A RCT on the effectiveness of a psychoeducation on quality of life, social support, psychological well-being, rewards of caregiving, and self-efficacy for family caregivers of a person in home hospice care

ObjectivesTo describe prevalence and predictors of poor sexual well-being for men and women over 5 years following treatment for colorectal cancer.DesignProspective longitudinal study, from presurgery to 5 years postsurgery, with eight assessment points. Logistic regression models predicted sexual well-being from presurgery to 24 months and 24 months to 60 months; time-adjusted then fully adjusted models were constructed at each stage.SettingTwenty-nine hospitals in the UK.ParticipantsPatients with Dukes’ stage A–C, treated with curative intent, aged ≥18 years and able to complete questionnaires were eligible.Outcome measuresThe dependent variable was the Quality of Life in Adult Cancer Survivors sexual function score. Independent variables included sociodemographic, clinical and psychosocial characteristics.ResultsSeven hundred and ninety participants provided a sexual well-being score for at least one time point. Thirty-seven per cent of men and 14% of women reported poor sexual well-being at 5 years. Baseline predictors for men at 24 months included having a stoma (OR 1.5, 95% CI 1.02 to 2.20) and high levels of depression (OR 2.69/2.01, 95% CI 1.68 to 4.32/1.12 to 3.61); men with high self-efficacy (OR confident 0.33/0.48, 95% CI 0.18 to 0.61/0.24 to 1.00; very confident 0.25/0.42, 95% CI 0.13 to 0.49/0.19 to 0.94) and social support (OR 0.52/0.56, 95% CI 0.33 to 0.81/0.35 to 0.91) were less likely to report poor sexual well-being. Predictors at 60 months included having a stoma (OR 2.30/2.67, 95% CI 1.22 to 4.34/1.11 to 6.40) and high levels of depression (OR 5.61/2.58, 95% CI 2.58 to 12.21/0.81 to 8.25); men with high self-efficacy (very confident 0.14, 95% CI 0.047 to 0.44), full social support (OR 0.26; 95% CI 0.13 to 0.53) and higher quality of life (OR 0.97, 95% CI 0.95 to 0.98) were less likely to report poor sexual well-being. It was not possible to construct models for women due to low numbers reporting poor sexual well-being.ConclusionsSeveral psychosocial variables were identified as predictors of poor sexual well-being among men. Interventions targeting low self-efficacy may be helpful. More research is needed to understand women’s sexual well-being.

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Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18020748 ◽

2021 ◽

Vol 18 (2) ◽

pp. 748

Author(s):

Filiberto Toledano-Toledano ◽

David Luna ◽

José Moral de la Rubia ◽

Silvia Martínez Valverde ◽

Carlos Alberto Bermúdez Morón ◽

...

Keyword(s):

Quality Of Life ◽

Family Caregivers ◽

Psychosocial Factors ◽

Caregiver Burden ◽

Well Being ◽

World Health ◽

Children With Cancer ◽

Psychological Well Being ◽

Sociodemographic Variables

Chronic diseases in childhood can affect the physical and mental health of patients and their families. The objective of this study was to identify the sociodemographic and psychosocial factors that predict resilience in family caregivers of children with cancer and to define whether there are differences in the levels of resilience derived from these sociodemographic variables. Three hundred and thirty family caregivers of children with cancer, with an average age of 32.6 years were interviewed. The caregivers responded to a battery of tests that included a questionnaire of sociodemographic variables, the Measuring Scale of Resilience, the Beck Depression Inventory, the Inventory of Quality of Life, the Beck Anxiety Inventory, an interview of caregiver burden and the World Health Organization Well-Being Index. The main findings indicate that family caregivers of children with cancer reported high levels of resilience, which were associated positively with quality of life, psychological well-being and years of study and associated negatively with depression, anxiety and caregiver burden. The variables that predicted resilience in families of children with cancer were quality of life, psychological well-being, depression and number of children. Family caregivers who were married and Catholic showed higher resilience scores. We conclude that being a caregiver in a family with children with cancer is associated with symptoms of anxiety and with depressive episodes. These issues can be overcome through family strength, well-being, quality of life and positive adaptation processes and mobilization of family resources.

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Determining the Effect of Group Flower Arranging Sessions on Caregiver Self-Efficacy and Stress Levels in an In-Patient Hospice

OMEGA - Journal of Death and Dying ◽

10.1177/0030222819900441 ◽

2020 ◽

pp. 003022281990044

Author(s):

Joanne Lavin ◽

Claire Lavin ◽

Xin Bai ◽

Stephanie Mastropaolo ◽

Debbie Feldman

Keyword(s):

Quality Of Life ◽

Family Caregivers ◽

Self Efficacy ◽

Hospice Care ◽

Future Research ◽

Care Hospital ◽

Stress Levels

This study was designed to promote enhanced self-efficacy and decreased stress levels for family caregivers at a hospice care hospital, thus increasing their quality of life. This is achieved through group flower arranging sessions. The objectives are to (a) enhance self-efficacy scores for family caregivers of Calvary patients, (b) decrease stress levels for family caregivers of Calvary patients, and (c) disseminate results to other hospices. The results show that the flower arranging sessions resulted in significantly increased self-efficacy and decreased stress and associated problems for the caregiver participants. Implications and suggestions for future research are discussed.

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Psychological well-being in palliative care: A systematic review

OMEGA - Journal of Death and Dying ◽

10.1177/00302228211019203 ◽

2021 ◽

pp. 003022282110192

Author(s):

Tamara Redondo Elvira ◽

Celia Ibáñez del Prado ◽

Juan Antonio Cruzado

Keyword(s):

Quality Of Life ◽

Social Support ◽

Palliative Care ◽

End Of Life ◽

Well Being ◽

Psychological Well Being ◽

Predictive Variables ◽

Spiritual Well Being ◽

Relevant Variables

Objective To review which are the most influential variables in achieving levels of psychological well-being at the end of life and to verify whether, as certain studies suggest, spirituality, resilience and social support are the pillars on which the psychological well-being construct is based. Method A systematic search through the Scopus, Pubmed and PsycInfo electronic databases was carried out using keywords such as: “wellbeing” OR “psychological-well-being” AND “resilience” AND “spirituality” AND “social support” AND “palliative care” and their multiple combinations. Results Eleven studies were selected, in which terms such as spiritual well-being, absence of discomfort and quality of life were used in substitution of psychological well-being and a certain consensus was found regarding whether resilience, spirituality and social support are predictive variables of psychological well-being. Conclusions Resilience, social support and spirituality are highly relevant variables at the end of life and contribute decisively towards psychological well-being.

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Factors affecting the quality of life of gastric cancer survivors

Supportive Care in Cancer ◽

10.1007/s00520-021-06683-y ◽

2022 ◽

Author(s):

Jahyun Choi ◽

Sanghee Kim ◽

Mona Choi ◽

Woo Jin Hyung

Keyword(s):

Quality Of Life ◽

Gastric Cancer ◽

Social Support ◽

Cancer Survivors ◽

Functional Status ◽

Self Efficacy ◽

Well Being ◽

Factors Affecting ◽

Specific Symptoms

Abstract Background The number of gastric cancer survivors has been increasing, and such survivors experience various changes in their lives post-recovery. Adapting to these changes requires appropriate interventions that can improve their quality of life (QoL). This study was conducted to investigate the factors affecting the QoL of gastric cancer survivors and provide basic data for effective intervention. Methods Data were collected between September 8 and September 29, 2017, from the Gastric Cancer Center at a tertiary hospital. Questionnaire surveys were conducted using the EORTC QLQ-C30/STO22, Self-Efficacy-Scale, Multidimensional Scale of Perceived Social Support, and Quality of Life-Cancer Survivors Questionnaire on gastric cancer survivors who were followed up for 3 years after gastrectomy. Data were analyzed using descriptive statistics, t test, ANOVA, Pearson’s correlation coefficient, and multiple regression analysis. Results A total of 136 gastric cancer survivors completed the questionnaire survey. There were significant positive correlations of QoL with self-efficacy, functional status, and social support (r = .35, p < .001; r = .53, p < .001; r = .26, p < .001, respectively). There were significant negative correlations of QoL with general symptoms (r = − .39, p < .001) and gastric cancer-specific symptoms (r = − .51, p < .001). The regression model explained 48.3% of the QoL, and the affecting factors were gastric cancer-specific symptoms (β = − .397, p < .001), religious belief (β = .299, p < .001), functional status (β = .251, p = .003), and self-efficacy (β = .191, p = .004). Conclusion This study confirmed that gastric cancer-specific symptoms, spiritual well-being, self-efficacy, and functional status affect the QoL of gastric cancer survivors. Hence, these factors should be considered in the interventions to improve the QoL of gastric cancer survivors.

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FACTORS AFFECTING QUALITY IMPROVEMENT OF LIFE IN PATIENTS WITH POST-TRANSFEMORAL AMPUTATION

Asian Journal of Pharmaceutical and Clinical Research ◽

10.22159/ajpcr.2019.v12i10.35136 ◽

2019 ◽

pp. 181-183

Author(s):

NUR RACHMAT ◽

MOHAMMAD FANANI ◽

DARSONO DARSONO ◽

SUWARTO SUWARTO

Keyword(s):

Quality Of Life ◽

Social Support ◽

Self Efficacy ◽

Well Being ◽

Subjective Well Being ◽

Significant Positive Effect ◽

Transfemoral Amputation ◽

Factors Affecting ◽

Positive Effect

Objective: The study aims to investigate the contributions of self-efficacy, motivation, religiosity, social support, optimism, and subjective well-being as factors affecting quality of life on individuals with transfermoral amputation. Through empowerment, it is expected that there will be an increase in independence and socioeconomy. The ultimate goal of the empowerment process is for independence. Methods: This study used observational analytic with cross-sectional approach. The sample in this study was 110 post-transfemoral amputation patients. Data taken from questionnaires of self-efficacy, motivation, religiosity, social support, optimism, subjective well-being and quality of life were analyzed using structural equation modeling. Results: There was no influence of motivation on quality of life (critical ratio [CR]=0.535 <1.96; p=0.592 <0.05). There was a statistically significant positive effect of self-efficacy on quality of life (CR=3.082> 1.96; p=0.002 <0.05). There was a statistically significant positive effect of religiosity on quality of life (CR=2.919> 1.96; p=0.004 <0.05). There was no influence from social support for quality of life (CR=0.082 <1.96; p=0.935 <0.05). There was a statistically significant positive effect of optimism on quality of life (CR=2.307> 1.96; p=0.021 <0.05). There was a statistically significant positive effect of subjective well-being on quality of life (CR=2.089> 1.96; p=0.037 <0.05). Conclusion: The quality of life of patients with post-transfemoral amputation is positively and significantly influenced by optimism, religiosity, self-efficacy, and subjective well-being.

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