scholarly journals The Financial Situation of Families and the Quality of Life and Coping with Stress of Children with ASD during the SARS-CoV-2 Pandemic

Risks ◽  
2021 ◽  
Vol 9 (5) ◽  
pp. 95
Author(s):  
Anna Gagat-Matula
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum ◽  
Survey Method ◽  
Coping With Stress ◽  
Financial Situation ◽  
Financial Status ◽  
Children With Asd ◽  
The Family ◽  
And Coping

The aim of the study was to compare children with ASD from families with low and medium financial status in terms of quality of life and coping with stress during the SARS-CoV-2 pandemic and the material status of the family related to their financial situation during the pandemic. The diagnostic survey method was used in the research study. A total of 120 children with autism spectrum disorder (ASD) aged 11–14 years participated in the study. The following tools were used to achieve the goal: Quality of Life of Students by S. Kowalik, “Jak Sobie Radzisz” by Z. Juczyński and N. Ogińska-Bulik and a proprietary questionnaire by the author. The research results indicate that during the SARS-CoV-2 pandemic, children with ASD from families with an average financial status are more satisfied with functioning in the family and more satisfied with themselves than children from families with a low financial status. Moreover, children with ASD from low-status families prefer strategies of focusing on emotions, which are not constructive and make functioning difficult, more often than their peers from families with average financial status. The results of the research show a positive correlation between the quality of life in the dimensions of satisfaction with the family, one’s local environment and oneself and active coping (disposition) and seeking social support; and a negative correlation with the strategy of focusing on emotions (disposition). It is advised that families with children with ASD be supported during the pandemic.

scholarly journals Self-compassion, ego-resiliency, coping with stress and the quality of life of parents of children with autism spectrum disorder

PeerJ ◽  
2021 ◽  
Vol 9 ◽  
pp. e11198
Author(s):  
Anna Pyszkowska ◽  
Kamila Wrona
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Coping With Stress ◽  
Self Compassion ◽  
Children With Asd ◽  
Ego Resiliency

Background The literature shows a fairly coherent picture of the types of difficulties parents face. Adaptive both coping styles and resources, such as self-compassion and ego-resiliency, indicated as important predictors of the quality of life among parents of children with autism spectrum disorder. The aim of the study was to determine the links between self-compassion and ego-resiliency, coping with stress and quality of life among parents of children with autism spectrum disorder in a Polish sample (N = 76). Methods A cross-sectional study was conducted. The CISS, Self-Compassion Scale-Short, Ego-Resiliency Scale, and Quality of Life Questionnaire were used. Results Regression analysis was carried out to address the research question. It was confirmed that both resources studied exhibited negative relations with emotion-oriented coping, while ego-resiliency was also positively correlated with task- and avoidance-oriented strategies. The hierarchical multiple regression conducted in three steps indicated that ego-resiliency (18%) and emotion-oriented (14%) were the strongest predictors of quality of life among parents of children with ASD. Conclusions The obtained results proved that ego-resiliency and a task-oriented coping strategy were important indicators of the quality of life of parents of children with ASD.

scholarly journals Reliability and Validity of the Persian Version of the Quality of Life in Autism Questionnaire (QoLA) - Parent Version in Iranian Mothers

2021 ◽  
Author(s):  
Seyed-Sirvan Hosseini ◽  
Seyedeh Zeinab Beheshti ◽  
Valsamma Eapen ◽  
Amir Almasi-Hashiani ◽  
Saman Maroufizadeh
Keyword(s):  
Quality Of Life ◽  
Convergent Validity ◽  
Reliability And Validity ◽  
Autism Spectrum ◽  
Cronbach’S Alpha ◽  
Cronbach's Alpha ◽  
Persian Version ◽  
Children With Asd ◽  
Confirmatory Factor

Abstract Background: Parents of children with autism spectrum disorder (ASD) are known to poorer quality of life. The Quality of Life in Autism Questionnaire (QoLA) is a commonly used instrument for measuring the quality of life in parents of children with ASD. The aim of this study was to evaluate the reliability and validity of the QoLA in Iranian mothers of children with ASD.Methods: The sample of this methodological study consisted of 88 mothers of children with ASD in Arak, Iran. The data were collected using convenience sampling method between September 2019 and January 2020. A battery of questionnaires was administered to mothers which included the QoLA, Patient Health Questionnaire-9 (PHQ-9), Generalized Anxiety Disorder-7 (GAD-7), and Perceived Stress Scale-4 (PSS-4). Factor structure and internal consistency of the QoLA were examined via confirmatory factor analysis (CFA) and Cronbach’s alpha, respectively. Convergent validity was examined by relationship with WHOQOL-BREF, PHQ-9, GAD-7 and PSS-4.Results: The mean total scores of QoLA Part A and Part B were 86.50 (SD=13.89) and 61.41 (SD=18.21), respectively. Both subscales exhibited good internal validity (with Cronbach’s alpha of 0.899 and 0.950 for Part A and Part B, respectively). The convergent validity of both subscales of QoLA was proved via moderate to strong correlations with measure of the WHOQOL-BREF. In addition, both QoLA Part A and Part B scores were negatively correlated with measures of PHQ-9, GAD-7, and PSS-4. The confirmatory factor analyses provided evidence for unidimensionality of both subscales of QoLA.Conclusion: The Persian version of QoLA displays satisfactory reliability and validity in Iranian mothers of children with ASD.

scholarly journals Fenomenologia da Qualidade de Vida de Mães de Crianças Autistas

2020 ◽  
Vol 26 (2) ◽  
pp. 122-134
Author(s):  
Maria P. M CHAIM ◽  
Sebastião B. C. NETO, ◽  
Aminn y F. PEREIRA, ◽  
Virgínia E. S. M. COSTA
Keyword(s):  
Quality Of Life ◽  
Children With Autism ◽  
Structured Interview ◽  
Autism Spectrum ◽  
Primary Objective ◽  
Public Health Services ◽  
Children With Asd ◽  
The Individual ◽  
Phenomenological Psychopathology

The quality of life (QOL) of mothers of children with autism spectrum disorder (ASD) is related to the symptomatic and idiopathic characteristics of the existential condition of the child and is determined by the subjective understandings attributed according to the individual experience. The primary objective of this article is to describe and understand the subjective constructs about the self-referenced QOL of mothers of children with ASD. It is an empirical study, qualitative and based on a reading of phenomenological psychopathology. Participated 10 mothers of children with ASD, users of public health services in Goiânia. The following instruments were used: a sociodemographic and clinical data questionnaire and a semi-structured interview script about QOL. The interviews were submitted to the construction of thematic categories, according to the methodology of Giorgi (1985), and later were correlated with the existential categories of Augras (2004). It was observed that although a standard is sought to understand QOL, each mother has subjective factors that reflect in her way of experiencing the condition of being a mother of a child with special needs. It is concluded that it is the science, when seeking to understand the quality of life of people with similar characteristics, to consider the relevance of the subjective aspects and the meaning that each mother constructs of its own reality.

The quality of life in parents raising children with an autism spectrum disorder from Poland, Belarus and France

2016 ◽  
Vol 6 (1) ◽  
pp. 102-107
Author(s):  
A. Ślifirczyk ◽  
E. Krajewska - Kułak ◽  
A. Brayer ◽  
M. Sobolewski ◽  
E. Maciorkowska
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
World Health ◽  
World Health Organization Quality ◽  
Raising Children ◽  
Children With Asd ◽  
Health Organization

Purpose: To assess the health-related quality of life (HRQL) in parents of children with autism spectrum disorder (ASD). Materials and methods: The sample consisted of 83 families with children with ASD, including 30 families from Poland, 25 from Belarus, and 28 from France. Parental HRQL was surveyed with the World Health Organization Quality of Life–BREF (WHOQOL–BREF) and KINDLR questionnaires. Results: This study showed that Polish parents reported the lowest quality of life according to the WHOQOL–BREF. Parents from Belarus reported slightly worse HRQL than parents from France, though other aspects of quality of life (e.g, social sphere, somatic sphere) did not differ significantly between these parents. Parents from Poland also reported lower HQOL according to the KINDLR questionnaire, while parents from Belarus had a higher HQRL in the mental, physical, and self-esteem domains compared to parents from Poland and France. Conclusion: Parents from Poland with children with ASD reported lower HRQL both on the WHOQOL–BREF and KINDL R questionnaires compared to parents from Belarus and France.

scholarly journals The Role of Stress Perception and Coping with Stress and the Quality of Life Among Multiple Sclerosis Patients

2021 ◽  
Vol Volume 14 ◽  
pp. 805-815
Author(s):  
Aleksandra Kołtuniuk ◽  
Magdalena Kazimierska-Zając ◽  
Kinga Cisek ◽  
Justyna Chojdak-Łukasiewicz
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Coping With Stress ◽  
Stress Perception ◽  
Multiple Sclerosis Patients ◽  
And Coping

Quality of life among parents of South African children with autism spectrum disorder

2018 ◽  
Vol 30 (4) ◽  
pp. 226-231 ◽  
Author(s):  
Ayman Alhazmi ◽  
Reneva Petersen ◽  
Kirsten A Donald
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
South African ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Life Assessment ◽  
Children With Asd ◽  
The Mean

AbstractObjectiveTo describe the quality of life (QOL) of South African parents caring for children with autism spectrum disorder (ASD) as compared with parents of typically developing (TD) children from the same community.MethodsA cross-sectional study was done evaluating the QOL of parents of 52 children (26 parents of children with ASD versus 26 parents of TD children) using a structured measure, (World Health Organization Quality of Life Assessment-BREF).ResultsThe mean age of the children with ASD was 64.9 months (SD 14.5) versus 60.1 months (SD 13.5) for TD group. There was a male predominance among group of children with ASD (48 boys, four girls). The mean parental age of the ASD group was 32.9 years (SD 7.8) compared with 33.8 years (SD 6.8) for the TD group. As compared with parents of the TD children, parents of children with ASD had lower mean QOL scores in the four QOL domains: physical, psychological, social and environmental health (p<0.0001). the domain where the discrepancy between groups was greatest was the physical domain Where the mean score was 52.1 (SD 18.7) in the ASD group and 92 (SD 10.4) in the TD group. Lower income, severity level of ASD and lack of access to school placement of children with ASD were found significantly associated with parents’ QOL domains.ConclusionQOL of parents of children with ASD is significant lower than that of the parents of their TD peers across all domains and is an important component in management of the family which needs to be explored and addressed.

scholarly journals Leisure and Quality of Life among Parents of Children with Autism Spectrum Disorder – A Review Based Analysis

2021 ◽  
pp. 176-188
Author(s):  
Menezes Ida Sylvia ◽  
Laveena D’Mello
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Well Being ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Assessment Tools ◽  
Children With Asd ◽  
Quality Life

Purpose: Owing to the time-consuming job of caring for their child's family and friends, parents of children with autism spectrum disorder risk losing family relationships. The main aim was to identify and intervene in the quality of life of parents, the interventions offered to parents as primary caregivers of children with ASD. To explore parents' perspectives on beneficent for children with autism in connection with formative years, resources, and to confront the consequences of upraising a child with ASD. Design/Methodology/Approach: Systematic literature, resulting in the publication of 27 studies that focused on the living standards of parents of children with ASD. Systematic literature scrutiny was performed using the search words "autism spectrum disorder," ‘primary caregiver/ parents/ mother” and "Quality of life" in the electronic databases Research gate, Academia, Google Scholar, and PsycInfo. Findings/Result: QOL autism-specific assessment tools were limited and hence, most studies have employed a general measure tool to assess the influence of the diagnosed disorder on the physical and psychological well-being of parents/caregivers. Originality/Value: The sequel of this study advocate that to date, the appraisal of quality life in parents of children with ASD into clinical practice has been rationalized by the shortage of autism-specific scales. As generically do not catch all pertinent aspects of living with ASD raising the need for immediate measures. Implementing parental interventions in parallel with the child’s interventions may raise QOL. Paper Type: Systematic literature review.

The Capture Gap: Implantable Cardioverter–Defibrillator Quality of Life

2018 ◽  
Vol 29 (2) ◽  
pp. 97-107
Author(s):  
Daniel A. Hopgood ◽  
Richard J. Czosek ◽  
Tamilyn Bakas ◽  
Nicole Garritano ◽  
Gordon L. Gillespie
Keyword(s):  
Quality Of Life ◽  
Implantable Cardioverter Defibrillators ◽  
Semistructured Interview ◽  
Convenience Sample ◽  
Financial Status ◽  
Demographic Questionnaire ◽  
The Family ◽  
The Individual ◽  
Cardioverter Defibrillators

We aimed to compare salient characteristics and antecedents of quality of life (QOL) in adolescents and young adults with implantable cardioverter–defibrillators (ICDs) from qualitative methods with quantitative measurement of QOL and correlations between QOL (PedsQL) and measured participant characteristics. Concurrent parallel mixed methods design was used to collect survey data from the PedsQL electronic health record, demographic questionnaire, and semistructured interview data. A convenience sample of 16 individuals with ICDs, aged 13 to 25 years, was obtained from a tertiary pediatric facility. Overall QOL and subdomains of physical, psychosocial, and academic/work were examined by PedsQL and visual analog scale. Select demographics were collected to develop a participant profile. Females with ICDs appear to be at risk of poor QOL given some unknown factors. Financial status of the individual and the family was positively related to QOL. For new ICD persons involved in physical activities that must be stopped, peer support appears to improve QOL.

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