scholarly journals How COVID-19 Has Affected Caregivers’ Burden of Patients with Dementia: An Exploratory Study Focusing on Coping Strategies and Quality of Life during the Lockdown

2021 ◽  
Vol 10 (24) ◽  
pp. 5953
Author(s):  
Maria Grazia Maggio ◽  
Gianluca La Rosa ◽  
Patrizia Calatozzo ◽  
Adriana Andaloro ◽  
Marilena Foti Cuzzola ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Coping Strategies ◽  
Caregiver Burden ◽  
Health Survey ◽  
Short Form ◽  
Cross Sectional Survey ◽  
High Burden ◽  
People With Dementia ◽  
Avoidance Strategies

COVID-19 has caused a public and international health emergency, leading to isolation and social distancing. These restrictions have had a significant impact on the caregivers of people with dementia, increasing the burden of patient management. The purpose of this study was to investigate the stress perceived by caregivers of patients with Alzheimer’s disease (AD) during the pandemic. We used a cross-sectional survey design to evaluate the caregivers’ psychological responses and coping strategies. Eighty-four caregivers of patients with a diagnosis of AD were involved in this study by completing an online questionnaire. They presented a high perception of stress (the Perceived Stress Scale mean ± DS: 33.5 ± 4.5), and their high burden in caring was mainly related to physical difficulties (Caregiver Burden Inventory–Physical Burden mean ± DS: 15.0 ± 2.1) and perception of loss of time (Caregiver Burden Inventory–Time-dependence Burden mean ± DS: 16.5 ± 1,4). Moreover, caregivers perceived their quality of life as very low (Short Form-12 Health Survey Physical mean ± DS: 13.5 ± 2.7; Short Form-12 Health Survey Mental Health mean ± DS: 16.4 ± 4.2). Finally, we found that participants mostly used dysfunctional coping strategies, such as avoidance strategies (Coping Orientation to Problem Experiences–Avoidance Strategies mean ± DS: 39.5 ± 7.1), but these strategies did not affect the stress level of caregivers. Given that caregivers present a high burden and stress, innovative tools could be a valuable solution to investigate and support their emotional and behavioral status during difficult periods, such as the COVID-19 pandemic.

scholarly journals Health-Related Quality of Life of Older Adults in Costa Rica as Measured by the Short-Form-36 Health Survey

2018 ◽  
Vol 4 ◽  
pp. 233372141878281 ◽  
Author(s):  
Esmeralda Valdivieso-Mora ◽  
Mirjana Ivanisevic ◽  
Leslie A. Shaw ◽  
Mauricio Garnier-Villarreal ◽  
Zachary D. Green ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Costa Rica ◽  
Health Survey ◽  
Short Form ◽  
Health Related Quality ◽  
Short Form 36 ◽  
Related Quality ◽  
Health Related

Abstract 204: Cross-sectional Survey of Quality of Life and Workload Among Japanese Physicians Working in Stroke Care: The Nationwide Survey of Acute Stroke Care Capacity for Proper Designation of Comprehensive Stroke Center in Japan (J-ASPECT) Study

2015 ◽  
Vol 8 (suppl_2) ◽  
Author(s):  
Fumiaki Nakamura ◽  
Kunihiro Nishimura ◽  
Misa Takegami ◽  
Yoshihiro Miyamoto ◽  
Koji Iihara
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Short Form ◽  
Stroke Care ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Neurosurgical Society ◽  
The Mean ◽  
Population Norm

Objective: Approximately 40% of stroke physicians in Japan are in a state of burnout. The quality of life (QOL) of physicians working in stroke care is unclear. We aimed to compare health-related QOL (HRQOL) between physicians working in stroke care and the general population, and to evaluate personal and professional characteristics associated with HRQOL of physicians working in stroke care. Design: Cross-sectional survey. Setting and Participants: All board-certified members of the Japanese Neurosurgical Society and the Societas Neurologica Japonica working in Japan. Main outcome measure: Scores of HRQOL (physical and mental) as assessed by the Short-Form 8 (SF-8). Statistical analysis: We compared scores of physician’s HRQOL with standard values of the general population. Factors associated with HRQOL were identified by multivariable regression analysis with stepwise variable selection. Results: Of 11,211 stroke physicians who received the survey, 2279 (20.3%) completed the surveys. The mean physical QOL score was 49.4 points (95% CI: 49.1 to 49.7), which was similar to the population norm. However, the mean mental QOL score was below the population norm (46.1 points [95% CI: 45.7 to 46.4]), and 20.8% (475/2279) of stroke physicians had a score lower than one standard deviation below the population norm. The physical QOL score was lower in women than in men (coefficient = –1.66 [95% CI: –2.82 to –0.50]). An increase in nights on call per week was associated with a lower physical QOL (each additional 1 time per week = –0.39 [–0.53 to –0.25]), and an increase in mean sleep time was associated with a higher physical QOL score (each additional 1 hour = 0.87 [0.55 to 1.20]). Physicians who worked more than 40 hours per week had a lower mean mental QOL score than those who worked less than 40 hours per week (each additional 10 hour = –0.40 [–0.57 to –0.24]). A higher salary was associated with a higher mental QOL score (lower than $100 000 = reference; $100 000-149 000 = 0.08 [–1.10 to 1.27]; $150 000-199 000 = 0.68 [–0.61 to 1.97]; $200 000 or more = 1.90 [0.46 to 3.34]), and an increase of 1 day off per week was associated with an increase in mental QOL score (each additional 1 day = 0.88 [0.24 to 1.52]). Limitation: This study was based on a cross-sectional design and was thus unable to determine the causal effects of factors. Conclusion: Mental QOL scores of stroke physicians are significantly lower than those of the population norm. Work hours, salary, and numbers of days off are associated with the mental QOL score.

scholarly journals Health-related quality of life in Marfan syndrome: a 10-year follow-up

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Thy Thy Vanem ◽  
Svend Rand-Hendriksen ◽  
Cathrine Brunborg ◽  
Odd Ragnar Geiran ◽  
Cecilie Røe
Keyword(s):  
Quality Of Life ◽  
Marfan Syndrome ◽  
Health Survey ◽  
Short Form ◽  
Physical Domain ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract Background Marfan syndrome, a rare hereditary connective tissue disorder caused by mutations in fibrillin-1, can affect many organ systems, especially the cardiovascular system. Previous research has paid less attention to health-related quality of life and prospective studies on this topic are needed. The aim of this study was to assess changes in health-related quality of life after 10 years in a Norwegian Marfan syndrome cohort. Methods Forty-seven Marfan syndrome patients ≥ 18 years were investigated for all organ manifestations in the 1996 Ghent nosology and completed the self-reported questionnaire, Short-Form-36 Health Survey, at baseline in 2003–2004 and at follow-up in 2014–2015. Paired sample t tests were performed to compare means and multiple regression analyses were performed with age, sex, new cardiovascular and new non-cardiovascular pathology as predictors. Results At 10-year follow-up: a significant decline was found in the physical domain. The mental domain was unchanged. Older age predicted a larger decline in physical health-related quality of life. None of the chosen Marfan-related variables predicted changes in any of the subscales of the Short-Form 36 Health Survey or in the physical or the mental domain. Conclusion Knowledge of decline in the physical domain, not related to organ affections, may be important in the follow-up of Marfan syndrome patients.

A comparison of quality of life in adolescents with epilepsy or asthma using the Short-Form Health Survey (SF-36)

2012 ◽  
Vol 101 (1-2) ◽  
pp. 157-165 ◽  
Author(s):  
Ji Wang ◽  
Yi Wang ◽  
Li Bo Wang ◽  
Hui Xu ◽  
Xiao-lei Zhang
Keyword(s):  
Quality Of Life ◽  
Health Survey ◽  
Short Form ◽  
Short Form Health Survey ◽  
Form Health ◽  
Sf 36 ◽  
Short Form Health

How does the type of thoracotomy affect the patient quality of life? A short form-36 health survey study

Surgery Today ◽  
2013 ◽  
Vol 44 (2) ◽  
pp. 264-270 ◽  
Author(s):  
Timuçin Alar ◽  
Kenan Can Ceylan ◽  
Seyda Ors Kaya ◽  
Serpil Sevinç ◽  
Deniz Sigirli ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Survey ◽  
Short Form ◽  
Survey Study ◽  
Short Form 36

Spirituality and religion in older adults with dementia: a systematic review

2014 ◽  
Vol 27 (5) ◽  
pp. 715-725 ◽  
Author(s):  
Océane Agli ◽  
Nathalie Bailly ◽  
Claude Ferrand
Keyword(s):  
Quality Of Life ◽  
Health Outcomes ◽  
Coping Strategies ◽  
Adult Population ◽  
Religion And Spirituality ◽  
Religion And Health ◽  
Positive Role ◽  
People With Dementia ◽  
Spirituality And Religion

ABSTRACTBackground:Religious and spiritual issues are clearly important to the older adult population and may play a positive role in maintaining health and recovering from illness. This study systematically reviewed the literature examining the effects of religion and spirituality on health outcomes such as cognitive functioning, coping strategies, and quality of life in people with dementia.Methods:First, 51 articles with defined keywords were collected from online databases. Then, using inclusion and exclusion criteria, 11 articles were selected. These were classified according to methodological quality before being analyzed one by one.Results:The findings highlight the benefits of spirituality and religion on health outcomes. Three articles showed that in participants who used their spirituality or religion more, through their faith, their practices and in maintaining social interactions, their cognitive disorders tended to reduce or stabilize. In the other eight articles, use of spirituality or faith in daily life enabled people to develop coping strategies to help accept their disease, maintain their relationships, maintain hope, and find meaning in their lives, thereby improving their quality of life.Conclusions:Spirituality and religion appear to slow cognitive decline, and help people use coping strategies to deal their disease and have a better quality of life. This literature review allows us to take stock of research over the last decade on spirituality/religion and health outcomes. The benefits observed should be considered with caution and included in rigorous experimental research in the future.

Comparing Quality of Life in Cervical Spondylotic Myelopathy with Other Chronic Debilitating Diseases Using the Short Form Survey 36-Health Survey

2017 ◽  
Vol 106 ◽  
pp. 699-706 ◽  
Author(s):  
Taemin Oh ◽  
Renaud Lafage ◽  
Virginie Lafage ◽  
Themistocles Protopsaltis ◽  
Vincent Challier ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Survey ◽  
Cervical Spondylotic Myelopathy ◽  
Short Form

scholarly journals Physical and Mental Impact of Psoriasis Severity as Measured by the Compact Short Form-12 Health Survey (SF-12) Quality of Life Tool

2012 ◽  
Vol 132 (4) ◽  
pp. 1111-1116 ◽  
Author(s):  
Ivan Grozdev ◽  
Douglas Kast ◽  
Lauren Cao ◽  
Diana Carlson ◽  
Prasad Pujari ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Survey ◽  
Short Form ◽  
Life Tool ◽  
Psoriasis Severity

scholarly journals Dynamics of quality of life main parameters in patients with spine tumors underwent surgical treatment

2021 ◽  
Vol 13 (2) ◽  
pp. 44-54
Author(s):  
O. Yu. Shchelkova ◽  
A. K. Valiev ◽  
O. A. Obukhova ◽  
E. B. Usmanova ◽  
D. I. Sofronov
Keyword(s):  
Quality Of Life ◽  
Coping Strategies ◽  
Short Form ◽  
Psychological Characteristics ◽  
Life Questionnaire ◽  
Life Meaning ◽  
Medical Outcomes ◽  
Group Outcomes ◽  
The Individual

In this study we analyzed the quality of life in 62 patients (35.5 % of men and 64.5 % of women; mean age 55 years) who had tumor lesions in different parts of the spine and were treated in the Department of Vertebral Surgery, N.N. Blokhin Russian Cancer Research Center, Ministry of Health of Russia. We assessed the association between the quality of life and psychological characteristics of patients – coping strategies and personal resources. We used a general questionnaire for assessing patients’ quality of life (The Medical Outcomes Study Short Form 36 Items Health Survey) and special questionnaires for cancer patients (Quality of Life Questionnaire – Core 30, QLQ-C30), patients with tumor lesions to the spine (Spine Oncology Study Group Outcomes Questionnaire, SOSG OQ), and psychodiagnostic methods, such as Ways of Coping, Big Five, and Life-meaning Orientations. We have identified an association between the quality of life and all parameters of psychodiagnostic questionnaires, better quality of life correlated with more pronounced psychological characteristics reflecting the maturity of the individual (internality, activity, presence of meaningful goals, ability to seek social support, etc.). Lower personal maturity and poorer constructive coping strategies were associated with worse somatic symptoms and their impact on the quality of life.

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