scholarly journals Impact of Congenital Heart Disease on School Adjustment in Elementary School Aged Children

2021 ◽  
Vol 10 (2) ◽  
Author(s):  
Jingyi Yang ◽  
Kerri L. Modry-Mandell
Keyword(s):  
Congenital Heart Disease ◽  
Elementary School ◽  
Heart Disease ◽  
School Environment ◽  
Congenital Heart ◽  
School Adjustment ◽  
Heart Association ◽  
Negative Effects ◽  
School Aged Children ◽  
Elementary Aged Children

Congenital heart disease or congenital heart defect (CHD) is an abnormality of the heart that develops before birth (American Heart Association, 2018). While much is known about how children are physically affected, less is known about the psychological impacts of CHD. In particular, little is known about school adjustment or the process of adapting to the role of a student and to various aspects of the school environment, while failure to adjust can cause academic and social-emotional problems (Lakhani, Jain, & Chandel, 2017). This review aims to investigate how and to what extent having CHD affects school adjustment in elementary school aged children (grades 1-5) (a group oftentimes overlooked as insignificant) and if the severity of CHD in elementary-aged children impacts their ability to adjust in schools. By reviewing literal and studies published in the past 50 years, the review reaches the conclusion that CHD does have negative effects on school adjustment and the severity of CHD positively correlates with difficulty to adjust. The purpose of this paper is to provide insight into the current studies regarding children with CHD and their relationship to different aspects of school and the school environment as well as propose a study that is multi-site, multi-informant, and multi-method.  The result of this review has compelling clinical and theoretical significance, benefiting clinicians and practitioners, teachers and educators, and researchers by bridging the gap between existing and unknown knowledge of elementary-aged children with CHD and their school adjustment.

scholarly journals Long‐Term Outcome of Patients With Congenital Heart Disease Undergoing Cardiac Resynchronization Therapy

2021 ◽  
Author(s):  
Peter Kubuš ◽  
Jana Rubáčková Popelová ◽  
Jan Kovanda ◽  
Kamil Sedláček ◽  
Jan Janoušek
Keyword(s):  
New York ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Heart Association ◽  
Cardiac Resynchronization ◽  
New York Heart Association ◽  
Crt Response

Background Cardiac resynchronization therapy (CRT) is rarely used in patients with congenital heart disease, and reported follow‐up is short. We sought to evaluate long‐term impact of CRT in a single‐center cohort of patients with congenital heart disease. Methods and Results Thirty‐two consecutive patients with structural congenital heart disease (N=30) or congenital atrioventricular block (N=2), aged median of 12.9 years at CRT with pacing capability device implantation, were followed up for a median of 8.7 years. CRT response was defined as an increase in systemic ventricular ejection fraction or fractional area of change by >10 units and improved or unchanged New York Heart Association class. Freedom from cardiovascular death, heart failure hospitalization, or new transplant listing was 92.6% and 83.2% at 5 and 10 years, respectively. Freedom from CRT complications, leading to surgical system revision (elective generator replacement excluded) or therapy termination, was 82.7% and 72.2% at 5 and 10 years, respectively. The overall probability of an uneventful therapy continuation was 76.3% and 58.8% at 5 and 10 years, respectively. There was a significant increase in ejection fraction/fractional area of change ( P <0.001) mainly attributable to patients with systemic left ventricle ( P =0.002) and decrease in systemic ventricular end‐diastolic dimensions ( P <0.05) after CRT. New York Heart Association functional class improved from a median 2.0 to 1.25 ( P <0.001). Long‐term CRT response was present in 54.8% of patients at last follow‐up and was more frequent in systemic left ventricle ( P <0.001). Conclusions CRT in patients with congenital heart disease was associated with acceptable survival and long‐term response in ≈50% of patients. Probability of an uneventful CRT continuation was modest.

scholarly journals Neurocognitive development and behaviour in school-aged children after surgery for univentricular or biventricular congenital heart disease

2015 ◽  
Vol 49 (1) ◽  
pp. 167-174 ◽  
Author(s):  
Iemke Sarrechia ◽  
Marijke Miatton ◽  
Daniël De Wolf ◽  
Katrien François ◽  
Marc Gewillig ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Neurocognitive Development ◽  
School Aged Children

scholarly journals Infective Endocarditis in Children With Congenital Heart Disease

Circulation ◽  
2013 ◽  
Vol 128 (13) ◽  
pp. 1412-1419 ◽  
Author(s):  
Dinela Rushani ◽  
Jay S. Kaufman ◽  
Raluca Ionescu-Ittu ◽  
Andrew S. Mackie ◽  
Louise Pilote ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Infective Endocarditis ◽  
Confidence Interval ◽  
Cumulative Incidence ◽  
Congenital Heart ◽  
Large Population ◽  
Heart Association ◽  
Population Based ◽  
Control Analysis

Background— The American Heart Association guidelines for prevention of infective endocarditis (IE) in 2007 reduced the groups of congenital heart disease (CHD) patients for whom antibiotic prophylaxis was indicated. The evidence base in CHD patients is limited. We sought to determine the risk of IE in children with CHD. Methods and Results— We performed a population-based analysis to determine the cumulative incidence and predictors of IE in children (0–18 years) with CHD by the use of the Quebec CHD Database from 1988 to 2010. In 47 518 children with CHD followed for 458 109 patient-years, 185 cases of IE were observed. Cumulative incidence of IE was estimated in the subset of 34 279 children with CHD followed since birth, in whom the risk of IE up to 18 years of age was 6.1/1000 children (95% confidence interval, 5.0–7.5). In a nested case-control analysis, the following CHD lesions were at highest risk of IE in comparison with atrial septal defects (adjusted rate ratio, 95% confidence interval): cyanotic CHD (6.44, 3.95–10.50), endocardial cushion defects (5.47, 2.89–10.36), and left-sided lesions (1.88, 1.01–3.49). Cardiac surgery within 6 months (5.34, 2.49–11.43) and an age of <3 years (3.53, 2.51–4.96; reference, ages 6–18) also conferred an elevated risk of IE. Conclusions— In a large population-based cohort of children with CHD, we documented the cumulative incidence of IE and associated factors. These findings help identify groups of patients who are at the highest risk of developing IE.

scholarly journals Genetic Basis for Congenital Heart Disease: Revisited: A Scientific Statement From the American Heart Association

Circulation ◽  
2018 ◽  
Vol 138 (21) ◽  
Author(s):  
Mary Ella Pierpont ◽  
Martina Brueckner ◽  
Wendy K. Chung ◽  
Vidu Garg ◽  
Ronald V. Lacro ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
American Heart Association ◽  
Congenital Heart ◽  
Genetic Basis ◽  
American Heart ◽  
Heart Association ◽  
Scientific Statement

Neurodevelopmental evaluation strategies for children with congenital heart disease aged birth through 5 years: recommendations from the cardiac neurodevelopmental outcome collaborative

2020 ◽  
Vol 30 (11) ◽  
pp. 1609-1622
Author(s):  
Janice Ware ◽  
Jennifer L. Butcher ◽  
Beatrice Latal ◽  
Anjali Sadhwani ◽  
Caitlin K. Rollins ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Neurodevelopmental Outcome ◽  
Heart Association ◽  
Risk Identification ◽  
Complex Congenital Heart Disease ◽  
Assessment Instruments ◽  
For Profit ◽  
Developmental Domains

AbstractThis paper provides specific guidelines for the neurodevelopmental evaluation of children aged birth through 5 years with complex congenital heart disease. There is wide recognition that children with congenital heart disease are at high risk for neurodevelopmental impairments that are first apparent in infancy and often persist as children mature. Impairments among children with complex congenital heart disease cross developmental domains and affect multiple functional abilities. The guidelines provided are derived from the substantial body of research generated over the past 30 years describing the characteristic developmental profiles and the long-term trajectories of children surviving with complex congenital heart conditions. The content and the timing of the guidelines are consistent with the 2012 American Heart Association and the American Academy of Pediatrics scientific statement documenting the need for ongoing developmental monitoring and assessment from infancy through adolescence. The specific guidelines offered in this article were developed by a multidisciplinary clinical research team affiliated with the Cardiac Neurodevelopmental Outcome Collaborative, a not-for-profit organisation established to determine and implement best neurodevelopmental practices for children with congenital heart disease. The guidelines are designed for use in clinical and research applications and offer an abbreviated core protocol and an extended version that expands the scope of the evaluation. The guidelines emphasise the value of early risk identification, use of evidence-based assessment instruments, consideration of family and cultural preferences, and the importance of providing multidimensional community-based services to remediate risk.

Sign in / Sign up

Export Citation Format

Share Document