A Qualitative Study of Current Rehab Practices for Muscular Dystrophies: Views and Experiences of Rehab Professionals

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512510277p1-7512510277p1
Author(s):  
Renuka Roche ◽  
Kaitlin Graf ◽  
Joseph A. Roche
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Muscular Dystrophies ◽  
Adult Onset ◽  
Occupational Performance ◽  
Gene Therapies ◽  
Progressive Loss ◽  
Primary Author ◽  
Muscle Protection

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations Individuals with adult-onset muscular dystrophies do not die from the disease but have progressive loss of occupational performance (OP) and quality of life. There is no consistent pathway for referral and access to rehab services. OTs are under-used, even though the greatest need is improvement in OP. The lack of guidelines makes outcomes inconsistent. To work, gene therapies require muscle bulk. OTs may train clients in muscle protection to maintain muscle, giving them a chance at a cure. Primary Author and Speaker: Renuka Roche Additional Authors and Speakers: Kaitlin Graf Contributing Authors: Joseph A. Roche

Life Unpaused: An OT Cancer Survivorship Program

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505221p1-7512505221p1
Author(s):  
Adrienne Marilla
Keyword(s):  
Quality Of Life ◽  
Cancer Survivorship ◽  
Education And Training ◽  
Daily Activities ◽  
Occupational Performance ◽  
Performance Satisfaction ◽  
And Training ◽  
Primary Author

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. The purpose of this research was to examine the efficacy of a 4-week OT-based cancer survivorship program named Life Unpaused (LU). The participants had the option to attend the program onsite or virtually on a Telehealth platform. LU addressed participation in roles and daily activities through education and training and by providing resources to participants.The outcome results showed increases in occupational performance, satisfaction, and quality-of-life scores. Primary Author and Speaker: Adrienne Marilla

scholarly journals Being an institutionalized elderly person: meaning of experiences based on Heidegger’s phenomenology

2019 ◽  
Vol 72 (6) ◽  
pp. 1632-1638 ◽  
Author(s):  
Camila Calhau Andrade Reis ◽  
Tânia Maria de Oliva Menezes ◽  
Adriana Valéria da Silva Freitas ◽  
Larissa Chaves Pedreira ◽  
Raniele Araújo de Freitas ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Elderly Person ◽  
The Elderly ◽  
Progressive Loss ◽  
Loss Of Autonomy ◽  
The Right ◽  
The City

ABSTRACT Objective: Analyze the meaning of being an elderly person living in a long-term institution. Method: Qualitative study based on Martin Heidegger’s thought. Twelve phenomenological interviews were conducted with people aged over 60 years living in a long-term institution for the elderly in the city of Itabuna, Bahia, Brazil. Results: The units of meaning identified were: experience of progressive loss of autonomy and independence, perception of living in an institution as an inevitable circumstance; and being-with becoming being-alone/being-lonely. After the identification of ontic aspects and hermeneutical understanding, the unit of meaning was constructed: meaning of being an elderly person living in a long-term institution. Final considerations: The ontological needs referring to being an elderly person remain forgotten. As we are ontic and ontological, limited care to the ontic instance indicates deficiencies in institutionalization. Improvements are required to ensure the right to age with quality of life to this population.

scholarly journals Impact of Pediatric COVID-19 on Family Health-Related Quality of Life: A Qualitative Study from Latvia

2021 ◽  
Vol 8 ◽  
pp. 2333794X2110123
Author(s):  
Inese Stars ◽  
Liene Smane ◽  
Zanda Pucuka ◽  
Ieva Roge ◽  
Jana Pavare
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Family Relationships ◽  
Family Health ◽  
Support Network ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Information on family health-related quality of life (FHRQoL) among families of children with the coronavirus disease 2019 (COVID-19) is limited. This qualitative study explores the impact of pediatric COVID-19 on FHRQoL from the parents’ perspective. Semi-structured interviews were conducted with parents (n = 20) whose children had tested positive for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Inductive thematic analysis revealed the following 10 themes that represented parents’ perception of FHRQoL while taking care of a child with COVID-19: pediatric COVID-19 as a disease with many unknowns; emotional saturation; internal family relationships in the context of “a new experience”; routine household activities and daily regimen while family is in lockdown; plenty of free time; a wide social support network; social stigma associated with COVID-19; different options for work; savings and debts; challenges with family housing and transport availability. Our results show that parents experience multiple effects of pediatric COVID-19 with regard to FHRQoL.

scholarly journals Meaningful Engagement Among Assisted Living Residents With Dementia: Successful Approaches

2021 ◽  
pp. 073346482199686
Author(s):  
Candace L. Kemp ◽  
Alexis A. Bender ◽  
Joy Ciofi ◽  
Jennifer Craft Morgan ◽  
Elisabeth O. Burgess ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Assisted Living ◽  
Care Partners ◽  
Meaningful Engagement ◽  
Care Practices ◽  
The Moment ◽  
Record Review

Meaningful engagement is an important dimension of quality of life and care for persons living with dementia, including the growing number who reside in assisted living communities. This report presents preliminary findings from an ongoing qualitative study aimed at identifying best care practices to create and maintain meaningful engagement among persons with dementia. Over a 1-year period, we conducted interviews, residents’ record review, and participant observations in four diverse care communities. Our analysis identified four approaches that successfully promote meaningful engagement: (a) knowing the person, (b) connecting with and meeting people where they are, (c) being in the moment, and (d) viewing all encounters as opportunity. Incorporation of these approaches in care routines and adoption by all care partners can promote meaningful engagement, including during crises such as COVID-19.

The Effectiveness of Client-Centered Intervention With Telerehabilitation Method After Total Knee Arthroplasty

2021 ◽  
pp. 153944922110382
Author(s):  
Berkan Torpil ◽  
Özgür Kaya
Keyword(s):  
Quality Of Life ◽  
Total Knee Arthroplasty ◽  
Knee Arthroplasty ◽  
Intervention Program ◽  
Nottingham Health Profile ◽  
Performance Measure ◽  
Occupational Performance ◽  
Significant Difference ◽  
Total Knee

There is known to be a decrease in quality of life and perceived occupational performance and satisfaction following total knee arthroplasty (TKA). This study was planned to examine the effectiveness of a client-centered (CC) intervention with the telerehabilitation (TR) method on the quality of life, perceived occupational performance, and satisfaction after TKA. A total of 38 patients who had undergone TKA were randomly assigned to the CC and control groups. A 12-day intervention program was applied to the CC group. The Nottingham Health Profile (NHP) and Canadian Occupational Performance Measure (COPM) were applied before and after intervention. The 12-day intervention showed a strong effect on all parameters in the CC group ( p<.001). In the postintervention comparisons, a significant difference was found in favor of the CC group ( p < .001). CC interventions with the TR method can be used in post-TKA interventions.

Quality of Life Following Stroke: A Qualitative Study Across 30 Years

2021 ◽  
Vol 6 (1) ◽  
pp. 151-162
Author(s):  
Steffany M. Chleboun ◽  
Kathryn Brady ◽  
Jennie Zelenak
Keyword(s):  
Quality Of Life ◽  
Grounded Theory ◽  
Qualitative Study ◽  
Family Support ◽  
Resilience Theory ◽  
Grounded Theory Methodology ◽  
Long Period ◽  
The Impact

Much of what we know about stroke is limited to the first 5 years postinjury; however, the effects of having a stroke remain several years, even decades, postinjury, and the impact this has on an individual's quality of life over a long period of time is not completely understood. Purpose The purpose of this study was to understand one woman's experience living with the effects of stroke over multiple decades postinjury and to explore factors that affected her quality of life during this time. Method Using Grounded Theory methodology, data were drawn from 28 years of journals kept by the participant and from semistructured family interviews. Results Four major interacting themes emerged from the data: family support, faith, personality, and journaling. Findings are discussed in the context of resilience theory.

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