Stroke Survivors’ Perception of Quality of Life and How Occupational Therapists Are Addressing It

OBJECTIVE: To evaluate the perception of Quality of Life (QL) in Brazilian patients with narcolepsy. METHOD: 40 adult patients aged between 20 and 72 years (mean=41.55; SD=14.50); (28 F; 12M), with the diagnosis of chronic narcolepsy were followed up at the outpatient clinic (Patient Group). The Control Group was composed of 40 adults. The instrument utilized was the World Health Organization Quality of Life (WHOQOL-BREF). RESULTS: The two groups were homogeneous and no difference was found with regards to age, sex, and demographic characteristics. The perception of QL in physical, psychological and social domains showed lower scores in those patients with narcolepsy than in the control group (p<0.05). Concerning physical domain, all the aspects evaluated were significantly impaired, in patient group, including sleep satisfaction (p<0.001); energy for daily activities (p=0.039); capacity to perform activities (p=0.001); and capacity to work (p=0.001). CONCLUSION: The perception of QL showed severe impairment in patients with narcolepsy for physical, psychological and social domains.

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Domains of Health-Related Quality of Life Are Associated With Specific Deficits and Lesion Locations in Chronic Aphasia

Neurorehabilitation and Neural Repair ◽

10.1177/15459683211017507 ◽

2021 ◽

pp. 154596832110175

Author(s):

Elizabeth L. Dvorak ◽

Davetrina S. Gadson ◽

Elizabeth H. Lacey ◽

Andrew T. DeMarco ◽

Peter E. Turkeltaub

Keyword(s):

Quality Of Life ◽

Language Production ◽

Depression Symptoms ◽

Stroke Survivors ◽

Factor Scores ◽

Lesion Location ◽

Related Quality ◽

Health Related ◽

Left Hemisphere Stroke

Background Health-related quality of life (HRQL) in stroke survivors is related to numerous factors, but more research is needed to delineate factors related to HRQL in people with aphasia. Objective To examine the relationship between HRQL and demographic factors, impairment-based measures, and lesion characteristics in chronic aphasia. Methods A total of 41 left-hemisphere stroke survivors with aphasia underwent cognitive testing and magnetic resonance imaging. To address relationships with demographic and impairment-based measures, test scores were entered into a principal component analysis (PCA) and multiple linear regression was performed for overall and domain (physical, communication, psychosocial) scores of the Stroke and Aphasia Quality of Life Scale (SAQOL-39g). Independent variables included factor scores from the PCA, motricity, lesion volume, depressed mood, and demographic variables. To address relationships with lesion location, multivariate support vector regression lesion-symptom mapping (SVR-LSM) was used to localize lesions associated with SAQOL-39g scores. Results The PCA yielded 3 factors, which were labeled Language Production, Nonlinguistic Cognition, and Language Comprehension. Multiple linear regression revealed that depression symptoms predicted lower SAQOL-39g average and domain scores. Lower motricity scores predicted lower SAQOL-39g average and physical scores, and lower Language Production factor scores predicted lower communication scores. SVR-LSM demonstrated that basal ganglia lesions were associated with lower physical scores, and inferior frontal lesions were associated with lower psychosocial scores. Conclusions HRQL in chronic left-hemisphere stroke survivors with aphasia relates to lesion location, depression symptoms, and impairment-based measures. This information may help identify individuals at risk for specific aspects of low HRQL and facilitate targeted interventions to improve well-being.

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Translation and initial validation of the occupational balance questionnaire to Arabic—Occupational Balance Questionnaire-A

British Journal of Occupational Therapy ◽

10.1177/03080226211039432 ◽

2021 ◽

pp. 030802262110394

Author(s):

Brightlin N Dhas ◽

Petra Wagman ◽

Firas A Marji ◽

Carita Håkansson ◽

Ricardo Carrasco

Keyword(s):

Quality Of Life ◽

Internal Consistency ◽

Content Validity ◽

Convergent Validity ◽

Occupational Therapists ◽

Health Indicators ◽

Family Quality Of Life ◽

Cognitive Debriefing ◽

Arabic Speaking

Introduction Occupational balance (OB) is related to many health indicators, including quality of life. The Occupational Balance Questionnaire (OBQ11) was developed to measure OB, and to date, no Arabic translations of the questionnaire exist. The aim of the study was to describe the translation process of OBQ11 to Arabic and to evaluate its content validity, internal consistency, construct validity, and convergent validity. Methods OBQ11 was translated to Arabic (OBQ11-A) following standard guidelines. Content validity feedback was obtained from ten Arabic-speaking occupational therapists and in a cognitive debriefing with seven volunteers. In addition, OBQ11-A and the Family Quality of Life Survey-2006 were administered to 67 Arabic-speaking participants from a larger study about OB among parents. Results High level of agreement was found on the content of OBQ11-A from the occupational therapists. Cognitive debriefing interviews indicated that OBQ11-A was easy to understand. Cronbach’s alpha for the total OBQ11-A score was 0.864 indicating good internal consistency. Exploratory factor analysis showed acceptable factor loadings for all items. The total scores showed positive statistically significant associations with Family Quality of Life Scores ( r = 0.561, p < 0.001). Conclusions OBQ11-A may prove useful for assessing OB in Arabic-speaking populations. Further research is needed to establish its reliability.

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Abstract T P124: Psychometric Properties of the Chinese Version of the Stroke Specific Quality of Life Scale in Community-Dwelling Stroke Survivors

Stroke ◽

10.1161/str.46.suppl_1.tp124 ◽

2015 ◽

Vol 46 (suppl_1) ◽

Author(s):

Suzanne H Lo ◽

Anne M Chang ◽

Janita P Chau ◽

Glenn E Gardner

Keyword(s):

Quality Of Life ◽

Mental Health ◽

Physical Health ◽

Stroke Survivors ◽

Sf 36 ◽

Quality Of Life Scale ◽

Life Scale ◽

Positive Correlations ◽

Component Scores

Introduction: Health-related quality of life is a significant outcome of stroke survivors’ recovery. The 49-item English version of the Stroke Specific Quality of Life Scale (SSQOL) (Williams et al., 2009) is a stroke-specific assessment of stroke survivors’ health-related quality of life in 12 domains. However there has been no Chinese version of the scale for Chinese stroke survivors in Hong Kong. Aim: To examine the reliability and validity of the Chinese version of Stroke Specific Quality of Life Scale (SSQOL-C) in stroke survivors. Methods: SSQOL was translated into Chinese and blind back-translated by independent bilingual baccalaureate nursing students. Content validity was reviewed by an expert panel which consisted of one nurse academic, one nurse manager, three advanced practice nurses, and two registered nurses. A cross-sectional study was conducted to validate the translated version. A convenience sample of 135 adult stroke survivors were recruited from three community centres and a stroke support group in Hong Kong. Internal consistency analysis was performed. Pearson’s correlation coefficients were calculated between SSQOL-C, SF-36, and Frenchay Activities Index (FAI) to determine the convergent validity. Results: Content validity index of SSQOL-C was 0.99. SSQOL-C had high internal consistency with Cronbach’s alpha of 0.94 for the total scale, and between 0.65 and 0.90 for the 12 domains. The total SSQOL-C scores showed significant positive correlations with SF-36 physical health (r=0.58, p<0.01) and mental health (r=0.54, p<0.01) component scores, and FAI score (r=0.59, p<0.01). SSQOL-C physical subtotal scores showed significant positive correlations with SF-36 physical health (r=0.55, p<0.01) and mental health (r=0.43, p<0.01) component scores, and FAI score (r=0.54, p<0.01). SSQOL-C psychosocial subtotal scores showed significant positive correlations with SF-36 physical health (r=0.52, p<0.01) and mental health (r=0.56, p<0.01) component scores, and FAI score (r=0.56, p<0.01). Conclusion: The results showed SSQOL-C had good content and convergent validity, and reliability in Chinese stroke survivors. Further evaluation of factor structure of SSQOL-C will be conducted to determine its validity.

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Depression, anxiety and quality of life in stroke survivors and their family caregivers: A pilot study using an actor/partner interdependence model

Electronic physician ◽

10.19082/4924 ◽

2017 ◽

Vol 9 (8) ◽

pp. 4924-4933 ◽

Cited By ~ 13

Author(s):

Khaw Wan-Fei ◽

Syed Tajuddin Syed Hassan ◽

Lye Munn Sann ◽

Siti Irma Fadhilah Ismail ◽

Rosna Abdul Raman ◽

...

Keyword(s):

Quality Of Life ◽

Pilot Study ◽

Family Caregivers ◽

Stroke Survivors ◽

Actor Partner Interdependence Model

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Quality of life issues and occupational performance of persons with epilepsy

Arquivos de Neuro-Psiquiatria ◽

10.1590/s0004-282x2012000200013 ◽

2012 ◽

Vol 70 (2) ◽

pp. 140-144 ◽

Cited By ~ 11

Author(s):

Renato Nickel ◽

Carlos Eduardo Silvado ◽

Francisco Manoel Branco Germiniani ◽

Luciano de Paola ◽

Nicolle Lucena da Silveira ◽

...

Keyword(s):

Quality Of Life ◽

Performance Measure ◽

Occupational Performance ◽

Canadian Occupational Performance Measure ◽

Perceived Quality Of Life ◽

Life Issues ◽

Perception Of Quality ◽

Performance Limitations ◽

And Performance

Epilepsy causes restrictions in the performance of various daily activities. The aiming of this study was to investigate whether these restrictions affect the perceived quality of life. The assessments Quality of Life in Epilepsy-31 (QOLIE-31) and Canadian Occupational Performance Measure (COPM) were applied in a sample that consisted of a single group of 34 subjects with at least two years of uncontrolled seizures. The results indicated that the most affected domains of QOLIE-31 were seizure worry, 29.77 (±21.72), and effects of drugs, 49.75 (±28.58), and for the COPM, the average of performance and satisfaction were respectively 3.10 (±3.07) and 4.45 (±3.29), and performance limitations most frequently cited were maintain employment (18), left home alone (15) and courses (15). The application of the Spearman correlation coefficient showed that the three main performance limitations posed by the COPM, especially regarding the level of satisfaction, influence the perception of quality of life. Thus, occupational performance proves to be an important area of intervention with subjects with epilepsy.

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