The Preparedness for Caregiving Scale in African American and White Caregivers of Hospitalized Persons With Dementia

This study evaluated the Preparedness for Caregiving Scale (PCS) upon discharge from the hospital. The caregivers reported a mean age of 60.5 years (SD=13.9). The majority of caregivers were female (72%), married (59%), non-Hispanic/Latino (98%) and either white (52%) or African American (48%). Fifty percent were employed outside of the home and averaged 40.7 (SD= 14.4) hours of outside work per week. The average PCS was 24.4 (SD=6.9, 0-32). One-factor structure of the PCS and measurement invariance by race was fully supported. Predicative validity revealed significant association between the PCS and anxiety (β =-.41, t = -7.61(287), p <.001), depression (β =-.44, t =-8.39 (287), p <.001), and strain (β =-.48, t =-9.29(287), p <.001). The PCS is a valid and meaningful tool to measure preparedness in African American and white family caregivers of persons with dementia during post- hospitalization transition.

Experiences of Black and White Family Hospice Caregivers: Anxiety, Depression, QOL, Burden, Hospice Communication

Although hospice care benefits seriously ill patients and their families, growing evidence suggests anxiety, depression, and altered quality of life are prevalent among family hospice caregivers. It is unknown if Black and white family hospice caregivers experience differences in mental health, quality of life, caregiver burden, or quality of hospice communication. In this secondary analysis of baseline data collected from 717 family hospice caregivers in two randomized clinical trials, we compared anxiety (GAD-7), depression (PHQ-9), quality of life (CQLI-R), caregiver burden (Zarit), and caregiver-reported quality of hospice team communication (CCCQ) between Black and white caregivers. Black and white caregivers differed demographically across multiple variables. In bivariate analysis, we found no differences in depression (P=0.3536), anxiety (P=0.0733), caregiver burden (P=0.6680), and perceptions of caregiver-centered hospice communication (P=0.4549). White caregivers reported lower quality of life than Blacks (P=0.0386), specifically in emotional (P=0.0321) and social (P=0.0002) domains. Financial and physical quality of life did not differ. In multivariate regression analyses controlling for caregiver and patient factors, we found no racial differences in depression (P= 0.5071), anxiety (P = 0.7288), quality of life (P=0.0584), caregiver burden (P=0.9465), or hospice communication (P=0.8779). Variables explained 7.7% to 20% of variability in outcomes, suggesting research is needed to understand which other factors contribute to hospice caregiver coping and communication experiences. Results suggest Black and white informal hospice caregivers experience similar levels of anxiety, depression, burden, and perceptions of hospice team communication quality. Interventions to support hospice caregivers across racial groups are needed.

Evaluation of the Caregiver Preparedness Scale in African American and White Caregivers of Persons With Dementia During Post-Hospitalization Transition

Background and PurposeThe Preparedness for Caregiving Scale (PCS) is a widely used instrument to measure caregiver preparedness. The purpose was to evaluate the PCS in African American and White caregivers of patients with dementia upon discharge from the hospital.MethodsFactor structure, measurement invariance, and predictive validity of the PCS were assessed in a sample of 292 family caregivers/patient dyads.ResultsOne-factor structure of the PCS and measurement invariance by race was fully supported. Predicative validity revealed significant association between the PCS and anxiety (β = −.41, t = −7.61(287), p < .001), depression (β = −.44, t = −8.39(287), p < .001), and strain (β = −.48, t = −9.29(287), p < .001).ConclusionThe PCS is a valid and meaningful tool to measure preparedness in African American and White family caregivers of persons with dementia during post-hospitalization transition.

BIOGRAPHY AND MEDICAL ACTIVITIES OF JOHN HARVEY KELLOGG IN THE FIELD OF PROMOTING A HEALTHY LIFESTYLE

It was discovered that John Harvey Kellogg, with the help and financial support of the White family, began studying to become a doctor at the age of fourteen and headed the Battle Creek Sanatorium at a young age, which under his leadership soon became a world-famous health resort. The publishing activity of Kellogg, who was able to raise the popularity of the magazine “Good Health”, repeatedly published his ideas and recommendations in the field of healthy living. Kellogg has repeatedly heard warnings from Ellen White about trying to separate the Sanatorium from the Seventh-day Adventist Church, namely to make the institution non-denominational without promoting Adventist religious ideas. An inventor, a surgeon, a promoter of a healthy lifestyle, a lecturer who has given about five thousand public speeches – these are just some of the things he has managed to do in his life.

White envy and piggy-backing privilege : exploring adult Korean transracial adoptees' identities in the Canadian context

The purpose of this study is to explore how adult Korean transracial adoptees reflect on their racial and adoptive identities throughout their lifetimes, developing a unique sense of belonging and membership in the Canadian context. The main question under investigation is: If transracial adoptees have been raised among predominately white family and community members, then how do their processes of racial and adoptive identity formation fit into to critical theories of racialization and frameworks of normalized whiteness and colour blindness: Six interviews explore processes in which Korean transracial adoptees develop complex identities to navigate through difference, engaging with ethnic communities and their birth cultures to develop a distinctive membership in society. Research in the field of transracial adoption is crucial for revising policy and practice, engaging with adoptive parents' racial (in)sensitivities, expanding the notion of the traditional family, and pushing social workers and adoption agencies to step outside their comfort zones.

White envy and piggy-backing privilege : exploring adult Korean transracial adoptees' identities in the Canadian context

The purpose of this study is to explore how adult Korean transracial adoptees reflect on their racial and adoptive identities throughout their lifetimes, developing a unique sense of belonging and membership in the Canadian context. The main question under investigation is: If transracial adoptees have been raised among predominately white family and community members, then how do their processes of racial and adoptive identity formation fit into to critical theories of racialization and frameworks of normalized whiteness and colour blindness: Six interviews explore processes in which Korean transracial adoptees develop complex identities to navigate through difference, engaging with ethnic communities and their birth cultures to develop a distinctive membership in society. Research in the field of transracial adoption is crucial for revising policy and practice, engaging with adoptive parents' racial (in)sensitivities, expanding the notion of the traditional family, and pushing social workers and adoption agencies to step outside their comfort zones.

Just Mothering: Amy Coney Barrett and the Racial Politics of American Motherhood

Justice Amy Coney Barrett’s nomination and confirmation featured frequent references to her role as a mother. This article situates these references within the trajectory of American political development to demonstrate how motherhood operates as a mechanism for enforcing a white-centered racial order. Through a close analysis of both the history of politicized motherhood as well as Barrett’s nomination and confirmation hearings, I make a series of claims about motherhood and contemporary conservatism. First, conservatives stress the virtuousness of motherhood through a division between public and private spheres that valorizes the middle-class white mother. Second, conservatives emphasize certain mothering practices associated with the middle-class white family. Third, conservatives leverage an epistemological claim about the universality of mothering experiences to universalize white motherhood. Finally, this universalism obscures how motherhood operates as a site in which power distinguishes between good and bad mothers and allocates resources accordingly. By attending to what I call the “republican motherhood script” operating in contemporary conservatism, I argue that motherhood is an ideological apparatus for enforcing a racial order premised on white protectionism.

Not a Country or a Stereotype: Latina LDS Experiences of Ethnic Homogenization and Racial Tokenism in the American West

The Church of Jesus Christ of Latter-Day Saints (LDS), also called Mormonism, has experienced rapid changes in its US demographics due to an influx of Latinx membership. The most recent growth in the US church body has been within Spanish-speaking congregations, and many of these congregant members are first or 1.5-generation immigrant Latinas. Using ethnographic data from 27 interviews with immigrant members living in Utah, Nevada, and California, LDS Latinas reported that while US Anglo members did seem to appreciate certain aspects of their cultural customs or practices, they also reported frequently experiencing ethnic homogenization or racial tokenization within US Church spaces and with White family members. Our findings indicate that the contemporary LDS church, despite some progressive policy implementations within its doctrinal parameters, still struggles in its ever-globalizing state to prioritize exposing White US members to the cultural heterogeneity of non-White, global LDS identities and perspectives. Latina LDS experiences and their religious adjacency to Whiteness provide a useful lens by which researchers can better understand the ways in which ethnic identity, gender, legal status, and language create both opportunities and challenges for immigrant incorporation and inclusion within US religious spaces and add to the existing body of scholarship on migration and religion.

Sirenomelia: two case reports

BackgroundSirenomelia, also called mermaid syndrome, is a rare lethal multi-system congenital deformity with an incidence of one in 60,000–70,000 pregnancies. Sirenomelia is mainly characterized by the fusion of lower limbs and is widely associated with severe urogenital and gastrointestinal malformations. The presence of a single umbilical artery derived from the vitelline artery is the main anatomical feature distinguishing sirenomelia from caudal regression syndrome. First-trimester diagnosis of this disorder and induced abortion may be the safest medical option. In this report, two cases of sirenomelia that occurred in an white family will be discussed.Case presentationWe report two white cases of sirenomelia occurring in a 31-year-old multigravid pregnant woman. In the first pregnancy (18 weeks of gestation) abortion was performed, but in the third pregnancy (32 weeks) the stillborn baby was delivered by spontaneous vaginal birth. In the second and fourth pregnancies, however, she gave birth to normal babies. Three-dimensional ultrasound imaging showed fusion of the lower limbs. Neither she nor any member of her family had a history of diabetes. In terms of other risk factors, she had no history of exposure to teratogenic agents during her pregnancy. Also, her marriage was non-consanguineous.ConclusionThis report suggests the existence of a genetic background in this mother with a Mendelian inheritance pattern of 50% second-generation incidence in her offspring.

Naturalizing affection, securing property: Family, slavery, and the courts in Antebellum South Carolina, 1830–1860

The scholarship on race and political development demonstrates that race has long been embedded in public policy and political institutions. Less noticed in this literature is how family, as a deliberate political institution, is used to further racial goals and policy purposes. This article seeks to fill this gap by tracing the foundations of the political welding of family and race to the slave South in the antebellum period from 1830 to 1860. Utilizing rich testimonial evidence in court cases, I demonstrate how antebellum courts in South Carolina constructed a standard of “domestic affection” from the everyday lives of southerners, which established affection as a natural norm practiced by white male slaveowners in their roles as fathers, husbands, and masters. By constructing and regulating domestic affection to uphold slavery amid the waves of multiple modernizing forces (democratization, advancing market economy, and household egalitarianism), Southern courts in the antebellum period presaged their postbellum role of reconstructing white supremacy in the wake of slavery's demise. In both cases the courts played a formative role in naturalizing family relations in racially specific ways, constructing affection and sexuality, respectively, to anchor the white family as the bulwark of white social and political hegemony.