Congenital complex disability

2018 ◽  
pp. 209-224
Keyword(s):  
Complex Disability

scholarly journals Restrictive practices on refugees in Australia with intellectual disability and challenging behaviours: a family’s story

2016 ◽  
Vol 10 (4) ◽  
pp. 222-232 ◽  
Author(s):  
Julie King ◽  
Niki Edwards ◽  
Ignacio Correa-Velez ◽  
Rosalyn Darracott ◽  
Maureen Fordyce
Keyword(s):  
Intellectual Disability ◽  
Service Provision ◽  
Service System ◽  
Ethnographic Study ◽  
Refugee Status ◽  
Content Type ◽  
Loved One ◽  
Restrictive Practice ◽  
Complex Disability

Purpose The purpose of this paper is to explore the experiences of a refugee family navigating complex disability and restrictive practice service systems. Living with disability, or caring for someone with disability can compound the disadvantage and marginalisation already experienced by refugees. The nexus between disability and refugee status, particularly intellectual disability and restrictive practices, has received little scholarly attention and almost nothing is known of people’s experiences in this situation. Design/methodology/approach Thematic analysis of a case study is used to illustrate the experiences of a refugee family in this situation. The case study presented was part of a larger ethnographic study exploring the experiences of people of refugee background living with disability. Findings There were numerous barriers to accessing appropriate services. The family experienced high levels of stress simultaneously navigating the resettlement process and the disability service system. They were poorly informed and disempowered regarding the care of their loved one and the use of restrictive practices. Experiences in the country of origin, employment responsibilities, and unfamiliarity with the service system were key factors in this family’s difficulty in safeguarding the rights of their family member with disability. Originality/value This case study examines the complexity experienced when disability intersects with refugee background. Areas for additional research and significant gaps in service provision are identified. The case study clearly demonstrates the importance of understanding people’s pre- and post-settlement experiences to inform policy and service provision.

Fetal Alcohol Syndrome as a complex disability impeding functioning at school among children

2018 ◽  
Vol 571 (6) ◽  
pp. 9-19
Author(s):  
Agnieszka Anna Karłowicz
Keyword(s):  
Fetal Alcohol Syndrome ◽  
Core Curriculum ◽  
Adult Life ◽  
Neurological Damage ◽  
Fetal Alcohol ◽  
Teratogenic Effects ◽  
External Appearance ◽  
Complex Disability ◽  
Overall Functioning ◽  
Huge Challenge

The aim of this article is to present the issue of Fetal Alcohol Syndrome and its impact on the child’s functioning at school. The fact that every third pregnant woman consumes ethanol calls for a discussion. The article describes the teratogenic effects of alcohol on fetal development. It provides information about the physical anomalies both in terms of external appearance and neurological damage, which translate into mental and socio-emotional development of the child. Defi cits resulting from the teratogenic effects of prenatal alcohol consumption affect the overall functioning of the child in the school system. They are often the cause of many failures and even prevent the child from mastering the skills covered by the core curriculum, which does not remain without effect on the adult life. Pedagogical work with children affected by this syndrome is a huge challenge for teachers. It requires them to master the outstanding competence and knowledge of the specifi cs of Fetal Alcohol Syndrome. Therefore it is important to talk about this issue and to increase social awareness of the teratogenic effects of alcohol on the fetus.

Guidelines for the Administration of Medication in School

PEDIATRICS ◽  
1993 ◽  
Vol 92 (3) ◽  
pp. 499-500
Author(s):  
Keyword(s):  
School Board ◽  
Treatment Plan ◽  
School Setting ◽  
School Personnel ◽  
Regular School ◽  
School Superintendent ◽  
Individual School ◽  
Life Threatening ◽  
Medical Advisory Committee ◽  
Complex Disability

Many children and adolescents are able to attend school because of the effectiveness of their medication. The health circumstances requiring medication are diverse. Medication may be essential for continued functioning, either as a component of an elaborate treatment plan for the student with a complex disability or as the only treatment necessary for a student to maintain or regain control of his/her chronic illness. In rare instances medications may be necessary for life-threatening emergencies. For most students, the use of medication will be a convenient benefit to control acute minor or major illnesses, allowing a timely return to the classroom with minimal interference to the student and to others. A student may also symptomatically benefit from nonprescription medications. SCHOOL POLICY The school board and the school superintendent, in conjunction with other school personnel and in collaboration with the physician or medical advisory committee for each school (district), should develop a policy for the administration of medication in the school setting. The guidelines should indicate what age and/or class levels are included, such as kindergarten through grade 12 or, alternatively, separate guidelines for different grades. Individual school districts also should seek the advice of counsel as they assume the responsibility for giving medication during school hours. Liability coverage should be provided for the staff, including nurses, teachers, athletic staff, principals, superintendents, and members of the school board. Any student who must take medication during regular school hours should do so in compliance with the school's regulations. The American Academy of Pediatrics recommends that each school include or consider the following sections in its medication policy.

scholarly journals Integrated treatment of stroke

2015 ◽  
pp. 4-27
Author(s):  
N.K. Svyrydova ◽  
A.S. Lubenets ◽  
A.V. Popov ◽  
N.P. Pavlyuk ◽  
K.M. Usovych ◽  
...  
Keyword(s):  
Ischemic Stroke ◽  
Acute Ischemic Stroke ◽  
Treatment Strategies ◽  
Medical Problem ◽  
Integrated Treatment ◽  
Premature Deaths ◽  
Stroke Disability ◽  
Complex Disability ◽  
Clinical Pictures ◽  
The Brain

Stroke is the second single most common cause of death in the world. Almost 1 in 8 (11.9%) deaths worldwide is caused by stroke. Disability and premature deaths caused by stroke is set to double worldwide by 2030. Acute ischemic stroke (AIS) is characterized by the sudden loss of blood circulation to an area of the brain, resulting in a corresponding loss of neurologic function. Among the major risk factors for stroke are most common: hypertension, diabetes, atrial fibrillation, patent foramen ovale, high cholesterol, sickle cell anemia, smoking, alcohol. Strokes can be divided into 2 types: hemorrhagic or ischemic. Each of these categories can be divided into subtypes that have somewhat different causes, clinical pictures, clinical courses, outcomes, and treatment strategies. Acute ischemic stroke is caused by thrombotic or embolic occlusion of a cerebral artery. Stroke is not only a medical problem, but also social and economic. Stroke is the largest cause of complex disability half of all stroke survivors are left with a disability. The greatest phase of recovery is usually within the first days and weeks after stroke, therefore, treatment and rehabilitation should be carried out from the first minute confirmation of the diagnosis.

scholarly journals Levels of Consumption, Satisfaction and Symptoms Relating to Two Types of Meals with Modified Texture in Dysphagic Subjects (P01-004-19)

2019 ◽  
Vol 3 (Supplement_1) ◽  
Author(s):  
Dario Gregori ◽  
Samir Giuseppe Sukkar ◽  
Mario Diurni ◽  
Laura Formenti ◽  
Megan French ◽  
...  
Keyword(s):  
Special Equipment ◽  
Weekly Basis ◽  
P Values ◽  
Funding Sources ◽  
Symptom Scores ◽  
Traditionally Prepared ◽  
Observational Cohort ◽  
Trends Over Time ◽  
Complex Disability

Abstract Objectives This study investigated levels of consumption, satisfaction and symptoms between patients given one of two texture modified models, (i) smoothed dishes prepared traditionally in a kitchen (CF), and (ii) homogenized meals obtained from dehydrated and rehydrated instantaneous preparations by means of special equipment (OI). Methods The study is an observational cohort of 30 patients aged between 41–81 years old with complex disability, intellectual disabilities, dysmorphism and medium-gravity dysphagia, and psychiatric, neurological, gastroenterological and endocrine comorbidities. Fifteen patients were fed the OI menu, and 15 were fed the CF menu. Follow-up was assessed at 2- and -4 months. Dissatisfaction scores were investigated using a modified Chernoff's scale based on three levels of smiles (the higher the score, the higher the dissatisfaction). Consumption of daily meals (breakfast, lunch, snack, dinner) and aquagel were recorded. Symptoms scoring (0–14) has been built by counting the occurrence of symptoms on a weekly basis (0 = never/absences of symptoms; 1 = one symptom per week; 3 = one to two symptoms per week; 10 = one to two symptoms per day; 14 = always). Statistical analysis was performed using R. Results Over the entire follow-up period (4 months), mean levels of consumption are significantly higher in the OI group in comparison to the CF group (p-values < 0.001), and dissatisfaction significantly lower (p-values < 0.001). This is also evident when analysis is stratified by meal occasion. Analysis of trends over time identified a clear tendency toward improved consumption and greater satisfaction. Significantly lower symptom scores are always evident in the OI group in comparison to the CF group. Conclusions Analysis of levels of consumption, dissatisfaction scoring and symptoms scoring shows that patients receiving the modified homogenized instantaneous meal (OI) have overall higher consumption levels, greater satisfaction, and less symptoms than patients receiving traditionally prepared smoothed dishes (CF). Funding Sources Zeta Research S.r.l.

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