The Myositis Activities Profile — Initial Validation for Assessment of Polymyositis/Dermatomyositis in the USA

Objective.To evaluate some measurement properties of the Myositis Activities Profile (MAP) in adult patients with polymyositis (PM) and dermatomyositis (DM) in the United States.Methods.To assess content validity, patients with PM/DM rated difficulty and importance of items of the MAP using a visual analog scale (VAS), range 0–10. For construct validity, consecutive patients with PM/DM performed the 6-item core set for disease activity including the manual muscle test (MMT) and the Health Assessment Questionnaire (HAQ), the Functional Index-2 (FI-2; muscle endurance), and the MAP plus disease effect on well-being on a VAS. Item fit within subscales was analyzed by Cronbach’s alpha. Patients with stable disease activity filled out the MAP again 1 week later.Results.The median combined difficulty and importance, 0–10, of the 31 items was 5.00 (range 2.10–5.95). One item was added, giving a 32-item MAP. Correlations between the median of subscales/single items of the MAP and the HAQ and disease effect on well-being were rs = 0.69 and rs = 0.68, respectively, with lower correlations to the MMT (rs = −0.35), and the FI-2 (rs = −0.29 to −0.47) and disease activity measures (rs = 0.36–0.41). Cronbach’s alpha coefficients for the 4 subscales varied between 0.85 and 0.95. Weighted kappa coefficients (Kw) ranged between 0.77 and 0.93 for the 4 subscales and between 0.74 and 0.83 for the 4 single items without systematic variations (p > 0.05).Conclusion.This initial validation of the MAP indicates promising measurement properties for assessing limitations in activities of daily living and participation in patients with PM/DM in the United States.

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Psychometric Properties of the Abbreviated Multidimensional Acculturation Scale and the Multigroup Ethnic Identity Measure With Japanese Sojourners

Assessment ◽

10.1177/1073191115601208 ◽

2016 ◽

Vol 24 (1) ◽

pp. 104-114 ◽

Cited By ~ 4

Author(s):

Makoto Miyoshi ◽

Kimberly Asner-Self ◽

Sheng Yanyan ◽

Jennifer M. Koran

Keyword(s):

United States ◽

Ethnic Identity ◽

Construct Validity ◽

Psychometric Properties ◽

Factor Structure ◽

Japanese Version ◽

The United States ◽

Cronbach’S Alpha ◽

Cronbach's Alpha ◽

Multigroup Ethnic Identity Measure

The current study examined psychometric properties of the Japanese version of Abbreviated Multidimensional Acculturation Scale (AMAS-ZABB-JP) and the 20-item Multigroup Ethnic Identity Measure (MEIM-JP) with 273 Japanese sojourners and immigrants to the United States. The theoretical six-factor structure for the AMAS-JP and two-factor structure for the MEIM-JP was consistent with the literature. The subscales of the AMAS and MEIM showed expected patterns of correlation with each other and with additional variables (i.e., number of years in the United States), providing evidence for construct validity. Cronbach’s alpha reflected high levels of reliability for both scales. Despite strong psychometric findings, there were translational and cultural-based findings that suggest the need for further research.

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Adaptation of the Multidimensional Pain Evaluation Scale: A Cross-Cultural Study

Journal of Nursing Measurement ◽

10.1891/1061-3749.27.3.363 ◽

2019 ◽

Vol 27 (3) ◽

pp. 363-383

Author(s):

Talita de Cassia Raminelli da Silva ◽

Simone Saltareli ◽

Rodrigo Ramon Falconi Gomez ◽

Lenny Chiang-Hanisko ◽

Fatima Aparecida Faleiros Sousa

Keyword(s):

United States ◽

Cultural Adaptation ◽

The United States ◽

Cross Cultural ◽

Cronbach’S Alpha ◽

Cross Cultural Adaptation ◽

Cronbach's Alpha ◽

Pain Evaluation ◽

Culturally Adapted ◽

Back Translation

Background and PurposeInstruments to measure pain must be cross-culturally adapted through rigorous processes, so they can provide equivalence of measure regardless of the context in which they are applied. The study aim was to perform a cross-cultural adaptation of Multidimensional Pain Evaluation Scale (MPES) for use in the United States.MethodsCross-cultural adaptation study entailed translation, back translation, and review by a committee, face and content validity and pilot testing with 90 participants with acute or chronic pain from United States. The Cronbach's alpha coefficient was calculated.ResultsSome items of MPES was changed to maintain the highest level of similarity between the original scales in Portuguese and adapted to English.ConclusionThe Cronbach's alpha was high showed this scale has internal consistency and reliability.

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COVID-19 Exposure and Family Impact Scales: Factor Structure and Initial Psychometrics

Journal of Pediatric Psychology ◽

10.1093/jpepsy/jsab026 ◽

2021 ◽

Author(s):

Anne E Kazak ◽

Melissa Alderfer ◽

Paul T Enlow ◽

Amanda M Lewis ◽

Gabriela Vega ◽

...

Keyword(s):

Factor Structure ◽

Well Being ◽

The United States ◽

Underlying Structure ◽

Family Impact ◽

Process Data ◽

Cronbach’S Alpha ◽

Validation Data ◽

Cronbach's Alpha ◽

The Impact

Abstract Objective In response to the rapidly unfolding coronavirus disease 2019 (COVID-19) pandemic in spring 2020, we developed a caregiver-report measure to understand the extent to which children and families were exposed to events related to COVID-19 and their perceptions of its impact. This article reports on the factor structure and psychometric properties of this measure. Methods The COVID-19 Exposure and Family Impact Scales (CEFIS) were developed by a multidisciplinary, multi-institutional team using a rapid iterative process. Data from 1805 caregivers recruited from 28 programs at 15 institutions across the United States were collected from May—September 2020. We examined the underlying structure of the CEFIS using exploratory factor analyses and its internal consistency (Cronbach’s alpha). Results Participants reported a range of COVID-19-related events (M = 8.71 events of 25). On the bidirectional 4-point impact scale, mean scores were mostly above the midpoint, indicating a slightly negative impact. Cronbach’s alpha was excellent for Exposure (α = .80) and Impact (α = .92). Factor analysis identified six factors for Exposure (COVID-19 experiences, Access to essentials, Disruptions to living conditions, Loss of income, Family caregiving and activities, and Designation as an essential worker). There were three factors for Impact (Personal well-being, Family interactions, and Distress). Discussion The CEFIS has strong factors assessing Exposure to events related to COVID-19, and the Impact of these events on families of children in pediatric healthcare. These initial validation data support use of the CEFIS for measuring the effect of the pandemic.

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Development of a Patient Reported Measure of Experimental Transplants with HIV and Ethics in the United States (PROMETHEUS)

Journal of Patient-Reported Outcomes ◽

10.1186/s41687-021-00297-y ◽

2021 ◽

Vol 5 (1) ◽

Author(s):

Shanti Seaman ◽

Diane Brown ◽

Ann Eno ◽

Sile Yu ◽

Allan B. Massie ◽

...

Keyword(s):

United States ◽

Clinical Trial ◽

Reliability And Validity ◽

The United States ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Cronbach’S Alpha ◽

Cronbach's Alpha ◽

Patient Reported ◽

Decision Satisfaction

Abstract Background Transplantation of HIV-positive (HIV+) donor organs for HIV+ recipients (HIV D+/R+) is now being performed as research in the United States, but raises ethical concerns. While patient-reported outcome measures are increasingly used to evaluate clinical interventions, there is no published measure to aptly capture patients’ experiences in the unique context of experimental HIV D+/R+ transplantation. Therefore, we developed PROMETHEUS (patient-reported measure of experimental transplants with HIV and ethics in the United States). To do so, we created a conceptual framework, drafted a pilot battery using existing and new measures related to this context, and refined it based on cognitive and pilot testing. PROMETHEUS was administered 6-months post-transplant in a clinical trial evaluating these transplants. We analyzed data from the first 20 patient-participants for reliability and validity by calculating Cronbach’s alpha and reviewing item performance characteristics. Results PROMETHEUS 1.0 consisted of 29 items with 5 putative subscales: Emotions; Trust; Decision Making; Transplant; and Decision Satisfaction. Overall, responses were positive. Cronbach’s alpha was > 0.8 for all subscales except Transplant, which was 0.38. Two Transplant subscale items were removed due to poor reliability and construct validity. Conclusions We developed PROMETHEUS to systematically capture patient-reported experiences with this novel experimental transplantation program, nested it in an actual clinical trial, and obtained preliminary data regarding its performance.

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Dialectical Thinking and Psychological Well-Being in Morocco, China, and the United States

PsycEXTRA Dataset ◽

10.1037/e562052014-001 ◽

2014 ◽

Author(s):

Cassidy Bibo ◽

Julie Spencer-Rodgers ◽

Benaissa Zarhbouch ◽

Mostafa Bouanini ◽

Kaiping Peng

Keyword(s):

United States ◽

Well Being ◽

The United States ◽

Dialectical Thinking ◽

Psychological Well Being

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Perception of Mothers among Cerebral Palsy Children with Disabilities in Tamil Nadu, India

International Journal of Research in Pharmaceutical Sciences ◽

10.26452/ijrps.v11i3.2468 ◽

2020 ◽

Vol 11 (3) ◽

pp. 3349-3354

Author(s):

Elanchezhian Chinnavan ◽

Swarna kumari P

Keyword(s):

Cerebral Palsy ◽

Health Status ◽

Parental Stress ◽

Tamil Nadu ◽

Children With Disabilities ◽

Community Support ◽

Well Being ◽

Study Data ◽

Cronbach’S Alpha ◽

Cronbach's Alpha

The purpose of the study is to check the perception of mothers of cerebral palsy children with disabilities in Tamil Nadu. Data, from India, on perceptions about Cerebral palsy disability are scant. This study explored mother’s knowledge, social well-being and awareness of treatment rendered. During the development of the questionnaire, review of the literature has been primarily made; during developing the questionnaire personal and social values were considered. The questionnaire was emerged with 9 themes, Knowledge of disability condition, Parental stress, Community support, Child ability, Mothers Confidence, Improvement, Health status, Benefits & Belief. Data were collected from mothers of both male and female children with cerebral palsy aged between 1 to 18 years. 220 mothers, averaged 33.44 + 6.14years, of children with CP were randomly selected for this study. Data was collected from mothers attending rehabilitation centers from different institution and special schools in Tamil Nadu. Mothers can hold both a fatalistic view of disability and a belief in the course of disability.The raw data was tabulated and analyzed by using SPSS 17 version software. Cronbach’s Alpha was calculated, the results showed that its Cronbach’s Alpha was extremely good (r=0.96). Our results suggest that there is significance difference with in the mother’s perception towards types of disability in Parental stress, child’s ability, mother’s confidence, improvement, health status, benefits and belief.Mothers should be motivated to maximize rehabilitation services in order to improve their children’s functional capacity. The appreciation of this phenomenon could move towards a model for the delivery of rehabilitation that integrates and harmonizes such beliefs.

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The link between coronavirus, anxiety, and religious beliefs in the United States and United Kingdom

10.31234/osf.io/wykeq ◽

2020 ◽

Cited By ~ 1

Author(s):

Francesco Rigoli

Keyword(s):

United States ◽

United Kingdom ◽

Religious Beliefs ◽

Well Being ◽

The United States ◽

Christian Faith ◽

Stressful Event ◽

Cultural Implications ◽

The Impact

Research has shown that stress impacts on people’s religious beliefs. However, several aspects of this effect remain poorly understood, for example regarding the role of prior religiosity and stress-induced anxiety. This paper explores these aspects in the context of the recent coronavirus emergency. The latter has impacted dramatically on many people’s well-being; hence it can be considered a highly stressful event. Through online questionnaires administered to UK and USA citizens professing either Christian faith or no religion, this paper examines the impact of the coronavirus crisis upon common people’s religious beliefs. We found that, following the coronavirus emergency, strong believers reported higher confidence in their religious beliefs while non-believers reported increased scepticism towards religion. Moreover, for strong believers, higher anxiety elicited by the coronavirus threat was associated with increased strengthening of religious beliefs. Conversely, for non-believers, higher anxiety elicited by the coronavirus thereat was associated with increased scepticism towards religious beliefs. These observations are consistent with the notion that stress-induced anxiety enhances support for the ideology already embraced before a stressful event occurs. This study sheds light on the psychological and cultural implications of the coronavirus crisis, which represents one of the most serious health emergencies in recent times.

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Consular Protection and Solidarity across Borders

10.1093/oso/9780190688578.003.0004 ◽

2018 ◽

Author(s):

Alexandra Délano Alonso

Keyword(s):

United States ◽

Latin American ◽

Legal Status ◽

Well Being ◽

The United States ◽

Migrant Populations ◽

Policy Goals ◽

Large Populations ◽

Mexican Government ◽

Working Together

This chapter demonstrates how Latin American governments with large populations of migrants with precarious legal status in the United States are working together to promote policies focusing on their well-being and integration. It identifies the context in which these processes of policy diffusion and collaboration have taken place as well as their limitations. Notwithstanding the differences in capacities and motivations based on the domestic political and economic contexts, there is a convergence of practices and policies of diaspora engagement among Latin American countries driven by the common challenges faced by their migrant populations in the United States and by the Latino population more generally. These policies, framed as an issue of rights protection and the promotion of migrants’ well-being, are presented as a form of regional solidarity and unity, and are also mobilized by the Mexican government as a political instrument serving its foreign policy goals.

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