scholarly journals Métis Peoples and Cancer: A Scoping Review of Literature, Programs, Policies and Educational Material in Canada

2021 ◽  
Vol 28 (6) ◽  
pp. 5101-5123
Author(s):  
Tegan Brock ◽  
Maniza Abedin Chowdhury ◽  
Tracey Carr ◽  
Adel Panahi ◽  
Marg Friesen ◽  
...  
Keyword(s):  
Cancer Research ◽  
First Nations ◽  
Scoping Review ◽  
Cancer Control ◽  
Cancer Surveillance ◽  
Behavioral Risk ◽  
Cancer Data ◽  
Screening Participation ◽  
Indigenous Group ◽  
Specific Cancer

Much of the existing Indigenous cancer research focuses on First Nation populations or reports on pan-Indigenous data that include First Nations, Métis, and Inuit metrics together, which fails to capture the distinct lived realities, experiences of colonialism, and culture of each Indigenous group. The purpose of this scoping review was to summarize existing knowledge on cancer among Métis peoples in Canada, offering direction to researchers, institutions, and policymakers for future actions that enhance Métis-specific cancer surveillance and cancer care. We searched Embase, Medline, iPortal, and Proquest Theses and Dissertations databases, Google Scholar and Google, alongside ten websites relevant to cancer and Métis peoples. Two reviewers gathered 571 records. After screening, 77 records were included. Data show that Métis peoples experience higher behavioral risk factors, lower screening participation, higher cancer incidence for some cancers, and higher mortality rates compared to the non-Indigenous population. Existing research is piece-meal and researchers emphasize that there is inadequate Métis-specific cancer data. There is a need for targeted, Peoples-specific cancer control interventions to reduce these health inequities and a coordinated, Peoples-specific approach to cancer research. These efforts must involve collaboration among Métis Nations and organizations, provincial governments and agencies, researchers, and policymakers.

scholarly journals Establishing Accra Population-Based Cancer Registry

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 66s-66s
Author(s):  
P. Opoku
Keyword(s):  
Cancer Registry ◽  
Policy Development ◽  
Cancer Control ◽  
Population Based ◽  
Cancer Surveillance ◽  
Comprehensive Cancer Control ◽  
Control Plan ◽  
Cancer Data ◽  
The Impact ◽  
Analyze Data

Background: The African Cancer Organization (ACO) seeks to establish Accra Population-Based Cancer Registry (ACR). The whole idea is to collect, store and analyze data on persons with cancer to provide complete, accurate and timely cancer report for interventional programs. Such information would guide us to monitor patient care, prioritize and allocate resources effectively, give understanding of the things we do not yet know, and also act as a driver for policy development for the urgent need of comprehensive cancer control in Ghana. Countries require cancer surveillance programs to collect and analyze data on the scale of the cancer burden in each country. These are urgently needed in Africa as cancer data sources are scarce. Data can help to evaluate the impact of prevention, early detection/screening, treatment and palliative care programs. The proposed population-based cancer registry will help to act as a driver for policy development and program evaluation as recommended by the WHO. ACR intends to capture cancer cases diagnosed and/or treated within the Greater Accra region of Ghana and then further extend to cover the Central, Eastern, Western and the Volta regions of Ghana later. Aim: The goal of ACR to collect, store and analyze data on persons with cancer to generate incidence, prevalence, trends, mortality, and survival rates which is required to help develop a realistic and sustainable cancer control plan for Ghana. Methods: Cancer registry staff will be trained to abstract cancer cases diagnosed and/or treated within the southern regional geography of Ghana using a customized cancer notification form designed to capture detailed information on cancer patient demographics, tumor details, treatment, reporting sources and follow-up information based on both analytic and nonanalytic active case-finding reportability methods. These cases will then be classified and coded using the ICD-O-3, FIGO and/or SEER Summary Staging 2000 Manual. The data will be stored in customized cancer registry software which will be configured with various address codes from the registry geography. The cancer registry software checks for duplicate cases, data edits and consolidation. The software tracks down duplicate records and multiple primaries using a probability matching and consistency checking for impossible or rare cases. Conclusion: Establishing a cancer registry in Africa is challenging but very possible. Conflicts of interests are common norms among new cancer registries. With a good budget and working plan backed by few sincere and dedicated staff, it will be very possible to sustain the registry to capture all cancer cases within the catchment area, to take advantage of available modern technology to produce timely results. ACO is by this seeking for partnership to raise the needed support to embark on this national cancer registry campaign in the region.

scholarly journals Moving Toward an Evidence-Informed Cancer Control Strategy: A Scoping Review of Oncology Research in Kenya

2020 ◽  
Vol 6 (Supplement_1) ◽  
pp. 53-53
Author(s):  
Veronica Manduku ◽  
Mina Akhavan ◽  
Gershim Asiki ◽  
Nathan R. Brand ◽  
Mishka K. Cira ◽  
...  
Keyword(s):  
Cancer Research ◽  
Scoping Review ◽  
Control Strategy ◽  
Cancer Control ◽  
Population Based ◽  
Controlled Vocabulary ◽  
Cancer Type ◽  
Funding Sources ◽  
Diagnosis And Prognosis ◽  
Oncology Research

PURPOSE In 2017, the Kenya Ministry of Health launched the National Cancer Control Strategy 2017 to 2022. A scoping review of oncology research in Kenya was conducted to understand the scope of—and gaps in—existing research and inform the development of the national cancer research agenda. METHODS We searched PubMed/MEDLINE, Embase, Scopus, and Global Health databases using controlled vocabulary and keywords to identify oncology research with a study site in Kenya, published in English, from 2007 to 2017. Fifteen journals and additional gray literature sources were hand searched. Screening of titles, abstracts, and full text was completed by pairs of 2 reviewers, with a third reviewer reconciling discrepancies. From included studies, data were extracted and coded using Google Forms. Microsoft Excel was used for descriptive statistics. RESULTS Of the 284 included articles, a majority were analytic observational studies (66.9%). The top 5 cancers studied were cervical cancer (n = 106; 35.9%), breast cancer (n = 25; 11.9%), Burkitt lymphoma (n = 23; 8.5%), esophageal cancer (n = 15; 5.1%), and pediatric cancers (n = 12; 4.1%). Primary focus areas were early detection, diagnosis, and prognosis and cancer control, survivorship, and outcomes research. Kenyatta National Hospital, Moi Teaching and Referral Hospital, and University of Nairobi were most often cited as research host institutions. One hundred twenty-three unique funding sources were reported, with the most prevalent study funding sources by region being North America (48%), Europe (28.8%), and Middle East/Africa (17.6%). The US National Institutes of Health was cited as the leading funding source of cancer research in Kenya. CONCLUSION This scoping review provides an overview of the published literature on cancer research conducted in Kenya. It highlights cancer research by cancer type, location, and focus area. It also focuses attention on research gaps, as well as the need for rigorous, well-conducted population-based studies, longitudinal studies, and randomized controlled trials aligned with the cancer burden in Kenya.

Towards the elimination of occupational cancers in the Russian Federation: cancer research for cancer prevention (Part 1)

2019 ◽  
pp. 104-106
Author(s):  
J. Schüz ◽  
A. Olsson
Keyword(s):  
Cancer Research ◽  
Russian Federation ◽  
Large Scale ◽  
Cancer Control ◽  
Occupational Exposures ◽  
Cancer Registration ◽  
Occupational Cancer ◽  
Control Plan ◽  
The Russian Federation ◽  
Incident Cases

Cancer is increasing worldwide. Th e Russian Federation is no exception in this regard with an increase of the total number of new cases predicted to rise from 529,062 in 2018 to 587,622 in 2040. Th e present high burden and increase in incident cases at the same time increases the pressure on healthcare infrastructure and related costs. Th us, primary and secondary prevention of cancer becomes essential. Occupational cancers related to exposure at the workplace are among the preventable cancer burden, due to the modifi ability of the risk through minimisation of occupational exposures and adequate worker protection. For the Russian Federation, some 20,000 cancers each year may be att ributable to occupation, but systematic recording is currently lacking. As information is also lacking on the absolute eff ect of various occupational carcinogens in the Russian workforce due to lack of large-scale epidemiological studies and because for many suspected occupational carcinogens the evidence may become stronger, the true burden may in fact be higher. Th e Russian Federation appears particularly suitable for research into occupational cancer given the sizable workforce, the heavy industr ialisation as well as the good documentation and workplace surveillance over time, so that results are both informative for the situation in the Russian Federation and on a global scale. Five challenging but not unfeasible steps of nationwide population-based cancer registration, development of a legal framework for record linkage of registries and data collections, recording of occupational cancers, large scale epidemiological occupational cancer research and rigorous implementation of worker protection on known carcinogens, lead the way to a continuously updated cancer control plan that includes the elimination of occupational cancer in the Russian Federation.

The role of residential history in cancer research: A scoping review

2021 ◽  
Vol 270 ◽  
pp. 113657
Author(s):  
S. Namin ◽  
Y. Zhou ◽  
J. Neuner ◽  
K. Beyer
Keyword(s):  
Cancer Research ◽  
Scoping Review ◽  
Residential History

scholarly journals The use of social media as a tool for stakeholder engagement in health service design and quality improvement: A scoping review

2021 ◽  
Vol 7 ◽  
pp. 205520762199687
Author(s):  
Louisa Walsh ◽  
Nerida Hyett ◽  
Nicole Juniper ◽  
Chi Li ◽  
Sophie Rodier ◽  
...  
Keyword(s):  
Social Media ◽  
Quality Improvement ◽  
Health Service ◽  
First Nations ◽  
Scoping Review ◽  
Media Use ◽  
Qualitative Content Analysis ◽  
Service Design ◽  
Social Media Use ◽  
Communication Models

Background Health-related social media use is common but few health organisations have embraced its potential for engaging stakeholders in service design and quality improvement (QI). Social media may provide new ways to engage more diverse stakeholders and conduct health design and QI activities. Objective To map how social media is used by health services, providers and consumers to contribute to service design or QI activities. Methods The scoping review was undertaken using the Joanna Briggs Institute methodology. An advisory committee of stakeholders provided guidance throughout the review. Inclusion criteria were studies of any health service stakeholders, in any health setting, where social media was used as a tool for communications which influenced or advocated for changes to health service design or delivery. A descriptive numerical summary of the communication models, user populations and QI activities was created from the included studies, and the findings were further synthesised using deductive qualitative content analysis. Results 40 studies were included. User populations included organisations, clinical and non-clinical providers, young people, people with chronic illness/disability and First Nations people. Twitter was the most common platform for design and QI activities. Most activities were conducted using two-way communication models. A typology of social media use is presented, identifying nine major models of use. Conclusion This review identifies the ways in which social media is being used as a tool to engage stakeholders in health service design and QI, with different models of use appropriate for different activities, user populations and stages of the QI cycle.

scholarly journals Discrepancies between Canadian cancer research funding and site-specific cancer burden: a spotlight on ten disease sites

2018 ◽  
Vol 25 (5) ◽  
Author(s):  
A. C. Coronado ◽  
C. Finley ◽  
K. Badovinac ◽  
J. Han ◽  
J. Niu ◽  
...  
Keyword(s):  
Cancer Research ◽  
Research Funding ◽  
Information Management System ◽  
Site Specific ◽  
Cancer Burden ◽  
Specific Research ◽  
Research Survey ◽  
Research Investment ◽  
Incidence And Mortality ◽  
Specific Cancer

BackgroundCancer research is essential in evaluating the safety and effectiveness of emerging cancer treatments, which in turn can lead to ground-breaking advancements in cancer care. Given limited research funding, allocating resources in alignment with societal burden is essential. However, evidence shows that such alignment does not typically occur. The objective of the present study was to provide an updated overview of site-specific cancer research investment in Canada and to explore potential discrepancies between the site-specific burden and the level of research investment.MethodsThe 10 cancer sites with the highest mortality in 2015—which included brain, female breast, colorectal, leukemia, lung, non-Hodgkin lymphoma, ovary, pancreas, prostate, and uterus—were selected for the analysis. Information about site-specific research investment and cancer burden (raw incidence and mortality) was obtained from the Canadian Cancer Research Survey and Statistics Canada’s cansim (the Canadian Socio-Economic Information Management System) respectively. The ratio of site-specific research investment to site-specific burden was used as an indicator of overfunding (ratio > 1) or underfunding (ratio < 1).ResultsThe 3 cancer sites with the highest research investments were leukemia, prostate, and breast, which together represented 51.3% of 2015 cancer research funding. Conversely, the 3 cancer sites with the lowest investments were uterus, pancreas, and ovary, which together represented 7.8% of 2015 research funding. Relative to site-specific cancer burden, the lung, uterus, and colorectal sites were consistently the most underfunded.ConclusionsObserved discrepancies between cancer burden and research investment indicate that some cancer sites (such as lung, colorectal, and uterus) seem to be underfunded when site-specific incidence and mortality are taken into consideration.

scholarly journals Fitting Cure Rate Model to Breast Cancer Data of Cancer Research Center

2015 ◽  
Vol 16 (17) ◽  
pp. 7923-7927 ◽  
Author(s):  
Ahmad Reza Baghestani ◽  
Farid Zayeri ◽  
Mohammad Esmaeil Akbari ◽  
Leyla Shojaee ◽  
Naghmeh Khadembashi ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Research ◽  
Research Center ◽  
Rate Model ◽  
Breast Cancer Data ◽  
Cure Rate ◽  
Cancer Data ◽  
Cure Rate Model

Abstract PO-120: Need for more sociodemographic data in qualitative childhood cancer research: Findings from a scoping review

2022 ◽  
Author(s):  
Sarah Burack ◽  
Eric M. Wiedenman ◽  
Melanie Ward ◽  
Lindsay Kaufman ◽  
Thembekile Shato ◽  
...  
Keyword(s):  
Cancer Research ◽  
Childhood Cancer ◽  
Scoping Review ◽  
Sociodemographic Data ◽  
Research Findings

Next Generation of Central Cancer Registries

2021 ◽  
pp. 288-294
Author(s):  
Paul Wormeli ◽  
Jenna Mazreku ◽  
Jeremy Pine ◽  
Mark Damesyn
Keyword(s):  
Local Level ◽  
Cancer Control ◽  
Relevant Information ◽  
Cancer Registries ◽  
Data Availability ◽  
Cancer Case ◽  
Technical Standards ◽  
Data Set ◽  
Current Time ◽  
Cancer Data

For central cancer registries to become a more significant public health resource, they must evolve to capture more timely, accurate, and extensive data. Key stakeholders have called for a faster time to deliver work products, data extensions such as social determinants of health, and more relevant information for cancer control programs at the local level. The proposed model consists of near real-time reporting stages to replace the current time and labor-intensive efforts to populate a complete cancer case abstract on the basis of the 12- and 24-month data submission timelines. The first stage collects a cancer diagnosis minimum data set sufficient to describe population incidence and prevalence, which is then followed by a second stage capturing subsequent case updates and treatment data. A third stage procures targeted information in response to identified research projects' needs. The model also provides for further supplemental reports as may be defined to gather additional data. All stages leverage electronic health records' widespread development and the many emerging standards for data content, including national policies related to healthcare and technical standards for interoperability, such as the Fast Healthcare Interoperability Resources specifications to automate and accelerate reporting to central cancer registries. The emergence of application programming interfaces that allow for more interoperability among systems would be leveraged, leading to more efficient information sharing. Adopting this model will expedite cancer data availability to improve cancer control while supporting data integrity and flexibility in data items. It presents a long-term and feasible solution that addresses the extensive burden and unsustainable manual data collection requirements placed on Certified Tumor Registrars at disease reporting entities nationally.

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