scholarly journals Disrupted Self-Management and Adaption to New Diabetes Routines: A Qualitative Study of How People with Diabetes Managed Their Illness during the COVID-19 Lockdown

Diabetology ◽  
2021 ◽  
Vol 2 (1) ◽  
pp. 1-15
Author(s):  
Dan Grabowski ◽  
Mathilde Overgaard ◽  
Julie Meldgaard ◽  
Lise Bro Johansen ◽  
Ingrid Willaing
Keyword(s):  
Physical Activity ◽  
Food Intake ◽  
Qualitative Study ◽  
Everyday Life ◽  
Daily Life ◽  
Self Management ◽  
Life Changes

When societies went into the COVID-19 lockdown, the conditions under which people with diabetes managed their illness dramatically changed. The present study explores experiences of everyday life during the COVID-19 lockdown among people with diabetes, and how diabetes self-management routines were affected. The data consist of 20 interviews with adults with diabetes, focusing on experiences during the COVID-19 lockdown. The analysis showed that experiences of self-management during lockdown were diverse and that participants handled daily life changes in very different ways. The main changes in self-management related to physical activity and food intake, which decreased and increased, respectively, for many participants during lockdown. We found two main and significantly different overall experiences of everyday life while on lockdown: (1) A daily life significantly changed by the lockdown, causing disruption of diabetes self-management routines, and (2) a largely unaffected everyday life, enabling continuance of diabetes routines. Our findings showed that people with diabetes lacked information about strategies to self-manage diabetes during lockdown and would have benefited from guidance and support throughout the pandemic, or any other crisis, to maintain their diabetes self-management routines.

scholarly journals Type 2 diabetes patients’ views on prevention of hypoglycaemia – a mixed methods study investigating self-management issues and self-identified causes of hypoglycaemia

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Stijn Crutzen ◽  
Tessa van den Born-Bondt ◽  
Petra Denig ◽  
Katja Taxis
Keyword(s):  
Physical Activity ◽  
Type 2 Diabetes ◽  
Mixed Methods ◽  
Food Intake ◽  
Mixed Methods Study ◽  
Self Management ◽  
Hypoglycaemic Event ◽  
Glucose Levels ◽  
Management Issues

Abstract Background Hypoglycaemia is a common and potentially avoidable adverse event in people with type 2 diabetes (T2D). It can reduce quality of life, increase healthcare costs, and reduce treatment success. We investigated self-management issues associated with hypoglycaemia and self-identified causes of hypoglycaemia in these patients. Methods In this mixed methods study qualitative semi-structured interviews were performed, which informed a subsequent quantitative survey in T2D patients. All interviews were audio recorded, transcribed verbatim and coded independently by two coders using directed content analysis, guided by the Theoretical Domains Framework. Descriptive statistics were used to quantify the self-management issues and causes of hypoglycaemia collected in the survey for the respondents that had experienced at least one hypoglycaemic event in the past. Results Sixteen participants were interviewed, aged 59–84 years. Participants perceived difficulties in managing deviations from routine, and they sometimes lacked procedural knowledge to adjust medication, nutrition or physical activity to manage their glucose levels. Grief and loss of support due to the loss of a partner interfered with self-management and lead to hypoglycaemic events. Work ethic lead some participant to overexerting themselves, which in turn lead to hypoglycaemic events. The participants had difficulties preventing hypoglycaemic events, because they did not know the cause, suffered from impaired hypoglycaemia awareness and/or did not want to regularly measure their blood glucose. When they did recognise a cause, they identified issues with nutrition, physical activity, stress or medication. In total, 40% of respondents reported regular stress as an issue, 24% reported that they regularly overestimated their physical abilities, and 22% indicated they did not always know how to adjust their medication. Around 16% of patients could not always remember whether they took their medication, and 42% always took their medication at regular times. Among the 83 respondents with at least one hypoglycaemic event, common causes for hypoglycaemia mentioned were related to physical activity (67%), low food intake (52%), deviations from routine (35%) and emotional burden (28%). Accidental overuse of medication was reported by 10%. Conclusion People with T2D experience various issues with self-managing their glucose levels. This study underlines the importance of daily routine and being able to adjust medication in relation to more physical activity or less food intake as well as the ability to reduce and manage stress to prevent hypoglycaemic events.

Using Physical Activity Trackers in Arthritis Self‐Management: A Qualitative Study of Patient and Rehabilitation Professional Perspectives

2019 ◽  
Vol 71 (2) ◽  
pp. 227-236 ◽  
Author(s):  
Jenny Leese ◽  
Graham G. Macdonald ◽  
Bao Chau Tran ◽  
Rosalind Wong ◽  
Catherine L. Backman ◽  
...  
Keyword(s):  
Physical Activity ◽  
Qualitative Study ◽  
Self Management ◽  
Activity Trackers ◽  
Professional Perspectives ◽  
Rehabilitation Professional

scholarly journals Prostate Cancer Survivors’ and Caregivers’ Experiences Using Behavior Change Techniques during a Web-Based Self-Management and Physical Activity Program: A Qualitative Study

2020 ◽  
Vol 9 (10) ◽  
pp. 3244
Author(s):  
Laura Hallward ◽  
Keryn Chemtob ◽  
Sylvie D. Lambert ◽  
Lindsay R. Duncan
Keyword(s):  
Physical Activity ◽  
Prostate Cancer ◽  
Qualitative Study ◽  
Behavior Change ◽  
Management Program ◽  
Self Management ◽  
Positive Outcomes ◽  
Structured Interviews ◽  
Behavior Change Techniques ◽  
Web Based

Both men with prostate cancer and their caregivers report experiencing a number of challenges and health consequences, and require programs to help support the cancer patient–caregiver dyad. A tailored, web-based, psychosocial and physical activity self-management program (TEMPO), which implements behavior change techniques to help facilitate behavior change for the dyads was created and its acceptability was tested in a qualitative study. The purpose of this secondary analysis was to explore the dyads’ experiences using behavior change techniques to change behavior and address current needs and challenges while enrolled in TEMPO. Multiple semi-structured interviews were conducted with 19 prostate cancer-caregiver dyads over the course of the program, resulting in 46 transcripts that were analyzed using an inductive thematic analysis. Results revealed four main themes: (1) learning new behavior change techniques, (2) engaging with behavior change techniques learned in the past, (3) resisting full engagement with behavior change techniques, and (4) experiencing positive outcomes from using behavior change techniques. The dyads’ discussions of encountering behavior change techniques provided unique insight into the process of learning and implementing behavior change techniques through a web-based self-management program, and the positive outcomes that resulted from behavior changes.

scholarly journals Activity Monitors as Support for Older Persons’ Physical Activity in Daily Life: Qualitative Study of the Users’ Experiences

2018 ◽  
Vol 6 (2) ◽  
pp. e34 ◽  
Author(s):  
Maria Ehn ◽  
Lennie Carlén Eriksson ◽  
Nina Åkerberg ◽  
Ann-Christin Johansson
Keyword(s):  
Physical Activity ◽  
Qualitative Study ◽  
Older Persons ◽  
Daily Life ◽  
Activity Monitors

Health capital in everyday life of the oldest old living in their own homes

2014 ◽  
Vol 35 (10) ◽  
pp. 2156-2175 ◽  
Author(s):  
ASTRID BERGLAND ◽  
ÅSHILD SLETTEBØ
Keyword(s):  
Qualitative Study ◽  
Older People ◽  
Everyday Life ◽  
Older Women ◽  
Old Age ◽  
Daily Life ◽  
Oldest Old ◽  
Health Resources ◽  
Health Capital ◽  
Active Contribution

ABSTRACTAs more people experience old age as a time of growth and productivity, more research is needed that explores how they master everyday life. This paper reports on a qualitative study that explored how ten older women age 90 years or more experience and cope with the challenges of everyday life with a salutogenic perspective. The findings suggest that health resources such as positive expectation, reflection and adaptation, function and active contribution, relations and home, contribute to the health capital of women. These health resources were of importance for the women's experience of comprehensibility, manageability and meaningfulness in daily life. Health capital is a meaningful concept for understanding coping in everyday life by older people.

scholarly journals I’m sleeping my day away. Improving diabetes self-management using CPAP treatment in patients with obstructive sleep apnea and type 2 diabetes: A qualitative explorative study (Preprint)

2021 ◽  
Author(s):  
Ditte Hjorth Laursen ◽  
Gitte Rom ◽  
Anne Margareta Banghoej ◽  
Lise Tarnow ◽  
Lone Schou
Keyword(s):  
Physical Activity ◽  
Type 2 Diabetes ◽  
Obstructive Sleep Apnea ◽  
Sleep Apnea ◽  
Sleep Quality ◽  
Daily Life ◽  
Self Management ◽  
Cpap Treatment ◽  
Obstructive Sleep

BACKGROUND There is a high prevalence of unexplained and unexplored obstructive sleep apnea (OSA) in patients with type 2 diabetes. Daytime symptoms of OSA include severe fatigue, cognitive problems, decreased quality of life, and reduced motivation to provide self-care, which impairs the management of both diabetes and daily life. OSA may thereby cause negative implications for diabetes self-management. Treatment for OSA is offered through Continuous Positive Airway Pressure (CPAP) which has the potential to improve sleep quality, insulin resistance and glycemic control. Although the benefits of using CPAP as treatment for OSA are clear, noncompliance is high and there is poor evidence on the perceived effect of CPAP treatment in this group of patients. OBJECTIVE The purpose of this study is to explore the impact of comorbid diabetes and OSA on daily life among older adults, and to investigate the perceived effect of CPAP treatment for OSA on patients’ diabetes self-management. METHODS A qualitative follow-up study, with in-depth semi-structured dyad interviews with couples before and after an intervention with CPAP treatment (N=22). Patients were recruited from Hilleroed Hospital in Denmark and were all diagnosed with type 2 diabetes, age > 18 years and apnea-hypopnea index (AHI) ≥ 15. All interviews were coded and analyzed using thematic analysis. RESULTS Patients and partners do not consider OSA a serious disorder as they consider OSA symptoms similar to the process of aging. Patients experience poor nocturnal sleep, frequent daytime naps, reduced cognitive function, low levels of physical activity, and a high-calorie diet, that all negatively influence their diabetes self-management. Despite the immediate benefit of the CPAP treatment, most patients have technical challenges when using the CPAP. Only patients with severe OSA symptoms inflicting their daily life overcome the challenges of CPAP and thereby improve their diabetes self-management. Patients with less life inflicting symptoms rate the CPAP challenges as more burdensome than their symptoms. CONCLUSIONS If used correctly CPAP has the potential to improve OSA resulting in better sleep quality, improved physical activity, improved diet and a better diabetes self-management. But there are many barriers in CPAP treatment and only few patients manage to overcome the barriers and comply to correct treatment. CLINICALTRIAL The study was approved by the Danish Data Protection Agency (J.nr. 2012-58-0004).

scholarly journals Patient and Provider Dilemmas of type 2 Diabetes Self-Management: a Qualitative Study in Socioeconomically Disadvantaged Communities in Stockholm

2018 ◽  
Author(s):  
Juliet Aweko ◽  
Jeroen De Man ◽  
Pilvikki Absetz ◽  
Claes-Göran Östenson ◽  
Stefan Swartling Peterson ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Daily Life ◽  
Healthcare Providers ◽  
Structured Interview ◽  
Self Management ◽  
Study Patient ◽  
Diabetes Diagnosis ◽  
Management Support ◽  
Provider Perceptions ◽  
Disadvantaged Communities

Studies comparing provider and patient views and experiences of self-management within primary healthcare are particularly scarce in disadvantaged settings. In this qualitative study, patient and provider perceptions of self-management were investigated in five socio-economically disadvantaged communities in Stockholm. Twelve individual interviews and three group interviews were conducted. Semi-structured interview guides included questions on perceptions of diabetes diagnosis, diabetes care services available at primary health care centers, patient and provider interactions, and self-management support. Data was analysed using thematic analysis. Two overarching themes were identified. These were characterized by inherent dilemmas representing confusions and conflicts that patients and providers experienced in their daily life or practice respectively: adopting and maintaining new routines through practical and appropriate lifestyle choices (patients); and balancing expectations and pre-conceptions of self-management (providers). Patients found it difficult to tailor information and lifestyle advice to fit their daily life. Healthcare providers recognized that patients were in need of support to change behavior, but saw themselves as inadequately equipped to deal with the different cultural and social aspects of self-management. This study highlights patient and provider dilemmas that influence the interaction and collaboration between patients and providers with respect to communication and uptake of self-management advice.

scholarly journals The use of psychotropic medications and non-pharmacological approaches in everyday life: a qualitative study of the lived experience

2019 ◽  
Vol 22 (4) ◽  
pp. 859-883 ◽  
Author(s):  
Agnes Fonseca Ribeiro Filardi ◽  
Simone de Araújo Medina Mendonça ◽  
Djenane Ramalho-de-Oliveira
Keyword(s):  
Qualitative Study ◽  
Everyday Life ◽  
Lived Experience ◽  
Psychotropic Drugs ◽  
Daily Life ◽  
Hermeneutic Phenomenology ◽  
Psychotropic Medications ◽  
Western Countries ◽  
High Degree ◽  
Depth Interviews

Increased consumption of psychotropic drugs has been noted in Brazil and other Western countries in the last few decades for different reasons. The objective of this study was to understand the lived experience of individuals who used psychotropic drugs to cope with the problems faced in daily life. A qualitative study guided by hermeneutic phenomenology was carried out. In-depth interviews were conducted. The experience was grouped into two themes: experience of using psychotropic and the search for non-pharmacological approaches. Psychotropics were considered necessary for regaining a point of equilibrium when the problems faced were recognized as having a high degree of difficulty. In some cases, the drugs were perceived as insufficient for solving the problem, leading or not to the search for alternatives to deal with the difficulty.

scholarly journals Patient and Provider Dilemmas of Type 2 Diabetes Self-Management: A Qualitative Study in Socioeconomically Disadvantaged Communities in Stockholm

2018 ◽  
Vol 15 (9) ◽  
pp. 1810 ◽  
Author(s):  
Juliet Aweko ◽  
Jeroen De Man ◽  
Pilvikki Absetz ◽  
Claes-Göran Östenson ◽  
Stefan Swartling Peterson ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Daily Life ◽  
Healthcare Providers ◽  
Structured Interview ◽  
Self Management ◽  
Study Patient ◽  
Diabetes Diagnosis ◽  
Management Support ◽  
Provider Perceptions ◽  
Disadvantaged Communities

Studies comparing provider and patient views and experiences of self-management within primary healthcare are particularly scarce in disadvantaged settings. In this qualitative study, patient and provider perceptions of self-management were investigated in five socio-economically disadvantaged communities in Stockholm. Twelve individual interviews and four group interviews were conducted. Semi-structured interview guides included questions on perceptions of diabetes diagnosis, diabetes care services available at primary health care centers, patient and provider interactions, and self-management support. Data was analyzed using thematic analysis. Two overarching themes were identified: adopting and maintaining new routines through practical and appropriate lifestyle choices (patients), and balancing expectations and pre-conceptions of self-management (providers). The themes were characterized by inherent dilemmas representing confusions and conflicts that patients and providers experienced in their daily life or practice. Patients found it difficult to tailor information and lifestyle advice to fit their daily life. Healthcare providers recognized that patients needed support to change behavior, but saw themselves as inadequately equipped to deal with the different cultural and social aspects of self-management. This study highlights patient and provider dilemmas that influence the interaction and collaboration between patients and providers and hinder uptake of self-management advice.

scholarly journals Physical Activity and Depressive Mood in the Daily Life of Older Adults

GeroPsych ◽  
2017 ◽  
Vol 30 (3) ◽  
pp. 119-129 ◽  
Author(s):  
Andrea E. Gruenenfelder-Steiger ◽  
Marko Katana ◽  
Annika A. Martin ◽  
Damaris Aschwanden ◽  
Julia L. Koska ◽  
...  
Keyword(s):  
Physical Activity ◽  
Older Adults ◽  
Everyday Life ◽  
Empirical Evidence ◽  
Daily Life ◽  
Ecological Validity ◽  
Depressive Mood ◽  
Need Fulfillment ◽  
Self Reports ◽  
The Everyday

Abstract. Empirical evidence suggests that physical activity is related to less depressive moods. However, little is known about this association in the everyday life of older adults, limiting the ecological validity of prior findings. This study examined within-person associations between physical activity and depressive mood in older adults across 7 days. Moreover, the study tested the extent to which need-fulfillment can explain this association. The sample consisted of 68 adults aged 65 to 93 years. Physical activity was assessed objectively with accelerometers, whereas need-fulfillment and depressive mood were assessed at the end of each day using self-reports. Results from multilevel analysis suggest that daily physical activity was negatively related to daily depressive mood within persons. Although need-fulfillment did not explain the association between physical activity and depressive mood, it was a statistically significant predictor of daily depressive mood and even attenuated the effect of physical activity on depressive mood to nonsignificance.

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