GRAPPA Patient Research Partner Network: Update to the GRAPPA 2020 Annual Meeting

2021 ◽  
pp. jrheum.201680
Author(s):  
Denis P. O’Sullivan ◽  
Ingrid Steinkoenig

Eleven Patient Research Partners (PRPs) attended the virtual Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) 2020 Annual Meeting. PRPs fully participated in the panel discussion at the 2020 GRAPPA Annual Meeting on the topic of the coronavirus disease 2019 (COVID-19; caused by SARS-CoV-2). The members of the PRP group have been involved in many GRAPPA projects over the last year, including work on the GRAPPA–Outcome Measures in Rheumatology (OMERACT) Core Set, GRAPPA’s 2020 Treatment Guidelines update project, and GRAPPA’s Collaborative Research Network project.

2021 ◽  
pp. jrheum.201666
Author(s):  
Kristina Callis Duffin ◽  
Alice B. Gottlieb ◽  
Denis O’Sullivan ◽  
Dafna D. Gladman ◽  
Lynne V. McFarland

The Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) held its annual meeting in 2020 in an online format due to travel restrictions during the coronavirus disease 2019 (COVID‑19; caused by SARS-CoV-2) pandemic. The virtual meeting was attended by 351 rheumatologists, dermatologists, representatives of biopharmaceutical companies, and patient research partners. Similar to previous years, GRAPPA’s annual meeting focused on the 3 overlapping missions of education, research, and clinical care of psoriatic disease. Trainee sessions this year included the annual trainee symposium and a grant-writing workshop. Plenary sessions included updates on COVID-19 and psoriatic disease from multispecialty and patient perspectives, and updates on pustular psoriasis and associated musculoskeletal manifestations. Progress on research and updates were presented for the following groups: Collaborative Research Network, Outcome Measures in Rheumatology (OMERACT) Psoriatic Arthritis Working Group, International Dermatology Outcome Measures, Composite Measures, Education Committee, and Treatment Guidelines. New this year were 3 concurrent workshops on ultrasound assessment of joints and entheses, magnetic resonance imaging of psoriatic arthritis, and pustular psoriasis efficacy endpoints; 6 “Meet the Expert” sessions; and facilitated “poster tours.” In our prologue, we introduce the papers that summarize this meeting.


2021 ◽  
pp. jrheum.201667
Author(s):  
Carmel Stober ◽  
Deepak R. Jadon ◽  
April W. Armstrong ◽  
Vinod Chandran ◽  
Maarten de Wit ◽  
...  

At the 2020 Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA)- Collaborative Research Network (CRN) annual meeting, the GRAPPA-CRN group presented a pilot investigator-initiated study protocol to test electronic case report forms (eCRFs) and proposed Standardized Operating Procedures (SOPs) to evaluate biomarkers of psoriatic arthritis (PsA) associated with axial disease. The progress on 3 studies was also presented: BioDAM PsA (Biomarkers as Predictors of structural DAMage in PsA; to validate soluble biomarkers as predictors of structural damage in PsA), PreventPsA (examining the development of PsA and risk factors among patients with psoriasis and no arthritis), and PredictORPsA (Predicting Treatment respOnse in patients with eaRly PsA; in collaboration with Pfizer using samples from the Oral Psoriatic Arthritis TriaL [OPAL], to identify biomarkers of treatment response). GRAPPA-CRN funding partnerships and applications are also underway with both the Innovative Medicines Initiative (IMI) in Europe and Accelerating Medicines Partnerships (AMP) 2.0 in the USA, and the progress of these applications and associated objectives were presented.


2020 ◽  
Author(s):  
Robert Kaczmarczyk ◽  
Felix Bauerdorf ◽  
Alexander Zink

BACKGROUND Every two years, German-speaking dermatologic specialist groups gather in Berlin to share the latest developments at Germany´s largest dermatologic conference, the Annual Meeting of the Germany Society of Dermatology (DDG). Because this conference has a lasting effect on dermatologic practice and research, understanding what is moving the specialist groups means understanding what is driving dermatology in Germany. OBJECTIVE The objective of the article is to introduce the medical scientific community to a data visualization method, which will help understand more sophisticated data analysis and processing approaches in the future. METHODS We used word network analysis to compile and visualize the information embedded in the contribution titles to the DDG Annual Meeting in 2019. We extracted words, contributing cities and inter-connections. The data was standardized, visualized using network graphs and analyzed using common network analysis parameters. RESULTS A total of 5509 words were extracted from 1150 contribution titles. The most frequently used words were “therapy”, “patients”, and “psoriasis”. The highest number of contributions came from Hamburg, Berlin and Munich. High diversity in research topics was found, as well as a well-connected research network. CONCLUSIONS Focus of the well-connected German-speaking dermatology community meeting 2019 was patient and therapy centered and lies especially on the diseases psoriasis and melanoma. Network graph analysis can provide helpful insights and help planning future congresses. It can facilitate the choice which contributors to include as imbalances become apparent. Moreover, it can help distributing the topics more evenly across the whole dermatologic spectrum.


2013 ◽  
pp. 35-45 ◽  
Author(s):  
J. Muramoto ◽  
S.R. Gliessman ◽  
C. Shennan ◽  
T. Pisani Gareau ◽  
K.L. Monsen ◽  
...  

2013 ◽  
Vol 40 (8) ◽  
pp. 1434-1437 ◽  
Author(s):  
April W. Armstrong ◽  
Joel M. Gelfand ◽  
Wolf-Henning Boehncke ◽  
Ehrin J. Armstrong

At the 2012 annual meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) in Stockholm, Sweden, several GRAPPA members led a panel discussion on cardiovascular (CV) comorbidities of psoriasis and psoriatic arthritis (PsA). The panelists discussed the role of insulin resistance in the pathophysiology of psoriasis, the possible effect of tumor necrosis factor inhibitors on CV comorbidities, and the effect of 12/23 monoclonal antibodies on CV outcomes. The panelists also addressed how lessons from CV comorbidity research could be applied to other areas of comorbidity research in psoriasis and PsA and identified future research directions in this area.


AJIL Unbound ◽  
2014 ◽  
Vol 108 ◽  
pp. 91-92 ◽  
Author(s):  
Vijay Padmanabhan

The joint 108th American Society of International Law (ASIL) Annual Meeting and 76th International Law Association (ILA) Biennial Conference was organized under the theme “The Effectiveness of International Law.” In conjunction with this theme, the ASIL Legal Theory Interest Group hosted a panel discussion exploring the theoretical dimensions of the concept of “effectiveness” as understood in international law. Panelists discussed three related questions: (1)Is the effectiveness of international law an empirical question measured through evaluating compliance with international legal norms?(2)What conceptions of effectiveness might exist beyond compliance? Could such conceptions be captured in theoretical or moral terms?(3)Why is international law concerned with effectiveness at all?


2019 ◽  
Vol 4 (1) ◽  
pp. 304-312 ◽  
Author(s):  
Johanna Olson-Kennedy ◽  
Yee-Ming Chan ◽  
Stephen Rosenthal ◽  
Marco A. Hidalgo ◽  
Diane Chen ◽  
...  

1954 ◽  
Vol 8 (1) ◽  
pp. 133-139

The eighth annual meeting of the Board of Governors of the International Bank for Reconstruction and Development was held in Washington from September 9 to 12, 1953, under the chairmanship of Mohamad Ali, Minister of Finance and Economic Affairs of Pakistan. Two of the six plenary meetings were joint sessions with the Board of Governors of the International Monetary Fund. On September 11 an informal panel discussion was held on the subject of private international investment in under-developed countries.


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