The Sage Resource Project: Readying Researchers to Transform Research through Engagement

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 150-151
Author(s):  
Rebecca Berman ◽  
Jesse Bella ◽  
Margaret Danilovich ◽  
Rachel Lessem
Keyword(s):  
Older Adults ◽  
Stakeholder Engagement ◽  
Lessons Learned ◽  
Future Research ◽  
Patient Centered ◽  
Advisory Boards ◽  
Model Research ◽  
Funded Project ◽  
Services And Supports

Abstract The Sage Model enables engagement of older adults receiving Long Term Services and Supports (LTSS), a group typically excluded in research. This presentation focuses on lessons learned from The Sage Resource Project, a Patient Centered Outcomes Research Institute funded project. We collaborated with RCMAR and Roybal centers to encourage NIH-affiliated researchers to embrace stakeholder engagement through promotion of the Sage Model. Few studies include an assessment of researcher needs when it comes to stakeholder engagement. We conducted a needs assessment (n=103) finding <50% of researchers presented work to older adults and only 41% interacted with older adults receiving LTSS. However, >90% were likely to attend webinars to learn more. Additionally, 70% of respondents were interested in setting up their own Sage Model research advisory boards. We identify opportunities for transforming LTSS research by including older adults as well as directions for future research on engagement, based on researchers’ identified needs.

An Investigation on Extrinsic and Intrinsic Rewards on Employee Retention among Gen Y: A Study in Malaysian Manufacturing Companies

2020 ◽  
Vol 3 (1) ◽  
Keyword(s):  
Regression Analysis ◽  
Employee Retention ◽  
Future Research ◽  
Manufacturing Companies ◽  
Extrinsic Reward ◽  
Intrinsic Rewards ◽  
Gen Y ◽  
Intrinsic Reward ◽  
Factors Influencing ◽  
The Relationship

The aim of this study is to investigate the relationship between extrinsic and intrinsic reward on retention among Gen Y employees in Malaysian manufacturing companies. The data was collected from 113 respondents worked in manufacturing companies located in Seri Kembangan, Selangor using questionnaires. Multiple regression analysis was conducted to test the hypotheses. The results showed both extrinsic and intrinsic reward are the factors influencing retaining Gen Y in manufacturing companies. The discussion on the analysis, limitation of the study, recommendation for future research and conclusion were discussed at the end of this study. In a nutshell, it was proven extrinsic reward and intrinsic reward has contributed to the retention of Gen Y employees.

scholarly journals Artificial intelligence in hospitals: providing a status quo of ethical considerations in academia to guide future research

AI & Society ◽  
2021 ◽  
Author(s):  
Milad Mirbabaie ◽  
Lennart Hofeditz ◽  
Nicholas R. J. Frick ◽  
Stefan Stieglitz
Keyword(s):  
Artificial Intelligence ◽  
Citation Network ◽  
Status Quo ◽  
Biomedical Ethics ◽  
Future Research ◽  
Ethical Considerations ◽  
Ethical Discourse ◽  
The Status ◽  
Clinical Environments ◽  
Research Questions

AbstractThe application of artificial intelligence (AI) in hospitals yields many advantages but also confronts healthcare with ethical questions and challenges. While various disciplines have conducted specific research on the ethical considerations of AI in hospitals, the literature still requires a holistic overview. By conducting a systematic discourse approach highlighted by expert interviews with healthcare specialists, we identified the status quo of interdisciplinary research in academia on ethical considerations and dimensions of AI in hospitals. We found 15 fundamental manuscripts by constructing a citation network for the ethical discourse, and we extracted actionable principles and their relationships. We provide an agenda to guide academia, framed under the principles of biomedical ethics. We provide an understanding of the current ethical discourse of AI in clinical environments, identify where further research is pressingly needed, and discuss additional research questions that should be addressed. We also guide practitioners to acknowledge AI-related benefits in hospitals and to understand the related ethical concerns.

scholarly journals Wastewater Surveillance for SARS-CoV-2 on College Campuses: Initial Efforts, Lessons Learned, and Research Needs

2021 ◽  
Vol 18 (9) ◽  
pp. 4455
Author(s):  
Sasha Harris-Lovett ◽  
Kara L. Nelson ◽  
Paloma Beamer ◽  
Heather N. Bischel ◽  
Aaron Bivins ◽  
...  
Keyword(s):  
Information Needs ◽  
Community Dynamics ◽  
The United States ◽  
Lessons Learned ◽  
Future Research ◽  
Private Institutions ◽  
Community Members ◽  
Public And Private ◽  
College And University ◽  
University Systems

Wastewater surveillance for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is an emerging approach to help identify the risk of a coronavirus disease (COVID-19) outbreak. This tool can contribute to public health surveillance at both community (wastewater treatment system) and institutional (e.g., colleges, prisons, and nursing homes) scales. This paper explores the successes, challenges, and lessons learned from initial wastewater surveillance efforts at colleges and university systems to inform future research, development and implementation. We present the experiences of 25 college and university systems in the United States that monitored campus wastewater for SARS-CoV-2 during the fall 2020 academic period. We describe the broad range of approaches, findings, resources, and impacts from these initial efforts. These institutions range in size, social and political geographies, and include both public and private institutions. Our analysis suggests that wastewater monitoring at colleges requires consideration of local information needs, sewage infrastructure, resources for sampling and analysis, college and community dynamics, approaches to interpretation and communication of results, and follow-up actions. Most colleges reported that a learning process of experimentation, evaluation, and adaptation was key to progress. This process requires ongoing collaboration among diverse stakeholders including decision-makers, researchers, faculty, facilities staff, students, and community members.

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