scholarly journals Introduction to the human disease resource search and distribution platform through the Korea Biobank Network portal

2021 ◽  
Vol 64 (1) ◽  
pp. 57-65
Author(s):  
Young Hwan Kim ◽  
Hong Rim Cha ◽  
Ji Eun Lee ◽  
Se Eun Cha ◽  
Yeong Jin Choi
Keyword(s):  
Integrated Management ◽  
Open Data ◽  
Clinical Information ◽  
Information Management System ◽  
Current Status ◽  
Common Data Model ◽  
Open Platform ◽  
Resource Search ◽  
Innovative Capabilities ◽  
Standard Terminology

Human-derived materials are a crucial element of research in the life sciences. The Korea Biobank Network (KBN) portal is a shared open platform that provides the nationʼs most extensive disease resources, possessed by Human Bioresource Unit Banks of the KBN, to the public, including those in the fields of industry, academia, and research. This platform was developed to increase the efficient use of national disease resources. In the KBN portal, the current status of disease resources collected in Korea can be checked online. Human bioresources and clinical information are provided to consumers through systematic search and efficient distribution programs. Additionally, by simultaneously operating the KBN Distribution Support Center, we are working to support the rapid and convenient distribution of human resources in response to the needs of consumers. To effectively utilize the open human bioresource sharing platform, it is necessary to introduce an integrated clinical information management system. Currently, the KBN is in the process of establishing standard terminology for data and applying a common data model for the integrated management of various clinical information held by the KBN. We provide communications through the KBN portal, which is interconnected with the distribution support center, regional biobanks, and consumers. In conclusion, the KBN portal will provide open innovation by creating a business or service model by delivering shared open data and internalizing external innovative capabilities.

scholarly journals Common Data Model and Database System Development for the Korea Biobank Network

2021 ◽  
Vol 11 (24) ◽  
pp. 11825
Author(s):  
Soo-Jeong Ko ◽  
Wona Choi ◽  
Ki-Hoon Kim ◽  
Seo-Joon Lee ◽  
Haesook Min ◽  
...  
Keyword(s):  
Data Model ◽  
System Development ◽  
Integrated Management ◽  
Clinical Information ◽  
Data Retrieval ◽  
Management Systems ◽  
Common Data Model ◽  
Information Management Systems ◽  
Standard Terms ◽  
Clinical Information Management

The importance of clinical information related to specimens is increasing due to the research on human biological specifications being conducted worldwide. In order to utilize data, it is necessary to define the range of data and develop a standardized system for collected resources. The purpose of this study is to establish clinical information standardization and to allow clinical information management systems to improve the utilization of biological specifications. The KBN CDM, consisting of 18 tables and 177 variables, was developed. The clinical information codes were mapped in standard terms. The 27 diseases in the group were collected from 17 biobanks, and all disorders not belonging to the group were standardized and loaded. We also developed a system that provides statistical visualization screens and data retrieval tools for data collection. This study developed a unified management system to model KBN CDM that collects standardized data, manages clinical information, and shares the information systematically. Through this system, all participating biobanks can be integrated into one system for integrated management and research.

Molecular Diagnostics in Melanoma: Current Status and Perspectives

2011 ◽  
Vol 135 (7) ◽  
pp. 860-869 ◽  
Author(s):  
Soheil S. Dadras
Keyword(s):  
Molecular Diagnostics ◽  
Ribonucleic Acid ◽  
New Technologies ◽  
Mutational Analysis ◽  
Transcriptional Profiling ◽  
Clinical Information ◽  
Current Status ◽  
Comparative Genomic ◽  
Molecular Approaches ◽  
Fresh Frozen

Abstract Context.—In the current “molecular” era, the advent of technology, such as array-based platforms, systems biology, and genome-wide approaches, has made it possible to examine human cancers, including melanoma, for genetic mutations, deletions, amplification, differentially regulated genes, and epigenetic changes. Advancement in current technologies is such that one can now examine ribonucleic acid (RNA), deoxyribonucleic acid (DNA), and protein directly from the patient's own tumor. Objective.—To apply these new technologies in advancing molecular diagnostics in melanoma has historically suffered from a major obstacle, namely, the scarcity of fresh frozen, morphologically defined tumor banks, annotated with clinical information. Recently, some of the new platforms have advanced to permit utilization of formalin-fixed, paraffin-embedded (FFPE) tumor specimens as starting material. Data Sources.—This article reviews the latest technologies applied to FFPE melanoma sections, narrowing its focus on the utility of transcriptional profiling, especially for melastatin; comparative genomic hybridization; BRAF and NRAS mutational analysis; and micro ribonucleic acid profiling. Conclusion.—New molecular approaches are emerging and are likely to improve the classification of melanocytic neoplasms.

Leveraging Technology for Optimization of Health Survey Research

2019 ◽  
Vol 21 (4) ◽  
pp. 571-581
Author(s):  
Shobana Sivaraman ◽  
Punit Soni
Keyword(s):  
Data Collection ◽  
Information Management ◽  
Survey Research ◽  
Health Survey ◽  
Operations Management ◽  
Large Scale ◽  
Open Data ◽  
Information Management System ◽  
Computer Assisted ◽  
Quality Of Data

Public health deals with promotion of health, prevention and treatment of communicable and non-communicable diseases by designing appropriate health interventions and services to deliver through the health systems. There is a need for robust database on the magnitude of disease burden, socio-demographic characteristics and associated risk factors for evidence-based effective planning and developing appropriate strategies, their implementation, monitoring and evaluation. Although India has vast information available through various large-scale surveys and research studies, it still lacks a reliable health information management system. The available data are seldom analysed to draw meaningful conclusions, to develop evidence for policies and strategies and to measure effectiveness of health programmes. The challenges faced in the survey research are multifaceted, from data collection in the field to its rapid transmission of data to central data servers. There is an increasing trend in using technology, especially computer-assisted personal interviews (CAPI) which is not only expensive but also requires extensive training and information management for transmission of data and its storage. This article examines the application of technology in survey research for efficient data management and to improve data quality. A software called Open Data Kit (ODK) was used for data collection and real-time monitoring of interviewers in field to improve the quality of data collection, achieve desired response rate (RR) and for better field operations’ management. The data collection and field reporting forms designed using ODK act as a significant tool to demonstrate how technology can be used to articulate research expectations at various levels with lower cost and higher efficiency. The research article examines all possible aspects of using technology in Health Survey Research. It aims to introduce further discussion of using technology for field data collection and monitoring.

scholarly journals Vernacular Farm Buildings and Rural Landscape: A Geospatial Approach for Their Integrated Management

2019 ◽  
Vol 12 (1) ◽  
pp. 4 ◽  
Author(s):  
Giuseppe Cillis ◽  
Dina Statuto ◽  
Pietro Picuno
Keyword(s):  
Cultural Heritage ◽  
Sustainable Management ◽  
Environmental Planning ◽  
Integrated Management ◽  
Open Data ◽  
Rural Landscape ◽  
Landscape Studies ◽  
Basilicata Region ◽  
Urban Settlements ◽  
Farm Buildings

Over the centuries, farm buildings, which accompany the development of agriculture, have played an important role in defining spatial and environmental planning. In some European countries in particular, these rural structures have been built based on traditional agricultural needs and typical land characteristics. Considering the land abandonment that has occurred over the last five decades, with farmers moving to more comfortable residences in neighboring urban settlements, historical farm buildings have often been abandoned, thus causing a leakage of the historical-cultural heritage of the rural landscape. Nowadays, open data and geographic technologies together with advanced technological tools allow us to gather multidisciplinary information about the specific characteristics of each farm building, thus improving our knowledge. This information can greatly support the protection of those buildings and landscapes that have high cultural and naturalistic value. In this paper, the potential of Geographic Information Systems to catalogue the farm buildings of the Basilicata region (Southern Italy) is explored. The analysis of these buildings, traditionally known as masserie, integrates some typical aspects of landscape studies, paving the way for sustainable management of the important cultural heritage represented by vernacular farm buildings and the rural landscape.

scholarly journals P52 A baseline review of the activity of the PICU pharmacists using electronically captured data

2020 ◽  
Vol 105 (9) ◽  
pp. e34.1-e34
Author(s):  
Diarmaid Semple ◽  
Erika Brereton ◽  
Ian Dawkins
Keyword(s):  
Information Quality ◽  
Good Practice ◽  
Clinical Information ◽  
Information Management System ◽  
List Type ◽  
Care Providers ◽  
Medication Error Reporting ◽  
Medicines Reconciliation ◽  
Health And Social Care ◽  
American Medical Informatics Association

AimTo date there are no metrics for the clinical pharmacist service to PICU. It is accepted that use of a Clinical Information Management System (CIMS) has a role in medication safety,1 however there are few studies that review the information potential of a CIMS for collecting pharmacist activity.2MethodAdditional fields and custom reports were configured in the CIMS to enable PICU pharmacists to record their activity in the following areas:Medicines reconciliation within 72 hours of admission to PICUDischarge kardex reviewAnalgesia and sedation (A&S) reviewClinical pharmacy reviewOther interventions & medication error reporting continued as per normal practice. Data was analysed using Microsoft Excel®.ResultsComplete data was available from July 2017 to end of 2018.There were 1274 medicines reconciliations by a pharmacist within 72 hours of admission (78% admissions). 14% of discharge kardexes had been reviewed prior to discharge to the ward. There was an average of 190 pharmacy reviews per 100 bed days. A total of 780 Pharmacist A&S Plans were documented by the clinical pharmacists – an average of 2 per working day, and 48% of admissions.Comparisons between each six month period showed a significant increase in the number of pharmacists medicines reconciliations (p<0.001). No other differences were found.ConclusionThis study has shown that electronic tracking of pharmacist ward activity is possible. It has the potential to demonstrate compliance with external or internal standards and audits. This data continues to be collected, and therefore these results will be used as a baseline to compare future activity. The findings of this study may encourage other units to replicate, providing data that can be used for comparison. Further configuration of the CIMS to capture other metrics such as TDM, and document discrepancies in medicines reconciliation is planned.ReferencesForni A, Chu H, Fanikos J. Technology Utilization to Prevent Medication Errors. Current Drug Safety. 2010;5:13–18.Nelson S, Poikonen J, Reese T, El Halta D, Weir C. The pharmacist and the EHR. Journal of the American Medical Informatics Association. 2016;24:193–197.Health and Information Quality Authority. Guidance for health and social care providers; Principles of good practice in medication reconciliation. Dublin: HIQA; 2014

Using Comparative Clinical and Economic Outcome Information to Profile Physician Performance

1995 ◽  
Vol 8 (4) ◽  
pp. 213-220 ◽  
Author(s):  
Michael S. Hendryx ◽  
Douglas S. Wakefield ◽  
James F. Murray ◽  
Tanya Uden-Holman ◽  
Charles M. Helms ◽  
...  
Keyword(s):  
Clinical Performance ◽  
Clinical Information ◽  
Information Management System ◽  
Outcome Data ◽  
Third Party ◽  
Continuous Quality ◽  
Physician Performance ◽  
Outcome Information ◽  
Using Data ◽  
Cost Outcomes

This paper presents strategies and empirical examples of comparative physician profiling under conditions of limited patient sample sizes and varying patient severity. A method by which clinical and cost outcomes may be evaluated simultaneously is also presented. Physician economic and clinical performance are compared using data abstracted from nine hospitals into the MedisGroups clinical information management system for inpatients treated from July, 1990 through June, 1992. The main outcome measures are comparative total and ancillary adjusted charges, and morbidity status. Results suggest that objective comparative outcome data provide useful information to assist in evaluating physician performance. A simultaneous comparison of clinical outcomes and adjusted charges identifies physicians who experience favorable outcomes at lower charges, as well as those who have higher charges and/or poorer outcomes. Strategies outlined in this paper may be of value to clinicians, governing boards, and third party payors. These strategies may be used to assist with privileging and other peer review activities when pursued proactively within a Continuous Quality Improvement framework to improve care.

scholarly journals Medical Informatics Training at Columbia University and the Columbia-Presbyterian Medical Center

1995 ◽  
Vol 04 (01) ◽  
pp. 125-129
Author(s):  
B. A. Allen ◽  
P. D. Clayton ◽  
J. J. Cimino
Keyword(s):  
Medical Informatics ◽  
Medical Center ◽  
Clinical Information ◽  
Information Management System ◽  
Advanced Technology ◽  
Columbia University ◽  
Postdoctoral Training ◽  
Unified Medical Language System ◽  
Part Time Faculty ◽  
Part Time

Abstract:The Department of Medical Informatics at Columbia University College of Physicians and Surgeons consists of a faculty of 17 full-and part-time faculty. The Department faculty collaborate with the Department of Computer Science and several clinical departments of the medical center. We offer courses in medical informatics, formal degrees (M.A., M.Phil. and Ph.D.) and a postdoctoral training program. In addition to academic offerings, the close affiliation with the Columbia-Presbyterian Medical Center and the primary responsibilities for clinical information systems offers trainees unique opportunities to work with and develop real-world applications. Faculty research programs include work on the Integrated Advanced Information Management System (IAIMS), Unified Medical Language System (UMLS), High-Perfor-mance Computing and Communications (HPCC), Electronic Medical Records, automated decision support and technology transfer through the Center for Advanced Technology.

scholarly journals LOD Development System for Medical Information Standard

2018 ◽  
Vol 7 (3.33) ◽  
pp. 225
Author(s):  
Hee-kyung Moon ◽  
Sung-kook Han ◽  
Chang-ho An
Keyword(s):  
Data Model ◽  
Medical Information ◽  
Open Data ◽  
Linked Open Data ◽  
Common Data Model ◽  
Medical Outcomes ◽  
Systematic Analysis ◽  
Development System ◽  
Observational Database

This paper describes Linked Open Data(LOD) development system and its application of medical information standard as Observational Medical Outcomes Partnership(OMOP) Common Data Model(CDM). The OMOP CDM allows for the systematic analysis of disparate observational database in each hospital. This paper describes a LOD instance development system based on SII. It can generate the application-specified instance development system automatically. Therefore, we applied by medical information standard as OMOP CDM to LOD development system. As a result, it was confirmed that there is no problem in applying to the standardization of medical information using the LOD development system.  

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