Research Data Access and Management in Modern Libraries

2019 ◽  
Keyword(s):  
Data Access ◽  
Research Data

scholarly journals Symposium: Distributed Networks of Federated Secure Research Data Environments – Enabling Analytics Across Multiple Platforms

2020 ◽  
Vol 5 (5) ◽  
Author(s):  
Matthias Schneider
Keyword(s):  
Population Data ◽  
Data Access ◽  
Distributed Networks ◽  
Research Data ◽  
Data Governance ◽  
Virtual Database ◽  
South Wales ◽  
Challenges And Opportunities ◽  
Storage Location ◽  
Time Required

IntroductionUsers of linked data require access to an increasing number of heterogeneous datasets from diverse domains, often held in different secure research data environments, especially for multi-jurisdictional projects. Under the traditional model of data access, projects are required to transfer and harmonise the necessary datasets in one central location before analysis can be undertaken, increasing the time required for data acquisition and preparation. Objectives and ApproachIn a federated data environment, analysts query distributed datasets held in a network of multiple secure data environments via a central virtual database, without requiring the data to move. Instead, the data is analysed as close as possible to its storage location, minimising the amount of data transfers and giving data custodians more control over their data. This symposium explores the challenges and opportunities of establishing and operating a distributed network of federated secure research data environments. Leading organisations operating data platforms in various jurisdictions present for 15 minutes each the current capabilities of their platforms, the landscape of data environments in their jurisdictions and potential approaches to key questions such as: Harmonising/federating data sources Data security Data governance Discoverability/metadata Performance The audience is the then invited to participate in discussing the topic for the remaining 30 minutes. The following individuals have been approached to represent their organisations in this symposium: Professor David Ford, Swansea University: UK Secure eResearch Platform (UK SErP) Charles Victor, Institute for Clinical Evaluative Sciences (ICES): ICES Data & Analytic Virtual Environment (IDAVE) Professor Louisa Jorm, Centre for Big Data Research in Health, University of New South Wales: E-Research Institutional Cloud Architecture (ERICA) Professor Kimberlyn McGrail, Population Data BC: Secure Research Environment (SRE) Results / Conclusion / ImplicationsThis symposium will help formulate requirements for and barriers to distributed networks of federated secure research data environments, and create a foundation for data analytics across multiple platforms.

scholarly journals Research data access bill issued

10.1038/71588 ◽  
2000 ◽  
Vol 6 (1) ◽  
pp. 8-8
Author(s):  
Alan Dove
Keyword(s):  
Data Access ◽  
Research Data

scholarly journals Publishing descriptions of non-public clinical datasets: guidance for researchers, repositories, editors and funding organisations

2015 ◽  
Author(s):  
Iain Hrynaszkiewicz ◽  
Varsha Khodiyar ◽  
Andrew L Hufton ◽  
Susanna-Assunta Sansone
Keyword(s):  
Clinical Research ◽  
Data Sharing ◽  
Peer Review Process ◽  
Open Data ◽  
Data Access ◽  
Research Data ◽  
Future Research ◽  
Patient Privacy ◽  
Journal Articles ◽  
Data Repositories

AbstractSharing of experimental clinical research data usually happens between individuals or research groups rather than via public repositories, in part due to the need to protect research participant privacy. This approach to data sharing makes it difficult to connect journal articles with their underlying datasets and is often insufficient for ensuring access to data in the long term. Voluntary data sharing services such as the Yale Open Data Access (YODA) and Clinical Study Data Request (CSDR) projects have increased accessibility to clinical datasets for secondary uses while protecting patient privacy and the legitimacy of secondary analyses but these resources are generally disconnected from journal articles – where researchers typically search for reliable information to inform future research. New scholarly journal and article types dedicated to increasing accessibility of research data have emerged in recent years and, in general, journals are developing stronger links with data repositories. There is a need for increased collaboration between journals, data repositories, researchers, funders, and voluntary data sharing services to increase the visibility and reliability of clinical research. We propose changes to the format and peer-review process for journal articles to more robustly link them to data that are only available on request. We also propose additional features for data repositories to better accommodate non-public clinical datasets, including Data Use Agreements (DUAs).

scholarly journals Análisis de los principios para la descripción de datos de investigación mediante Datacite Metadata Schema

2020 ◽  
Vol 23 (1) ◽  
Author(s):  
Eder Ávila-Barrientos
Keyword(s):  
Discourse Analysis ◽  
Open Access ◽  
Data Access ◽  
Research Data ◽  
Data Sets ◽  
Data Repositories ◽  
Metadata Schema ◽  
Acceso Abierto ◽  
Methodological Principles ◽  
Access Policies

El objetivo de este trabajo consiste en analizar los principios teórico-metodológicos relacionados con la descripción de los datos de investigación. Se realizó un análisis sobre el estado de la cuestión de los datos de investigación, en cual se abordan aspectos de su citación, descripción y sistematización. Se identificaron y analizaron los elementos de metadatos para la descripción de conjuntos de datos de investigación que se incluyen en el DataCite Metadata Schema, con el propósito de crear una propuesta de perfil descriptivo aplicable a estos conjuntos. Se estima que, si los datos de investigación se encuentran debidamente descritos, entonces se fomentará en mayor grado su accesibilidad y reutilización. Para ello, es necesario que las instituciones académicas y de investigación participen en la generación de políticas de acceso abierto a sus datos de investigación. The objective of this work is to analyze the theoretical-methodological principles related to the description and accessibility of research data. Hermeneutics and discourse analysis were applied to literature specialized in: research data; access and description of research data; data repositories. Metadata elements for the description of research datasets that are included in the DataCite Metadata Schema were identified and analyzed, in order to create a descriptive profile proposal for research data sets, which can be applied in the data repositories. If the research data is properly described, then its accessibility and reuse will be further promoted. To do this, it is necessary for academic and research institutions to participate in the generation of open access policies for their research data.

scholarly journals A Unique Research Data Infrastructure for Educational Research and Beyond: The National Educational Panel Study

2016 ◽  
Vol 236 (4) ◽  
Author(s):  
Daniel Fuß ◽  
Jutta von Maurice ◽  
Hans-Günther Roßbach
Keyword(s):  
Educational Research ◽  
Large Scale ◽  
Panel Study ◽  
Data Access ◽  
Research Data ◽  
Data Availability ◽  
Background Information ◽  
Data Infrastructure ◽  
Collection Data ◽  
Set Up

AbstractThe article provides an insight into the conceptual and methodological framework as well as the research data infrastructure of the German National Educational Panel Study (NEPS). The NEPS study has been set up to build a profound empirical basis for the description and analysis of educational processes and competence development across the life span. Its large-scale database consists of longitudinal information from more than 60,000 target respondents – distributed over six different starting cohorts ranging from newborns to adults – and from relevant context persons such as parents or teachers. The complex multicohort sequence design schedules annual or even semiannual survey waves including a broad spectrum of competence assessments. All data are thoroughly prepared, documented, and disseminated free of charge in the form of regularly expanded Scientific Use Files. In addition to some background information about NEPS in general, this paper primarily focuses on issues of data collection, data structure, data availability, and the requirements for different types of data access. The number of more than 1,000 data users involved in over 700 research projects so far serves to highlight the potential of NEPS as a unique research data infrastructure for educational research and beyond.

scholarly journals The Data Tags Suite (DATS) model for discovering data access and use requirements

GigaScience ◽  
2020 ◽  
Vol 9 (2) ◽  
Author(s):  
George Alter ◽  
Alejandra Gonzalez-Beltran ◽  
Lucila Ohno-Machado ◽  
Philippe Rocca-Serra
Keyword(s):  
Data Use ◽  
Data Access ◽  
Research Data ◽  
Data Reuse ◽  
Automated Systems ◽  
Data Discovery ◽  
Confidential Data ◽  
Technical Systems ◽  
Access Data ◽  
Existing Data

Abstract Background Data reuse is often controlled to protect the privacy of subjects and patients. Data discovery tools need ways to inform researchers about restrictions on data access and re-use. Results We present elements in the Data Tags Suite (DATS) metadata schema describing data access, data use conditions, and consent information. DATS metadata are explained in terms of the administrative, legal, and technical systems used to protect confidential data. Conclusions The access and use metadata items in DATS are designed from the perspective of a researcher who wants to find and re-use existing data. We call for standard ways of describing informed consent and data use agreements that will enable automated systems for managing research data.

scholarly journals Special Issue: 2018 Research Data Access and Preservation Summit

2018 ◽  
Vol 7 (3) ◽  
pp. e1158
Author(s):  
Tina Griffin ◽  
◽  
Kristin Lee ◽  
Lora Leligdon ◽  
◽  
...  
Keyword(s):  
Data Access ◽  
Research Data ◽  
Special Issue

scholarly journals Data Access for the Social Sciences in Austria. Open Data, Closed Data, Research Infrastructures and Re-Use

2021 ◽  
Vol 50 (1) ◽  
pp. 15
Author(s):  
Matthias Reiter-Pázmándy
Keyword(s):  
Social Sciences ◽  
Research Policy ◽  
Open Data ◽  
Data Access ◽  
Open Science ◽  
Research Data ◽  
The Social ◽  
Research Infrastructures ◽  
Barriers And Challenges ◽  
Access To Data

Open science and open access to research data are important aspects of research policy in Austria. In the last years, the social sciences have seen the building of research infrastructures that generate data and archives that store data. Data standards have been established, several working groups exist and a number of activities aim to further develop various aspects of open science, open data and access to data. However, some barriers and challenges still exist in the practice of sharing research data. One aspect that should be emphasised and incentivised is the re-use of research data.

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