scholarly journals Latino and Non-Latino White Parents’ Experiences Raising their Child with ASD: An Exploratory Study

2017 ◽  
Author(s):  
Nicole Casillas ◽  
Debra Vigil ◽  
Hui-Ting Wang
Keyword(s):  
Extended Family ◽  
Autism Spectrum ◽  
Cross Cultural ◽  
Latino Families ◽  
White Families ◽  
Cultural Perspectives ◽  
Qualitative Research Design ◽  
White Parents ◽  
And Coping ◽  
Parents Experiences

There is a dearth of research about the experiences of the Latino population in raising a child with autism spectrum disorder (ASD). This includes a lack of cross-cultural perspectives and perspectives from fathers. Although there are similar experiences in raising a child with ASD among parents, we hypothesize that there will be different experiences due to culture. The current study is an exploratory qualitative research design, where we sought to understand the experiences of Latino and non-Latino White parents who are raising a child with ASD. Results indicated similarities across all families that include: self-efficacy beliefs, challenges, stress and coping, and goals and expectations. Different themes emerged in the Latino families that were not evident in non-Latino White families. Specifically, Latino families emphasized religion and faith, involvement and love, extended family support, Latino pride, and importance of collaboration. Implications are discussed for further cross-cultural family studies, the need to inform healthcare professionals on the early signs of ASD especially with regard to culture, and the importance of collaboration among parents and professionals.

scholarly journals “Managing the Wait”: Parents’ Experiences in Accessing Diagnostic and Treatment Services for Children and Adolescents Diagnosed With Autism Spectrum Disorder

2020 ◽  
Vol 13 ◽  
pp. 117863292090214 ◽  
Author(s):  
Joanne Smith-Young ◽  
Roger Chafe ◽  
Rick Audas
Keyword(s):  
Autism Spectrum Disorder ◽  
Children And Adolescents ◽  
Process Model ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Self Advocacy ◽  
Treatment Services ◽  
Qualitative Research Design ◽  
The Impact ◽  
Parents Experiences

Background: Parents of children and adolescents diagnosed with autism spectrum disorder (ASD) report delays in accessing timely diagnostic and treatment services for their children. Research has generally focused on parents’ experiences in caring for a child diagnosed with ASD. This study describes the process of how parents access ASD services for their children and adolescents. Method: This study used a qualitative research design that was informed by grounded theory methodology. We used constant comparative analysis to develop a process model and a core concept. Results: Seventeen parents of children and adolescents diagnosed with ASD were interviewed. Our process model included 3 main phases: Watchful waiting (noticing suspected behaviors, and searching for assessment and diagnosis); Informed waiting (receiving the diagnosis, facing challenges in accessing treatment services, and realizing the impact of an ASD diagnosis); and Contemplative waiting (pondering the future, reflecting on the past, and making recommendations). “Managing the Wait” was identified as the core category central to parents’ experience of this process. This process was found to be impacted by socioeconomic status, parents’ skills and capacity to advocate on their child’s behalf, and severity of their child’s ASD. Conclusions: Our findings illustrate the many barriers families face during their journey in accessing ASD services. Our results illustrate the need to address wait times for services, and provide education and support services for parents as a means of improving their self-advocacy skills, especially for parents of children and adolescents with severe disability.

scholarly journals Exploring Autism Disparities Among Latina Girls

2020 ◽  
Vol 22 ◽  
Author(s):  
Daniela N Moreira ◽  
Amber Angell
Keyword(s):  
Family Involvement ◽  
Narrative Analysis ◽  
Extended Family ◽  
Delayed Diagnosis ◽  
Autism Spectrum ◽  
Latino Families ◽  
White Family ◽  
Culturally Influenced ◽  
To Receive ◽  
Latina Girls

There is increasing evidence of ethnic and gender disparities in autism spectrum disorder (ASD) identification and receipt of services. Compared to White males, Latino children and girls are both more likely to receive a delayed diagnosis and less likely to receive high-quality services. Little is known, however, about Latina girls with ASD, including how their ‘pathway to a diagnosis’ compares to non-Latina White girls. To address this gap, this collective case study draws upon interviews with four families from two larger qualitative studies investigating ASD disparities. The purpose of this study is to compare the autism diagnosis and services experiences of three Latino families and one non-Latino White family of girls with ASD. Two researchers coded seven interviews using thematic and narrative analysis. The researchers identified three themes: 1) The Latino cases involved extended family members as both barriers and facilitators to the ASD experience, while the non-Latino case had little extended family involvement; 2) The Latino cases involved a tension between specialized ASD knowledge and culturally-influenced stigma around disability; 3) All cases suggest a female ASD phenotype that differs from the traditional ASD presentation. The study concludes with recommendations for improving support for Latino families with girls with ASD.

A Woman's Place in Society: Cross-Cultural Perspectives

1975 ◽  
Vol 20 (7) ◽  
pp. 584-585
Author(s):  
WINNIE D. EMOUNGU
Keyword(s):  
Cross Cultural ◽  
Cultural Perspectives

Cultural Diversity and Critical Dietetics: A Scholarship of Cross-Cultural Engagement

2016 ◽  
Vol 3 (2) ◽  
pp. 23-31
Author(s):  
Craig Alan Hassel
Keyword(s):  
Ways Of Knowing ◽  
Cross Cultural ◽  
Knowledge Systems ◽  
Human Society ◽  
Health Issues ◽  
Post Colonial ◽  
Cultural Engagement ◽  
Cultural Perspectives ◽  
Culturally Different ◽  
Classical Chinese Medicine

As every human society has developed its own ways of knowing nature in order to survive, dietitians can benefit from an emerging scholarship of “cross-cultural engagement” (CCE).  CCE asks dietitians to move beyond the orthodoxy of their academic training by temporarily experiencing culturally diverse knowledge systems, inhabiting different background assumptions and presuppositions of how the world works.  Although this practice may seem de- stabilizing, it allows for significant outcomes not afforded by conventional dietetics scholarship.  First, culturally different knowledge systems including those of Africa, Ayurveda, classical Chinese medicine and indigenous societies become more empathetically understood, minimizing the distortions created when forcing conformity with biomedical paradigms.  This lessens potential for erroneous interpretations.  Second, implicit background assumptions of the dietetics profession become more apparent, enabling a more critical appraisal of its underlying epistemology.  Third, new forms of post-colonial intercultural inquiry can begin to develop over time as dietetics professionals develop capacities to reframe food and health issues from different cultural perspectives.  CCE scholarship offers dietetics professionals a means to more fully appreciate knowledge assets that lie beyond professionally maintained parameters of truth, and a practice for challenging and moving boundaries of credibility.

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