scholarly journals Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study

Author(s):  
Filiberto Toledano-Toledano ◽  
David Luna ◽  
José Moral de la Rubia ◽  
Silvia Martínez Valverde ◽  
Carlos Alberto Bermúdez Morón ◽  
...  

Chronic diseases in childhood can affect the physical and mental health of patients and their families. The objective of this study was to identify the sociodemographic and psychosocial factors that predict resilience in family caregivers of children with cancer and to define whether there are differences in the levels of resilience derived from these sociodemographic variables. Three hundred and thirty family caregivers of children with cancer, with an average age of 32.6 years were interviewed. The caregivers responded to a battery of tests that included a questionnaire of sociodemographic variables, the Measuring Scale of Resilience, the Beck Depression Inventory, the Inventory of Quality of Life, the Beck Anxiety Inventory, an interview of caregiver burden and the World Health Organization Well-Being Index. The main findings indicate that family caregivers of children with cancer reported high levels of resilience, which were associated positively with quality of life, psychological well-being and years of study and associated negatively with depression, anxiety and caregiver burden. The variables that predicted resilience in families of children with cancer were quality of life, psychological well-being, depression and number of children. Family caregivers who were married and Catholic showed higher resilience scores. We conclude that being a caregiver in a family with children with cancer is associated with symptoms of anxiety and with depressive episodes. These issues can be overcome through family strength, well-being, quality of life and positive adaptation processes and mobilization of family resources.

2021 ◽  
pp. 135910532199080
Author(s):  
Y. H. Luo ◽  
W. H. C. Li ◽  
A. T. Cheung ◽  
L. L. K. Ho ◽  
W. Xia ◽  
...  

A child suffering from cancer can be considerably stressful for parents, exerting a negative impact on their psychological well-being and quality of life. This study explored the relationships between resilience and quality of life in parents of children with cancer. We recruited 146 parents of children with cancer in two tertiary hospitals in mainland China. The results revealed that greater parental resilience was associated with better quality of life. It is essential to develop interventions that can enhance resilience for parents of children with cancer, thereby improving their quality of life. ClinicalTrials.gov ID: NCT03631485


2020 ◽  
Vol 73 (suppl 1) ◽  
Author(s):  
Patricia Dias Francisquini ◽  
Marcos Hirata Soares ◽  
Fernanda Pamela Machado ◽  
Margarita Antonia Villar Luis ◽  
Julia Trevisan Martins

ABSTRACT Objective: To measure and correlate the degree of psychological well-being, quality of life, and dispositional hope in family caregivers of schizophrenic people. Methods: Descriptive cross-sectional study conducted with 117 relatives of schizophrenic people. We applied a questionnaire of sociodemographic variables was applied, and the instruments World Health Organization 5-Item Well-Being (WHO-5), World Health Organization Quality of Life Abbreviated (WHOQOL-Bref), and Dispositional Hope Scale. We used The Kruskal Wallis, Jonckheere-Terpstra, and Spearman correlation tests at the level α <0.05. Results: It was possible to observe statistical significance when comparing schooling and age with Disposal Hope; and when comparing the scales used. Conclusion: The study considered that well-being, quality of life, and hope are variables that negatively influence caregiver burden, suggesting schooling as an inverse correlation variable with Dispositional Hope.


10.2196/21466 ◽  
2021 ◽  
Vol 23 (4) ◽  
pp. e21466
Author(s):  
Ieva Biliunaite ◽  
Evaldas Kazlauskas ◽  
Robbert Sanderman ◽  
Inga Truskauskaite-Kuneviciene ◽  
Austeja Dumarkaite ◽  
...  

Background Caregiving for a family member can result in reduced well-being for the caregiver. Internet-delivered cognitive behavioral therapy (ICBT) may be one way to support this population. This is especially the case for caregivers in countries with limited resources, but high demand for psychological services. Objective In this study we evaluated the effects of a therapist-guided 8-week-long ICBT intervention for informal caregivers. Methods In total, 63 participants were recruited online and randomized either to the intervention or to the wait-list control group. The main study outcome was the Caregiver Burden Inventory (CBI). Secondary outcomes included measures of caregiver depression, anxiety, stress, and quality of life. Results Moderate between-group effect sizes were observed for the CBI measure, in favor of the intervention group, with a Cohen d=–0.70 for the intention-to-treat analysis. Analyses of the subscales of the CBI showed significant reductions on the subscales of Development and Physical Health. Moderate reductions were found for depression and anxiety scores as indicated by the Patient Health Questionnaire-9 (PHQ-9) and Generalized Anxiety Disorder-7 (GAD-7) scores. Large between-group effects were observed for reduction in stress and increase in quality of life as indicated by the Perceived Stress Scale-14 (PSS-14), The Brunnsviken Brief Quality of Life Scale (BBQ), and The World Health Organization-Five Well-Being Index (WHO-5). In addition, participants experienced little to no difficulty in using the program and were mostly satisfied with the intervention’s platform and the choice of content. Conclusions This is the first internet intervention study for informal caregivers in Lithuania. The results suggest that therapist-guided ICBT can be effective in reducing caregiver burden, anxiety, depression, stress, and improving quality of life. Trial Registration ClinicalTrials.gov NCT04052724; https://clinicaltrials.gov/ct2/show/NCT04052724


2018 ◽  
Vol 17 (03) ◽  
pp. 294-299 ◽  
Author(s):  
Roberta Spatuzzi ◽  
Maria Velia Giulietti ◽  
Marcello Ricciuti ◽  
Fabiana Merico ◽  
Paolo Fabbietti ◽  
...  

AbstractObjectiveThe spiritual dimension is important in the process of coping with stress and may be of special relevance for those caring for cancer patients in the various phases of caregivership, although current attention is most prevalent at the end of life. This study explores the associations among spiritual well-being (SWB), caregiver burden, and quality of life (QoL) in family caregivers of patients with cancer during the course of the disease.MethodThis is a cross-sectional study. All participants (n = 199) underwent the following self-report questionnaires: the SWB-Index, the Medical Outcomes Study Short Form, and the Caregiver Burden Inventory (CBI). SWB scores were dichotomized at a cutoff corresponding to the 75th percentile. Statistical analyses were made using the Student t or by chi-square test to compare high and low SWB groups.ResultThe high SWB group reported significantly better Medical Outcomes Study Short Form scores in bodily pain (p = 0.035), vitality (p &lt; 0.001), social activities (p = 0.001), mental health (p &lt; 0.001), and in standardized mental component subscales (p &lt; 0.001) than the low SWB group. No significant differences were detected between the two SWB groups in physical activity, physical role, general health, emotional status, and standardized physical component scale. The high SWB group also had better CBI scores in the physical (p = 0.049) and developmental burden (p = 0.053) subscales. There were no significant differences in the other CBI scores (overall and sections).Significance of resultsThis study points out that high SWB caregivers have a more positive QoL and burden. Knowledge of these associations calls for more attention on the part of healthcare professionals toward spiritual resources among family cancer caregivers from the moment of diagnosis and across the entire cancer trajectory.


2011 ◽  
Vol 26 (S2) ◽  
pp. 1113-1113
Author(s):  
F. Cosci ◽  
O. Bernini ◽  
C. Berrocal

IntroductionObesity has been associated with low resilience and poor quality of life (QoL).ObjectivesData on psychological well being (PWB), as a measure of resilience, in obesity are lacking.AimsStudy the level of PWB and QoL among subjects with obesity.Methods28 subjects with obesity were compared with 28 healthy controls. PWB was measured by means of the PWB questionnaire according to the Ryff's construct, the health-related quality of life was assessed via the World Health Organization Quality of Life Assessment. Both scales are self-administered. Statistical analyses focused on between-groups differences. Cases and controls were matched for age and gender.ResultsCases had a statistically lower level of education and rate of current employment than controls. The two groups did not differ for lifetime diagnosis of psychiatric disorder or lifetime treatment with psychoactive drugs. However, cases had a significantly higher rate of current use of psychoactive drugs than controls. As what concerns PWB, cases had a lower total score than controls. In particular, Positive Relationship with others, Self-Acceptance, Purposes in Life, and Personal Growth were the PWB constructs significantly more impaired in cases. Similarly, cases had a worse perception of their general QoL, their physical and psychological health, their quality of social relationships and of environment.ConclusionsSubjects with obesity have a lower level of PWB and QoL than healthy controls. Since, PWB therapy may increase the individual level of PWB, thus increasing the individual resilience, subjects with obesity should be considered as possible candidates for PWB interventions.


2017 ◽  
Vol 4 (3) ◽  
Author(s):  
Laaya Sadat Naghibi ◽  
Saeid Moutavalli

This study aimed to compare mindfulness, psychological well-being and quality of life between working women and housewives district 6 of Tehran. The research method is descriptive and causal-comparative study design. The population of all the housewives and working women of the 6th district of Tehran city with random cluster sampling method and Cochran formula 384, respectively, due to the loss and to ensure the sample size of 400 was determined. Tools of mindfulness questionnaire Brown and Ryan (2003), Psychological well-being questionnaire (2002) and the World Health Organization Quality of Life Questionnaire (1998), respectively. The results showed that between working women and housewives on a scale of mindfulness (p =0/0001) There is a significant difference. Also in the psychological well-being scale (p= 0/0003) and its components, except for component dominate the environment there is a significant difference (p >0/05). Also in the variable quality of life (p =0/0004) and its components were also significantly different (p >0/05). Similarly, the mean indicated in all cases of employed women had higher scores were better off. As a result, we can say they have a positive impact on women’s employment.


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