Perception of Mothers among Cerebral Palsy Children with Disabilities in Tamil Nadu, India

2020 ◽  
Vol 11 (3) ◽  
pp. 3349-3354
Author(s):  
Elanchezhian Chinnavan ◽  
Swarna kumari P

The purpose of the study is to check the perception of mothers of cerebral palsy children with disabilities in Tamil Nadu. Data, from India, on perceptions about Cerebral palsy disability are scant. This study explored mother’s knowledge, social well-being and awareness of treatment rendered. During the development of the questionnaire, review of the literature has been primarily made; during developing the questionnaire personal and social values were considered. The questionnaire was emerged with 9 themes, Knowledge of disability condition, Parental stress, Community support, Child ability, Mothers Confidence, Improvement, Health status, Benefits & Belief. Data were collected from mothers of both male and female children with cerebral palsy aged between 1 to 18 years. 220 mothers, averaged 33.44 + 6.14years, of children with CP were randomly selected for this study. Data was collected from mothers attending rehabilitation centers from different institution and special schools in Tamil Nadu. Mothers can hold both a fatalistic view of disability and a belief in the course of disability.The raw data was tabulated and analyzed by using SPSS 17 version software. Cronbach’s Alpha was calculated, the results showed that its Cronbach’s Alpha was extremely good (r=0.96). Our results suggest that there is significance difference with in the mother’s perception towards types of disability in Parental stress, child’s ability, mother’s confidence, improvement, health status, benefits and belief.Mothers should be motivated to maximize rehabilitation services in order to improve their children’s functional capacity. The appreciation of this phenomenon could move towards a model for the delivery of rehabilitation that integrates and harmonizes such beliefs.

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Arndt Büssing ◽  
Daniela Rodrigues Recchia ◽  
Rudolf Hein ◽  
Thomas Dienberg

Abstract Background During the COVID-19 pandemic, most people had to cope with the restrictions of the lockdown, leaving them to their fears, insecurity and isolation. On the other hand, due to the unexpected ‘extra time’ there was room for new experiences and for personal reflections on what is essential in life, to perceive nature and relations more consciously etc. We, therefore, intended to analyze perceived changes of attitudes and behaviors during the time of lockdown, and whether these perceptions would contribute to personal wellbeing during the pandemic. Methods An anonym cross-sectional online survey was performed for data collection, using standardized questionnaires, i.e., the WHO-Five Well-being Index (WHO-5), Brief Multidimensional Life Satisfaction Scale (BMLSS), Awe/Gratitude scale (GrAw-7), and the newly developed Perceived Changes Questionnaire (PCQ). Results Within the number of respondents (n = 1277), women were predominating (67.5%). Participants’ mean age was 50.9 ± 14.9 years. Exploratory factor analyses showed that the 24-item Perceived Changes Questionnaire differentiated five factors that would account for 61% of variance: (1) Nature/Silence/Contemplation (Cronbach’s alpha = .87), (2) Spirituality (Cronbach’s alpha = .83), (3) Relationships (Cronbach’s alpha = .80), (4) Reflection on life (Cronbach’s alpha = .74), (5) Digital media usage (Cronbach’s alpha = .74). Strongest changes were observed for Relationships and Nature/Silence/Contemplation. Perceived changes were stronger among older persons, among persons with higher wellbeing, and among those who relied on their faith as a resource. These changes were predicted best by a person’s perception of wondering awe in distinct situations with subsequent feelings of gratitude. Stepwise regression analyzes revealed that participants’ wellbeing was explained best by low perceived burden and high life satisfaction (R2 = .46). Awe/gratitude, perceived changes in terms of Nature/Silence/Contemplation and low Reflections of live are further variables that would predict a person’s wellbeing among the COVID-19 pandemic. Conclusions During the Corona pandemic, people tried to find ways to adapt to the outcomes of the restrictions. The perceived changes of attitudes and behaviors can be interpreted in terms of a reappraisal strategy. These can be measured with the extended version of the PCQ which was found to have good quality indices and a plausible factor structure. The reported changes contribute to persons’ wellbeing only to some extend, indicating that they represent an independent quality of relevance in peoples’ life.


2017 ◽  
Vol 4 (1) ◽  
Author(s):  
Ni Luh Komang Apsaryanthi ◽  
Made Diah Lestari

Psychological well-being menunjukkan kondisi mental yang sehat yang ditandai dengan adanya kebahagiaan, mampu menghadapi tantangan atau masalah dan menggunakan potensi yang dimiliki dengan optimal. Psychological well-being penting dimiliki oleh para ibu. Peran ibu dapat dibedakan menjadi ibu rumah tangga dan ibu bekerja. Ibu rumah tangga akan fokus dan memiliki lebih banyak waktu dalam melaksanakan perannya dalam keluarga, sedangkan ibu bekerja harus mampu mengatur waktu untuk melaksanakan peran dalam keluarga dan juga peran dalam pekerjaannya. Perbedaan peran dan tanggung jawab antara ibu rumah tangga dan ibu bekerja dapat mempengaruhi psychological well-being. Penelitian ini bertujuan untuk mengetahui perbedaan tingkat psychological well-being pada ibu rumah tangga dengan ibu bekerja di Kabupaten Gianyar. Subjek dalam penelitian ini berjumlah 200 individu yang terdiri dari 100 ibu rumah tangga dan 100 ibu bekerja. Metode pengambilan data menggunakan skala psychological well-being dengan koefisien Cronbach’s Alpha (a=0,877). Analisis statistik yang digunakan adalah Independent Sample T-Test. Hasil dari uji analisis data yaitu terdapat nilai signifikansi p=0,000 (p<0,05). Hasil dari penelitian ini menunjukkan bahwa terdapat perbedaan psychological well-being pada ibu rumah tangga dengan ibu bekerja di Kabupaten Gianyar. Kata Kunci : psychological well-being, ibu rumah tangga, ibu bekerja


2012 ◽  
Vol 39 (11) ◽  
pp. 2134-2141 ◽  
Author(s):  
HELENE ALEXANDERSON ◽  
ANN M. REED ◽  
STEVEN R. YTTERBERG

Objective.To evaluate some measurement properties of the Myositis Activities Profile (MAP) in adult patients with polymyositis (PM) and dermatomyositis (DM) in the United States.Methods.To assess content validity, patients with PM/DM rated difficulty and importance of items of the MAP using a visual analog scale (VAS), range 0–10. For construct validity, consecutive patients with PM/DM performed the 6-item core set for disease activity including the manual muscle test (MMT) and the Health Assessment Questionnaire (HAQ), the Functional Index-2 (FI-2; muscle endurance), and the MAP plus disease effect on well-being on a VAS. Item fit within subscales was analyzed by Cronbach’s alpha. Patients with stable disease activity filled out the MAP again 1 week later.Results.The median combined difficulty and importance, 0–10, of the 31 items was 5.00 (range 2.10–5.95). One item was added, giving a 32-item MAP. Correlations between the median of subscales/single items of the MAP and the HAQ and disease effect on well-being were rs = 0.69 and rs = 0.68, respectively, with lower correlations to the MMT (rs = −0.35), and the FI-2 (rs = −0.29 to −0.47) and disease activity measures (rs = 0.36–0.41). Cronbach’s alpha coefficients for the 4 subscales varied between 0.85 and 0.95. Weighted kappa coefficients (Kw) ranged between 0.77 and 0.93 for the 4 subscales and between 0.74 and 0.83 for the 4 single items without systematic variations (p > 0.05).Conclusion.This initial validation of the MAP indicates promising measurement properties for assessing limitations in activities of daily living and participation in patients with PM/DM in the United States.


Author(s):  
Reza OMANI-SAMANI ◽  
Saman MAROUFIZADEH ◽  
Amir ALMASI-HASHIANI ◽  
Mahdi SEPIDARKISH ◽  
Payam AMINI

Background: Infertility is a public health problem and can lead to depressive symptoms. In recent years, the WHO-five Well-being Index (WHO-5) has been used as a screening measure for depression, but study on psychometric properties in people with infertility is scarce. The objective of this study was to examine the reliability and validity of the Persian version of the WHO-5 in people with infertility. Methods: Overall, 539 infertile patients from a referral infertility center in Tehran, Iran in the period between May and Aug 2017, completed the WHO-5, along with other psychological measures: the Patient Health Questionnaire-9 (PHQ-9) and the Hospital Anxiety and Depression Scale (HADS). Construct validity and internal consistency of WHO-5 were evaluated using confirmatory factor analysis (CFA) and Cronbach’s alpha, respectively. Convergent validity was examined by relationship with PHQ-9 and HADS. Results: The prevalence of poor well-being was 44.3% and that of depression was 18.6%. CFA confirmed the unidimensional factor structure of the WHO-5. Internal consistency of the WHO-5 was good (Cronbach’s alpha=0.858). The WHO-5 significantly correlated with the PHQ-9 (r=-0.522), HADS-anxiety (r=-0.524) and HADS-depression (r=-0.630), confirming convergent validity. Conclusion: The WHO-5 is a short and easy to use questionnaire with satisfactory reliability and validity that appears suitable for use as a screening test for depressive symptom in infertile people. In addition, the prevalence of depression and poor well-being was very high in this population.


2014 ◽  
Vol 16 (4) ◽  
pp. 489-507 ◽  
Author(s):  
Rajkishor Meher ◽  
Rajendra Prasad Patro

Health is an essential component of economic development and there is a strong correlation between health of human population and societal well-being. We cannot just think of the development of the human capital without the development of health and education of the people. However, it is found that although India has made large gains on the health front of its population, there exist wide variations between and within states. While states such as Kerala, Punjab and Tamil Nadu have a very developed health sector and the health indicators of these states are comparable to those of developed middle-income countries, states such as Bihar, Jharkhand, Madhya Pradesh, Chhattisgarh, Uttar Pradesh, Odisha, etc., are almost at the level of Sub-Saharan Africa. By using a few of the key health indicators the present article makes a critical analysis of the health status of people in the 17 major states of India, the ongoing health development programmes and the present state of public health care services in different parts of the country. The article further delves into an arena of specific policy intervention measures that are required to be undertaken in order to increase the health status of people.


2018 ◽  
Vol 19 (4) ◽  
pp. 355-364
Author(s):  
Bosko Nikolic ◽  
Slobodan M. Jankovic

Abstract Patient satisfaction is a key indicator to assess the quality of gastrointestinal endoscopy. The aim of this study was to examine the Serbian translation and cross-cultural validation of the questionnaire for the assessment of satisfaction in patients who underwent gastrointestinal endoscopy. After obtaining the consent of the author of the original questionnaire, translation and cross-cultural validation of the GESQ (Gastrointestinal Endoscopy Satisfaction Questionnaire) were carried out in accordance with the conductors of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR). The study was conducted in the Center for Gastroenterohepatology (GEH) of the Kragujevac Clinical Center and included 165 patients. The reliability of the Serbian translation of the GESQ was estimated by calculating Cronbach’s alpha for the whole questionnaire in order to implement the structural validation. The overall score of the questionnaire was compared and correlated with the total scores on the Short Subjective Well-being scale (KSB) and visual analogue scale (VAS), which were administered to the same patients. The Serbian translation of the GESQ showed high reliability with a Cronbach’s alpha coefficient of 0.763, good structure and homogeneity by randomly sharing the questionnaire into two parts. Exploratory factor analysis indicated the existence of four factors that explain 57.200% of the variability. The Serbian version of the GESQ showed similar psychometric characteristics to the original English questionnaire, with a similar factor structure, and represented a valid, reliable and acceptable tool for the assessment of patient satisfaction with the endoscopic examination of the digestive tract.


2018 ◽  
Vol 28 (3) ◽  
pp. 307-315 ◽  
Author(s):  
Glauco M. da Silva ◽  
Marcos V. M. de Lima ◽  
Marcos C. Araripe ◽  
Suleima Pedroza Vasconcelos ◽  
Simone Perufo Opitz ◽  
...  

Introduction: The safety culture of the patient is a contributing factor for the maintenance of the user’s well-being in the health system because, through it, an organized systematization and quality of patient care are obtained, preventing possible intercurrences that can cause damages. Objective: To analyze the Patient Safety Culture (PSC) from the perspective of health professionals at the Reference Hospital of the Upper Juruá River, in the Brazilian Western Amazon. Methods: This is a cross-sectional study developed in a medium-sized public hospital in a municipality in Western Amazonia. The Survey for Patient Safety Culture survey of the Agency for Healthcare Research and Quality was applied to 280 professionals from December 2016 to February 2017. Descriptive analysis of the data and the internal consistency of the instrument were performed. Results: The results indicate the best evaluations in the dimensions of Teamwork in the scopes of the units (60%) and Organizational learning (60%). The aspects with the worst results were the dimensions of non-punitive responses to errors (18%) and frequency of events reported (32%). The internal reliability (Cronbach’s Alpha) analysis of the dimensions ranged from 0.35 to 0.90. Conclusion: The "culture of fear" seems to predominate in this hospital, however, the study showed that there is scope for improvement in all dimensions of CSP. The values of Cronbach’s Alpha presented similarity to the results obtained by the validation process.


Author(s):  
Sheetal Kalra ◽  
Puneeta Ajmera ◽  
Joginder Yadav ◽  
Bijender Sindhu ◽  
Sonia Pawaria ◽  
...  

Introduction: Postmenopause is the period when a woman misses her menstrual cycles for the entire year. A host of issues involving health, fitness and psychological problems come up in this phase which effect quality of a life of a woman significantly therefore a substantial degree of care is needed for them. There are various factors that affect the physical and psychological health of postmenopausal women. Aim: To develop a self-structured questionnaire that would identify and address various factors that affect health of postmenopausal women in Gurugram India. Materials and Methods: A thorough literature search related to the subject matter was done along with the interview of researchers working on the health status of postmenopausal women to arrive at a questionnaire, and a pilot study was conducted on 60 postmenopausal women (average age 52±3.44 years) from September 2019 to March 2020. Expert opinion was taken twice before preparing first draft of questionnaire. Questionnaire had 4 sections with questions related to demographic details, medical history, physical activity status and psychological health status. The scores were evaluated and subjected to reliability and validity tests. SPSS software version 20 was used to calculate Cronbach’s alpha value for ensuring reliability of the questionnaire. Results: The questionnaire possesses good content and face validity. Cronbach’s alpha value was 0.772 which indicated acceptable degree of correlation between different items of questionnaire. The final questionnaire consists of 24 questions. Numerical coding of responses was done from 0-2. A score of 0-10, 11-20 and >21 indicated mild, moderate and severe effect respectively on health of postmenopausal women. Conclusion: The questionnaire can be utilised to evaluate factors affecting physical and mental health issues of postmenopausal women.


F1000Research ◽  
2020 ◽  
Vol 9 ◽  
pp. 1138
Author(s):  
Pall Chamroen ◽  
Sim Samphors ◽  
Thiwakorn Rachutorn ◽  
Rebecca S. Dewey ◽  
Vong Pisey

Background:  Migrant workers have become a major issue for Thailand. Most of the migrants are from Myanmar, Cambodia, and Laos. Most are employed in jobs referred to as the “3 Ds”; difficult, dangerous and dirty. However, little is known concerning the living and working conditions, or health-related quality of life of these migrant workers. This study aims to determine factors influencing the quality of life of Cambodian migrant workers in Thailand. Methods: A cross-sectional study was conducted among 1,211 Cambodian migrant workers in Thailand, using multistage random sampling from eight districts of the two provinces (Sa Kaeo and Surin) with a structured questionnaire interview. The WHOQOL-BREF was used to measure Quality of Life (QOL) with Cronbach’s alpha of 0.77. Mental health status was assessed using the Perceived Stress Scale (PSS) and Center for Epidemiological Studies-Depression (CES-D) scale with Cronbach’s alpha of 0.83. Descriptive statistics provide participant characteristics. Multilevel logistic regression (MLR) were used to determine which factors significantly impacted the outcome measures in terms of the adjusted odds ratio (AOR). P<0.05 was considered statistically significant. Results: About one third of these migrant workers had a poor quality of life (34.52%; 95%CI: 31.84-37.20), and had moderate-to-high levels of stress (67.96%; 95%CI: 65.33-70.59), and symptoms of depression (69.69%; 95%CI: 67.10-72.29). After controlling other covariate factors, the factors associated with poor QOL were a high level perceived of stress (AOR=3.64; 95%CI: 2.41-5.49; p<0.001); living with family and relatives (AOR=3.63; 95%CI: CI 2.42-5.45; p<0.001); and housing being provided by their employer (AOR=2.66; 95%CI: 1.74-4.08; p<0.001). Conclusion: Stress was strongly associated with QOL. The living environment was found to be the next most influential factor on QOL. Mental health programs aimed at helping migrant workers to cope with stress and to improve their living conditions will help improve QOL in the target group.


2021 ◽  
Vol 2 ◽  
pp. 29-34
Author(s):  
Istiqomah Istiqomah

Pregnancy is one of the important events in a woman’s life. Having a positive and planned pregnancy will impact the psychological well-being of both mother and baby. This study describes the relationship between the affect and demographics of pregnant adolescents. Respondents consisted of 92 pregnant adolescents (19.6% trimester 1, 41.3% trimester 2 and 39.1% trimester 3), with an age range of 16 to 35 years (M = 18.99, SD = 2.899). Pregnant adolescents were asked to fill in the positive and negative influence scale (PANAS). The correlation coefficient of Cronbach’s alpha for the positive influence scale is 0.845. The correlation coefficient of Cronbach’s alpha for the negative influence scale is 0.676. Researchers used Chi-Square to determine the relationship between positive and negative influences with the demographic characteristics of adolescent mothers. The results of the description of the Positive affect were related to age (Asymp. Sig. = 0.000) and gestational age (Asymp. Sig. = 0.009). In contrast, the Negative affect was related to adolescent education (Asymp. Sig. = 0.013). These results underlie the process of adaptation of adolescent mothers in undergoing a healthy and planned pregnancy.


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