scholarly journals Designing Home Care Reminder Systems: Lessons Learned Through Co-Design with Older Users

Author(s):  
Marilyn McGee-Lennon ◽  
Aidan Smeaton ◽  
Stephen Brewster
2014 ◽  
Vol 8 (2) ◽  
pp. 51-63 ◽  
Author(s):  
Marja Harjumaa ◽  
Igone Idigoras ◽  
Minna Isomursu ◽  
Ainara Garzo

Purpose – The purpose of this paper is to analyse the adoption of a multimodal medication management system (MMS) targeted on older people and home care professionals. The paper aims to describe the expectations of the system and the user experience findings from an empirical qualitative field trial. The field trial results are used to discuss how MMSs should be designed in order to improve adherence to medications. Design/methodology/approach – The paper suggests that building a multimodal medicine management system targeted on both older users and home care professionals brings many benefits over electronic medicine dispenser systems or general reminder systems. The research process uses an iterative prototyping approach including phases of requirements analysis and concept design, prototype building and evaluation in a field trial. Findings – The study demonstrates how a system that merely satisfied users during the prototype building phase does not necessarily succeed as well as expected in the field trials. It would be important to consider reasons for medication non-adherence and non-technology factors influencing willingness to adopt new assistive devices in order to promote diffusion of new MMSs at home. The paper also discusses how the different persuasive functionalities of the system addressed patient-centred factors influencing non-adherence and how they could be addressed. Research limitations/implications – This study has some limitations. The actual adherence to medications was not measured. However, in the future, it will be important to study how the MMSs influence medication adherence. Also, the user experiences of the home care professionals were not studied in the field trials. Home care professionals who were involved in the user studies and trials merely estimated the value for their patients and not for themselves. Originality/value – This paper analyses design issues relevant when designing systems to help older people manage their medications.


2021 ◽  
pp. 147332502110648
Author(s):  
Julia I Bandini ◽  
Julia Rollison ◽  
Jason Etchegaray

Qualitative methods that capture individual lived experiences throughout rapidly changing circumstances are particularly important during public health emergencies. The COVID-19 pandemic has put home care workers at risk as they provide vital services in homes to individuals with chronic conditions or disabilities. Using a 6-week journaling process in which we enrolled participants at different points, we sought to examine experiences of home care workers ( n = 47) in the United States in New York and Michigan during April–July 2020 of the COVID-19 pandemic. Our methods for data collection and analysis were guided by a general qualitative approach as we aimed to examine the weekly perspectives and lived experiences of home care workers. We asked individuals to respond to our journaling prompts weekly to capture their reflections in “real time.” To better understand home care workers’ perspectives on journaling and the broader external context in which they provided care, we triangulated our data with interviews with home care workers ( n = 19) and home health agency representatives ( n = 9). We explored the feasibility of a rolling journaling process during an unprecedented public health emergency, characterized by rapid changes and uncertainty in day-to-day life, and reflect on lessons learned to guide future research on journaling for data collection, particularly for marginalized workers during public health crises, when events are evolving rapidly.


2020 ◽  
Vol 4 (4) ◽  
pp. 479-495
Author(s):  
Anna Dunér ◽  
Gerd Gustafsson

The aim of this article is to describe and analyse how care managers experience and manage the Swedish Free Choice System in relation to older users of home care services with reduced decision-making capacity. The empirical data were generated by focus group interviews with care managers working in local eldercare authorities that had implemented the Free Choice System. The findings reveal that care managers used various strategies, and justifications for them, based on various coexisting logics: the market logic; the logic of public administration; and the logic of care.


Author(s):  
Kathleen Morris ◽  
Brent Diverty ◽  
Natalie Damiano

IntroductionAround the world, the need for mental health, addictions and home care services is growing. Government commitment and collective efforts to bridge data gaps, develop indicators and publicly report results are key elements in Canada’s efforts to improve access. Objectives and ApproachThis symposium will demonstrate how a coalition of stakeholders united to use real-world data to measure progress and drive change. Each presentation highlights a different aspect of the project with participant interaction, aiming for the Canadian context to spark knowledge exchange across sectors and countries: Presentation 1 - Coalitions and consensus (10 min.): processes and engagement for successful collaboration between governments, providers, measurement experts and people with lived experiences to select and develop indicators Facilitated Q&A (5 min.) Presentation 2 - Standards and data infrastructure (10 min.): new standards to enhance data comparability and strengthened data infrastructure to support measurement and reporting Facilitated Q&A (5 min.) Presentation 3 - Indicator development (10 min.): the indicator development cycle, methodological approaches using linked and partial data, and development strategies for new concepts Facilitated Q&A (5 min.) Presentation 4 - Public reporting and policy impact (10 min.): describes how public reporting supports sustained commitments and energizes change using targeted tools and messages Facilitated Q&A (15 min.) ResultsPublic reporting began in 2019, with 3 new indicators released annually over 4 years. Initial reporting provides a baseline to track improvements, and a starting point for health system planners to learn from peers across Canada. The indicators have been a catalyst to fill important data gaps in emergency and home care services. Conclusion / ImplicationsThrough shared priorities, coalitions and linked data, information gaps are being filled to drive advancements in access to mental health and addictions services, and home care. Lessons learned in Canada can be adapted internationally to galvanize needed improvements in these sectors.


Author(s):  
Ryan Olson ◽  
Jennifer Hess ◽  
Kelsey Parker ◽  
Sharon Thompson ◽  
Anjali Rameshbabu ◽  
...  

The COMmunity of Practice And Safety Support (COMPASS) program was developed to prevent injuries and advance the health and well-being of home care workers. The program integrates elements of peer-led social support groups with scripted team-based programs to help workers learn together, solve problems, set goals, make changes, and enrich their supportive professional network. After a successful pilot study and randomized controlled trial, COMPASS was adapted for the Oregon Home Care Commission’s training system for statewide dissemination. The adapted program included fewer total meetings (7 versus 13), an accelerated meeting schedule (every two weeks versus monthly), and a range of other adjustments. The revised approach was piloted with five groups of workers (total n = 42) and evaluated with pre- and post-program outcome measures. After further adjustments and planning, the statewide rollout is now in progress. In the adaptation pilot several psychosocial, safety, and health outcomes changed by a similar magnitude relative to the prior randomized controlled trial. Preliminary training evaluation data (n = 265) show high mean ratings indicating that workers like the program, find the content useful, and intend to make changes after meetings. Facilitating factors and lessons learned from the project may inform future similar efforts to translate research into practice.


2017 ◽  
Vol 39 (4) ◽  
pp. 771-794 ◽  
Author(s):  
ANNA DUNÉR ◽  
PÄR BJÄLKEBRING ◽  
BOO JOHANSSON

ABSTRACTA policy shift has taken place in Sweden towards individualised elder-care and consumer choice. The aim of the study is to investigate how older users of home care services view and experience their opportunities of exerting influence and having choice and control in their everyday living, in terms of receiving preferred services that are flexible and responsive to their actual needs and priorities. The study was conducted in three local elder-care authorities, reflecting diverse present models of organising home care services in Sweden. Data consisted of responses to a postal survey (N = 2,792) and reports from qualitative interviews (N = 28) with older users. Our findings point to similarities rather than differences between the views and experiences of the users in the three participating local municipal elder-care authorities. A majority of users were positive about their home care services. The experiences ranged from being active and enabled to choose between providers and services, to being more or less passive dependants having to rely on the decisions of family and staff. The importance of supportive relationships, and interdependence between older people and their formal as well as informal support networks, became clear. Our findings may guide policy makers in refining home care services, irrespective of preferred model. In particular, efforts to facilitate staff continuity and prevent high staff turnover need to be prioritised.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Darly Dash ◽  
Connie Schumacher ◽  
Aaron Jones ◽  
Andrew P. Costa

Abstract Background Chronic disease management models of care provide an opportunity to assist home care clients to manage their disease burden. However, pragmatic trial management practices and lessons learned from such models are poorly illustrated in the literature. Methods We describe the processes of implementing a community-based cardiorespiratory self-management model, known as DIVERT-CARE, across the home care programs of three health regions in Canada. The DIVERT-CARE model is a multi-component complex intervention that identifies home care clients at the highest risk of deterioration and provides them with resources and capacity to manage their conditions. We conducted a retrospective analysis of baseline participant characteristics, needs assessments, reviewed findings from site visits and a national workshop with study partners, and examined other study documentation. Results Three home care regions in Canada participated in the study. A robust and data-driven review of each site was necessary to understand the local context, home care caseloads, structure of local systems, and intensity of resources, which influenced study processes. The creation of an intervention framework highlighted the need to adapt the intervention in a way that was sensitive to the local context while maintaining intervention outcomes. Conclusion Our detailed review showcases the relevant activities and on-the-ground steps needed to manage and conduct a multi-site pragmatic trial in home care. This example can help other researchers in implementing multi-disciplinary and multi-component care models for practice-based research.


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